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Thanks Rich,

I really do appreciate your answer. You have been a hero to people with ME and

CFS for a long time

now.

I've been following the Yasko group and remain very interested in the treatments

and progress.

Been experimenting at home by myself but limited in funds.

What you said about DI is really interesting.

When I stopped sweating my body " blew up " alarmingingly and I put on a ton of

weight. My stomach

feels like a full hotwater bottle. It was around that time that the constant

urination (I had this

for the first 10 years of M.E.) stopped. Over 10 years ago now.

Doctors in New Zealand tested me for the diabtes mellitis on a number of

occasions because of the

thirst and urination. The test were always normal. They didn't test me for DI.

I had suspected diabetes insipidus myself from reading about it. However the

urination and thirst

stopped and I put it aside. Maybe this is a variation on it?

Was there anything new in the detox book that you mentioned about lack of

sweating?

The reason I asked about sweating was that it is a way of detoxing.

If not please don't worry and I'll follow things on the Yasko group.

Kindest regards,

Annette

__________________________________________________________

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The World's Favourite Email http://uk.docs./nowyoucan.html

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" rvankonynen " <richvank@...> wrote:

>

> Hi, Annette.

>

> I will offer some comments about what I think might be behind the

> problemn of inability to sweat, and you can decide

> whether you think they apply to your case.

>

> My best guess is that low circulating blood

> volume is what accounts

> for this problem in ME/CFS. When the blood

> volume is low, the

> sympathetic nervous system adjusts the flow

> to various parts of the

> body to make sure the vital organs receive

> enough perfusion. Skin is

> low on the priority list, so they receive

> less blood flow. With less

> blood flow to the skin, I think it inhibits sweating in order to

> conserve water.

>

> Other symptoms that may accompany this situation are dry skin and

> intolerance of temperature changes, since blood

> flow to the skin are

> important for these as well.

>

> So what causes the low blood volume? I think that many people with

> ME/CFS have a (usually " mild " ) case of central diabetes insipidus

> (not the same as the more familiar diabetes mellitus, that involves

> blood sugar and insulin). Central diabetes insipidus is caused by

> too low a rate of secretion of arginine vasopressin

> (aka antidiuretic

> hormone) by the pituitary gland. In my hypothesis for the

> pathophysiology of ME/CFS, this results from depletion of reduced

> glutathione in the cells of the hypothalamus, where this hormone is

> actually synthesized, though it is released into the blood stream

> from the pituitary.

>

> Central diabetes insipidus is usually

> accompanied by excessive daily

> urine volume (more than about 2.5 liters per day),

> and constant

> thirst. A person with this disorder drinks a

> lot of fluid, but still

> can't keep up with the loss into the urine, so they operate in a

> hypovolemic state constantly.

>

> So what can be done about this? The conventional approach is to

> drink more water, accompanied by more salt intake, and some also

> prescribe fludrocortisone. I don't favor that

> approach. My current

> hypothesis is that there is a partial block

> of the enzyme methionine

> synthase, in the methylation cycle, and this is what causes the

> glutathione level to stay too low, by a vicious circle mechanism.

> The " simplified treatment approach " that I proposed (with Trina's

> help) is directed at correcting this problem. Since our moderator

> has asked that this be discussed in the CFS-Yasko

> group, rather than

> here, I refer you there for details. In the files section of that

> group are the things I've written about it, and the July 18, 2007

> update is the most current.

>

> I hope this helps.

>

> Rich

Consider also TCM deficient kidney yang (ang also yin) in

re high water loss but not to the level of diabetes

inspidus dx. Sometimes this is seen post-mono. I have also

seen it post colonics. What I call " deep integrative nutrition "

to include classic TCM herbal formulas can be very helpful

in that situation. Deficient kidney yang is also correlated

to many and various low hormone levels and symptoms may predate

conventional dx of those low hormone levels. Copper levels

are another thing to look at in high water loss but not to the

level of diabetes inspidus, possible deficient copper.

Re sweating, consider also low thyroid, low neurotransmitter

levels that result in less adrenalin than normal, and low

acetylcholine especially. All these remediable with

hormones and/or precursor supplements.

