Endo visit for adrenals etc. -w hat will I say?

August 18, 2010

Hello all

In May of this year, I stumbled upon an amazing GP. She is eager to learn all

about NTH, prescribed me NTH no questions asked and in general is extremely

supportive, open minded, eager to learn and HUMAN. She is happy for me to be on

NTH and prescribes that. She also prescribes HC to me. However, she wanted some

cortisol bloods done when I first saw her. I told her that bloods are inaccurate

once on HC, but she wanted to get them done anyway. The result came back high. I

then showed her my previous cortisol labs on the SAME DOSE and they vacillated

from super low to super high too. So, it is obvious that bloods can't be tested

on HC.

Still, she feels that my adrenals need to be thoroughly tested as I have only

ever gotten the saliva test pre HC. She asked why not wean off the HC and get a

STIM done and I explained to her that everytime I try to wean I get

palpitations, extreme anxiety, shakiness, dizziness and low BP. Her answer to

that was : " Fair enough, I can see why you don't want to wean " . But she hopes

this guy will give me an adrenal scan.

So, I was thinking when I see this endo what will I say/do? I REFUSE to come off

HC, as when I have tried before I get the above symptoms AND cannot tolerate

even 1/4 grain thyroid.

I wish I had been tested for LOCAH and hypopit before I was put on HC, but I was

not. So, it seems too late now.

I am not looking forward to this, as I ma only going to keep her happy. This

visit is free, so I suppose that is good; but he will demand I wean I know and

what do I say then?

In a perfect world I would like him to:

Run an adrenal scan

Order a thyroid ultrasound

Try to figure out via SYMPTOMS if I have LOCAH or Hypopit - Or can he test any

of my hormones for hypopit?

Test aldostrone and rennin

Test me for Graves antibodies because I had an eye issue before and

ophthalmologist told me that one can have Graves and Hashi antibodies at the

same time.

What can I say/do to make him listen? Could there be anything that would help?

I am dreading this appointment. I would dearly live to get help and the tests I

want, but can't see it happening.

Thanks!

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