hello from Canada

[Guest guest]

Hi

After being sick for almost 2 years, (myxedema - TSH was 192) I am getting more

normal readings now. But still not well. My insurance company has finally set up

an appointment for me (2 hours away) for Sept 16 with an endocronologist. A

friend is going with me and I have copied tons of info for her to read before we

go to the city. Bottom line is I get the chest pains, palpatations

occassionally, fluid retention, cold (off and on) and a ton of brain fog. So I

really want to thank whoever put the info in the attachments about " why we might

not be getting better. " I still consider myself a newbie to this group cause it

is hard to understand all this stuff and to learn about it when so foggy. I also

want to thank Sheila and a few others (and I am so sorry that I cannot remeber

your names) that answered my questions. So I hopefully will have some good news

after going to the specialist. My GP is like a lot of the GP's you've talked

about on here. He's just more or less writing me off. I'm 51 but am raising a 7

and a 3 year old and hope to be around a little longer.

[Guest guest]

,

Well done at getting an appointment with an endo. I only hope it is one who

knows how to treat thyroid problems properly. I would outline your problems

and what you want doing about them, before you see him/her. You could write a

letter, so they have time to think about things before they see you. Taking

along reams of paper for them to read at the meeting won't work as they don't

have time (or inclination).

Be prepared to back up whatever you say you would like though.... For example,

if you want more meds so that you feel better, expalin that you know this will

knock down the tsh, but have some stuff with you which explains that a low tsh

is ok. (in the files inder thyroid explanations)

If you want to take t3, have some stuff with you that explains that T3 is the

active hormone and has to be converted from t4 (a storage hormone) and that we

can't all do this. You have been left to struggle for a very long time and

other systems will have suffered. A normal TSH is 1.

There is also an article in the files called first visit to an endocrinologist

which you should have a look at..

You need to appear to be calm, well informed and prepared to help the endo to

treat you.......

Good luck

x

>

> Hi

> After being sick for almost 2 years, (myxedema - TSH was 192) I am getting

more normal readings now. But still not well. My insurance company has finally

set up an appointment for me (2 hours away) for Sept 16 with an endocronologist.

A friend is going with me and I have copied tons of info for her to read before

we go to the city.

[Guest guest]

Hi , What thyroid replacamant are you taking? is it a T4 synthroid type? if so that you couldb having problems converting to the active hormone T3 I had the symptoms you describe when taking T4 only- they all wne when I got a more balanced replacement. Canada makes ERFA natural dessicated thyroid- are you going to try to get this prescribed? > thyroid treatment > From: nonnabanonna@...> Date: Thu, 26 Aug 2010 02:07:18 +0000> Subject: hello from Canada> > Hi> After being sick for almost 2 years, (myxedema - TSH was 192) I am getting more normal readings now. But still not well. My insurance company has finally set up an appointment for me (2 hours away) for Sept 16 with an endocronologist. A friend is going with me and I have copied tons of info for her to read before we go to the city. Bottom line is I get the chest pains, palpatations occassionally, fluid retention, cold (off and on) and a ton of brain fog. So I really want to thank whoever put the info in the attachments about "why we might not be getting better." I still consider myself a newbie to this group cause it is hard to understand all this stuff and to learn about it when so foggy. I also want to thank Sheila and a few others (and I am so sorry that I cannot remeber your names) that answered my questions. So I hopefully will have some good news after going to the specialist. My GP is like a lot of the GP's you've talked about on here. He's just more or less writing me off. I'm 51 but am raising a 7 and a 3 year old and hope to be around a little longer.> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >