Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Kari, well nothing would go down with out spasms so i was on a liquid diet..fun huh. No i don't get offeneded very often so feel free to share. LOL I went in yesterday and they streched my throat with the largest ballon they had. But DR said after he looked there where restrictions but thinks it has more to do with my motility..I think he is right..cause i got sick in bed last night. Yuck i hate that. Not feeling to bad, just feel like someone drop kicked my throat for a goal. Stuff is going down with out spasms but been taking it easy on what i try to eat...soft stuff. Dr said if this didn't work for very long he suspects it is the motility and will to another monomerty. I hate those i gag every time. Said we could try prilosec and see if that helps if not then he will refer me to another surgeon for recontrstruction. Sounds like i need to have my bathroom rebuilt or something..Guess my plubming is cloged HE HE. I know i'm not an expert or anything but i know my body..I think the valve that goes to my stomach is just messed up and doesn't want to open most of the time. Causing everything to back up and thats what caused the bulg at the bottom of my esoph. Especially since he opened everything yesterday and i still got sick last night. I think the valve is confused and opens when it is suppose to be closed and closes when it is suppose to be open. I do know that there are fake valves that have been tried. But that is in larger cities and i live in Bloomington Indiana. Which is just a big college town. Well i don't want to write a book. Talk to you soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Dear Corri, Welcome. You are probably having a spasm. Perhaps call your doctor. Many of us experienced it. I had a few really bad spasms but didn't want to call 911 before the achalasia symptoms started. Then didn't have any for about 6 months or so. After my dilation then I started getting them, until they were about 1x an hour before my surgery. Surgery stopped them for the most part, but I had a couple of bad ones, then other different shorter ones and not as sharp. For the regular fast starting spasms a bite of bread (I know weird that it is bread), and some gulps of water stop them. The faster I took it when the spams started the quicker they went away. Since they went away with water then I figured it wasn't a heart attack. Also seems like the spasm happened more often when I hadn't eaten, one reason many of us aren't really really thin. Keeping food going through seemed to keep the spasms away, even if I regurged everything. Good luck w/ your dilation. Sandy in so Cal. > > You can make some of the noises go away by bending over. This is a > delicate act as things can fall out of your mouth if you bend over > too much. That action pushes out the air that is trapped in your > stomach. That isn't one of my big issues, but I notice bending over > can make noises if you have recently eaten. > > About the upper sphincter or " throat " difficulty in swallowing. I > thought for sure there was something wrong with my upper sphincter > both before my dilation and before my myotomy because it felt as if > it was locking up too. Which ever doctors I was seeing at the time > said my tests didn't show that. I swore sometimes the food wouldn't > even get past my throat and had to come up... perhaps the problem was > trapped air. After my dilation and after surgery that feeling went > away totally so they were right. > > Notice some people are going for surgery... my hints.... chap stick, > sports bra to wear, food in the fridge at home ready that you will > likely be able to eat. Forget the makeup. Bring glasses if you wear > contacts. Also seems like people are puffy when they leave so > elastic waist clothes. Also I had caffeine withdrawal so sneak in > some caffeine as the food or drinks were non-caffeinated for me. > They also let me bring my own meds that I take every day. I also had > a decongestant nasal spray because I get allergic easily to perfume > or flowers etc. I also had Claritin. > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Hello Corri nad welcome to the group. I have had those same pains too. Some of mine last for hours though. I usually get them at night and i have to go try and eat and drink something. I go watch tv and try and relax and that normally helps the pain go away faster. Sorry to hear you broke your wrist I know what that feels like. Good luck on Tuesday on your appointment. Is that your frist treatment that you have for " A " ? in Suffolk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 I get the chest pains frequently. My surgeon discribed it as food weged in the LES, and it casues heart attack like pain. Some times the pain is more severe then when i woke up from my surgery. Its scary, you really need to talk to your doctor, explain the symptoms, get a full physical to rule out any other issues. Then your doctor can teach you how to determine the pain you are having from something you need to rush to the ER about. I hope this helps. Sonya --- Corri Natinsky <corriellyn@...