Sweating

[Guest guest]

I see!! Guess if it fits eh...Kathy B.. Motley <dmotley@...> wrote:

From: " Motley" Date: Mon, 8 Nov 2004 18:18:27 -0500Subject: RE: sweating

affectionate term for tx.

De

Faith is the ability to not panic.

-----Original Message-----From: kathy brunow [mailto:kathy-boo@...] Sent: Saturday, November 06, 2004 2:45 PMHepatitis CSupportGroupForDummies Subject: RE: sweating

Rat Poison De???? Kathy B.Kathy Brunow

[Guest guest]

Hi ,

It sure is!! When I was dx in 2002, I would have extreme sweats. I'd get ready

for work and by the time I got there I was already drenched. I also had (and

have) swollen lymph nodes, extreme fatigue and my wbc was elevated. Mine seems

to be more on the lymphoma side than the leukemia side. By the way, I'm 42 and

live in AZ. )

Lori

sweating

I have been watching and reading so many of the posts and I am so glad

that I joined this group. I do have a question. My husband has CLL

and I am wondering if intense sweating is something that goes along

with it? Thanks

[Guest guest]

thanks for the response my hubby was just diagnosedin

June and his white cell count is at 82,000 has the

extrememfatigue and the swollen lymph glands. He is 48

and we llive in FL

--- Lori Dobbins <loridobbins@...> wrote:

> Hi ,

> It sure is!! When I was dx in 2002, I would have

> extreme sweats. I'd get ready for work and by the

> time I got there I was already drenched. I also had

> (and have) swollen lymph nodes, extreme fatigue and

> my wbc was elevated. Mine seems to be more on the

> lymphoma side than the leukemia side. By the way,

> I'm 42 and live in AZ. )

> Lori

> sweating

>

>

> I have been watching and reading so many of the

> posts and I am so glad

> that I joined this group. I do have a question.

> My husband has CLL

> and I am wondering if intense sweating is

> something that goes along

> with it? Thanks

>

>

>

>

>

>

>

[Guest guest]

Hi ,

My name is Judy. My husband also has CLL, was diagnosed in October. He also

experiences intense sweating. We asked his doctors about it, it's 'normal' for

CLL patients to experience. He also tends to either be chilly or really hot,

his body temperature doesn't change but how he feels does as far as being

hot or cold. He also noticed increased oiliness on the skin on his face.

Apparently, all to be expected. Where are you located? We are in Dutchess

County,

New York (near Poughkeepsie). Judy

[Guest guest]

Hi Lori. I live in Florida too. What part do you live in?

Tony

[Guest guest]

Did I say FL? I actually live in Arizona. ) Sorry about that one. Lori

Re: sweating

Hi Lori. I live in Florida too. What part do you live in?

Tony

[Guest guest]

That is difficult to say --- I would suggest reviewing the **CLASSIC**

definition of herxing (IMHO: the term " herx " has been misused very

badly in the last few years as an excuse to ignore many symptoms that

should not be ignored).

http://lassesen.com/cfids/herxheimer.htm

>

> Is sweating part of the Herxing process? Thank you!

> Sue

>

[Guest guest]

Hi Fran, I just thought I'd comment. I am trying to take BP as well

when I have symptoms. I sometimes get sweaty too but usually it's a

jittery/shakey feeling inside or feeling clamy. Today I also took my

BP with symptoms... this time it was 129/80... pulse 90.

I'm still waiting to hear aldo suppression results.

I hope your April 26 appt. goes well.

How long do your symptoms last? I'm curious. For me, it's usually

no longer than 1/2 hour and if I eat food I feel better.

I also have low k and other issues. I wonder if my problem is from

diuretics too.

Take care,

>

> Dr. Grim,

>

> I had one of those sweating incidents yesterday and just happened

to

> take my bp just before it started. My bp was 169/74 Pulse 78.

> The " hot flash " started just before the bp monitor finished

reading.

