Need some help

February 5, 2000

The story told me was that some officers refused the vaccine when it was first

given and they were flown off thier ship. Other servicemembers were discharged

after their ships arrived back in the US.

Meryl

---

HERSCHELL GAGE wrote:

> From: " HERSCHELL GAGE " <mopar77@...>

>

> My name is Herschell Gage & my son refused the Anthrax shot on Jan. 12. We

> were wondering if anyone has ever been discharged from a ship that was

> deployed for not taking the shots? Our son went to his oic to ask for a

> discharge and they called him " stupid " and that there was no way they would

> discharge him. If you have any knowledge or advice to give us we certainly

> would appreciate it. We have lived on this computer day and night since Jan.

> l2th. We read all message sent on the list and continually pray for all that

> are going through this. Also, I would like to share the word that we have

> been giving . We have told to ask God for His strength to get

> through this. Psalms l8:32 says, " It is God who arms me with strength. "

> Again, we would appreciate hearing you. Sincerely, Herschell and Gage

May 14, 2001

Here is the link to state law information on Sheri's website. It should be a

good place to start. Sandy from Alaska

http://www.access1.net/via/STATES/allstates.htm

ALL INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR PROVIDED

HERE IS FOR GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE CONSTRUED

AS REFLECTING THE KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS NOT TO

BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR LEGAL ADVICE. THE DECISION

WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE

AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH YOUR

HEALTH CARE PROVIDER.

Need some help

Hi all,

I have been a member here for almost a year, however I haven't posted

anything in some time.

I need some help from those of you in Washington State.

I believe our state does have a philosophical exemption for children

entering school.

My son will be attending Kindergarten in a few years. He has had no

vaccines as we have chosen to avoid them all. What steps do I need

to take before hand in order to enroll him in school with the

philosophical exemption? Does my question make any sense?

Please email me directly with any advice or experience you may have

with Washington State.

Thanks so much!

Laney

MeAndCody@...

May 14, 2001

Thanks much for the links...

My next question is this:

Our law states that for a philosophical exemption a written

certification signed by the parent must be presented....etc. etc.

What exactly constitues as a written certification?

Must I contact the Heatlh Dept. and obtain some sort of form that I

must fill out and sign? Or is a letter that I write and sign a

certification?

Thanks so much for any and all help!

Laney

MeAndCody@...

> Here is the link to state law information on Sheri's website. It

should be a good place to start. Sandy from Alaska

>

> http://www.access1.net/via/STATES/allstates.htm

>

> ALL INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR

PROVIDED

> HERE IS FOR GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE

CONSTRUED

> AS REFLECTING THE KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS

NOT TO

> BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR LEGAL ADVICE. THE

DECISION WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE

> AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH YOUR

> HEALTH CARE PROVIDER.

>

> Need some help

>

> Hi all,

> I have been a member here for almost a year, however I haven't

posted

> anything in some time.

> I need some help from those of you in Washington State.

> I believe our state does have a philosophical exemption for

children

> entering school.

> My son will be attending Kindergarten in a few years. He has had

no

> vaccines as we have chosen to avoid them all. What steps do I

need

> to take before hand in order to enroll him in school with the

> philosophical exemption? Does my question make any sense?

> Please email me directly with any advice or experience you may

have

> with Washington State.

> Thanks so much!

>

> Laney

> MeAndCody@a...

>

December 8, 2007

I had to think about this for a bit, Nora.

There is nothing dramatic I can say except, anyone at anytime can become

disabled. We all need to think about disability as something that can

potentially happen to us or a family member. If we want supports and services

to be there when we need them, we must be proactive. Individuals with

disabilities are no less human than anyone else. Individuals with disabilities

should be able to live the lives they desire with the appropriate supports to do

so.

Ellen

Ellen Garber Bronfeld

egskb@...

need some help

I may have mentioned that I have started bloging about disability issues on

a well read website. I have a lot of competition on this website and I want

people to read my posts. I need some slap you in the face facts and stories

on why people should care about the people with disabilities and their

families. Any thoughts, and advice is appreciated. Thanks in advance!

Nora

**************************************Check out AOL's list of 2007's hottest

products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

December 9, 2007

Thanks Ellen, I really appreciate you taking the time to think about it and

get back to me. I posted last week, mostly about the Sibling Leadership

Meeting I attended and what we learned and propose to do and will post a diary

at

least once a month trying to raise awareness and support from people who are

not like us with a family member. If anyone has ideas for diaries, personal

stories of how people are impacted by lack of services and supports are

useful, please send them to me. Thanks again. Nora

In a message dated 12/8/2007 11:27:41 P.M. Central Standard Time,

egskb@... writes:

I had to think about this for a bit, Nora.

