Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 His TSH is clearly high - how can you rule out thyroid? > 10.3 H (1.7 - 8.6) TSH > > This doesnt seem to be a thyroid issue, but i may be wrong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 > This doesnt seem to be a thyroid issue, but i may be wrong. his adrenals have gone crazy and his Testosterone levels do need some attention.go to this place and speak to phil. he is very knowledgeable about mens issues. Thanks , I'll keep an eye out for any replies there too ... - Although this might not be a straight forward thyroid issue, I deliberately posted Ian's story here in the hope that some of our medical advisors to the TPA will take a look at his adrenal profile as well as all you experienced people. Ian needs to get some idea if - as his GP implies by giving him antidepressants and sleeping pills - this is "all in his head" or if he has a real medical problem. To my mind, it's the latter.... - and if so, which way should he turn next. Which tests does he need, which specialist does he need to see? I am not a doctor, but I wonder if the reason for Ian's adrenals going haywire *might* be Cushing's, or perhaps malfunctioning of the hypothalamus/pituitary axis ?? - I am only guessing. Testicular failure may also be implemented, and in that field I am totally out of my depth. Hormonal imbalances are complicated enough to understand when "only" thyroid hormones are involved. But since the whole of the endocrine system works as a whole, all hormones is linked, and I would not at this stage rule out thyroid implications just because Ian's TSH and FT4 were looking ok-ish. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 But since the whole of the endocrine system works as a whole, all hormones is linked, and I would not at this stage rule out thyroid implications just because Ian's TSH and FT4 were looking ok-ish. Oh dear.... me English is goin' down the drain.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi and Ian I have just been speaking with Dr Peatfield - I faxed him a copy of Ian's letter and results and he told me he had not come across anything quite like it, but he has come up with some pointers. First Ian, you have to be referred to an endocrinologist who KNOWS what he is doing and knows about adrenal problems - your endo. who ignored your results should be reported for ignoring your 24 hour salivary results. Tell me exactly where you live and I will send you the name of somebody who will look at your problem properly. Dr Peatfield says FIRST, you need an MRI scan of your pituitary, your adrenals and your kidney, as something is causing you to put out a massive amount of ACTH and your symptoms (burning too) could be caused through a tumour on any of these organs. You need also a 24 hour urinary catecholamine test too urgently. .Read about this here and why this test is recommended http://www.nlm.nih.gov/medlineplus/ency/article/003613.htm ~Read also about possibility of a pheochromocytomal tumour on adrenal http://www.medicinenet.com/pheochromocytoma/article.htm. You could also be suffering with Adenoma of the adrenal cortex http://www.netdoctor.co.uk/diseases/facts/adrenaladenomas.htm You may have a tumour on your pituitary gland, which would also give rise to massively high ACTH output and here is a very rare case http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowFulltext & ProduktNr=224036 & Ausgabe=225975 & ArtikelNr=23431 Hope this helps and hope this now gets sorted, but please, do refuse to be referred back to the endocrinologist you saw who ignored your results. Let me know where you live. I also sent a copy of your message to Dr Theodora Mantzourani and Dr Gordon Skinner to get any input from them that they can give. Luv - Sheila > Is candida /athlete's foot ruled out? Hi Bob, We haven't talked about the possibility of Candida yet. I guess it is quite a possibility that this would be an added complication, given the excess of cortisol in his body, lowering his immunity. But what really worries me is his adrenal profile.... No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.435 / Virus Database: 271.1.1/2688 - Release Date: 02/16/10 19:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Thank you so much for all your help, Sheila. Ian will contact you direct and give you all the info you need. I was as shocked as you when I saw the adrenal profile.... how on earth can a doctor, and an endo as such, ignore those results? It really makes me lose faith in the medical profession. Love, xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 TSH 1.06 (0.35 - 4.5) put your glasses on matey > > > > This doesnt seem to be a thyroid issue, but i may be wrong. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi, I would have thought with such a wildly high result- even if doc didn't want to believe it that he should have tested for Cushing's - that is what the syntachten test if for. thyroid treatment From: christina@...Date: Tue, 16 Feb 2010 22:44:49 +0000Subject: Ian's adrenal hell Hi all, One of our members - his name is Ian - has asked me to give him a hand in posting the following for him. He is a bit unsure how to go about it ... At first we though the burning sensations Ian is experiencing were similar to the ones my own husband is complaining about - which was the reason Ian and I got talking .... Here is Ian's story : I have just turned 70 and up until 4 years ago I was as fit as a flea !! And this is the salivary adrenal profile from Dec. 2009 which Ian's GP and endo have "dismissed" out of hand...... - and no, those figures are not typos ! Sample 1 Post Awakening 160.0 H (12- 22) Sample 2 (+ 4 - 5 Hours) 160.0 H (5.0 - 9.0) Sample 3 (+ 4 - 5 Hours) 160.0 H (3.0 - 7.0) Sample 4 (Prior to Sleep) 98.5 H (1.0.- 3.0) Total Daily Cortisol 578.5 H DHEA Levels Sample 2 (am) 0.69 H Sample 3 (pm) 0.88 H DHEA : Cortisol Ratio 0.13 L Supplementation Profile: Significantly elevated levels of Cortisol indicate probably supplementation with Cortisol or Corticosteroid medications - only .... Ian had not taken any Corticosteroid medication !! What do you all make of the above? Sheila - would it be possible to get the opinion of one of our medical advisors to the above too ? Ian is in so much pain, and something needs to be done ... but he does not know which way to turn next, without upsetting the appelcart with his GP too much. Many thanks, Not got a Hotmail account? Sign-up now - Free Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Dr Skinner responded so have passed his telephone number on to Ian and . Still not heard from Ian yet. I also told Dr Skinner this was a man, and not a lady. Luv - Sheila From: Gordon Skinner [mailto:gordonskinner@...] Sent: 18 February 2010 18:40 sheila@... Subject: RE: Can you help my member please? Hello Sheila do ask this lady to telephone me Gordon Quote Link to comment Share on other sites More sharing options...
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