> I checked my bp about 10 minutes later and it ws 168/74. That is

at

> least the third time I have noticed that. If I start checking my

bp

> when the hot flash starts, it is usually good. It seems like the

bp

> jumps up then goes down when the hot flash starts. I have them

> several times a day and at night. I can't tolerate heat and keep

my

> house at about 66 deg in the daytime and am usually quite

comfortable

> in a tee shirt. At night, I turn my heat up to about 68 because my

> bedroom and bath are in the NW corner of the house and colder than

> the rest of the house. I always sleep with the ceiling fan on and

> when I get hot at night, I turn on a second fan that is blowing

> directly on my head. Sometimes at night, they will last an hour or

> more. Warmer temp-ereratures make the hot flashes happen more

> frequently. Sometimes in warm weather, I have to hold a cold wet

> cloth to the back of my head to get them to stop. I do not have

> headaches with them. When I am off of spiro, they are more

frequent

> and severe and I do feed my heart pounding. My latest aldo level

is

> 20 and renin is .9 and I know you think that I have PA but I

don't.

> My also is suppressed by saline and I was told that meant it wasn't

> caused by a tumor, but no one told me what could be causeing it. I

> asked this new endo what could cause it and he said sometimes it is

> caused by diuretics. That makes sense to me because regular

> diuretics (even potassium-sparing) make my bp jump up. Also, when

I

> had my first BP crisis, both K and NA were at the bottom of the

> range. Spiro does not control my bp but when I am off of it, BP is

> much worse. Every time my aldo is tested, it is after I was taken

> off of spiro and given other diuretics. The endo referred me to a

> surgeon and I have an appointment for Apr 26. Before I do any more

> testing, I will have PTH surgery and see what that cures.

>

> Fran

>

[Guest guest]

In a message dated 4/16/07 12:50:26 AM, cjant@... writes:

>

> Hi Fran, I just thought I'd comment. I am trying to take BP as well

> when I have symptoms. I sometimes get sweaty too but usually it's a

> jittery/shakey feeling inside or feeling clamy. Today I also took my

> BP with symptoms... this time it was 129/80... pulse 90.

> I'm still waiting to hear aldo suppression results.

> I hope your April 26 appt. goes well.

> How long do your symptoms last? I'm curious. For me, it's usually

> no longer than 1/2 hour and if I eat food I feel better.

> I also have low k and other issues. I wonder if my problem is from

> diuretics too.

> Take care,

>

>

>

>

Mostly from low K is my guess.

May your pressure be low!

Clarence E. Grim, B.S., M.S., M.D.

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

In a message dated 4/15/07 3:47:31 PM, frand2@... writes:

>

> Dr. Grim,

>

> I had one of those sweating incidents yesterday and just happened to

> take my bp just before it started. My bp was 169/74 Pulse 78.

> The " hot flash " started just before the bp monitor finished reading.

> I checked my bp about 10 minutes later and it ws 168/74. That is at

> least the third time I have noticed that. If I start checking my bp

> when the hot flash starts, it is usually good. It seems like the bp

> jumps up then goes down when the hot flash starts. I have them

> several times a day and at night. I can't tolerate heat and keep my

> house at about 66 deg in the daytime and am usually quite comfortable

> in a tee shirt. At night, I turn my heat up to about 68 because my

> bedroom and bath are in the NW corner of the house and colder than

> the rest of the house. I always sleep with the ceiling fan on and

> when I get hot at night, I turn on a second fan that is blowing

> directly on my head. Sometimes at night, they will last an hour or

> more. Warmer temp-ereratures make the hot flashes happen more

> frequently. Sometimes in warm weather, I have to hold a cold wet

> cloth to the back of my head to get them to stop. I do not have

> headaches with them. When I am off of spiro, they are more frequent

> and severe and I do feed my heart pounding. My latest aldo level is

> 20 and renin is .9 and I know you think that I have PA but I don't.

>

YOU DO have PA you just need to find a Dr. who understands this.

> My also is suppressed by saline and I was told that meant it wasn't

> caused by a tumor, but no one told me what could be causeing it.

>

No it means you have early PA.