There is nothing dramatic I can say except, anyone at anytime can become

disabled. We all need to think about disability as something that can

potentially happen to us or a family member. If we want supports and services

to be

there when we need them, we must be proactive. Individuals with disabilities

are

no less human than anyone else. Individuals with disabilities should be able

to live the lives they desire with the appropriate supports to do so.

Ellen

**************************************Check out AOL's list of 2007's hottest

products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

December 9, 2007

I think Ellen said it all and said it well. The only

thing I could add is that most people with

disabilities did nothing to cause the disability.

Children who are born with a disability are here

because of their inner strength. If you think about

it they are really " special " and it is an honor to

know them. I find my special boys fascinating every

day.

Sherelle

December 9, 2007

Don't miss the incredible Tribune front page story about the young man with

autism. Talk about stories that say it all....

Kudos to the Trib for this excellent reporting!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: need some help

I think Ellen said it all and said it well. The only

thing I could add is that most people with

disabilities did nothing to cause the disability.

Children who are born with a disability are here

because of their inner strength. If you think about

it they are really " special " and it is an honor to

know them. I find my special boys fascinating every

day.

Sherelle

June 2, 2009

,

Diffuse large B cell lymphoma is a type of non-Hodgkin's lymphoma like CLL/SLL,

and the others. While it grows much quicker than CLL, it is also curable,

perhaps up to 75% of the time, with R-CHOP chemotherapy. Since after a short (6

months) period of treatment most patients are cured, and do not have the need

for a support group, there are not too many active groups. The Lymphoma

Research Foundation (LRF) would be the best place to look.

Rick Furman

>

> From: lbakerishere@... <lbakerishere@...>

> Subject:

> JB50192@...

> Date: Tuesday, June 2, 2009, 2:02 PM

>

> and company!!,

>

> Need some help. Have been a part of this group for a number of years, usually

do not comment but just read because I am in " watch and wait " and the cll/sll is

not progressing. (dx 8/02--no treatment)

>

> My son Bill, age 37, has just been dx with probable Diffuse large B-cell

lymphoma. The tumor was found on a right hip socket during a preliminary MRI

before hip surgery for a torn labrum. Bone cancer has been eliminated but it is

lymphoma on the bone. The pathologists are still studying stains to clarify

that it is this type of lymphoma. He also had a catscan yesterday to see if

there is disease progression. They have been working on the pathology since

Thurs, May 28. Bill lives in Denver but is at Mass. General where Dr.Francis

Hornicek(orthopedic oncologist) did the biopsy. The treatment will be done here

in Denver with prescription from Mass. Gen. He will have a medical oncologist

here and if radiation is needed after chemo will go back to Mass. Gen. and have

proton therapy done there.

>

> My question is--does anyone know of lists and/or websites like our cll

list--for people with lymphoma like Bill is dealing with. I am not sure what

else they are trying to determine with this delay in a complete diagnosis or

what other kind of lymphoma he could be fighting.( I never say I have cancer but

that I am FIGHTING cancer or have been diagnosed with it. Refuse to be a victim

and either do you all.) Perhaps this query is premature since we are not

totally sure what this could be but thought I would start asking.

>

> Bill and his wife return today and will be seeing an orthopedic oncologist on

this week who will refer to a medical oncologist. He will be doing

alternative/completmentary medicine too as do I.

>

> Thanks for your help and thanks for the info that just keeps coming. You

inspire me.

>

> God bless!!!

>

June 2, 2009

Dr. Furman and others,

Thanks for the help. We are dealing with an extra problem because for some reason, they are STILL not sure of the diagnosis. The catscan of last night revealed an enlarged node in chest area, a couple of other smaller nodes which could be benign and he is to have a biopsy on that here in Denver and then chemo. I admit to everyone here that I am perplexed why they cannot identify the type of lymphoma. This has all happened in less than 2 weeks. He flew all the way to Mass. Gen. and here we are--the unknown still there. Okay--I am venting. I'm a mom.Thank

Anyway, I will go to the websites that have been suggested. Hopefully, I can give him some info that will make him feel alittle more in control.

Thanks again for caring. Dr. Furman--you really should move here to Denver. :-)

With gratitude.

