Hashi/Graves

[Guest guest]

Hello Sheila,

I feel stuck for words, you work so tirelesly for us all and give so much.

I just want to say special people do special things.

I will re read what Theodora has written in the morning to digest it.

Thankyou

Love Stevie

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> Stevie - did you see Dr Theodora's response to your questions on the Forum?

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> Luv - Sheila

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[Guest guest]

Hi Theodora,

I just wanted to say thankyou for giving your time and attention to my posts.

I shall take my time to digest all that you have written, and put into action

the things i need to address.

Thankyou once again.

love Stevie

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> Hi Stevie

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> Sheila has drawn my attention to your case.

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[Guest guest]

Hello Shiela,

Thankyou for your reply, the information did help, sorry i haven't got back to

everyone as quick as i would like, i have just been tired.

has been in touch with her doc, and it gets worse. her TSH was 5.18 is

now 7.5 ref 0.35-5-5. The doctor told her they don't want to treat her untill

her TSH is a 10 and the fact that the TT4 has improved she will not see an

endeo, with her last results the doc thought she was hyper not hypo,

now thinks she was having a hashi attack, Also her B12 is 211, that is the cut

off line, Having it my self that is when i started B12 injections, we both use

the same surgery, I know if you lived in Japan anyone under 500 is classed as

B12 anemia, also i would like her to have a blood test to see if she has

antibiodies because then its prenious anemia, she also has vetiligo on her

face.

Both the girls have started all the vitamins and N/A.

I am disgusted, so we are planning our next step to take.

Do you know Sheila if changing the pill to progesterone only, they call it the

mini pill, if that would help to stop getting a false reading,as they would not

be oestrogen based.

Oh boyfriend after reading Dr P book, i have some of these symtons,

resting pulse is 50 temp 35.5, family history to. We are hoping he will get

tested.

Thankyou for your support Sheila.

Love Stevie

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> Hi Stevie

>

> Total T4 and free T4 are two separate tests that can help the doctor

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[Guest guest]

*** has been in touch with her doc, and it gets worse. her TSH was 5.18 isnow 7.5 ref 0.35-5-5. The doctor told her they don't want to treat her untillher TSH is a 10 and the fact that the TT4 has improved she will not see anendeo, with her last results the doc thought she was hyper not hypo, now thinks she was having a hashi attack, Also her B12 is 211, that is the cutoff line,

Hello Stevie,

Sorry to butt in here – I just read this, though haven't read any of what went before, so perhaps I am out of line, but -

why does your daughter put up with this? -why does she not just change GP's? We should vote with our feet! Plenty more fish in the sea and many GP's will diagnose and treat with a TSH above 5…. – mine did.

And you are very right about the B12 level. It is way, way too low. If the doc won't give her injections, then treating herself with sublingual Solgar B12 nuggets (I would take 2 nuggets/day) would help -

http://www.solgar.co.uk/product/vitamin-b-12-1000ug-nuggets-250-E3230.html

Best wishes,

[Guest guest]

Hello ,

Thankyou for your reply, This is her first, nhs test result, it was just a

couple of weeks ago that she had the genova test done, that got her their.

I am so shocked , i never dreamt they would not treat her, i thought it

would be so easy because of our family history.

Even my niece got diagnosed this week she is 22, yet they told my other daughter

at 34 she is not old enough to have it. So all 3 diagnosed in one week.

, only got her phone call from the doc 5 o'clock last night.

I think she will go to a different doc if he wont agree, ithink she will ask

for a referral to and endeo, if no joy their, she will self treat. I will catch

up with her some time today, now she has had time to sleep on it.

I really want her to have the antibiodies check for the B12, its so important.

thankyou for the the link for b12, I have added it to my favorites.

I really thought with m whole family having it, the next generation, it wouldn't

be a question. I wonder holding them out to be a 10, is this a financial thing

with the doctors.

Thankyou .

Love Stevie

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> Sorry to butt in here – I just read this, though haven't read

> any of what went before, so perhaps I am out of line, but -

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[Guest guest]

It does get worse Stevie - THIS IS APPALLING. What

needs to do now is to write a letter to her GP and send a copy to the Head of

Practice. Tell her to

List her symptoms and signs.

List every family member who has a thyroid or autoimmune

disease.

Take her basal temperature for 4 or 5 mornings before she gets

out of bed and list these if under 97.8 degrees F.