I'd want to go through all of the above systematically.

Carol Willis

March 8, 2008, cbwillis9@...

willis_protocols

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  • 8 months later...

We never got an answer.  I have noticed that it is milder now that our son's

tonsils have been removed.  He will be 3 next month.  When he plays hard he

sweats on his hairline and back, but it is mild.  He does randomly sweat in the

same areas just after falling asleep sometimes.  It isn't enough to wet his

clothing, but I do notice his hair is damp.  He has not had a fever since the

surgery in August, but I still notice some of the other symptoms he had prior. 

He gets a mildly swollen face and irregular sleeping habits once in awhile that

would coincide with when he would have been fevering.

 

Pruden

Tyler Pruden 2yr11mo fevered since 3mo - T & A Aug 5th,2008 fever free since

Dylan Pruden 8mo

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We never got an answer.  I have noticed that it is milder now that our son's

tonsils have been removed.  He will be 3 next month.  When he plays hard he

sweats on his hairline and back, but it is mild.  He does randomly sweat in the

same areas just after falling asleep sometimes.  It isn't enough to wet his

clothing, but I do notice his hair is damp.  He has not had a fever since the

surgery in August, but I still notice some of the other symptoms he had prior. 

He gets a mildly swollen face and irregular sleeping habits once in awhile that

would coincide with when he would have been fevering.

 

Pruden

Tyler Pruden 2yr11mo fevered since 3mo - T & A Aug 5th,2008 fever free since

Dylan Pruden 8mo

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  • 1 year later...

>

> I am 35yr old male now and allways get/have hot and clammy hands. When i was

13-22 i used to sweat a lot under my arms.. i always used to cover it up with

two tops etc.

>

I've had this problem for years, I am the bane of the office because everyone

wants the room at 24 degress (boiling to me!).

Years before diagnosis I used to play lots of sport and would get soaked

(wringing wet hair and steam coming off me in winter!), everyone just used to

dismiss it saying everyone is different!! I now know the reason.. also can't

stand the cold, extremes are a real problem! I am 56 yrs but had the sweat

thing since 30.

Isabel

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I had that last year when I was taking T3 and hydrocortisone and hadn't yet

addressed my low stomach acid problem. It happened when I got warm, but

sweating was only from my head.

Sorry I can't tell you why it was happening, but it has stopped now. I am

currently taking T3, Nutri Adrenal, Nutri Adrenal Extra, and H Cl & Pepsin, not

to mention various vitamins and minerals!

Miriam

>

> > does any one suffer with times when they sweat inappropriately?

> > .x

> >

> its mainly round my head and my hair gets dripping wet,no rhyme or reason for

it at all.

>

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Yes, my oestrogen level is low too. However, my GP wouldn't prescribe any when

I discussed it with her. Is natural oestrogen available on the internet? Dr P

recommended Red Clover and Black Cohosh, but that didn't seem to do anything.

The information leaflet says it only helps to " balance " your oestrogen. It

doesn't add any.

The mercury-free dentist said my hormone levels were low because my cholesterol

levels were low (cholesterol being raw material for manufacturing hormones). I

have been eating lots of butter and eggs as he recommended, but the general

consensus these days is that dietary cholesterol does not have much influence on

levels in the body.

Miriam

>

> What's your oestrogen level Miriam. Perhaps you are actually low in

> oestrogen - which can cause hot flushes too. I also considered 'starting to

> sweat' good as it showed my metabolism was starting to function more

> normally again - at least, that's the way I looked at it.

>

> Luv - Sheila

>

> I have been having hot flushes (for the last 20 years), and haven't found

> Serenity to make much, if any, difference, though it has improved my sleep.

> They seem to be related to low blood sugar, and I am still working on that

> problem. There can be lots of factors involved so there are many different

> things to try. :-(

>

> http://www.drmyhill.co.uk/wiki/Hypoglycaemia_-_the_full_story

>

> I have recently started being able to sweat, but it is not excessive. I feel

> that is a good thing as it helps with detoxification.

>

> , when you say " inappropriate " sweating, do you mean excessively, or

> simply at random times?

>

> Miriam

>

> ---

>

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