visit to endo

[Guest guest]

Hi Sheila,

thanks for your reply. I had my blood drawn at 8.30 am and I didn't take thyroid meds that morning. He has agreed to see me again in August (after me pushing) but didn't suggest what to do about the elevated T3. He was just appalled that I was taking the Isocort and he actually said " I don't think I can be of further help to you".... it was a 'goodbye' moment. A sort of 'if you're going to do silly things like that then I can't help you - and in any case, your blood tests results are fine'.

Sorry to go on about this but I just feel written off.

julia

[Guest guest]

> > QUESTION 1 Has anyone had the RT3 test done?

> QUESTION 2 I posted my bloods on a few days ago and asked if anyone knew why

my FT3 had gone down as it has. My TSH has not really moved away from the 1.6

area and my FT4 is now 14 from 12.7. I put ref ranges in last posting.

>

> Any ideas thanks

> Stacey

>

Hi Stacey - Yes I had Total Thyroid Screen together with Reverse T3 Testing in

August of this year with Genova Diagnostics. I got a discount as being a member

of TPA I think in total it cost either £108 or £110 in total.

The results were Total Thyroxine (T4) 135 (58-154)

TSH 0.009 (0.4-4.0)

Free Thyroxine (FT4) 21.0 (10-22)

Peripheral Thyroid Function:-

Free T3 (FT3) 5.83 (2.8-6.5)

FT4 : FT3 Ratio 3.6 (2.0-4.5)

Reverse T3 (rT3) 0.71 (0.14-0.54)

Thyroglobulin (TG) <20.0 (0-40)

Peroxidase (TPO) 159 (0-35)

I am still on 100mcg Thyroxine daily I have had a synacathen test done all

NORMAL no surprise really _ but I have asked to see a specialist in RT3 I am

still waiting.......

Stacey I am hanging on in there I do feel a tad better than I did at the time of

testing as my life has quietened a bit but I may have to get in touch with

Nick's boards on RT3 if I don't get anywhere. PS the reason for requesting RT3

was my tests were always normal but my hair has started shedding more and energy

levels not good but hey ho I'm hopeful.

Love

[Guest guest]

On Fri, 22 Oct 2010 21:00:01 -0000, you wrote:

>The results were Total Thyroxine (T4) 135 (58-154)

>TSH 0.009 (0.4-4.0)

If that was on 100 of T4 then there is something very strange going on

>Free Thyroxine (FT4) 21.0 (10-22)

FT4 is above 50% of it's range, a marker that RT3 will be high

>

>Peripheral Thyroid Function:-

>

>Free T3 (FT3) 5.83 (2.8-6.5)

>FT4 : FT3 Ratio 3.6 (2.0-4.5)

>Reverse T3 (rT3) 0.71 (0.14-0.54)

>

FT3/RT3 = 8.2, this should be 20 or greater

RT3 above range, definite problems!!!

>Thyroglobulin (TG) <20.0 (0-40)

>Peroxidase (TPO) 159 (0-35)

TPO antibodies, you have autoimmune issues,

>I am still on 100mcg Thyroxine daily I have had a synacathen test done all

NORMAL no surprise really _ but I have asked to see a specialist in RT3 I am

still waiting.......

If you find one in the UK then you are doing well, let me know if you

find one!!

You are probably well ahead of any UK Drs by now.

>

>Stacey I am hanging on in there I do feel a tad better than I did at the time

of testing as my life has quietened a bit but I may have to get in touch with

Nick's boards on RT3 if I don't get anywhere. PS the reason for requesting RT3

was my tests were always normal but my hair has started shedding more and energy

levels not good but hey ho I'm hopeful.

Have a read through the RT3 site if you haven't already, you need to

go on to T3 only to get rid of that

www.thyroid-rt3.com

You need to make sure iron and adrenals are in place first, the

adrenal saliva test is the gold standard.