List the other blood tests she needs done to see whether any of

them are low in the reference interval. These are ferritin, vitamin D3, magnesium,

folate, copper and zinc. If any ARE low, her normal or replacement thyroid

hormone cannot be utilised in the cells.

Tell the GP that as she is NOT a thyroid specialist, she now

wishes to be referred to an endocrinologist without delay, especially as

endocrinologists in America, Germany, Belgium, Sweden and other countries have

realised the TSH ref. interval of 0.5 to 5.0 was far too wide and they realised

they were missing many patients suffering hypothyroidism, and they therefore

reduced the ref. range with the upper level no higher than 3.0 and some of them

with an upper level of 2.5. It is ONLY the BTA that decided to INCREASE the

level to 10.0, a level unmatched by any other country in the world. It

does appear that this is aimed at stopping patients being given a diagnosis and

saving their practice money, because all patients given a diagnosis of

hypothyroidism get free prescriptions for everything. MUST stress that

she will not take NO for an answer, and if her GP refuses to refer her, with

such a high TSH ref. range, that she will take further action and report the

surgery for leaving patients to suffer without treatment and without allowing

them a second opinion, especially when it is obvious the GP in question knows

little about thyroid disease.

One thing I would mention to her GP is to tell her that she is

supposed to be treating her patient's symptoms and not treating a bit of paper

- as she is doing.

She should mention also that with a B12 result so low, she would

like a referral to a haematologist, again her GP is a GP, nothing more, nothing

less and needs specialist intervention. Check out http://hcd2.bupa.co.uk/fact_sheets/html/anaemia_b12.html#5

She should then ask for the letter of requests to be placed into

her Medical Notes, and send a copy to the Head of Practice. If the GP does

nothing, she should be reported to the local Primary Care Trust.

I am unable to answer your question about progesterone only and

whether this would make a difference though I hope somebody else can help you

Stevie.

Luv - Sheila

Thankyou for your reply, the information did help, sorry i haven't got back to

everyone as quick as i would like, i have just been tired.

has been in touch with her doc, and it gets worse. her TSH was 5.18 is

now 7.5 ref 0.35-5-5. The doctor told her they don't want to treat her untill

her TSH is a 10 and the fact that the TT4 has improved she will not see an

endeo, with her last results the doc thought she was hyper not hypo,

now thinks she was having a hashi attack, Also her B12 is 211, that is the cut

off line, Having it my self that is when i started B12 injections, we both use

the same surgery, I know if you lived in Japan anyone under 500 is classed as B12

anemia, also i would like her to have a blood test to see if she has

antibiodies because then its prenious anemia, she also has vetiligo on her

face.

Both the girls have started all the vitamins and N/A.

I am disgusted, so we are planning our next step to take.

[Guest guest]

Hello Stevie,

***I have an app at the hospital 18 Aug for a synacthen test at 9 40, if i canremember this is not a good time is it. I am surprised as they haven't seen me.Tests first then app in clinic for results.

Like you, I thought that a synacthen test should be done as early as possible, but when I looked it up, it said that "peak cortisol responses are unaffected by the time of day", although it should be done in the morning -"because baseline ACTH levels give a better clue as to the type of adrenal insufficiency". – please see:

http://www.dundee.ac.uk/medther/tayendoweb/images/short%20synacthen%20test.pdf

This - as I understand it – means that it would be better to have the test done as early as possible, because the majority of our cortisol is produced in the early hours and so our highest cortisol levels should be between the hours of 6 and 8 am. In other words, if this test were done early enough to get a reliable baseline cortisol figure, it would be possible to draw better conclusions from the test. I would turn up at least half an hour early for the appointment – with a bit of luck they might start a bit earlier if they are not too busy.

http://en.wikipedia.org/wiki/ACTH_stimulation_test taken from here….

Cortisol stimulation

In healthy individuals, the cortisol level should double from a baseline of 20-30 ug/dl within 60 minutes. For example, if the serum cortisol level was 25 ug/dl before the stimulation, it should reach at least 50 ug/dl.

Interpretation for primary adrenal insufficiency and 's disease

The baseline cortisol level in people with adrenal insufficiency is usually near 15 ug/dl. An ACTH stimulation test that raises the cortisol concentration to 20 ug/dl would support the diagnosis of primary adrenal insufficiency. In 's disease, baseline cortisol is well below 10 ug/dl and rises no more than 25 percent.