> I

> asked this new endo what could cause it and he said sometimes it is

> caused by diuretics. That makes sense to me because regular

> diuretics (even potassium-sparing) make my bp jump up.

>

Never heard of this. Is this guy an BP expert?? I suspect not.

> Also, when I

> had my first BP crisis, both K and NA were at the bottom of the

> range. Spiro does not control my bp but when I am off of it, BP is

> much worse. Every time my aldo is tested, it is after I was taken

> off of spiro and given other diuretics. The endo referred me to a

> surgeon and I have an appointment for Apr 26. Before I do any more

> testing, I will have PTH surgery and see what that cures.

>

Have they localized your PTH problem by vein sampling yet or scan. I have

had a pt with Ca problems that correccted after his PA was cured by taking a

tumor out.

Have you tried Inspra and how much spiro have you been on. I go up to 400 mg

a day?

We have published some time ago that taking out PTH tumors does not improve

BP on the average.

>

> Fran

>

>

>

May your pressure be low!

Clarence E. Grim, B.S., M.S., M.D.

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

,

I don't get jittery or shakey or anything like that, I just get hot

and then start sweating. The heat starts in the back of my head and

goes down my spine. Usually it only lasts a few minutes, but are

worse if I don't get under a fan. I have them many times during the

day and about 2 or 3 times at night. Sometimes I get very tired for

a while before it starts and then I am wide awake when it starts.

Almost EVERY night, I just go to sleep and then I wake up with one of

those hot flashes. I look at the clock and see that I have only been

asleep for about 5 minutes. Since eating makes you feel better, I

still think it is low blood sugar. I used to have that, too about 30

years ago. They put me on a special diet which made it worse so I

quit it and just always kept snacks around. I eventually went away.

I was told that it is a form of diabetes but to me it is the

opposite. You should ask your Dr to do a glucose tolerance test to

see if that is it or rule it out.

Fran

> >

> > Dr. Grim,

> >

> > I had one of those sweating incidents yesterday and just happened

> to

> > take my bp just before it started. My bp was 169/74 Pulse 78.

> > The " hot flash " started just before the bp monitor finished

> reading.

> > I checked my bp about 10 minutes later and it ws 168/74. That is

> at

> > least the third time I have noticed that. If I start checking my

> bp

> > when the hot flash starts, it is usually good. It seems like the

> bp

> > jumps up then goes down when the hot flash starts. I have them

> > several times a day and at night. I can't tolerate heat and keep

> my

> > house at about 66 deg in the daytime and am usually quite

> comfortable

> > in a tee shirt. At night, I turn my heat up to about 68 because

my

> > bedroom and bath are in the NW corner of the house and colder

than

> > the rest of the house. I always sleep with the ceiling fan on

and

> > when I get hot at night, I turn on a second fan that is blowing

> > directly on my head. Sometimes at night, they will last an hour

or

> > more. Warmer temp-ereratures make the hot flashes happen more

> > frequently. Sometimes in warm weather, I have to hold a cold wet

> > cloth to the back of my head to get them to stop. I do not have

> > headaches with them. When I am off of spiro, they are more

> frequent

> > and severe and I do feed my heart pounding. My latest aldo level

> is

> > 20 and renin is .9 and I know you think that I have PA but I

> don't.

> > My also is suppressed by saline and I was told that meant it

wasn't

> > caused by a tumor, but no one told me what could be causeing it.

I

> > asked this new endo what could cause it and he said sometimes it

is

> > caused by diuretics. That makes sense to me because regular

> > diuretics (even potassium-sparing) make my bp jump up. Also,

when

> I

> > had my first BP crisis, both K and NA were at the bottom of the

> > range. Spiro does not control my bp but when I am off of it, BP

is

> > much worse. Every time my aldo is tested, it is after I was

taken

> > off of spiro and given other diuretics. The endo referred me to

a

> > surgeon and I have an appointment for Apr 26. Before I do any

more

> > testing, I will have PTH surgery and see what that cures.

