Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 Hi all, not posted for a while as just about manage to work part-time, run the home and all associated activities and read all your posts. I have been struggling for ten years with 'normal' results and after seeing Dr P in 2007, have been eliminating various causes of hypo symptoms with normal results - ie generally T4 - 12 -14 result and TSH around 1.5 - 2.00 results over years. Also, low T3 via private result, so basically not converting or getting thryoid into cells. However, although good results initially from Armour, it build it so something else needed. Decided, myself to try Ferrous Sulphate back in February and wow, what a transformation - brain function brilliant. So good, I came off the thyroid which I was struggling to stop going hyper with and let the Iron do it's business for a while. Again, it did, but taking too much must cause it to bind to thyroid as it made me more hypo , so over the summer months I have had to experiment to get a level of dose and frequency which I can cope with. Went back to GP last week, on another matter (and another long story) of kidney pain due to a possible u. tract obstruction which is currently being investigated,but from which I get much pain. That sorted, I mentioned my constant problems - she was new - and well, couldn't believe that she looked at my last result and exclaimed that T4 of 14 wasn't fantastic when top of range was 23 and not everyone can feel well just because they are within the range, explaining that a relative of hers gets takes enough Thyroid to maintain his at 23 ! She also knew about Armour and not everyone doing well on the same stuff and informed me that we should re-test as if the T4 get to 12 I should be trialling some thyroid. She also mentioned the Iron does have a part to play in the body using thyroid and also Magnesium & Calcuim, altough went on to inform me that the NHS don't test for magnesium in the likes of me just wallking into a GP - they use it in A & E where it has marvellouse resuolts - apparently, they don't know why - but it does ! She therefore has tested my Calcium and TFT again and it has come back as - TSH - 2.46, T4 - 16.5, Low Calcium - 2.11, B12 - 1000. Well the B12 supplements have worked, which is good to know, but I can obviously cut these down now, knowing that that is not the main problem. B12 was 597 in Spring. I got the results off the nurse over phone, so haven't been back since last week, but what do you think folks. Is it possible that Iron, being needed by my body is now starting to show up the true state of my health by the slowly increasing TSH, but an increase in T4, by the body actually being able to use some of the T4 produced and increasing blood levels? I dont' know, but I feel we are closing a long story here and getting a bit closer to an answer. I think I just have to push for tests now for Vit D (re the calcium result) and see if there is anything else that can be halting thyroid use, if not, then perhaps I have to re-try some Thyroid - although I doubt very much the GP will trial anything off these results now as the T4's gone up. She didn't seem interested in the TSH, which I find unusual. Anyone any thoughts and anyone been through the same Iron, Thyroid problem? I just feel if i start thyroid meds too soon I won't know whether which one is causing problems if one should. As I have also experienced feeling more hypo if I take too much iron, as it obviously binds with thyroid and can make u worse. Speak soon J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 Well she sounds great my thought is with that low calcium you should have your vit D tested, I would bet your are deficient. When you get your D up ur calcium should rise. Did she not test your parathyroid? Low calcium can indicate high parathyroid hormones. I am so glad you are getting benefits from your supplements. Iron deficiency manifests in many similar ways to hypo, also means if you needed iron your ferritin was low which makes thyroid hormone therapy hardly effective. If I had that TSH and T4 I would think myself still hypo, but when I went on D3 my requirement for thyroid hormones went down a bit, like your iron made you need less. take care lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 > > Anyone any thoughts and anyone been through the same Iron, Thyroid problem? I just feel if i start thyroid meds too soon I won't know whether which one is causing problems if one should. As I have also experienced feeling more hypo if I take too much iron, as it obviously binds with thyroid and can make u worse. > > > > Speak soon > > J > > > Hi , I have had huge problems with my ferritin. i didnt know whether it was thyroid or iron as they both feel quite similar. but the problem is, when the ferritin is low (aim for 90, certainly above 50 )the thyroid hypo probs are much, much worse. I was sooo ill a few months ago, that i was bed-bound, could not walk for foot pain and had chronic fatigue and depression. I take ferrouse fumerrate, but not with milk, you need vit c with it to help absorption and to stop you getting bunged up. My ferrtin was 7 (at one stage 2 ) it is now in the 30s and i feel like a different person, i am even going back to the gym! I am taking all of the supplement that sheila suggested