Interpretation for secondary adrenal insufficiency

ACTH may dramatically stimulate cortisol from the low baseline value encountered in patients suffering from secondary adrenal insufficiency. Stimulation resulting in a greater than 14-fold increase in serum concentration over 30 minutes has been reported, although more typically serum cortisol levels will double or triple from baseline. The lower the baseline cortisol, the more likely it is that the patient's cortisol will increase by a large amount.[12]

However, at any time of day an ACTH stimulation would determine if your adrenals are basically working or not. If the figure after stimulation of the adrenals at least doubles within the hour, then you will be told all is "normal". Make sure you get a copy of the actual results when you get the verdict, so you have the actual figures.

***Do you think it best i just take 1/4 and stop pushing myself, i did find on thesearch engine someone very similar under Dr P and he told her to put 1 tablet ofhc into a glass of water and let it dissolve, then sip throughout the day.

Please never follow any advice if or how to take steroids from a basically unknown source on the internet. If you are under the care of Dr. P. then ask him and only him directly what you should do. What is right for one might be wrong for another. In any case, please do not take ANY steroids before undergoing the Synacthen test because that would falsify the results.

I can't recommend how much NA you should take. You obviously react to it and there must be a reason for that – so I would err on the side of caution. But you might need to stop all adrenal support (like Nutri Adrenal) anyway before the Synacthen test. I am not quite sure how many hours or days before the test - you could ask either Dr. P. or phone Nutri direct and explain that you are having an ACTH stim test coming up and ask which supplements to stop before the test.

I also need something for the liver, i know their is a problem cause i canttake my omega 3 which i loved, i have done another search and found tincturemilk thistle, is this gentle, i really don't want to create a drama.

In my opinion there should not be a problem with taking a good quality milk thistle. A course of MT cleanses the liver quite effectively from toxins.

With best wishes,

[Guest guest]

Hello christina,

Thankyou so much for all that infomation, very much appreciated.

Love Stevie

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> Hello Stevie,

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[Guest guest]

Hi, Haven't tried a tincture of milk thistle, but when I took the dried herb gas production went into overload. I'm sure I caused global warming all by myself. It was so foul that my family begged me to stop taking it. Take your fish oil with food to prevent 'blow back' > thyroid treatment > From: fielddot@...> Date: Fri, 6 Aug 2010 14:11:25 +0000> Subject: Re: Hashi/Graves> > > i use milk thistle complex from biocare (a vogel) and find it very liver friendly. it's an organic tincture that also contains artichoke. > > what happens when you take omega 3s ...if it's fish oil does it make you burp? ...think i've read something about that being to do with low stomach acid but that's not reliable info (sorry).> > totally scandalous leaving you with a tsh of 97...what is the matter with these doctors?...i hope you can take some action at an appropriate time (ie when you've got the strength).> > wish you better> > trish> > [Ed]> > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Hi

Thanks for the reply.

Not to bad for me as i live on my own, i will just have to ban myself lol.

love Stevie

>

>

> Hi,

> Haven't tried a tincture of milk thistle, but when I took the dried

herb gas production went into overload.

[Guest guest]

Hi Stevie, I can't really marry the two up. The short synacthen

test will test only to see whether you have 's disease or Cushing's

Syndrome and any results inbetween those two, are simply not recognised by the

NHS doctors. You most definitely have low adrenal reserve and need to support

your adrenals, but Dr Peatfield will take care of that for you, but depending

on what your blood tests show after the synacthen injection, I honestly think

you will be told they are normal and will not treat them - that is, of course,

unless it shows you have 's. Let us know the results and we can take it

from there.

I have to admire

both and yourself for your valiant efforts in getting thyroid patients in

your area informed about TPA. I will be waiting in anticipation of a new member

joining us and telling me " I saw a notice about you on the back of a lavatory

door at the railway station " . I think you are both wonderful and give

a big (((HUG))) from me - after giving yourself one too.

Luv - Sheila

I am having a synthen test on Wednesday, could you tell me from this genova

adrenal test, that something might show up.

My friend and i have had a lot of you posters printed off, and apart from

putting them in obvious places libraries, shop windows, takes them every

where, puts them on train & bus seats, toilet doors, slides them in

magazines, takes them with her to car boots, you name we are trying to become

imaginative, she now thinking of having a t shirt printed with your logo on.She

has just had a week in Hemsby, took them with her. For someone who had her

thyroid in March for cancer, you wouln'nt know it.

