Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Forwarding the message from Sue below with my response to the forum. Luv - Sheila No, patients can be referred ANYWHERE in the UK if there is not a thyroid specialist in your area - and as there is not (I bet all the endocrinologists are specialists in diabetes, then you can be referred to one of your choicel. Do not allow your GP to tell you otherwise. Doubt you will get free T3 tested - doctors request the test, laboratories refuse to do it, that is why we suggest getting your fT3 tested privately through Lab 21. Your GP should check your thyroid antibody level, especially if there are members of your family with a thyroid or autoimmune disease. If your GP refuses to test this, report the matter to your local Primary Care Trust. Yes, you can get a nurse or anybody willing to draw your blood to do so. It doesn't have to be a doctor. The companies who do testing I believe send out the appropriate containers for sending back your blood, but ask them this when requesting the tests. Luv - Sheila Hi Sheila Thank you so much for the list - doesn't look like there is anyone anywhere near me at all on your list that my GP could refer me to even if I could persuade him. I am in Buxton, Derbyshire. Usual referral hospitals are Stockport (Stepping Hill), Macclesfield, Chesterfield, or at a push for a specialist the doctors can refer us into Manchester (hence me asking about the Christie Hospital in Cheadle). Can you suggest anyone? I'm also considering having my T3 and antibody tests done privately from the lists in the Files section - but how does one go about getting the bloods drawn? Can GPs surgeries do it, if I pay for the test - or is that against protocol? (My GP requested T3 but the lab refused to do it). Or could I get a friend who is a nurse take the blood - or would she be risking trouble for it (and where would she get the correct coloured " top " ?) Do put this on the main list if you think it would be useful to others, but it may be old ground you've covered a million times - but I'm relatively new to the list. Thanks so much Sheila Sue --- Original Message ----- From: " Sheila " <sheila@...> " 'suefrombuxton' " <sue@...> Sent: Wednesday, June 23, 2010 1:20 PM Subject: RE: consultants list > Hi - here is the doctors list of those who will prescribe either > synthetic T3 with levothyroxine or natural thyroid extract. These are both > outside of the NHS guidelines, so I take it that these doctors know a > little > more about thyroid disease than the rest of the NHS doctors. Some are > private, others NHS. Where about do you live, I may know which one to > recommend in your area, but you might have to travel. > > Luv - Sheila > > Hi Sheila > > Sorry if I should have put this on the main list. Wasn't sure as it's > directly to you - I wondered if you could send me your list of > endocrinologists that you and others have referred to. I was just > wondering > if you know anything of Dr Trainer at the Christie Hospital in Manchester. > I'm just wondering if it's worth asking my GP for a referral - although so > far they've been adamant that I'm fine (ie my blood tests are normal) and > there's no need for a referral. However, following my horrible > conversation > with a bio chemist at Stepping Hill which I've mentioned on this list, I'm > hesitant to go and see anyone now. I won't go on as I've already posted > on > the main list and I know you do so much already. I would so appreciate > your > help though. I am new to this list but have been reading everything for > the > last fortnight and am now trying to take conrol of my own treatment (I'm > both scared and desperate) with a copy of Dr Peatfield's book. Please > transfer this to the main list if I've broken protocol by writing directly > to you. Sorry if I've got it wrong and thankyou in advance for your > help. > > Sue > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.439 / Virus Database: 271.1.1/2954 - Release Date: 06/22/10 > 18:36:00 > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.439 / Virus Database: 271.1.1/2954 - Release Date: 06/22/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Sue, If the doctors on the list don't suit, the next thing to do is look up the doctor on http://www.drfosterhealth.co.uk. I looked up the one you mentioned and here is his record: _____________________________________________________________ * Title: Dr * Forenames: * Surname: Trainer * Gender: Male * Primary Medical Qualifications: MB ChB * Date of registration: 07/08/1984 * GMC number: 2853293 * GMC Specialties: Endocrinology and Diabetes Mellitus, General (internal) medicine Areas of Expertise * Endocrinology and diabetes mellitus Special Interests o Pituitary disease o Adrenal disorders o Endocrinology o Thyroid disease Practices * Endocrinology and diabetes mellitus NHS Practices o Wythenshawe Hospital + University Hospital of South Manchester NHS Foundation Trust o Christie Hospital + The Christie Hospital NHS Foundation Trust ________________________________________________________________ The good news is that he doesn't just specialise in diabetes. Your probably best off with an endo off Sheilas list as they have been recommended to her by people who have visited them, but if not then at least find one who knows something about