> wrote: --------------------------------- Hello All. I am pretty new to the website, but have found it so informative, and the people are so nice and helpful. I am scheduled for dilation on Tuesday, unfortunately I broke my wrist and missed my appt. 2 weeks ago. In the past 2 weeks I have experienced 2 horrible scary times where the pain in my chest is so bad that I fear I am having a heart attack. I am completely healthy besides the achalasia, so I am thinking this is some kind of spasm. The pain is like a tightness around my chest and back, and it passes after about 5-10 minutes. Has anyone else experienced this? I get pretty close to calling 911, and then it passes. I appreciate any and all feedback. Thanks so much, Corri toomuchclutter <sandycarroll@...> wrote: You can make some of the noises go away by bending over. This is a delicate act as things can fall out of your mouth if you bend over too much. That action pushes out the air that is trapped in your stomach. That isn't one of my big issues, but I notice bending over can make noises if you have recently eaten. About the upper sphincter or " throat " difficulty in swallowing. I thought for sure there was something wrong with my upper sphincter both before my dilation and before my myotomy because it felt as if it was locking up too. Which ever doctors I was seeing at the time said my tests didn't show that. I swore sometimes the food wouldn't even get past my throat and had to come up... perhaps the problem was trapped air. After my dilation and after surgery that feeling went away totally so they were right. Notice some people are going for surgery... my hints.... chap stick, sports bra to wear, food in the fridge at home ready that you will likely be able to eat. Forget the makeup. Bring glasses if you wear contacts. Also seems like people are puffy when they leave so elastic waist clothes. Also I had caffeine withdrawal so sneak in some caffeine as the food or drinks were non-caffeinated for me. They also let me bring my own meds that I take every day. I also had a decongestant nasal spray because I get allergic easily to perfume or flowers etc. I also had Claritin. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Hi Corri I get spasms almost everyday. It starts in the chest and then takes over my whole upper body. The pain is excruciating. I find that if I drink water as soon as it starts it goes away, if not I chew on a quick eze tablet. My doctor told me that it is the oesophagus contracting. Biljana > > You can make some of the noises go away by bending over. This is a > delicate act as things can fall out of your mouth if you bend over > too much. That action pushes out the air that is trapped in your > stomach. That isn't one of my big issues, but I notice bending over > can make noises if you have recently eaten. > > About the upper sphincter or " throat " difficulty in swallowing. I > thought for sure there was something wrong with my upper sphincter > both before my dilation and before my myotomy because it felt as if > it was locking up too. Which ever doctors I was seeing at the time > said my tests didn't show that. I swore sometimes the food wouldn't > even get past my throat and had to come up... perhaps the problem was > trapped air. After my dilation and after surgery that feeling went > away totally so they were right. > > Notice some people are going for surgery... my hints.... chap stick, > sports bra to wear, food in the fridge at home ready that you will > likely be able to eat. Forget the makeup. Bring glasses if you wear > contacts. Also seems like people are puffy when they leave so > elastic waist clothes. Also I had caffeine withdrawal so sneak in > some caffeine as the food or drinks were non-caffeinated for me. > They also let me bring my own meds that I take every day. I also had > a decongestant nasal spray because I get allergic easily to perfume > or flowers etc. I also had Claritin. > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Yes I was cause my father just had a double bypass about two years ago. I also had the myotomy about two years ago. I will be going back for surgery on the 30th of this month. Have you concidered having the surgery? You need to remeber that this is a progressive disease and that surgery is the best corse of treatment for people with Achalasia. I would look into finding a specialist to help you make informed decisions. Also take a good look over the site there is a whole bunch on information to go over as well as postings from others. I hope all goes well and welcome to the group. in Suffolk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Well I went that route to. I even had the botox and I think all of the procedures may have hindered the outcome of my first myotomy. in Suffolk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Hi Sandy: Thank you so much for the reponse! You experienced the pains more after you had dilation? I was given the choice to either have the surgery, or dilation and I chose the latter. I am hoping it willbring me some relief. Are you feeling better? Did the surgery make everything better? Thank you, Corri in Michigan! toomuchclutter <sandycarroll@...