Our next thing is to see if can get sponsored from the big stores for a

page in the local paper, to advertise TPA and Dr P book.

Just wanted you to know we are thing of you in our own way.

Love Stevie

No virus

found in this incoming message.

Checked by AVG - www.avg.com

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18:35:00

[Guest guest]

Thankyou Sheila,

I thought the same as you, i dont know how they have even

come up with doing the test without even seeing me, apparently, tests first

then see someone in the clinic.

As i am not on the forum that much, i always keep an eye on it, you work so

hard, just thought it would be nice for you to know, See what we can come up

with next.

Love Stevie

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> Hi Stevie, I can't really marry the two up. The short synacthen test will

[Guest guest]

Hi Stevie, cortisol is used by every cell in the body- part of the stimulation and control of the whole metabolism. DHEA is the precursor to many hormones including progesterone and tetosterone. Tests do show too low in both DHEa and cortisol. > thyroid treatment > From: stevieblake@...> Date: Mon, 16 Aug 2010 15:15:39 +0000> Subject: Hashi/Graves> > Hi everyone,> > I am having a synthen test on Wednesday, could you tell me from this genova adrenal test, that something might show up.> > Sample 1 13.3 ref 12-22> sample 2 2.5 ref 5.0-9.0> sample 3 1.7 ref 3.0-7.0> sample 4 1.8 ref 1.0-3.0> > Daily total cortisol 19.3 ref 21-41> > DHEA 0.11 ref 0.20-0.70> DHEA cortisol ratio 0.54 ref 0.6-3.0> > could you tell me the difference between cortisol and DHEA.> > Sheila,> > My friend and i have had a lot of you posters printed off, and apart from putting them in obvious places libraries, shop windows, takes them every where, puts them on train & bus seats, toilet doors, slides them in magazines, takes them with her to car boots, you name we are trying to become imaginative, she now thinking of having a t shirt printed with your logo on.She has just had a week in Hemsby, took them with her. For someone who had her thyroid in March for cancer, you wouln'nt know it.> Our next thing is to see if can get sponsored from the big stores for a page in the local paper, to advertise TPA and Dr P book.> Just wanted you to know we are thing of you in our own way.> > Love Stevie> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Hi Guys, i can see i have made a mistake on the FT4 they are 18.8 (ref 10-20)

Sorry about that, i made that look a bit scarey.

Thanks everyone

Love Stevie

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> Hi Shelia and everyone

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> My daughters boyfriend has just recieved his blood test results.

>

[Guest guest]

Hi Stevie, Is FT4 really 88- is this correct? it is way over the range, and FT3 is rather on the low side . > thyroid treatment > From: stevieblake@...> Date: Mon, 23 Aug 2010 13:27:28 +0000> Subject: Hashi/graves> > Hi Shelia and everyone> > My daughters boyfriend has just recieved his blood test results.> This is his first test, taking no medication. Would be grateful for any help.> > TSH 1.28 ref (0.4-40)> TT4 95.5 ref (58-154)> FT4 88 ref (10-22)> FT3 3.19L ref (2.8-6.5)> FT4 FT3 ratio 5.9H ref 2.0 4.5> > TG 20 ref (0-40)> TPO 10 ref (0-35)> > > They look real good untill you get to the FT3, genova has implied covertion or possible wilson syndrome, is that taking T3 only.> The antibiodies, it dosent matter the amount just the fact they are their still means he has Hashi, have i got that correct.> Would he be underactive or syndrome.> Would appreciate any help, thankyou.> > Love Stevie> > > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Hi .

No its not correct, silly me, i did put another post out as i could see i had

made a mistake. His free T4 is 18.8 ref 10-22.

Thankyou

Love Stevie

>

>

> Hi Stevie,

> Is FT4 really 88- is this correct? it is way over

[Guest guest]

Hi Stevie,

Now that you have confirmed Ft4 is 18.8 I agree with you Ft3 is

too low for decent T4 levels so this implies a problem with conversion of T4 to

T3. antibodies are present but very low, so if an autoimmune condtion is

present, there is no attack going on at present- antibody levels do vary wildly

from time to time if Hashi's is active.

>

> Hi Shelia and everyone

>

> My daughters boyfriend has just recieved his blood test results.

> This is his first test, taking no medication. Would be grateful for any help.

