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RE: Re: New to TPA forum - thyroid, adrenal ongoing problems - can anyone help me ?

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Hi

Donna

I

think you need to ask your GP to test to see whether you have thyroid

antibodies or not, as this could be your problem. Thyroid antibodies set about

destroying your thyroid gland, and when they become active, you can get the symptoms

of hyPERthyroidism, and when they are not, the symptoms of hyPOthyroidism. Are

you taking 200mcgs Selenium daily because this element is absolutely essential

to all sufferers of hypothyroidism. Any chance you could see one of our Medical

Advisers, either Dr Skinner, Dr Peatfield or Dr Mantzourani as you appear right

to be stuck between a rock and a hard place and you need a doctor who knows

about thyroid/adrenal problems.

Thyroid

function tests are not to be relied on and doctors should not assume you are

hyperthyroid because your TSH is suppressed, there are many reasons this could

be happening, the most obvious being that you are now taking all the thyroid

hormones your body requires, though because of your symptoms, obviously have

not found the correct dose your body needs to get rid of all or your symptoms

It really is NOT enough just to have your TSH tested, this is a pituitary

hormone anyway, and is not a thyroid hormone. We need to know what you’re

the level of T4 and T3 is in your blood, though it would be preferable to know

how much T4 and T3 your body is actually using, and this can only be tested

through a 24 hour urine test done by Genova Diagnostics (TPA members get

discounts on their tests - see Files under DISCOUNTS). the 24 hour T3/T4 test

normally costs £100, but TPA members pay only £85. It really is essential that

you get the 24 hour salivary test to check the levels of your DHEA and Cortisol

and the normal price for this is £70 but TPA members pay £60. I know these are

very expensive, but I would beg, borrow or steal to get the money to pay for

these because the NHS do not do them. Below is the info you need to be able to

get the discounts:

In

order to receive your discount, please DO NOT order direct from their

web site. You need to Tel +44(0)20 8336 7750  or +44(0)20 8336 7752 (Direct) -

or you can Email NAbraham@....

When you complete your order, please remember to quote ‘Thyroid

Patient Advocacy UK as ‘PRACTITIONER’, or you will not be given

the discount.

For

the moment, if you are still feeling shaky (are you experiencing palpitations?)

it would do no harm to stop taking your thyroid hormone replacement for 24

hours (even 48 hours) to see whether that will help you feel better. Nothing

sinister will happen by stopping, but it will give your adrenals time to recuperate

as they are obviously working overtime trying to make all the other gland in

your body function as they should. You might find that taking natural

progesterone cream might help your period problem. The best is 'Serenity' and

is highly recommended by people on this forum who have used it. Read what Dr

Lam has to say about the adrenal/thyroid/ovarian connection http://www.drlam.com/articles/ovarian_adrenal_thyroid.asp

Luv

- Sheila

I am pretty desperate at the moment to get

myself sorted. I have no one who can help me and I am a lone parent with 2

energetic children youngest is 3 and I have no energy for them. There are not

really any good doctors that I have come across who will listen and work with

me. The hardest thing is not knowing whats wrong with me. Although I appear to

be hyperthyroid my private doc says I am hypothyroid (he looks at peoples

clinical symptoms rater than relying too much on blood tests) I do display

symptoms of hypothyroid eg, fatigue, hairloss, feel cold, low temp, slow

thinking and heart racing, very heavy periods that can last for more than 7

days. I get clinical symptoms for both hypo and hyper states so I am confused.

Maybe you can help shed some light. My gp says I am hyper because my TSH is so

low and my FT4 is so high

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