> >

> > Fran

> >

>

[Guest guest]

Hey Fran,

Is there anything that can be done to help your hot flashes? I know

I need to get a glucose test done again. I've got a couple of

doctor's appts. coming up so I should get that checked again.

> > >

> > > Dr. Grim,

> > >

> > > I had one of those sweating incidents yesterday and just

happened

> > to

> > > take my bp just before it started. My bp was 169/74 Pulse 78.

> > > The " hot flash " started just before the bp monitor finished

> > reading.

> > > I checked my bp about 10 minutes later and it ws 168/74. That

is

> > at

> > > least the third time I have noticed that. If I start checking

my

> > bp

> > > when the hot flash starts, it is usually good. It seems like

the

> > bp

> > > jumps up then goes down when the hot flash starts. I have them

> > > several times a day and at night. I can't tolerate heat and

keep

> > my

> > > house at about 66 deg in the daytime and am usually quite

> > comfortable

> > > in a tee shirt. At night, I turn my heat up to about 68

because

> my

> > > bedroom and bath are in the NW corner of the house and colder

> than

> > > the rest of the house. I always sleep with the ceiling fan on

> and

> > > when I get hot at night, I turn on a second fan that is blowing

> > > directly on my head. Sometimes at night, they will last an

hour

> or

> > > more. Warmer temp-ereratures make the hot flashes happen more

> > > frequently. Sometimes in warm weather, I have to hold a cold

wet

> > > cloth to the back of my head to get them to stop. I do not

have

> > > headaches with them. When I am off of spiro, they are more

> > frequent

> > > and severe and I do feed my heart pounding. My latest aldo

level

> > is

> > > 20 and renin is .9 and I know you think that I have PA but I

> > don't.

> > > My also is suppressed by saline and I was told that meant it

> wasn't

> > > caused by a tumor, but no one told me what could be causeing

it.

> I

> > > asked this new endo what could cause it and he said sometimes

it

> is

> > > caused by diuretics. That makes sense to me because regular

> > > diuretics (even potassium-sparing) make my bp jump up. Also,

> when

> > I

> > > had my first BP crisis, both K and NA were at the bottom of the

> > > range. Spiro does not control my bp but when I am off of it,

BP

> is

> > > much worse. Every time my aldo is tested, it is after I was

> taken

> > > off of spiro and given other diuretics. The endo referred me

to

> a

> > > surgeon and I have an appointment for Apr 26. Before I do any

> more

> > > testing, I will have PTH surgery and see what that cures.

> > >

> > > Fran

> > >

> >

>

[Guest guest]

Dr. Grim,

Is this a common side effect of low K? (my jittery/shakey episodes)

>

>

> In a message dated 4/16/07 12:50:26 AM, cjant@... writes:

>

>

> >

> > Hi Fran, I just thought I'd comment. I am trying to take BP as

well

> > when I have symptoms. I sometimes get sweaty too but usually it's

a

> > jittery/shakey feeling inside or feeling clamy. Today I also took

my

> > BP with symptoms... this time it was 129/80... pulse 90.

> > I'm still waiting to hear aldo suppression results.

> > I hope your April 26 appt. goes well.

> > How long do your symptoms last? I'm curious. For me, it's usually

> > no longer than 1/2 hour and if I eat food I feel better.

> > I also have low k and other issues. I wonder if my problem is from

> > diuretics too.

> > Take care,

> >

> >

> >

> >

>

> Mostly from low K is my guess.

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, B.S., M.S., M.D.

> Senior Consultant to Shared Care Research and Consulting, Inc.

> (sharedcareinc.com)

> Clinical Professor of Internal Medicine and Epidemiology Med. Col.

WI

> Clinical Professor of Nursing, Univ. of WI, Milwaukee

>

> Specializing in Difficult to Control High Blood Pressure

> and the Physiology and History of Survival During

> Hard Times and Heart Disease today.

>

>

>

> **************************************

> See what's free at http://www.aol.com.