>

> TSH 1.28 ref (0.4-40)

> TT4 95.5 ref (58-154)

> FT4 88 ref (10-22)

> FT3 3.19L ref (2.8-6.5)

> FT4 FT3 ratio 5.9H ref 2.0 4.5

>

> TG 20 ref (0-40)

> TPO 10 ref (0-35)

>

>

> They look real good untill you get to the FT3, genova has implied covertion or

possible wilson syndrome, is that taking T3 only.

> The antibiodies, it dosent matter the amount just the fact they are their

still means he has Hashi, have i got that correct.

> Would he be underactive or syndrome.

> Would appreciate any help, thankyou.

>

> Love Stevie

>

[Guest guest]

Hi ,

Can i confirm then that does have a thyroid problem, and that he does

have hashi.

Just nice to have some confirmation from someone else as he will read the post.

He has not been to a doctor, just from reading Dr P book ,realised he had some

of the symptoms and had the blood tests done.

I thought maybe it would be a good idea to look into why not converting, check

ferritin, B12 etc first before thinking about taking T3.

Thankyou for your time

Love stevie

>

> Hi Stevie,

> Now that you have confirmed Ft4 is 18.8 I agree with you Ft3 is

too low for decent T4 levels so this implies a problem

[Guest guest]

Hello Sheila and everyone, could use some advise.

Just recieved results from hospital, will be seeing endeo on Fri.

Synacthen test

cortisol 229

cortisol 30 min 829

normal response at 30 min greater 450nmol/1

result abn ref

WBC 11.3 H 4-11

RBC 4.89 3.80-5.30

HB 16.0 11.5-16.0

Haematoocrit 0.466 H 0.350-0.460

MCV 95.3 80.0-100.0

MCH 32.7 H 27.0-32.0

RDW 14.5 11.-16.0

Plts 259 150-400

Mean Plt Volume 6.7

Neutrophils 8.91 H 2.0-8.0

Lymphocytes 1.91 1.0-4.5

Monocytes 0.29 0.1-4.5

Eosinophils 0.25 0.1-0.8

Basophils less than o.01

U/E test

serum sodium 143 135-145

serum patassium 4.1 3.4-5.0

Urea 3.3 0.0-7.5

Creatinine 63 35-125

Estimated GFR Greater than 60

Liver profile

Bone profile

Albumin 44 30-51

calcium 2.56

corrected calcium 2.47 2.1.2.5

I phosphate 1.30 0.80-1.4

T Biliruben 8 0.17

Alk Phos 120 30-135

Alt 20 0-50

Gamma Gt 38 H 0 -31

TSH 19 30 ref 0.35-5.5

Ft4 14.3 ref 10-19.8

FT3 4.3 ref 3.5-6.5

Tpo antibiodies 807 All bloods taken on 18-08-10

TSH 10.20 ref as above

FT4 13.3

FT3 4.4 Taken 2-9-10

Sorry their is so much, but i am seeing endeo Friday, wondererd if their is

something i should know and understand before i go that could help me.

GP called me in which is how i got seconed lot of TSH done, she is the one i

dont like but is my registered Doc so all results go to her.

She has no knoweledge of the above bloods done at Addebrookes hospital.

She did say if i went private she does not want to work with me and i had to

choose. Nice hey nothing like team work. Oh and know more putting requests for

FT3, they have no value except for people that are hyper, great doesnt matter

that i have had o.oo3 TSH. Hey ho carry on ragaurdless.

I do so appreciate any replys and the time spent on this, thankyou.

Love Stevie

[Guest guest]

Hello Stevie,

Just recieved results from hospital, will be seeing endeo on Fri.Synacthen testcortisol 229cortisol 30 min 829normal response at 30 min greater 450nmol/1

OK – this means that your adrenals are capable of working just fine....this is good news, as (according to this stimulation test) your adrenals do not seem to be damaged. Whether or not they are actually working fine, is another question. This is not what an ACTH stim test will reveal. To see if your adrenals are sluggish, you would need a salivary adrenal profile, although this is not something any NHS doctor will acknowledge as valid, even if that came back low. Still, it is very good news to have confirmation that your adrenals are not actually damaged. Any adrenal exhaustion – if found – could be treated with minerals and vitamins, or, in stubborn cases, with very low steroids.

result abn refWBC 11.3 H 4-11RBC 4.89 3.80-5.30HB 16.0 11.5-16.0Haematoocrit 0.466 H 0.350-0.460MCV 95.3 80.0-100.0MCH 32.7 H 27.0-32.0RDW 14.5 11.-16.0Plts 259 150-400Mean Plt Volume 6.7Neutrophils 8.91 H 2.0-8.0Lymphocytes 1.91 1.0-4.5Monocytes 0.29 0.1-4.5Eosinophils 0.25 0.1-0.8Basophils less than o.01

Those results look ok – but show a slight increase of your white blood cells – neutrophils in particular – which points towards an infection or inflammation somewhere. It does not give any clues as to where abouts in the body this might be happening.