thyroid... Many don't. . x _____________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Hi - I would give this endocrinologist a trial. He sounds to me as if he is very interested in thyroid disease and the adrenal connection to boot - this one just might prove to be a rare bird - as mine is. The one's on my list are ONLY recommended because they treat using synthetic T3 with T4, T3 alone, or natural thyroid extract - they are not recommended because they are brilliant with thyroid disorders. I know absolutely nothing of their bed side manner, and some, believe me, have a very bad bed side manner and can be quite rude and overbearing. These doctors are only for those who want some form of T3, come hell and high water and prepared to put up with whatever is necessary to get it. Having said that, a high number, I believe are absolutely brilliant. Luv - Sheila __________________________________________________________ * Title: Dr * Forenames: * Surname: Trainer * Gender: Male * Primary Medical Qualifications: MB ChB * Date of registration: 07/08/1984 * GMC number: 2853293 * GMC Specialties: Endocrinology and Diabetes Mellitus, General (internal) medicine Areas of Expertise * Endocrinology and diabetes mellitus Special Interests o Pituitary disease o Adrenal disorders o Endocrinology o Thyroid disease Practices * Endocrinology and diabetes mellitus NHS Practices o Wythenshawe Hospital + University Hospital of South Manchester NHS Foundation Trust o Christie Hospital + The Christie Hospital NHS Foundation Trust __________________________________________________________ The good news is that he doesn't just specialise in diabetes. Your probably best off with an endo off Sheilas list as they have been recommended to her by people who have visited them, but if not then at least find one who knows something about thyroid... Many don't. . x _____________________________________________________ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.439 / Virus Database: 271.1.1/2956 - Release Date: 06/22/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Thanks for this advice. Do I have the " right " to see a consultant if I request it, or does the GP have the right to say it isn't justified? I'm guessing, but I'm pretty sure my GP will say that as my test results are now " normal " there is not justification in referring me as they are controlling my hypothyroidism successfully (despite the fact I still have all the sypmtoms of hypothyroidism - and they are getting worse - but doctors don't want to see that - I just need to lose weight as far as they are concerned and refer me to their nurse for diet advice). Sue > > Sue, > > If the doctors on the list don't suit, the next thing to do is look up the doctor on http://www.drfosterhealth.co.uk. > > I looked up the one you mentioned and here is his record: > _____________________________________________________________ > * Title: Dr > * Forenames: > * Surname: Trainer > * Gender: Male > * Primary Medical Qualifications: MB ChB > * Date of registration: 07/08/1984 > * GMC number: 2853293 > * GMC Specialties: Endocrinology and Diabetes Mellitus, General (internal) medicine > > Areas of Expertise > > * Endocrinology and diabetes mellitus > Special Interests > o Pituitary disease > o Adrenal disorders > o Endocrinology > o Thyroid disease > > Practices > > * Endocrinology and diabetes mellitus > NHS Practices > o Wythenshawe Hospital > + University Hospital of South Manchester NHS Foundation Trust > o Christie Hospital > + The Christie Hospital NHS Foundation Trust > ________________________________________________________________ > > The good news is that he doesn't just specialise in diabetes. Your probably best off with an endo off Sheilas list as they have been recommended to her by people who have visited them, but if not then at least find one who knows something about thyroid... Many don't. > > . x > > _____________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Hi Sue - your GP has the right to refuse to refer you but he should have a very good reason why, and the fact that your thyroid function tests are 'normal' is not sufficient grounds. You need to write a letter to the GP and send a copy to the Head of Practice - and ask for your letter of requests to be placed into your Medical Notes. Keep a copy of the letter yourself also. List all of your symptoms and signs that you have - check these against those in our web site www.tpa-uk.org.uk under 'Hypothyroidism' and you will find them in the drop down Menu. Next list the blood tests that you would like done to see if any of the following are low in the reference range, because if they are, you need these supplementing as the thyroid hormone needs good levels to be able to be properly absorbed. These are ferritin (stored iron), vitamin B12, vitamin D3, magnesium, folate, copper and zinc. Ask at the same time, to have your Free T3 tested if this has not already been tested. Next, make it clear to the GP that the serum thyroid function test results ONLY show the secretion by the pituitary gland and the thyroid gland. These blood tests DO NOT SHOW whether the thyroid hormone is getting into the cells. Tell your doctor that you need to know whether you are suffering with peripheral resistance to thyroid hormones at the cellular level, because