>

>

>

[Guest guest]

,

Antidepressants may help or stop the hot flashes, but I can't take

them because they make some of my other symtoms worse. I also have

pain that feels like inflammation on the bottome of my feet and many

drugs including antidepressants make that worse and also cause a

terrible burning sensation in my hands and feet. They are not like

hot flashes from menopause, they feel totally different. Also, I

have been told by several endos and two GYNs that they are not

menopause because estrogen doesn't help them. Basically, my body is

all screwed up. I want to have the PTH surgery and see what improves.

Fran

>

> Hey Fran,

> Is there anything that can be done to help your hot flashes? I

know

> I need to get a glucose test done again. I've got a couple of

> doctor's appts. coming up so I should get that checked again.

>

>

[Guest guest]

In a message dated 4/17/07 11:14:24 AM, frand2@... writes:

> I want to have the PTH surgery and see what improves.

>

My bet is it wont help but keep us posted.

May your pressure be low!

Clarence E. Grim, B.S., M.S., M.D.

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

I had elevated PTH and calcium levels along with my

hyperaldosteronism

After my surgery for the adrenal adenoma my levels

returned to normal

My endo also did a vitamin D level which was 11, very

low, he blamed the elevated PTH on that although on

PubMed I found an article discussing the relationship

between elevated aldosterone levels and elevated PTH.

Mentioned it to my endo but he wasn't impressed.

I am also continuing to show high fasting blood sugar

levels six months post op which is very discouraging

to me. I was 75 -80 several years ago, when I became

hypokalemic my FBS went to 99-101, two weeks ago it

was 109 even though I have lowered my triglyceride

levels, eat a great diet and exercise.

I have researched and found that the insulin

resistance should correct by 6 months post op so I am

concerned.

The many years of the excess aldosterone have done

damage to my body, no doubt. I feel great with my

life back to better than it was in a long time, just

afraid I will never be able to let my guard down.

Sweating, headaches, muscle weakness,cramping and

fatigue are all gone. Drove from South Carolina to

Central NY last Thursday and felt great after, all

those years I couldn't tolerate more than a few hours

in the car..... so many symptoms gone that I attribute

to the hyperaldosteronism even if my doctors don't

agree.

__________________________________________________

[Guest guest]

Shotzie,

After you found out about the PTH, did you take vitamin D or did you

just wait for the adrenal surgery? My vitamin D level is OK. I

wonder if I am low in some other vit/min since I stopped taking a

multivit after I found that my cal level was high. What tests did you

have for PA? Did you have a saline suppression test or AVS? I too

feel that my body is all messed up. I think the aldo just started

going up in 1999 but my calcium level was high in 1998. I don't know

what is causing what and wonder if it could be a combo of the two

causing some symptoms. I also joined a hyperPTH group, however it

isn't very active becuase I posted a message on Apr 7 and the only

one after that is some add for a diet plan or something. I have

started reading the old messages and have learned a lot. Some of

them report being cold but don't remember if it is before or after

PTH surgery. I agree with my dr who said the first step is to cure

what we know you have. He sent me to a surgeon for the PTH but the

surgeon won't operate. Like adrenal surgery, you want someone who

has a lot of experience with PTH surgery. I may try UVA but don't

want to start over again with tests. The dr I saw there checked my

calcium and PTH levels 3 times then decided it was OK. I have pretty

much decided to go to Dr. Norman's clinic in Fl. They do nothing

there buy PTH surgery.

Fran

>

> I had elevated PTH and calcium levels along with my

> hyperaldosteronism

> After my surgery for the adrenal adenoma my levels

> returned to normal

> My endo also did a vitamin D level which was 11, very

> low, he blamed the elevated PTH on that although on

> PubMed I found an article discussing the relationship

> between elevated aldosterone levels and elevated PTH.

> Mentioned it to my endo but he wasn't impressed.

>

> I am also continuing to show high fasting blood sugar

> levels six months post op which is very discouraging

> to me. I was 75 -80 several years ago, when I became

> hypokalemic my FBS went to 99-101, two weeks ago it

> was 109 even though I have lowered my triglyceride

> levels, eat a great diet and exercise.