U/E testserum sodium 143 135-145serum patassium 4.1 3.4-5.0Urea 3.3 0.0-7.5Creatinine 63 35-125Estimated GFR Greater than 60

Kidney function looks normal to me and the Na:K ratio (that's sodium & potassium) is very good.Liver profileBone profileAlbumin 44 30-51calcium 2.56corrected calcium 2.47 2.1.2.5I phosphate 1.30 0.80-1.4T Biliruben 8 0.17Alk Phos 120 30-135Alt 20 0-50Gamma Gt 38 H 0 -31

I am not quite clear about those results – some liver parameters seem a tiny bit on the high side. Nothing dramatic though. Elevation of Gamma GT you'd usually associate with liver disease or glucocorticoid therapy. Since you (I assume) do not take any steroids, I wonder if the slightly elevated WBC have anything to do with that.TSH 19 30 ref 0.35-5.5Ft4 14.3 ref 10-19.8FT3 4.3 ref 3.5-6.5Tpo antibiodies 807 All bloods taken on 18-08-10

TSH 10.20 ref as aboveFT4 13.3FT3 4.4 Taken 2-9-10

That looks vaguely familiar – have I not puzzled over your high TSH before and didn't it fluctuate wildly between high and low before? It's slowly coming back to me now.. Well, you can see yourself, the above thyroid results are a bit of a mystery, particularly since you are on thyroid medication.... sorry, but I have no idea why on earth your TSH should fluctuate so dramatically. I hope the endo you are seeing has something up his sleeve about this. The only thing I can think of is that your very high TPO autoantibodies might be messing with the figures. Do you know if you have positive TgAB (thyroglobulin Antibodies) as well?

She (GP) did say if i went private she does not want to work with me and i had tochoose. Nice hey nothing like team work. Oh and know more putting requests forFT3, they have no value except for people that are hyper, great doesnt matterthat i have had o.oo3 TSH. Hey ho carry on ragaurdless.

Nice one !! But actually, by the sounds of it you are better off with another GP anyway. Don't think she is much of a loss to you.

Please keep us posted Stevie. I'm very interested to hear what the endo makes of it all.

Good luck with your appointment,

Love,

[Guest guest]

Wow ,

Thankyou so much for all that input.

The raised white cell count, proberly because i have servere divaticulitus, been

having a tough time with it for a few months.

The liver, never was good after the gallbladder op, taking milkthisle for that.

On one of my blood tests, genova the Throgobulin was 32.5 ref 0-40

I do feel like chicken and the egg, bowel verses thyroid, which is causing

which.

Thankyoou so much again, i shall post you after the endeo app.

Love Stevie

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> Hello Stevie,

>

>

>

> Just recieved results from hospital, will be seeing endeo on Fri.

>

>

[Guest guest]

Wow ,Thankyou so much for all that input.

You're very welcome

The raised white cell count, proberly because i have servere divaticulitus, beenhaving a tough time with it for a few months.

Have you checked for Candida albicans? With this kind of bowel problem & thyroid probs there might be a risk for that. – also, going by my own experience....ask to have your stomach acid level checked. Your (new <g>) GP or the endo could do that (ask for gastrin to be checked). All of those intestinal problems go hand in hand, so best to check them all.....- if by any chance your stomach acid is low, then test for H. pylori too. As Ian has just posted, he did the "high protein meal test" with HCl (hydrochloric acid) tablets. You are supposed to take up to 10 pills with a high protein meal and if there is no burn or warming of the stomach after 10 pills, then your acid levels are wayyy too low. Well – Ian took 40 pills before he felt a burn, I did the same test, but chickened out after 30 pills with my meal and although I felt like a stuffed Christmas turkey after that, 30 pills did not give me the slightest warming or burn.... If there is no burn, one should test for H. pylori – I did, my test was negative – Ian was less lucky, his result was positive. So bear that possibility in mind too with any kind of intestinal problems. Definitely NOT suggesting you too should test with the HCl pills – but ask the doc for a gastrin check (this is what the head of Cambridge lab recommended for me to do).The liver, never was good after the gallbladder op, taking milkthisle for that.

