Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Hi Sheila, If you recall this is what I compiled of UK groups last time- maybe it'll save some time. sheila@... http://hormonesupportgroup.proboards.com/ www.realthyroidhelp.com contact@... thyroidcancer wales thyroidcancersupportuk-owner@... http://thyroid-disease.org.uk/index.php?option=com_smf & Itemid=113 news@... http://thyroidhost.proboards30.com/ http://thyroidtalk.blogspot.com/ http://forums.about.com/n/pfx/forum.aspx?webtag=ab-thyroid http://forums.about.com/n/pfx/forum.aspx?webtag=ab-thyroiduk http://forums.about.com/n/pfx/forum.aspx?webtag=ab-thyroid2 http://experience.patient.co.uk/discussion_list.php?d=118 http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?A0=THYROID If you would like to Email me, please feel free, I like talking to people with Thyroid disease. Ric@... This one’s a blog, but maybe useful Email: http://www.immune.com/thyroid/ For more information, please contact: Thyroid@... (or fill in this mail form, please) Owner: Ballew Kinnaman (kinnaman@...) Version 1.51 This page resides at http://www.Emissary.Net/thyroid/index.html Page Archive courtesy of Archive.Org Wayback Machine. Copyright © 1996-2006, all rights reserved. List owner: thyroidpatientgb-owner@... LOW ACTIVITY List owner: thyroidfriendsandfamiliesuk-owner LOW ACTIVITY List owner: overactive_thyroid-owner@... VERY LOW ACTIVITY List owner: shezsunderactivethyroidclub-owner@.... VERY LOW ACTIVITY thyroid treatment From: sheila@...Date: Wed, 30 Dec 2009 10:06:13 +0000Subject: Will one of you help me please....? Will one of you help me please....? PLEASE WILL YOU HELP? Luv - Sheila Add other email accounts to Hotmail in 3 easy steps. Find out how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Hi , I do have this, but this isn't sufficient - there must be hundreds of web sites, Internet Forums, local thyroid groups etc. Hopefully, somebody will be able to help us here. Luv - Sheila Hi Sheila, If you recall this is what I compiled of UK groups last time- maybe it'll save some time. sheila@... http://hormonesupportgroup.proboards.com/ www.realthyroidhelp.com contact@... thyroidcancer wales thyroidcancersupportuk-owner@... http://thyroid-disease.org.uk/index.php?option=com_smf & Itemid=113 news@... http://thyroidhost.proboards30.com/ http://thyroidtalk.blogspot.com/ http://forums.about.com/n/pfx/forum.aspx?webtag=ab-thyroid http://forums.about.com/n/pfx/forum.aspx?webtag=ab-thyroiduk http://forums.about.com/n/pfx/forum.aspx?webtag=ab-thyroid2 http://experience.patient.co.uk/discussion_list.php?d=118 http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?A0=THYROID If you would like to Email me, please feel free, I like talking to people with Thyroid disease. Ric@... This one’s a blog, but maybe useful Email: http://www.immune.com/thyroid/ For more information, please contact: Thyroid@... (or fill in this mail form, please) Owner: Ballew Kinnaman (kinnaman@...) Version 1.51 This page resides at http://www.Emissary.Net/thyroid/index.html Page Archive courtesy of Archive.Org Wayback Machine. Copyright © 1996-2006, all rights reserved. List owner: thyroidpatientgb-owner@... LOW ACTIVITY List owner: thyroidfriendsandfamiliesuk-owner LOW ACTIVITY List owner: overactive_thyroid-owner@... VERY LOW ACTIVITY List owner: shezsunderactivethyroidclub-owner@.... VERY LOW ACTIVITY thyroid treatment From: sheila@... Date: Wed, 30 Dec 2009 10:06:13 +0000 Subject: Will one of you help me please....? PLEASE WILL YOU HELP? Luv - Sheila Add other email accounts to Hotmail in 3 easy steps. Find out how. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.431 / Virus Database: 270.14.122/2591 - Release Date: 12/29/09 19:14:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Thank you so much . I think what you were probably looking for before were probably UK sites. I need the email addresses of the owners of world-wide thyroid web sites, world-wide Internet thyroid Forums, and world-wide local thyroid support groups, though that might prove difficult. UK local support groups would be fine. Sadly, I have not had one single offer from anybody to help with this task - even though we have 1400 members. I know that many members have written to me saying they would be only too pleased to help if ever I needed this, but it does appear that when I really need them, nobody appears to be around - but this could be because of the Holidays. Perhaps we will have better luck in the New Year. The 'Register of Counterexamples' to the levothyroxine sodium ONLY therapy is desperately needed, and will, eventually, help each and every one of us, and also, all future sufferers of the symptoms of hypothyroidisms throughout the world. It is essential that we get thousands of names on this Register, because we know there are thousands (if not millions worldwide) of people who remain ill on levothyroxine alone. So PLEASE EVERYBODY, if it is at all possible, WILL YOU HELP US TO COMPILE A LIST OF ALL THE OWNERS OF WEB SITES, THYROID FORUMS, LOCAL THYROID SUPPORT GROUPS. All that is needed is for you need to type 'thyroid web sites' or 'thyroid support forums' or ' Local thyroid support groups' into your search engine, and those you find - you need to open and copy the contact link and list this. Do not send me the URL for the web sites, forums or local support groups because that would mean I would have to go through each one of them myself - and I don't have the time. Once you have compiled a list of the email addresses, send to me. I want each of these owner to put a link to the Questionnaire onto their web site or to their Members asking everybody to complete it and send back to me. When this Register of Counterexamples is completed (and there has never been such a Register compiled before), I will send a copy to the Department of Health, the General Medical Council, the Royal College for Physicians (London), the Royal College of General Practitioners, the Society for Endocrinology, the British Thyroid Association, the Association for Clinical Biochemistry and the British Society of Paediatric Endocrinology and Diabetes This is a job where we need the cooperation from as many of you as we can - at least, those with the necessary computer skills. It is also an excellent way to thank those on the Forum for the help and support you have received, which has been happily given to you freely. Unless such help is forthcoming - we might as well give up campaigning for a better diagnosis and treatment protocol for sufferers of the symptoms of hypothyroidism. This group is, first and foremost, a campaigning group, as set out on the Home page of our web site and the Home Page of this Forum. Apologies if I come across as sounding a little hard, but it is so very disappointing, after putting in so much work into trying to help others get back their health and to do what is absolutely necessary to change the present diagnostics and therapies for this disease, when little help is forthcoming. For those of you who can help, please do contact me urgently. Luv - Sheila x Hi Sheila, I know that you should already have this as a start. i'll do what I can to find more. Hi , I do have this, but this isn't sufficient - there must be hundreds of web sites, Internet Forums, local thyroid groups etc. Hopefully, somebody will be able to help us here. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
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