and was glad to hear that extra b12 improves things as mine was 360 (180-900) so i am taking extra. Take heart, low ferritin can really floor you, get this sorted ( can take a while) and see how you feel. Jan xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Hi If your ferritin level is very low or B12, then your thyroid hormone replacement cannot get properly absorbed into the cells. You must take iron at least 3 to 4 hours away from thyroid hormone replacement. I can't really help you in finding out whether it would be the iron or thyroid replacement causing the problem. Luv - Sheila > > Anyone any thoughts and anyone been through the same Iron, Thyroid problem? I just feel if i start thyroid meds too soon I won't know whether which one is causing problems if one should. As I have also experienced feeling more hypo if I take too much iron, as it obviously binds with thyroid and can make u worse. > > > > Speak soon > > J > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 ***When you get your D up ur calcium should rise. > Thanks for that info Dawn. I didn't know. I don't think my calcium has been checked lately (ever??), but my D was at the low end at last count. I have now started taking 400 iu/day of D3. Does that sound a reasonable dose for a 'low inside the range' result ? How long should I take D3 for ? - And do I stop the D any time before I have a blood test next time (will ask my GP for the whole caboodle) ? love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 I am very low but I had only been taking it a month however I was taking 50,000iu per week and the next blood test caught the D conversion (only 2 days after taking) and the calcium had raised with the D. Now no, I don't think 400iu is anywhere near enough, I think that during the winter especially, anyone who isn't even deficient should be taking at least 1000iu. I am taking 4000iu per day with vitamin K2 to get the D and calcium working in and out of the bone (complicated but someone explained why I needed it lol). I will be going to make sure I don't into hypervitaminosis D at least every 4-6 months. I think I have plenty of room though as I have seen that the ideal amount in the blood is quite a bit higher than low normal so you probably have a bit of room too. If I were you I would be doing at least 2-3000iu D3 and some magnesium and K2. The western diet is calcium 'heavy' anyway lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Hello Dawn, ***I am very low but I had only been taking it a month however I was taking50,000iu per week and the next blood test caught the D conversion (only 2 daysafter taking) and the calcium had raised with the D. WOW !! ***Now no, I don't think 400iu is anywhere near enough, I think that during thewinter especially, anyone who isn't even deficient should be taking at least1000iu. Ok, thanks, I will try 800 iu from tomorrow, and if I feel ok, might even up it to 1200/day. - Is it possible that I might feel a little dizzy at times from D ? (could be unrelated, but started the day I started the D). If this stuff works that quickly, it is quite possible that my NDT is better absorbed and consequently the same dosage is more efficient, I guess. But I'll up it slowly and see what happens. *** If I were you I would be doing at least 2-3000iu D3 andsome magnesium and K2. That much ? - gulp! ..... I'll be poor having to pay for all those supplements and I'm already rattling ;o( - and yes, I am taking magnesium 300 mg/day as well - Hope this is not too much? I do have muscle pain/slight cramping particularly in my right leg at present, and it won't go away in spite of the magnesium. Perhaps I am too low in T3, but if I take more NDT, it feels too much. But the pain could well be sciatica, as my hip is giving me grief too - it all hurts, and I can't really determine where it's coming from.... I hate not knowing. Thanks very much for the info, Dawn, love, xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Hi Sheila and all Thanks for all your comments about the Calcium and Vitamin D - I shall, as I say, have to go back and see what the GP says about the TSH at 2.46 and the T4 at 16 anyway. However, as getting an appointment at my surgery is like getting in touch with Bin Laden - it could be a couple of weeks before I am allowed to see her !! Honestly, you can only ring on the day you want to go in and if you don't ring at 8 am on the dot & get in the tel.queue in the right place all the appointments go. I shall persuade her to check the Vit D. I will get to the bottom of what is causing the thyroid hormone not to uptake. Speak soon J > > > > If your ferritin level is very low or B12, then your thyroid hormone > replacement cannot get properly absorbed into the cells. You must take iron > at least 3 to 4 hours away from thyroid hormone replacement. I > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 > PS Which type if Iron is the best to take once your levels are back up? My Ferritin is now at 95, so a lot better than 63 and B12, as I said, a big improvement at 1000 (was 597 in spring before taking nutri B12). I was taking Ferrous Sulphate, and did get improvements in thyroid uptake every time I retook it, but it was short lived and now I need to see if I can tolerate armour again. In the meantime, is taking Spatone