Yes, good idea – but do give the milk thistle a break from time to time. It's not meant to be taken continuously.....On one of my blood tests, genova the Throgobulin was 32.5 ref 0-40

Ah, good.... and interesting to know that – although not in large numbers, you DO have them too....I would ask the endo to have them checked again as well as your TPO's. Numbers of autoantibodies fluctuate ....

I do feel like chicken and the egg, bowel verses thyroid, which is causingwhich.

Thyroid and bowel go hand in hand .... low thyroid causes bowel problems – so I'd say thyroid is the chicken and bowel the egg – although as you say .... where did the chicken come from? – probably a safe bet to blame it on your parents <bg>Thankyoou so much again, i shall post you after the endeo app.

Please do – I am really curious what your endo makes of the fluctuating TSH, particularly since the TSH is most endo's holy grail ....surely, they can't ignore THAT ONE

Love,

[Guest guest]

Hello ,

Just to let you know how it went at the hospital, was surprised i got to see the

professor. Sorry i didnt get back to you last night, feel tired and retarded

after my day out. lol

He examined my neck, said he couldn't hardly feel anything their, i hope its

keeled over and will let me have some peace lol.

He wasn't to phased by the swings, just that he would try to get me on a dose

that was comfortable for me, he goes by how much you weigh, from that he felt i

needed 100/125 thyroxine.

He rechecked for pernicious and celiac, he is aware they have been done be for

and came up negative even though i have to have B12 jabs. He felt it was more of

a small bowel problem than thyroid.

He noticed i took lanzaprazle, very strongly against them, he said they take to

much acid out of the stomach, and the thyroxine cannot get in,

don't drink coffee something in that, didnt want me to take my iron at bedtime,

rather with my evening meal.

As you said syanthen test fine, even taking my blood pressure sitting and

standing was perfect, that's a first what can you say, their in front of you,

pulse though 100

He said its not hereditary, told him mum, sister 2 daughters 2 niece all have

it, well in your case it is ha ha and he wrote it down, i wonder if people don't

tell, maybe shy or feel they no best.

So i told him i had started on 100 2 weeks ago, so back to see him 3rd week in

october with bloods done before i go. that was it.

Oh the gastrin test he felt was for the bowel guys to sort out.

Sill feel i missed things i wanted to ask, being so hypo feel that i have

special needs and hope i catch them next time.

I would like to ask if any one out there has a tight sensation round there waist

and a grabbing inside, tightens more after each meal, also again if i have to

raise my dose, just wondering because i have the divaticula if it was special

gift to me, not one i want, or if they did, did it go on changing med to NDT. If

they did would they post, i would be real grateful.

i have ordered some betaine, wondered if that might help.

Thankyou again

Love Stevie

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[Guest guest]

Hello Stevie,

Thanks for that – some things about the endo surprise me, but this endo doesn't sound too bad in the scheme of things....

He wasn't to phased by the swings, just that he would try to get me on a dosethat was comfortable for me, he goes by how much you weigh, from that he felt ineeded 100/125 thyroxine.

That is interesting... I wonder – was he not phased because he does not know the answer, or does he know something we don't ? Call me a stickler for detail, but if a TSH swings from 9.something to 0.0something and back on an even medication, I for one would like to know why this happens, particularly since the TSH is generally speaking slow to move and is not influenced much by little hormonal swings.He rechecked for pernicious and celiac, he is aware they have been done beforeand came up negative even though i have to have B12 jabs. He felt it was more ofa small bowel problem than thyroid.

Now – that is good that he is giving you a course of B12 jabs. Still – bowel and thyroid work hand in hand. Low thyroid has a direct impact on the intestinal tract.... but getting B12 jabs will hopefully help with both.

He noticed i took lanzaprazle, very strongly against them, he said they take tomuch acid out of the stomach, and the thyroxine cannot get in,don't drink coffee something in that, didnt want me to take my iron at bedtime,rather with my evening meal.