>

> I have researched and found that the insulin

> resistance should correct by 6 months post op so I am

> concerned.

> The many years of the excess aldosterone have done

> damage to my body, no doubt. I feel great with my

> life back to better than it was in a long time, just

> afraid I will never be able to let my guard down.

>

> Sweating, headaches, muscle weakness,cramping and

> fatigue are all gone. Drove from South Carolina to

> Central NY last Thursday and felt great after, all

> those years I couldn't tolerate more than a few hours

> in the car..... so many symptoms gone that I attribute

> to the hyperaldosteronism even if my doctors don't

> agree.

>

>

>

> __________________________________________________

>

[Guest guest]

>

> Shotzie,

> After you found out about the PTH, did you take vitamin D or did

you

> just wait for the adrenal surgery? My vitamin D level is OK. I

> wonder if I am low in some other vit/min since I stopped taking a

> multivit after I found that my cal level was high. What tests did

you

> have for PA? Did you have a saline suppression test or AVS? > Fran

>

>

I have been taking Vitamin D since February, I am to stop it next

week and determine what follow up labs are needed at my next endo

appt May 7th. My PTH corrected before I started taking the Vit D so

I still think the hyperaldosteronism had something to do with it but

I don't have MD after my name so my opinion doesn't count.

My PA was found last July/August by a nephrologist. I had been

hypokalemic and ill for over two years, saw numerous docs and went to

two different Primary docs who didn't put 2+2 together to even

suspect hyperaldosteronism.

The nephrologist did a Aldosterone/Cortisol/Renin blood test, then a

CT of the adrenals along with a CT angiogram.

An adenoma showed up on the left adrenal, my hypertension was so out

of control, my symptoms so severe and I couldn't tolerate the Spiro

or any other meds so they did an AVS which clearly showed the excess

aldosterone coming from the left adrenal.

My symptoms and inability to control my BP were ignored for so long,

I was told I had fibromyalgia and chronic fatigue. My potassium

level was low even without diuretics and with supplementation and a

high potassium/low sodium diet.

No one even would address the rising FBS levels. Around here until

you are critically ill and need hospitalization no one does anything

and by then it is sometimes too late. I am lucky I didn't stroke or

have a heart attack.

I have found you need to go to a facility and doctors who are

familiar with your condition, can't trust local docs to read and

research.

Good luck with finding the help you need.

[Guest guest]

In a message dated 4/29/07 3:30:44 PM, frand2@... writes:

>

> Shotzie,

>

> When I was first diagnosed with PA in Oct 02, nothing showed up on

> the scan. Finally another scan done in spring 05 showed an " area of

> nodularity " on my left adrenal. I went to UVA for a saline

> suppression test and my aldo was suppressed by saline so the endo

> said the high aldo wasn't caused by a tumor. I don't have any

> problems with spiro and it helps my bp but doesn't control it. Since

> my sodium level is low, I am afraid to follow the DASH diet. I

> thought I was making progress with the PTH diagnosis until I saw the

> surgeon. I have pretty much decided to go to Fla for PTH surgery.

>

> Fran

>

>

>

Please review the data on how Parathyroid surgery makes people feel better

and if it chnages

BP. Our own carefull data suggest that BP does not get better.

Once again you have early (personal or individual) PA the is suppressible in

thie stage because you turmor(s) are not producing 2 x your nomral

aldosterone.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

You did not mention that removal of the tumor has reversed all the

problems???

In a message dated 4/29/07 12:51:56 PM, shotzie@... writes:

>

>

> >

> > Shotzie,

> > After you found out about the PTH, did you take vitamin D or did

> you

> > just wait for the adrenal surgery? My vitamin D level is OK. I

> > wonder if I am low in some other vit/min since I stopped taking a

> > multivit after I found that my cal level was high. What tests did

> you

> > have for PA? Did you have a saline suppression test or AVS? > Fran

> >

> >

>

> I have been taking Vitamin D since February, I am to stop it next

> week and determine what follow up labs are needed at my next endo

> appt May 7th. My PTH corrected before I started taking the Vit D so

> I still think the hyperaldosteronism had something to do with it but

> I don't have MD after my name so my opinion doesn't count.