> wrote: Dear Corri, Welcome. You are probably having a spasm. Perhaps call your doctor. Many of us experienced it. I had a few really bad spasms but didn't want to call 911 before the achalasia symptoms started. Then didn't have any for about 6 months or so. After my dilation then I started getting them, until they were about 1x an hour before my surgery. Surgery stopped them for the most part, but I had a couple of bad ones, then other different shorter ones and not as sharp. For the regular fast starting spasms a bite of bread (I know weird that it is bread), and some gulps of water stop them. The faster I took it when the spams started the quicker they went away. Since they went away with water then I figured it wasn't a heart attack. Also seems like the spasm happened more often when I hadn't eaten, one reason many of us aren't really really thin. Keeping food going through seemed to keep the spasms away, even if I regurged everything. Good luck w/ your dilation. Sandy in so Cal. > > You can make some of the noises go away by bending over. This is a > delicate act as things can fall out of your mouth if you bend over > too much. That action pushes out the air that is trapped in your > stomach. That isn't one of my big issues, but I notice bending over > can make noises if you have recently eaten. > > About the upper sphincter or " throat " difficulty in swallowing. I > thought for sure there was something wrong with my upper sphincter > both before my dilation and before my myotomy because it felt as if > it was locking up too. Which ever doctors I was seeing at the time > said my tests didn't show that. I swore sometimes the food wouldn't > even get past my throat and had to come up... perhaps the problem was > trapped air. After my dilation and after surgery that feeling went > away totally so they were right. > > Notice some people are going for surgery... my hints.... chap stick, > sports bra to wear, food in the fridge at home ready that you will > likely be able to eat. Forget the makeup. Bring glasses if you wear > contacts. Also seems like people are puffy when they leave so > elastic waist clothes. Also I had caffeine withdrawal so sneak in > some caffeine as the food or drinks were non-caffeinated for me. > They also let me bring my own meds that I take every day. I also had > a decongestant nasal spray because I get allergic easily to perfume > or flowers etc. I also had Claritin. > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Thanks Sandy! I am scheduled for tomorrow so I guess I am just going to go for it. My surgeon told me that he performs 2 dilations a year for the past 20 years. He has seen 2 perforations. I mean , since A is so uncommon how do you find a " experienced " surgeon? Thanks Sandy! toomuchclutter <sandycarroll@...> wrote: Dear Corri, My rushed answer since you asked us... go for surgery first. You are likely delaying the inevitable and you will get better results it seems from surgery when there haven't been procedures. Until a couple of years ago the dilation was usually worth a try, but the surgery has been so successful for most patients that many doctors who see a lot of cases recommend surgery first, all things equal. Read articles from the pubmed website but be careful of the dates when they compare procedures. Dilation seems to be lasting only a few years at best and can cause scarring, making surgery less successful in the future. In earlier articles, there wasn't as much history on dilation with the tools they use now. I did have dilation first, because there was a chance it would last a long time. It felt symptoms return w/i 6 months, then made it for about 2 years before surgery. Since then my gi doctor recommends surgery first, per Peggy, who recently saw him. When I saw him 3 years ago I had the impression it was 50/50 with him. As is said so many times here. Experienced surgeon, experienced surgeon, experienced surgeon. That is the main element of successful surgery. Grill them about how they do it, why they do it the way the do, what are the differences of opinion about the way they do it and what is their justification for how they do it. After you press them you will have a good understanding of their experience level. Sandy in So Cal. > Hello Corri nad welcome to the group. I have had those same pains too. Some > of mine last for hours though. I usually get them at night and i have to go > try and eat and drink something. I go watch tv and try and relax and that > normally helps the pain go away faster. Sorry to hear you broke your wrist I > know what that feels like. Good luck on Tuesday on your appointment. Is > that your frist treatment that you have for " A " ? > > > in Suffolk > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Curious