From: rrfman <rrfurman@...>Subject: Re: Need some help Date: Tuesday, June 2, 2009, 8:01 PM

,Diffuse large B cell lymphoma is a type of non-Hodgkin' s lymphoma like CLL/SLL, and the others. While it grows much quicker than CLL, it is also curable, perhaps up to 75% of the time, with R-CHOP chemotherapy. Since after a short (6 months) period of treatment most patients are cured, and do not have the need for a support group, there are not too many active groups. The Lymphoma Research Foundation (LRF) would be the best place to look.Rick Furman> > > From: lbakerishere@ ... <lbakerishere@ ...>> Subject: > JB50192@...> Date: Tuesday, June 2,

2009, 2:02 PM> > > > > > > > > > and company!!, > > Need some help. Have been a part of this group for a number of years, usually do not comment but just read because I am in "watch and wait" and the cll/sll is not progressing. (dx 8/02--no treatment)> > My son Bill, age 37, has just been dx with probable Diffuse large B-cell lymphoma. The tumor was found on a right hip socket during a preliminary MRI before hip surgery for a torn labrum. Bone cancer has been eliminated but it is lymphoma on the bone. The pathologists are still studying stains to clarify that it is this type of lymphoma. He also had a catscan yesterday to see if there is disease progression. They have been working on the pathology since Thurs, May 28. Bill lives in Denver but is at Mass. General where Dr.Francis

Hornicek(orthopedic oncologist) did the biopsy. The treatment will be done here in Denver with prescription from Mass. Gen. He will have a medical oncologist here and if radiation is needed after chemo will go back to Mass. Gen. and have proton therapy done there.> > My question is--does anyone know of lists and/or websites like our cll list--for people with lymphoma like Bill is dealing with. I am not sure what else they are trying to determine with this delay in a complete diagnosis or what other kind of lymphoma he could be fighting.( I never say I have cancer but that I am FIGHTING cancer or have been diagnosed with it. Refuse to be a victim and either do you all.) Perhaps this query is premature since we are not totally sure what this could be but thought I would start asking. > > Bill and his wife return today and will be seeing an orthopedic oncologist on this

week who will refer to a medical oncologist. He will be doing alternative/ completmentary medicine too as do I.> > Thanks for your help and thanks for the info that just keeps coming. You inspire me.> > God bless!!!> >

June 3, 2009

, sounds like progress is being made. I know it took a

couple of weeks for doctors in NY to determine my type of lymphoma. I have

DLBCL but at first they thought it was follicular. I had treatment CHOP + R

last year and I feel great and I’m doing well. Had routine follow

up PET scan yesterday, and should have results in a couple of days.

, I have question about PET scan machines: This

makes the 5th PET scan I’ve had. Is there a limit on number

you can have?

Also, this was supposedly a “new machine” and I

could honestly tell which area the machine was scanning. Is that normal? I had

CT scan in December, and didn’t notice any sensation like this.

Barb N. – Arkansas

CLL/SLL 5/01 DLBCL 10/07

August 23, 2010

My pain has got worse despite being on ARMOUR THYROID and NAE.It gets worse as

the day goes on in the crutch area both sides and painful to walk, and also low

back. It is accompanied by pain in left arm, in turn causing me problems to get

up. The pain was so bad last night that I nearly called 999, but made it to the

morning when the pain lessened, and saw a GP today.

I am not getting on too well with the GP that I was put in with. Last time I saw

him he prescribed far too many pills despite me saying that they had caused me

to be unwell in the past. I had already returned them to my registered GP, but

despite this he wanted to prescibe yet more painkillers. Painkillers in turn

cause constipation and so have also aquired haemorroids in turn are very sore.

Too many painkillers can also lead to kidney failure.

I have been taking plenty of things for constipation, figs,prunes, and other

fruits. I also take linseeds and senna tablets, or exlax. The more I try to

drink the more times I have to get up at night.

I am going to try a hypnotherapist on Wed to see if he can help with pain or

even the thyroid gland, and have told him that I am on ARMOUR THYROID and NAE.I

am taking two NAE morning and another before 1pm. I am on 30mcg Armour in moring

and 30mcg in afternoon.

An Xray revealed Osteoarthritas in hips, but I also feel that something else is

amiss and question if its a hernia on both sides.

Kathleen

August 24, 2010

No amount of Armour Thyroid or any other thyroid h hormone

replacement is going to take away your pain Kathleen if your pain is related to

other problems apart from thyroid. You really need to see a specialist as soon

as possible and wonder how long you now have to wait. Can you ask the Head of

Practice to intervene and get your appointment placed up the list as a matter

of urgency as you should not be left to suffer.

Luv - Sheila

My pain has got worse despite being on ARMOUR

THYROID and NAE.It gets worse as the day goes on in the crutch area both sides

and painful to walk, and also low back. It is accompanied by pain in left arm,

in turn causing me problems to get up. The pain was so bad last night that I

nearly called 999, but made it to the morning when the pain lessened, and saw a

GP today.