>

> My PA was found last July/August by a nephrologist. I had been

> hypokalemic and ill for over two years, saw numerous docs and went to

> two different Primary docs who didn't put 2+2 together to even

> suspect hyperaldosteronism.

>

> The nephrologist did a Aldosterone/ The neph The nephrologist did a A

> CT of the adrenals along with a CT angiogram.

> An adenoma showed up on the left adrenal, my hypertension was so out

> of control, my symptoms so severe and I couldn't tolerate the Spiro

> or any other meds so they did an AVS which clearly showed the excess

> aldosterone coming from the left adrenal.

>

> My symptoms and inability to control my BP were ignored for so long,

> I was told I had fibromyalgia and chronic fatigue. My potassium

> level was low even without diuretics and with supplementation and a

> high potassium/low sodium diet.

> No one even would address the rising FBS levels. Around here until

> you are critically ill and need hospitalization no one does anything

> and by then it is sometimes too late. I am lucky I didn't stroke or

> have a heart attack.

>

> I have found you need to go to a facility and doctors who are

> familiar with your condition, can't trust local docs to read and

> research.

> Good luck with finding the help you need.

>

>

>

>

>

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

In a message dated 4/29/07 8:34:11 AM, frand2@... writes:

> The dr I saw there checked my

> calcium and PTH levels 3 times then decided it was OK. I have pretty

> much decided to go to Dr. Norman's clinic in Fl. They do nothing

> there buy PTH surgery.

>

Beware of Drs when you tell them you are a nail and they have a hammer.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

In a message dated 4/29/07 5:13:21 PM, djmeath@... writes:

>

> Shotzie, Where did you have your surgery? How large was your tumor? I have

> just had a ct scan and they found a tumor 2.2 centimeters in my adrenal gland.

> The doctor just wants to monitor for now.

>

Good judgement.

> I am on 50 ml of spirolactone and 25 of procardia and postassium

> suppliments (20 MEQ/day). My blood pressure is under control with medication,

but I

> have tingling in feet and hand that keep me up at night, also muscle fatigue

> after exercise. Did they remove the whole adrenal gland? dJ

>

>

>

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Shotzie,

When I was first diagnosed with PA in Oct 02, nothing showed up on

the scan. Finally another scan done in spring 05 showed an " area of

nodularity " on my left adrenal. I went to UVA for a saline

suppression test and my aldo was suppressed by saline so the endo

said the high aldo wasn't caused by a tumor. I don't have any

problems with spiro and it helps my bp but doesn't control it. Since

my sodium level is low, I am afraid to follow the DASH diet. I

thought I was making progress with the PTH diagnosis until I saw the

surgeon. I have pretty much decided to go to Fla for PTH surgery.

Fran

>

>

> I have been taking Vitamin D since February, I am to stop it next

> week and determine what follow up labs are needed at my next endo

> appt May 7th. My PTH corrected before I started taking the Vit D

so

> I still think the hyperaldosteronism had something to do with it

but

> I don't have MD after my name so my opinion doesn't count.

>

> My PA was found last July/August by a nephrologist. I had been

> hypokalemic and ill for over two years, saw numerous docs and went

to

> two different Primary docs who didn't put 2+2 together to even

> suspect hyperaldosteronism.

>

> The nephrologist did a Aldosterone/Cortisol/Renin blood test, then

a

> CT of the adrenals along with a CT angiogram.

> An adenoma showed up on the left adrenal, my hypertension was so

out

> of control, my symptoms so severe and I couldn't tolerate the Spiro

> or any other meds so they did an AVS which clearly showed the

excess

> aldosterone coming from the left adrenal.

>

> My symptoms and inability to control my BP were ignored for so

long,

> I was told I had fibromyalgia and chronic fatigue. My potassium

> level was low even without diuretics and with supplementation and a

> high potassium/low sodium diet.