Nate, For now, don't be curious, be grateful, that you don't get the chest pains (aka esophageal spasms). When you feel a pain radiating most likely from somewhere around your esophagus with the intensity of a heart attack, you won't be curious anymore....you'll be one of us. Can be experienced pre-Heller Myotomy, most likely post-op, but sometimes not ever. We are all different but with a disease in common. There have been many posts about the spasms, and in " Links " to click on in the left sidebar. I'm just wondering what everyone is talking about with chest pains. I've never had them. Unless you mean the pain in the throat when food is trying to work it's way down. > Curious Nate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 -Think yourself fortunat Nate. I did not get them initially either. When and if you do, you will certainly know what we are talking about. When I first got them I did not know about this group, and I thought heart burn must have been worse than described. They were totally unbearable and noone could help me. -- In achalasia , " nwalby " <nwalby@...> wrote: > > I'm just wondering what everyone is talking about with chest pains. > I've never had them. Unless you mean the pain in the throat when food > is trying to work it's way down. > > Curious Nate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hey something I can help on. I haven't had a Myotomy but do get SEVERE spasms. It's from my oesphagus trying to move along anything that may be in there, saliva, food, drinks but can't so cramps up. The pain is horrific. Feels as if someone is prying your chest wall apart? Goes through to your back? Nothing seems to really help the pain? A lot on here get this pain and I have heard them say that cold water helps for them It makes mine worse. Buscopan. I had to laugh. I am sorry. Not at you or your pain but the Doctor trying this good old drug. I don't think I have heard one A patient say it works for their spasm. But I may be wrong. God knows I have had in jabbed in me and shoved down my throat many times by the 'we know it all' Doctor's only to have it not work. Nephidipine helps a great deal. It's a blood pressure med but opens the blood vessels in the oesphagus up easing pain. I HAVE GONE BACK ON THESE. Just so everyone knows. Viagra is fantastic too for spasm in the oesphagus. Think above the waist.I had no idea it could be used for this until it was offered to me years ago. Valium can settle the spasm cramps down but of course makes you tired. But it's handy to have some on hand when it's really bad. I have found relief in a combination of Morphine and Medazalam, only in hospital, when it gets beyond treatment at home. That's if the Doctor's will get off their high horses and give it to me. It works within a few minutes. Otherwise mine can go for days. In fact mine is always present it just flares up. Plus I have my life saving Neurostimulation implant that controls my spasm pain by 95%. It's just that %5 that almost kills me. So I rarely takes pain killers any more. Yeah! I love you Professor Rawicki. My Saviour. So you are not alone. I am sure the others can offer other solutions. Hang in there. I am sure you will be flooded with suggestion and support which this group is great at. They put up with me! Australia > > hi every 1 > > i had an open myotomy 3 years ago and was wondering if any 1 could > help me with something! > > i still get really awful pains in my chest which my doctor has said > is spasms or something (not acid ref as had my stomache twisted as > well). > He has perscribed buscopan, this doesnt seem to have any affect on my > pains which vary from persistant bearable pains that last up to 24 > hours to oh my god help, pains that are short yet extremely painful. > The only thing i do find helps is sipping water or any liquid which > seems to curb it from being more painful than with out it, if i have > 1 of these pains and get caught short with out water (which i know to > carry everywhere) i am in absolute agony!!!!! > > ive looked on the internet re this but among the mass of info in > human and doctor talk i cant seem to find anything difinative that > helps. > > does any 1 else get this, does anything help, is any 1 on diff > medication for this that i could ask for and is this how it wil be > for me for the rest of my life?? > > also has any 1 else been told that the procedure has to be repeated > every 10 year or so as i do remember my surgeon sayin something about > that to and agin cant find anyting on the internet > > sharon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 My chest pain never went totally away with by April 2005 Myotoomy. I was dialiated last week and I've had them almost every day since. Not sure what is up with that, anyway, Below are several past postings of mine about my spasm " medicine " . (post # 37173) I know I must sometime drive the grocery store guard behind the security camera crazy as occassionally I have a chest pain that gets so bad while shopping I'll just run over