obviously, the TFT's you have done show normal amounts of thyroid hormone and TSH in the blood. Serious problems are caused because of the two physiologically different definitions of 'hypothyroidism' given by the British Thyroid Association and the Royal College of Physicians, which is a cause for great concern and confusion amongst doctors and patients alike · The RCP (London) defines ‘hypothyroidism as " the clinical consequences of insufficient secretion by the thyroid gland " - meaning 'hypothyroidism' is ONLY associated with the THYROID GLAND. This definition is the correct and narrow definition. · The BTA however, define hypothyroidism as " the clinical consequences of insufficient levels of thyroid hormones in the body " . This ‘broad’ definition is associated with peripheral metabolism and peripheral cellular hormone reception, which produces insufficient thyroid hormones in the body. If 'hypothyroidism' is defined by a low level of secretion by the thyroid gland and a high level of TSH, this is normally treated successfully with levothyroxine-only. Therefore, for those suffering thyroid hormone deficiency at cellular level, this should not be called ‘hypothyroidism’ or treated with levothyroxine-only. It should be called 'Type 2 Hypothyroidism', 'Euthyroid Hypometabolism' or 'Clinical Euthyroidism' and treated with the active thyroid hormone replacement, Liothyronine (T3) - and NOT T4. Because of this, write that you wish to be referred to an endocrinologist of your choice (if there is no thyroid specialist in your area, you can go out of the area anywhere in the UK to see one) See http://f1.grp.fs.com/v1/cAIjTCNQak240Y2LnAPIIwZ72VSwd3mRfzTuS-USzJR-v1ednQ7S8HIlytD5tuos0aJmntDB2jsuIKrralfiyA/NHS%20TREATMENT/Getting%20a%20Second%20opinion.doc in our FILES section about seeking a second opinion within the NHS. I hope this works for you. Luv - Sheila Thanks for this advice. Do I have the " right " to see a consultant if I request it, or does the GP have the right to say it isn't justified? I'm guessing, but I'm pretty sure my GP will say that as my test results are now " normal " there is not justification in referring me as they are controlling my hypothyroidism successfully (despite the fact I still have all the symptoms of hypothyroidism - and they are getting worse - but doctors don't want to see that - I just need to lose weight as far as they are concerned and refer me to their nurse for diet advice). Sue --- Get real-time World Cup coverage on the Toolbar. Download now to win a signed team jersey! Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.439 / Virus Database: 271.1.1/2956 - Release Date: 06/22/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Sue, may I please say something. I attend the clinic in question. All my appointment letters are addressed that I have an appointment at Prof T's clinic. GP referral was to DR I (A Dr on the TPA list of doctors). HOWEVER I make TOTALLY sure that I see DR I instead (at the same clinic). I simply ask when I arrive and also phone his medical secretary to be sure there is no annual leave or conferences that week. I now have my first ever OFFICIAL T3 prescription on the NHS. Granted it isn't yet the dose that I had by other means in the past, but it is a step in the right direction at last. From what I gather, not all doctors in that clinic view T3 as relevant. I think it is very hard to find a doctor on board with T3 aspects and I feel I have had to push due to my prior ME/CFS diagnosis (which seems to go against you). But amazingly I got there in the end, although my story isn't yet complete. On the adrenals note, granted the clinic will be more than happy to do the cortisol blood test and the syacthin test. As expected those were fine with me, but I have shown in the past that I have had adrenal trouble and will always take Nutri Adrenal Extras as I am better with them you see. I think any doctor at the clinic will recommend that you get those two adrenal tests done and not just Prof T. I know it will be quite a journey to get there from Buxton, but it will be worth it, especially if you can get things sorted. There are other hospitals who only test the TSH but here you would get the T4 tested. As for getting the T3 tested, believe it or not they didn't test it but it seemed as though Dr I thought if it's not done it's not done and he knew the T3 was why I was at the clinic so he just wrote it on my sheet to give to the GP surgery! Plus right at the start Dr I did say that he wouldn't just go off my blood results, he would go off how I am feeling as well. I am making my story sound straight forwards, the truth is, the above has been a year in the making, or should I say 4 years in the making if I take into account the time I saw Dr P for. Fiona. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Hi, I have seen this consultant and I wouldn't recommend him to anyone on TPA. I don't want to say too much here but he has told me he very rarely prescribes T3 and never prescribes Armour (NDT) and why would anyone take an animal product especially in light of CJD from cows. I saw him last year after an adrenal saliva test showed very low cortisol levels. Even then my synacthen test came back fine. All he could say was CFS which I am not prepare to accept as a diagnosis. There is another doctor on Sheila's list who I think is at Manchester Royal Infirmary but there are two endo's there with a very similar name just different initials. Judy > __________________________________________________________ > * Title: Dr > * Forenames: P J > * Surname: T > * Gender: Male > * Primary Medical Qualifications: MB ChB > * Date of registration: 07/08/1984 > * GMC number: 2853293 > * GMC Specialties: Endocrinology and Diabetes Mellitus, General (internal) > medicine > > Areas of Expertise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 He doesn't sound very good You do realise though that doctors can very easily be identified by GMC number, so if you don't want to post their full name, I'm not sure the GMC number is the right thing to post either? > > > > > __________________________________________________________ > > * Title: Dr > > * Forenames: P J > > * Surname: T > > * Gender: Male > > * Primary Medical Qualifications: MB ChB > > * Date of registration: 07/08/1984 > > * GMC number: 2853293 > > * GMC Specialties: Endocrinology and Diabetes Mellitus, General (internal) > > medicine > > > > Areas of Expertise > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Hi Judy - the doctor you mention isn't on my list, thank goodness - I have checked twice. Doesn't it just show how dangerous these doctors are when they don't even know that thyroid extract comes from pigs that go into the food chain, and not diseased cows. They will say anything to make you take synthetic levothyroxine only. Luv - Sheila I have seen this consultant and I wouldn't recommend him to anyone on TPA. I don't want to say too much here but he has told me he very rarely prescribes T3 and never prescribes Armour (NDT) and why would anyone take an animal product especially in light of CJD from cows. I saw him last year after an adrenal saliva test showed very low cortisol levels. Even then my synacthen test came back fine. All he could say was CFS which I am not prepare to accept as a diagnosis. There is another doctor on Sheila's list who I think is at Manchester Royal Infirmary but there are two endo's there with a very similar name just different initials. Judy > __________________________________________________________ > * Title: Dr > * Forenames: P J > * Surname: T > * Gender: Male > * Primary Medical Qualifications: MB ChB > * Date of registration: 07/08/1984 > * GMC number: 2853293 > * GMC Specialties: Endocrinology and Diabetes Mellitus, General (internal) > medicine > > Areas of Expertise > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.439 / Virus Database: 271.1.1/2956 - Release Date: 06/23/10 18:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 A couple of people have mentioned a " Dr I " at Manchester Royal Infirmary on Sheila's list - but I can't find him on the list. In fact, I can't see anyone in the North West. Am I missing something? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 We post neither. Some doctors are members of this forum. We don't want to be sued. Just use initials and if anybody needs further details, then you can write to the person to get more details. Luv - Sheila He doesn't sound very good You do realise though that doctors can very easily be identified by GMC number, so if you don't want to post their full name, I'm not sure the GMC number is the right thing to post either? > > > > > __________________________________________________________ > > * Title: Dr > > * Forenames: P J > > * Surname: T > > * Gender: Male > > * Primary Medical Qualifications: MB ChB > > * Date of registration: 07/08/1984 > > * GMC number: 2853293 > > * GMC Specialties: Endocrinology and Diabetes Mellitus, General (internal) > > medicine > > > > Areas of Expertise > > > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.439 / Virus Database: 271.1.1/2956 - Release Date: 06/23/10 18:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 He was removed. Luv - Sheila A couple of people have mentioned a " Dr I " at Manchester Royal Infirmary on Sheila's list - but I can't find him on the list. In fact, I can't see anyone in the North West. Am I missing something? Sue No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.439 / Virus Database: 271.1.1/2959 - Release Date: 06/24/10 18:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Hi fiona, shows that persistence pays doesn't it! > thyroid treatment > From: f.hodgkiss@...> Date: Thu, 24 Jun 2010 16:31:58 +0000> Subject: Re: consultants list> > I now have my first ever OFFICIAL T3 prescription on the NHS. Granted it isn't yet the dose that I had by other means in the past, but it is a step in the right direction at last. From what I gather, not all doctors in that clinic view T3 as relevant.> > I think it is very hard to find a doctor on board with T3 aspects and I feel I have had to push due to my prior ME/CFS diagnosis (which seems to go against you). But amazingly I got there in the end, although my story isn't yet complete.> > > > I am making my story sound straight forwards, the truth is, the above has been a year in the making, or should I say 4 years in the making if I take into account the time I saw Dr P for.> > Fiona.> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Link to comment Share on other sites More sharing options...
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