> No one even would address the rising FBS levels. Around here until

> you are critically ill and need hospitalization no one does

anything

> and by then it is sometimes too late. I am lucky I didn't stroke

or

> have a heart attack.

>

> I have found you need to go to a facility and doctors who are

> familiar with your condition, can't trust local docs to read and

> research.

> Good luck with finding the help you need.

>

>

>

[Guest guest]

Shotzie, Where did you have your surgery? How large was your tumor? I have

just had a ct scan and they found a tumor 2.2 centimeters in my adrenal gland.

The doctor just wants to monitor for now. I am on 50 ml of spirolactone and 25

of procardia and postassium suppliments (20 MEQ/day). My blood pressure is

under control with medication, but I have tingling in feet and hand that keep me

up at night, also muscle fatigue after exercise. Did they remove the whole

adrenal gland? dJ

Re:Sweating

I had elevated PTH and calcium levels along with my

hyperaldosteronism

After my surgery for the adrenal adenoma my levels

returned to normal

My endo also did a vitamin D level which was 11, very

low, he blamed the elevated PTH on that although on

PubMed I found an article discussing the relationship

between elevated aldosterone levels and elevated PTH.

Mentioned it to my endo but he wasn't impressed.

I am also continuing to show high fasting blood sugar

levels six months post op which is very discouraging

to me. I was 75 -80 several years ago, when I became

hypokalemic my FBS went to 99-101, two weeks ago it

was 109 even though I have lowered my triglyceride

levels, eat a great diet and exercise.

I have researched and found that the insulin

resistance should correct by 6 months post op so I am

concerned.

The many years of the excess aldosterone have done

damage to my body, no doubt. I feel great with my

life back to better than it was in a long time, just

afraid I will never be able to let my guard down.

Sweating, headaches, muscle weakness,cramping and

fatigue are all gone. Drove from South Carolina to

Central NY last Thursday and felt great after, all

those years I couldn't tolerate more than a few hours

in the car..... so many symptoms gone that I attribute

to the hyperaldosteronism even if my doctors don't

agree.

____________ _________ _________ _________ _________ __

[Guest guest]

One of the N.I.H. articles I read recently :

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=16292348 & dopt=Abstract

showed dietary sodium restriction and " loading " as the independant

variables in studying pts who were " normokalemic " but hypertensive. As

with spiro, it is becoming a test for more subtle cases of too much

aldo. These researchers also mention that " it is becoming clear that

aldosterone is being produced in ways we do not yet understand. "

There are cases of people who have both adrenals out, become

ian, and still have hyperaldo. Dietary sodium is so basic to

blood pressure control, and compared to drugs, safest. The 1500mg or

2500mg daily total Na intakes are considered fundamental to minimizing

the need for antihypertensive meds, and/or amounts of those needed.

Another one showing that spironolactone is still used as the IV :

http://www.ingentaconnect.com/content/rcop/cm/2005/00000005/00000001/

art00016

If researchers are so up on this (citing the current AMA estimate of 10

percent of ALL hypertensives - and 1/3 of all those w/HTNH who are

hypokalemic) relatively high prevalence of PA (or PAH, primary

aldosterone hypertension) in the general population, how come most

doctors think " it is soooo rare? "

I wonder where the regulations on continuing education went? Along

with the economy of Rome ca. 325?

Dave

On Apr 29, 2007, at 1:29 PM, pagirl1946 wrote:

> Shotzie,

>

> When I was first diagnosed with PA in Oct 02, nothing showed up on

> the scan. Finally another scan done in spring 05 showed an " area of

> nodularity " on my left adrenal. I went to UVA for a saline

> suppression test and my aldo was suppressed by saline so the endo

> said the high aldo wasn't caused by a tumor. I don't have any

> problems with spiro and it helps my bp but doesn't control it. Since

> my sodium level is low, I am afraid to follow the DASH diet. I

> thought I was making progress with the PTH diagnosis until I saw the

> surgeon. I have pretty much decided to go to Fla for PTH surgery.

>

> Fran

>

>