sufficient to keep levels up or is there another type to take every so often to ensure thyroid takes better. what's this Ferrous fumerate others talk about? J > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Once your iron levels are back where they should be, you shouldn't really need to continue taking more iron. However, having said that, I religiously take 1000mgs B12 sublingually every day. Luv - Sheila Which type if Iron is the best to take once your levels are back up? My Ferritin is now at 95, so a lot better than 63 and B12, as I said, a big improvement at 1000 (was 597 in spring before taking nutri B12). I was taking Ferrous Sulphate, and did get improvements in thyroid uptake every time I retook it, but it was short lived and now I need to see if I can tolerate armour again. In the meantime, is taking Spatone sufficient to keep levels up or is there another type to take every so often to ensure thyroid takes better. what's this Ferrous fumerate others talk about? J > > > > > > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.14.3/2412 - Release Date: 10/04/09 18:42:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 As we age we become less efficient at absorbing certain nutrients - after the age of 50 everyone should take additional vitamin B12. I suggest 1mgs ie 1,000mcgms orally daily (perhaps only 1% is absorbed), increasing with age until at some stage using injected B12 (I suggest 2mgs, ie 2,000mcgms per month) to ensure good levels in the blood. (Dr.Myhill) The above piece is from Dr. Myhills site which I keep for my own notes, sorry I cant point you to the exact page, still learning there. If you take a swallowed pill, only about 1 & is absorbed, with sublingual about l5% B12 is notoriously difficult to absorb and even with injections about 48% is excreted within 14 hours (PAS forum) However, having said that, I religiously > take 1000mgs B12 sublingually every day. > Luv - Sheila > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 So you think I need to increase my B12 Ginny? Luv - Sheila As we age we become less efficient at absorbing certain nutrients - after the age of 50 everyone should take additional vitamin B12. I suggest 1mgs ie 1,000mcgms orally daily (perhaps only 1% is absorbed), increasing with age until at some stage using injected B12 (I suggest 2mgs, ie 2,000mcgms per month) to ensure good levels in the blood. (Dr.Myhill) The above piece is from Dr. Myhills site which I keep for my own notes, sorry I cant point you to the exact page, still learning there. If you take a swallowed pill, only about 1 & is absorbed, with sublingual about l5% B12 is notoriously difficult to absorb and even with injections about 48% is excreted within 14 hours (PAS forum) However, having said that, I religiously > take 1000mgs B12 sublingually every day. > Luv - Sheila > > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.420 / Virus Database: 270.14.3/2412 - Release Date: 10/05/09 18:23:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 It can do no harm at all. except perhaps to the pocket. to increase to 2,000mcg, most people do not realise how poorly B12 is absorbed and when doctors say we need only about 2mcg (actually now thought to be quite a bit more) per day even that is not easy to achieve without sublinguals or injections. Some with absorption difficulties, (PA, Coeliac, Chrones etc) even though they have regular injections AND sublinguals struggle to achieve 500 ng/L in tests. Ginny B > > So you think I need to increase my B12 Ginny? > > > > Luv - Sheila > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi Ginny & Sheila As I've said before, my blood test results show that the B12 I take from Nutri does absorb as it went up from 597 in spring to 1000 now. I'm taking 1000mcg per day. The B12 has Intrinsic Factor in it which a lot of brands don't. Reading various articles I see that Intrinsic factor is the stomach enzyme we need to absorb B12 and as we get older we don't have as much. It seems silly to spend more on B12 if the sort you are taking isn't absorbing and just being passed out again. Have you done a blood test recently to see what level u are at? J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi - I will have a look at the B12 from Nutri. Certainly, it has had a remarkable effect on your level. I take the 1000mgs from Solgar but I must admit never had a look to see if it has the intrinsic Factor - and this old lass is getting' old! I do know that it also needs to be taken sublingually. Luv - Sheila As I've said before, my blood test results show that the B12 I take from Nutri does absorb as it went up from 597 in spring to 1000 now. I'm taking 1000mcg per day. The B12 has Intrinsic Factor in it which a lot of brands don't. Reading various articles I see that Intrinsic factor is the stomach enzyme we need to absorb B12 and as we get older we don't have as much. It seems silly to spend more on B12 if the sort you are taking isn't absorbing and just being passed out again. Have you done a blood test recently to see what level u are at? J No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.421 / Virus Database: 270.14.7/2421 - Release Date: 10/07/09 20:49:00 Quote Link to comment Share on other sites More sharing options...
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