Stable day to day temperatures on Dr Rind timing is a good marker as

well

Nick

[Guest guest]

Hi Stacey, Ft3 could have gone down for a number of reasons- failure to convert, increasing amounts of RT3 genetic disposition. After all taking T4 is profoundly unnatural as a healthy thyroid produced some T3- the rest is supposed to convert from T4. If your thyroid is producing less T3 as it runs down, and you can't convert from the T4, the theT3 levels will drop. Not to worry about dropping T3 levels- I wonder how well he would feel!!! Giving you sufficient T4 to raise levels may permit enough T4 to convert to T3, but also may overload an already struggling system, but as you do feel better with additional T4 surely it would be lto allow a trial of higher doses- if you still have some thyroid function adding in artificial T4 can have the effect of putting the thyroid to sleep ,so no further benefit is felt until you are taking a higher dose than your thyroid was able to do unaided. > thyroid treatment > From: stacey57@...> Date: Fri, 22 Oct 2010 13:45:26 +0000> Subject: Visit to Endo> > > Hi,> > Juat back from appt with 'The Prof'. He was a bit bemused about why I had been put on Levo since my TSH has always been 'in range'. However he had read my symptoms list and the last Endo (Gynae) letter and he said that many of the symptoms can be for other reasons. I said that I had 10/12 ish yrs of eliminating things - also having a hysterectomy for fibroids etc. > When I mentioned about the TSH ranges being wider in this country he did agree that they may well stop at 2.5 in other countries but here it was this so hey ho bascially.> When I said about when I was asked by the GP to reduce from 50 to 25 and that had made me ill so I had upped again to 50 and felt better - he said well I think I would feel better if I was taking some thyroxine as it helps to metabolise the body and give warmth and energy etc - I didn't say it but thought - so we are not entitled to feel good health and wellbeing then!?> .> > When I asked him why my FT3 had gone down from 5.2 to 4.3 he said T3 fluctuates so not to worry about it.> > So, in summary - he has referred me for Synachthen? test for adrenals, a bone scan and blood tests for antibodies. He said that I can continue with the Levo and if I need an increase then I must watch that I don't suppress my thyroid and have 6 monthly tests.> > QUESTION 1 Has anyone had the RT3 test done?> QUESTION 2 I posted my bloods on a few days ago and asked if anyone knew why my FT3 had gone down as it has. My TSH has not really moved away from the 1.6 area and my FT4 is now 14 from 12.7. I put ref ranges in last posting.> > Any ideas thanks> Stacey> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

HI ,

I am getting symptoms back again so need to have an increase, will be speaking

to the GP to arrange for an increase from 50 to 75mcgs.

It was interesting about the RT3 test - it is only used for research only? Ummm

so they do research into thyroid stuff do they? - strange as they no b-uger all

usually apart from what the ref ranges are and what the 'gods' write!

What was I saying in an earlier posting about removing/suppressing thyroids of

the eprats and not allowing the meds so they can really feel what we have - to

make them understand!

Thanks

STacey

[Guest guest]

Hi Stacey, there's research going on, but how long the results take to trickle down into the real world and become accepted/ignored, who knows!! > thyroid treatment > From: stacey57@...> Date: Sun, 24 Oct 2010 14:45:40 +0000> Subject: Re: Visit to Endo> > > HI ,> > I am getting symptoms back again so need to have an increase, will be speaking to the GP to arrange for an increase from 50 to 75mcgs. > > It was interesting about the RT3 test - it is only used for research only? Ummm so they do research into thyroid stuff do they? - strange as they no b-uger all usually apart from what the ref ranges are and what the 'gods' write!> > What was I saying in an earlier posting about removing/suppressing thyroids of the eprats and not allowing the meds so they can really feel what we have - to make them understand!> > Thanks> STacey> > > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Tell her and be damned a. WE know about thyroid hormone

replacement than most of these so called endocrinologists. Those people who are

regaining their normal health have left the NHS and either gone to private

doctors who know what they are doing, or taken their thyroid health into their

own hands and got themselves well again. Answer this question, if you tell your

endocrinologists that you have started taking the active thyroid hormone

T3-only (because the mainly inactive thyroxine alone did not take away your

symptoms, as you were not converting it to the active T3 which every cell in

your body and brain needs - - and she starts to stamp her foot and scream at

you that you are going to kill yourself - - are you then going to stop taking

T3 on her say so and go back on to the levothyroxine again??? If the answer is

no - then what have you to worry about. You are not reliant on her to prescribe

it for you (though wouldn't that be nice) so stop worrying.

