me and son dr.appointment

[Guest guest]

Hi all,

Just been to the doctors for myself and my son and it went ok I suppose.I showed him my adrenal saliva results and he's gonna send me for a short synacthen test,[which he'd not heard of !]. He's also not heard of Isocort,so I'm not being medicated yet.Could someone tell me what the synacthen test involves,as I dont know what to expect and my GP has just given me a lab form with it written on.I explained that having adrenal fatigue can block thyroid meds and he said it would be a good idea if I got my hubby and kids tested too.I agreed,but mentioned the fact that it costs £60 a pop and I cant afford it!

As for my son,I managed to convince my GP to start him on thyroxine,on the understanding that if it doesnt work,he will take him off it.I did say that I didnt beleive in synthetic T4 as a treatment,but its a starting point.My GP is worried about treating him as his TSH was 1.32 ref range 0.35-5.45,T3 5.5 [dont know the ref range] and T4 12.8 ref range 10-23.As they are all in ref range,even though T4 is low,he's worried the health board,or whoever they are,are going to ask him too many questions.I do understand his predicament and worries,as its his licence thats on the line! I did say that I could self medicate him if I had the money and he said that levo is very cheap.I agreed,but also mentioned that as its just a starting point,I wouldnt be-able to afford any other medication.I didnt say so,but why should I pay for treatment anyway?! This is a problem the whole forum is fighting! Also,if I self medicate my son,a GP would never take over

treatment,even though he would see its working.

One thing my GP did say [probably from info I've given him!] that as T4 converts to T3, there shouldnt be a problem as its obvious he's converting T4 to T3.Could someone explain that to me,as I dont understand that either! How can he have a low T4 and a top end T3?

I gave my GP loads of copies of info on Erfa,adrenal fatigue and low stomach acid,amongst other things! I mentioned that he would have to write to the local PCT to see if they would fund Erfa treatment and he said that would be very difficult,as our local PCT are extremely hard to get help from! OH DEAR!!! As usual,its a cost thing and am p"%^$d off with my health coming down to a pound sign! I said to my GP that if he didnt support me and treat my son with levo,he would have to reffer him to numerous consultants to see why he's ill,which he agreed would cost a lot of money.One thing was great that my GP said was that my family should start being more independant and leave me alone, WHOOHOO!!! Apologies for the long post,hope to see some replies with some advice.Thankyou kindly.

Best wishes Sharon

[Guest guest]

Sharon

I have read that men can convert T4 to T3 better than women, and also that some

(most?) people do ok on T4? Perhaps as your son is young he'll be ok?

>> One thing my GP did say [probably from info I've given him!] that as T4

converts to T3, there shouldnt be a problem as its obvious he's converting T4 to

T3.Could someone explain that to me,as I dont understand that either! How can he

have a low T4 and a top end T3?

I'd have thought he has lower T4 and higher T3 because he's converting T4 > T3

ok - that is, the t4 is converting to t3 giving him lots of t3 and less T4

because t4 is what t3 is made from ? I have this myself; the problem is for me

is that I seem intolerant to the T3 - i have lots of it, just can't seem to make

much use of it.

chris

> As for my son,I managed to convince my GP to start him on thyroxine,on the

understanding that if it doesnt work,he will take him off it.I did say that I

didnt beleive in synthetic T4 as a treatment,but its a starting point.

[Guest guest]

Hi Sharon, such is the need for T3 that the body, if capable, will convert all available T4 to T3- also some T3 is made directly by the thyroid. The real problem comes when there is not enough T4 to convert to sufficient T3- and even worse when the conversion mechanism fails- which tends to happed with t4 only therapies. thyroid treatment From: sprog1967@...Date: Mon, 8 Mar 2010 02:25:46 -0800Subject: me and son dr.appointment

One thing my GP did say [probably from info I've given him!] that as T4 converts to T3, there shouldnt be a problem as its obvious he's converting T4 to T3.Could someone explain that to me,as I dont understand that either! How can he have a low T4 and a top end T3?

I

Best wishes Sharon

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[Guest guest]

Hi ,

What does that mean then?Does it mean that his body is 'asking' for more supply of T4? Do you think its the right thing to start him on levo and see how it goes?

Best wishes Sharon

From: jenny stenning <jennystenning@...>Subject: RE: me and son dr.appointment"sheila turner" <thyroid treatment >Date: Monday, March 8, 2010, 8:12 PM

Hi Sharon, such is the need for T3 that the body, if capable, will convert all available T4 to T3- also some T3 is made directly by the thyroid.

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[Guest guest]

Hi

He's definately got age on his side,hopefully I can catch any problems early! I wonder if my son has problems with doing something with his T3,as T3 is whats supposed to give you energy and he has no energy at all! He is highly symptomatic of someone with hypo,its just knowing what the right thing to do for him is.

Best wishes sharon

SharonI have read that men can convert T4 to T3 better than women, and also that some (most?) people do ok on T4? Perhaps as your son is young he'll be ok?

[Guest guest]

perhaps he needs adrenal support to help use the t3? i think i ended up taking

too much HC last year, too much can cause problems apparently with t3 uptake

(according to Dr Kharrazian's book)

chris

>

I wonder if my son has problems with doing something with his T3,as T3 is whats

supposed to give you energy and he has no energy at all! He is highly

symptomatic of someone with hypo,its just knowing what the right thing to do for

him is.

[Guest guest]

Hi

I really need to get his adrenals tested,but I need to get my hubbys and my daughters done too.Its all so expensive! It would be ok if it was just me,or if my hubby had a job that also payed enough for these extra expenses in life.

Best wishes Sharon

From: <chrisjtaylor46@...>Subject: Re: me and son dr.appointmentthyroid treatment Date: Tuesday, March 9, 2010, 6:27 AM

perhaps he needs adrenal support to help use the t3? i think i ended up taking too much HC last year, too much can cause problems apparently with t3 uptake (according to Dr Kharrazian's book)chris>I wonder if my son has problems with doing something with his T3,as T3 is whats supposed to give you energy and he has no energy at all! He is highly symptomatic of someone with hypo,its just knowing what the right thing to do for him is.

[Guest guest]

Hi Sharon, Probably!If he is on T4 and can convert then more should help with symptoms, but if he is taking T3 then more of that would help better as it does not have to convert. Basically T4 is a storage hormone- so if you are getting enough T3 then T4 is largely irrelevant- some folk who are on T3 alone do just fine. The problems start when T4 doesn't convert to T3. I'm a bit confused as to what exactly he is taking at present- and blood tests aren't terribly helpful at times. Subject: RE: me and son dr.appointment

Hi ,

What does that mean then?Does it mean that his body is 'asking' for more supply of T4? Do you think its the right thing to start him on levo and see how it goes?

Best wishes Sharon

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