to the nearest bottle of water, grab it off the shelf, rip off the lid and start chugging. A half bottle of water (or 8-16 oz) or so make the pain go away in 1- 2 minutes, if not sooner, everytime. Cereal also helps. I've also been know to rip into a box of cereral in the store before paying also. Also, as you may know, you can search old posts on here by topic, name of poster, post #, etc. Over the years, there have been tons of postings on chest pains. Search around and see what you can find. try spasm, chest pain, the name of the medicine, wheatver you can think of. Don't forget good 'ol NCCP (non cardiac chest pain) Dave central cali > > hi every 1 > > i had an open myotomy 3 years ago and was wondering if any 1 could > help me with something! > > i still get really awful pains in my chest which my doctor has said > is spasms or something (not acid ref as had my stomache twisted as > well). > He has perscribed buscopan, this doesnt seem to have any affect on my > pains which vary from persistant bearable pains that last up to 24 > hours to oh my god help, pains that are short yet extremely painful. > The only thing i do find helps is sipping water or any liquid which > seems to curb it from being more painful than with out it, if i have > 1 of these pains and get caught short with out water (which i know to > carry everywhere) i am in absolute agony!!!!! > > ive looked on the internet re this but among the mass of info in > human and doctor talk i cant seem to find anything difinative that > helps. > > does any 1 else get this, does anything help, is any 1 on diff > medication for this that i could ask for and is this how it wil be > for me for the rest of my life?? > > also has any 1 else been told that the procedure has to be repeated > every 10 year or so as i do remember my surgeon sayin something about > that to and agin cant find anyting on the internet > > sharon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Huh !? what is a Neurostimulation implant? Something permently installed in you, like a pace maker ? Dave cow county Calif > > > > hi every 1 > > > > i had an open myotomy 3 years ago and was wondering if any 1 could > > help me with something! > > > > i still get really awful pains in my chest which my doctor has said > > is spasms or something (not acid ref as had my stomache twisted as > > well). > > He has perscribed buscopan, this doesnt seem to have any affect on my > > pains which vary from persistant bearable pains that last up to 24 > > hours to oh my god help, pains that are short yet extremely painful. > > The only thing i do find helps is sipping water or any liquid which > > seems to curb it from being more painful than with out it, if i have > > 1 of these pains and get caught short with out water (which i know to > > carry everywhere) i am in absolute agony!!!!! > > > > ive looked on the internet re this but among the mass of info in > > human and doctor talk i cant seem to find anything difinative that > > helps. > > > > does any 1 else get this, does anything help, is any 1 on diff > > medication for this that i could ask for and is this how it wil be > > for me for the rest of my life?? > > > > also has any 1 else been told that the procedure has to be repeated > > every 10 year or so as i do remember my surgeon sayin something about > > that to and agin cant find anyting on the internet > > > > sharon > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Sharon, when you had your surgery did they do a wrap also? If so that miht be part of why you are having pain. After I had my first surgery I had pain on my left side right where my ribs curve up. This pain went away after my second surgery when the wrap was taken down. I hope this might help you out a little. in Gerogiawinnie060180 <winnie060180@...> wrote: hi every 1 i had an open myotomy 3 years ago and was wondering if any 1 could help me with something!i still get really awful pains in my chest which my doctor has said is spasms or something (not acid ref as had my stomache twisted as well).He has perscribed buscopan, this doesnt seem to have any affect on my pains which vary from persistant bearable pains that last up to 24 hours to oh my god help, pains that are short yet extremely painful. The only thing i do find helps is sipping water or any liquid which seems to curb it from being more painful than with out it, if i have 1 of these pains and get caught short with out water (which i know to carry everywhere) i am in absolute agony!!!!!ive looked on the internet re this but among the mass of info in human and doctor talk i cant seem to find anything difinative that helps.does any 1 else get this, does anything help, is any 1 on diff medication for this that i could ask for and is this how it wil be for me for the rest of my life??also has any 1 else been told that the procedure has to be repeated every 10 year or so as i do remember my surgeon sayin something about that to and agin cant find anyting on the internetsharon __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hi