Tell her instead, that you fully intend to continue taking this

hormone that has given back normal health to so many NHS failures, but that you

would like her to monitor you while you are taking it.

Stick your chin out - sock it to 'em and they just might start

to listen to their patients and know that we do not feel the need to treat them

as Gods.

You should ask for the following tests: free T4, free T3, TSH

and if you have never been tested to see whether or not you have antibodies to

your thyroid, you should ask also for TPO and TgAb. You need ferritin, vitamin

B12, vitamin D3, magnesium, folate, copper and zinc.

Print off the following information showing the medical research

that shows the association between these mineral and vitamin deficiencies and

the thyroid - and always keep one step ahead of them. Assume that she will tell

you that there is no association between these, and then produce it:

Low

iron/ferritin:

Iron deficiency is shown to significantly reduce T4 to T3 conversion, increase

reverse T3 levels, and block the thermogenic (metabolism boosting) properties

of thyroid hormone (1-4). Thus, iron deficiency, as indicated by an iron

saturation below 25 or a ferritin below 70, will result in diminished

intracellular T3 levels. Additionally, T4 should not be considered adequate

thyroid replacement if iron deficiency is present (1-4)).

1.

Dillman E, Gale C, Green W, et al. Hypothermia in iron

deficiency due to altered triiodithyroidine metabolism. Regulatory, Integrative

and Comparative Physiology 1980;239(5):377-R381.

2.

SM, PE, Lukaski HC. In vitro hepatic

thyroid hormone deiodination in iron-deficient rats: effect of dietary fat.

Life Sci 1993;53(8):603-9.

3.

Zimmermann MB, Köhrle J. The Impact of Iron and Selenium

Deficiencies on Iodine and Thyroid Metabolism: Biochemistry and Relevance to

Public Health. Thyroid 2002;12(10): 867-78.

4.

Beard J, tobin B, Green W. Evidence for Thyroid Hormone

Deficiency in Iron-Deficient Anemic Rats. J. Nutr. 1989;119:772-778.

Low vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403

Low vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329

and http://www.goodhormonehealth.com/VitaminD.pdf

Low magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf

Low folate: http://www.clinchem.org/cgi/content/full/47/9/1738

and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163

Low  copper http://www.ithyroid.com/copper.htm

http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm

http://www.ithyroid.com/copper.htm

http://www.rjpbcs.com/pdf/2011_2(2)/68.pdf

http://ajplegacy.physiology.org/content/171/3/652.extract

Low zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf

and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html

Ask

her to let you have a copy of your results when they are returned together with

the reference range for each test done. Let her know that you are aware that Ferritin

levels for women need to be between 70 and 90 (for men around between 150 and

170). Vitamin B12 needs to be at the top of the range. Vitamin D3 levels need

to be about 50. Magnesium levels also need to be at the top of the range, it's

one thing that gets missed a great deal.

Good

luck and let us know how you get on.

Luv

- Sheila.

I have just started my T3 only regime (on the advice of Dr P) but am going to

see my Endo next week and am dreading telling her! On the basis that she will

say T3 only is going to give me a heart attack etc! Any advice from others on

this would be gratefully received.

I am going to ask her for bloods to be done for Full Iron Panel,

Potassium,Sodium, Vit B12, Magnesium, Zinc, and Copper.

Not sure if she will agree that all of this is necessary(!) but just wanted to

check:-

I am currently taking Iron supplement - do I need to stop it 5 days before bloods?

Secondly, I split my T3 into 4 x doses over a day - do I stop T3 on day of the

bloods?

(I am concerned as I have no thyroid and know it is dangerous to stop T3)

Given that I have been on T3 only for past 5 weeks - what thyroid tests do I

ask for?

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