Doctors & Systematic Maltreatment

[Guest guest]

That's the problem Alan, nobody understands just have atrocious

sufferers of the symptoms of hypothyroidism are being treated - it is almost as

if those who can make things better do not wish to do so - and I do believe

that it is the hand of Big Pharma who is guiding all of this.

Yes indeed, everybody should write to their MP - just type your

post code here http://www.writetothem.com

and a page will open with the name of your MP. Click on that name, and if they

have an email address, a page will open where you can write to them direct -

and that's that. Tell them your story and the struggle you have had to get the

diagnosis you needed and the correct treatment, or if you are still being

refuses a diagnosis and therefore getting no treatment because the doctor tells

you that you don't have a thyroid problem because your thyroid function tests

are within the so called normal reference range, tell your MP about your

continued suffering. Tell also whether your doctor ONLY tests your thyroid

stimulating hormone and not your free T4 or free T3. Mainly, tell him/her that

doctors never test to see whether the thyroid hormone is actually getting into

the cells - they only test the level of thyroid hormone secreted by the thyroid

gland. Tell them that thyroxine is a mainly inactive hormone that has to

convert to the active thyroid hormone T3 and that it is T3 every cell in

your body and brain needs to make them work - and tell them there is a large

minority of sufferers who are unable to convert for many and various reasons

(we can give you these if necessary). Tell them doctors are given only 10 hours

training in endocrinology and they know little about thyroid disease, and that

the majority of endocrinologists have their specialty in diabetes, and again,

know little about thyroid disease. Tell them…….

Perhaps somebody could do a draft letter so those of you who,

like me once, know little about thyroid problems can use as a basis for adding

your own information. Any volunteers please.

Alan, we have tried the Early Day Motion. First one was taken up

by a councillor who was a naughty boy, with other boys, and he had to go - and

at that time, we were well on the road to getting signatures from a lot of

MP's. We have to have over half the MP's signing an EDM for it to be discussed

in The House. The next EDM we got 166 signatures, but then they suddenly

stopped dead and no more signatures were forthcoming.

I later found that the British Thyroid Association had contacted

all the MP's telling them that their statements. guidelines were agreed by the

whole of endocrinology, and as such, they would not be changing any of these

and therefore, MP's were wasting their time in signing it. That was that.

However, we do need to take some action such as you have set out

below - but as has stated, every which way we turn is thwarted, and we

need to find a way to get past the BTA and the Royal College - The RCP are

answerable to nobody - not even parliament.

Luv - Sheila

Good point Sheila. I did not realise myself how badly

Thyroid problems are addressed, no doubt costing the NHS more than focusing on

better GP awareness, knowledge on how to treat this whole topic. So writing to

your MPs is the best action. It is also very easy to do.

Just go to the web site 'writetothem' and in ten

minutes you will have an email in the form of a letter on its way to your

MP. It really is that easy. You will also get a reply. I have done it before

myself as well as attending an action day at the Houses of Parliament where

100s of people had their MPs come down from their offices and sit with heir

constituents to go through the issues at hand, take notes, and the

prepared requirements to address them with the appropriate Minister. Also

calling for an Early Day Motion.

It works, fun, you get to tour the HofP and meet a lot of

like minded people.

Mass actions at the Houses of parliament can be arranged

through the admin offices. But only worth doing if you get at least 100-200

people meeting with tens of MPs

You might even get on TV ;o)

Kind Regards

Alan