Good man! ;o) He is right – suppressing the stomach acid is not a good thing and all too often low acid is confused with too much acid, since the symptoms apparently are identical. Wonder how many people are suppressing their already low stomach acid even further, thinking they suffer from too much rather than too little....and open the flood gates for parasites and harmful bacteria in the process.....

As you said syanthen test fine, even taking my blood pressure sitting andstanding was perfect, that's a first what can you say, their in front of you,pulse though 100

WOW – that's a first ! Apart from Dr .Peatfield no doctor has ever done that for me. Lucky you, not having your pressure drop on standing. Mine still drops about 20 points every time, and nothing so far has helped with that – not even low dose HC. My pulse is also very high – 90 -110 at rest always – going up to 150+ when I physically exert myself .... been so high ever since I started the menopause 13 years ago and nobody seems to find that alarming .... oh well....

He said its not hereditary, told him mum, sister 2 daughters 2 niece all haveit, well in your case it is ha ha and he wrote it down, i wonder if people don'ttell, maybe shy or feel they no best.

Not hereditary? – well, well.... so there are things he doesn't know then <bg> - what he probably meant is that it is not "scientifically proven" (yet) that endocrine illnesses are hereditary...which is true, but even the most hardened sceptics are accepting now that endocrine conditions run in families, because the anecdotal evidence for it is overwhelming.

So i told him i had started on 100 2 weeks ago, so back to see him 3rd week inoctober with bloods done before i go. that was it

Will be interesting to see the results then.... I wonder if the Lansoprazole (PPI) has indeed prevented much of your thyroid hormone from being utilized ? That might even explain your TSH swings – How long have you been taking them?

Oh the gastrin test he felt was for the bowel guys to sort out.

i have ordered some betaine, wondered if that might help.

Pass the parcel..... great ! – Make sure you will get checked out though. And do not take the Betaine before they have checked your gastrin levels, so you know where you stand. (I'm a good one to talk!!! – but it's a case of don't do as I do – do as I say <bg>)

I would like to ask if any one out there has a tight sensation round there waistand a grabbing inside, tightens more after each meal, also again if i have toraise my dose, just wondering because i have the divaticula if it was specialgift to me, not one i want, or if they did, did it go on changing med to NDT. Ifthey did would they post, i would be real grateful.If you do have confirmed Diverticulitis (did you have a colonoscopy to confirm it?) this is a separate condition, although the condition `might' have been triggered or been made worse by a lack of thyroid hormone. In my personal view NDT is better than synthetic thyroid hormones and does help with IBS problems, but I am not convinced that they can cure diverticulitis... though – never say never

Love,

[Guest guest]

Hello ,

I have had a confirmed diagnosis with the divaticula, i am embarrassed to say i

backed out of the colonoscopy, the write up on the paper work quite put me off,

wish i had have been brave enough, so i had the barium enema, which showed sever

diverticulitis in ascending and descending colon plus sporadically else where.

I looked up that oxford link that was put up for that test you had done ,is that

classed as a gastrin test, thinking of doing it myself.

Also been looking into coeliac and really surprised at the symptoms, joint

pains, gut pain, headaches etc the list was endless, similar to hypo.

States how difficult it can be to get diagnosed and if the test don't show, the

only true way is to go gluten free, so as from today i will give it a try. Its a

bit like having a perfect TSH and being told you are not hypo.

I forgot to say the proff said that he would expect a TSH to drop from 42 in one

week if you dont take your thyroxine, i had never missed my meds befor and

checked my Tsh before i came off, it was 3.

I felt concerned for all of us in case we got hospitalized, and un able to take

them, i have made my girls aware.

It made me think of my Mum she had a big stroke and couldn't swallow in

hospital, so they didnt give them to her. I can remember the doc doing rounds

and telling the nurse that her thyroid wasn't good, nurse said what do you

expect she cant swallow. I didnt have the knowledge i have now, i would have

crushed them and put it under her tongue, she never made a good recovery, needed

24hr care for 10yrs, it just makes you wonder if it could have been different.

Strange about our pulse, like you they do not seem to be concerned, yet to me

its really not normal and there has to be a reason for it.

I find it quite draining at times. Do you keep well

I really didnt know very much on leaky gut, and coelic so i am going to educate

myself, from the little i have read i can see a lot of what i have maybe their,

starting with the gluten free, best to do one thing at a time.

Thankyou for your thoughtfulness and time

Love Stevie

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