I am not getting on too well with the GP that I was put in with. Last time I

saw him he prescribed far too many pills despite me saying that they had caused

me to be unwell in the past. I had already returned them to my registered GP,

but despite this he wanted to prescibe yet more painkillers. Painkillers in

turn cause constipation and so have also aquired haemorroids in turn are very

sore. Too many painkillers can also lead to kidney failure.

I have been taking plenty of things for constipation, figs,prunes, and other

fruits. I also take linseeds and senna tablets, or exlax. The more I try to

drink the more times I have to get up at night.

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18:35:00

August 24, 2010

HI SHEILA

I have already written privatley, but I am concerned when I look back to how I

was treated when I had the electrolyte in turn having Tamoxifen cause a large

polyp to fill the whole of the uterus plus considerable thickening of the womb.

The former Husband was left to struggle to get himself up in the night to take

me to the toilet, but all this in turn was caused by drugs, and I was too weak

to walk at all when finally admitted.

I think now that they want to be cruel in another way by prescribing painkillers

which in turn will constipate me even more.

I also look at how my elder Brother was also treated. He was also left long term

on drugs for epilepsy, and had enlarged prostrate gland that they should have

dealt with, instead he was left too long with his bones getting worse, and he

was pushed into taking a large overdose of drugs due to a GP saying that he

would have to have his legs removed. This overdose caused him more serious

problems and he was hospitalised for almost a year. This included another

attempt on his life due to being placed in a home where he was not happy in.The

GP said that she was only joking, but look at the damage and cost she caused.

This too is one of the reasons I took them all back to my GP. Many patients are

already said to be overdosed with painkillers. Again they live by guidelines,

and these guidelines are not in keeping with a patients health or age.

I may have some news about my referral when I get in touch with PALS tomorrow.

I should have been referred back to Chelsea and Westminster in 2005, but again

this comes down to the guidelines of the PCT,and both HAMPSHIRE AND SURREY PCT

have much to be responsible for.

Our family has suffered much through the medical profession, but through these

forums so have many other, families suffered, and somehow we have to bring about

a change.

Have you ever thought about gathering as many packets of thyroxine as possible

and sending them to the minister of health in protest. I think that my problems

have been made worse by incorrect prescribing of drugs, and not just thyroxine.

Kathleen

>

> No amount of Armour Thyroid or any other thyroid h hormone replacement is

> going to take away your pain Kathleen if your pain is related to other

> problems apart from thyroid. You really need to see a specialist as soon as

> possible and wonder how long you now have to wait. Can you ask the Head of

> Practice to intervene and get your appointment placed up the list as a

> matter of urgency as you should not be left to suffer.

>

> Luv - Sheila

>

June 14, 2012

Sometimes is so upset, that need time to heal, try other stuff, fr me when I'm

sick I do ice chips, and ensure can for the whole day with a straw, give it a

little time to heal, Plus something you need to push down the food and drinks,

sometimes for me I can eat some solid like soft chocolate chip cookies and good

better that liquids

I have acahalasia officially since 1996, I'm 38 yrs old

Frances

Sent from my iPad

On Jun 14, 2012, at 7:20 PM, " cooleyjn " <cooleyjn@...> wrote:

> Hi everyone, I have been pretty I've had achalasia for the last 2 years, but

just got diagnosed officially today. Since Sat night I have not been able to

keep down any food or any liquid even water. I have been to the hospital several

times - so far they have done an endoscopy and manometry and determined it was

definitely achalasia. Finally tonight they decided to get me in for the botox

injection instead of sending me home again without being able to eat or drink at

all (i have lost 20 lbs in 4 days). As soon as I got out I had a drink of water

and it came right back up. Has anyone else had it where botox didnt help at all?

Does it take some time to start working?

>

> At this point I'm tempted to just go into the ER, but not too sure. What makes

all this worse is that I don't have insurance and won't get it through work for

another 3 months

>

> Any info on the botox and why it might not be working would be awesome and any

suggestions on what I should do/try next

>

June 15, 2012

Hi, and welcome!

Here's a response that's similar your experience, with its attached thread:

achalasia/message/54856

Here are a couple more response/threads that might be useful:

achalasia/message/40112

achalasia/message/38869

After you read the message, scroll down, just past " reply " and click on " expand

messages, " and the whole thread opens.

Seems, like everything else about medicine and individuals, it acts differently

for different people. Alas.

Make sure you get to some experienced (!!!) doctors before too much longer, if

you can. You might seriously want to consider a temporary feeding tube -- I

understand they're not much fun, but might keep you alive long enough to get

some *real* help.

Good luck, prayers, and good wishes,

xox

in WV