Sharon, Those pains can be so horrible! Many of us suffer from them, so at least it might be comforting for you to know that you're not alone. When you search on some specific terms (spasms, pain etc.) you will find many posts with many ideas that can help you. There is no such thing as a medicin that will certainly take away the pain, but there are several things you can try. For me Isordil (tablet under tongue, normally used in patients with a heart condition) works thus, that it takes of the sharpest edges of the pain (it never takes away the pain completely). Furthermore sometimes milk helps, or pudding, a banana, a warm shower, a cold towel, but the very best thing for me is to put my finger in my throat to get the muscle to move the way it does while vomiting (which I cannot). I am not allowed to do so, as this might damage the wrap (so if you have a wrap, don't use this trick!!!). As I am going for the -ectomy coming March this wrap doesn't bother me anymore, so I can fake vomit as much as I need to. I think this trick might work this great for me (not always I have to add) as the spasm of course is some kind of cramp of the muscle, by having the muscle move otherwise it gets out of the cramp (that's my non-doctor guess). As for the myotomy success: for as far as I know positive results of a myotomy in an average achalasian lasts for about 10 to 15 years. We speak of an average achalasian, so not about you or me or anyone in particular. In your case things might last for say 25 years, whereas mine really lasted for say 5 years (after that things slowly got worse). The average then still is 15 years... You know, you shouldn't worry about the future (hear who's talking, ahum). Time will tell. Be patient and enjoy the success of your surgery. Don't let the achalasia win, don't let it be the laughing party!!! You didn't go through surgery to end up worrying how long the results will last. Don't let your fear spoil the joy the surgery success gives you now, it would be a waste. Love, Isabellawinnie060180 <winnie060180@...> wrote: hi every 1 i had an open myotomy 3 years ago and was wondering if any 1 could help me with something!i still get really awful pains in my chest which my doctor has said is spasms or something (not acid ref as had my stomache twisted as well).He has perscribed buscopan, this doesnt seem to have any affect on my pains which vary from persistant bearable pains that last up to 24 hours to oh my god help, pains that are short yet extremely painful. The only thing i do find helps is sipping water or any liquid which seems to curb it from being more painful than with out it, if i have 1 of these pains and get caught short with out water (which i know to carry everywhere) i am in absolute agony!!!!!ive looked on the internet re this but among the mass of info in human and doctor talk i cant seem to find anything difinative that helps.does any 1 else get this, does anything help, is any 1 on diff medication for this that i could ask for and is this how it wil be for me for the rest of my life??also has any 1 else been told that the procedure has to be repeated every 10 year or so as i do remember my surgeon sayin something about that to and agin cant find anyting on the internetsharon __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 thanks martin. i do remeber that he said something about a partial wrap, whatever that means. but i had these pains for years before i was even diagnosed. in fact 2 years before i remember having such sever pains having to pull over in the nearest layby/ bus stop and clenching my chest for an hour and a half, chair full back in agony, it was horrible, then 1 day the pain was making me feel sick so had some water and realise that it helped a loittle, didnt stop it but certianly helped. thanks for repling Mueller IV <mt4mar@...> wrote: Answers - Get better answers from someone who knows. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 . Yep. I have an implant permantly implanted into my spinal cord to stop me feeling this spasm 24/7. It saved me from suicide and got me my son back from Myrene Purcell the DHS from Hell. The surgery is about to be published in a Medical Journal as I am the first to have it implanted for Achalasia pain. Austrlia > > > > > > hi every 1 > > > > > > i had an open myotomy 3 years ago and was wondering if any 1 > could > > > help me with something! > > > > > > i still get really awful pains in my chest which my doctor has > said > > > is spasms or something (not acid ref as had my stomache twisted > as > > > well). > > > He has perscribed buscopan, this doesnt seem to have any affect > on my > > > pains which vary from persistant bearable pains that last up to > 24 > > > hours to oh my god help, pains that are short yet extremely > painful. > > > The only thing i do find helps is sipping water or any liquid > which > > > seems to curb it from being more painful than with out it, if i > have > > > 1 of these pains and get caught short with out water (which i > know to > > > carry everywhere) i am in absolute agony!!!!! > > > > > > ive looked on the internet re this but among the mass of info in > > > human and doctor talk i cant seem to find anything difinative > that > > > helps. > > > > > > does any 1 else get this, does anything help, is any 1 on diff > > > medication for this that i could ask for and is this how it wil > be > > > for me for the rest of my life?? > > > > > > also has any 1 else been told that the procedure has to be > repeated > > > every 10 year or so as i do remember my surgeon sayin something > about > > > that to and agin cant find anyting on the internet > > > > > > sharon > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 > > hi every 1 > > i had an open myotomy 3 years ago and was wondering if any 1 could > help me with something! > > i still get really awful pains in my chest which my doctor has said > is spasms or something (not acid ref as had my stomache twisted as > well). > He has perscribed buscopan, this doesnt seem to have any affect on my > pains which vary from persistant bearable pains that last up to 24 > hours to oh my god help, pains that are short yet extremely painful. > The only thing i do find helps is sipping water or any liquid which > seems to curb it from being more painful than with out it, if i have > 1 of these pains and get caught short with out water (which i know to > carry everywhere) i am in absolute agony!!!!! > > ive looked on the internet re this but among the mass of info in > human and doctor talk i cant seem to find anything difinative that > helps. > > does any 1 else get this, does anything help, is any 1 on diff > medication for this that i could ask for and is this how it wil be > for me for the rest of my life?? > > also has any 1 else been told that the procedure has to be repeated > every 10 year or so as i do remember my surgeon sayin something about > that to and agin cant find anyting on the internet > > sharon Hey sharon, you try it with 500 mg Magnesium.When I had pain, Magnesium help me wonderfull. Hartwig Germany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hello , you can send me the published ? Hartwig Germany > > > > > > > > hi every 1 > > > > > > > > i had an open myotomy 3 years ago and was wondering if any 1 > > could > > > > help me with something! > > > > > > > > i still get really awful pains in my chest which my doctor has > > said > > > > is spasms or something (not acid ref as had my stomache twisted > > as > > > > well). > > > > He has perscribed buscopan, this doesnt seem to have any affect > > on my > > > > pains which vary from persistant bearable pains that last up to > > 24 > > > > hours to oh my god help, pains that are short yet extremely > > painful. > > > > The only thing i do find helps is sipping water or any liquid > > which > > > > seems to curb it from being more painful than with out it, if i > > have > > > > 1 of these pains and get caught short with out water (which i > > know to > > > > carry everywhere) i am in absolute agony!!!!! > > > > > > > > ive looked on the internet re this but among the mass of info in > > > > human and doctor talk i cant seem to find anything difinative > > that > > > > helps. > > > > > > > > does any 1 else get this, does anything help, is any 1 on diff > > > > medication for this that i could ask for and is this how it wil > > be > > > > for me for the rest of my life?? > > > > > > > > also has any 1 else been told that the procedure has to be > > repeated > > > > every 10 year or so as i do remember my surgeon sayin something > > about > > > > that to and agin cant find anyting on the internet > > > > > > > > sharon > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 Hi Dawn, thanks for your concern. I'm ok....just trying to get the bottom of what's gone wrong with me.It just gets hard sometimes as there's no one to look after the kids except me and no one to look after me except me ! (violins please, ha ha).My local hospital is awful...no place to be if you're ill and they have a very poor reputation..... the last time I was there after the car accident, the consultant sent me home with medicine that contained aspirin....I'm allergic to it. But, if it gets worse.... I'll go up there. julia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 you should definitely go to the Hospital > > > > > Hi Dawn, > > thanks for your concern. I'm ok....just trying to get the bottom of what's gone wrong with me.It just gets hard sometimes as there's no one to look after the kids except me and no one to look after me except me ! (violins please, ha ha).My local hospital is awful...no place to be if you're ill and they have a very poor reputation..... the last time I was there after the car accident, the consultant sent me home with medicine that contained aspirin....I'm allergic to it.                  But, if it gets worse.... I'll go up there. > > julia > Quote Link to comment Share on other sites More sharing options...
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