Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Sharon. What was the results of your daughters blood tests a few weeks ago? Did you not say both your husbands and daughters T3 were high? Yep I'm going to say Hyper.....being a former Hyper chick myself, tiredness IS a sign of both Hypo and Hyper. There are lots of symptoms the same in both. Post up her blood results from a few wks ago and it'll help us a bit more. Whats her pulse been like and what other symptoms is she getting? Love Tess > > Hi all, > > I've just reduced my daughters dose of T3 from 90mcg to 70mcg as she said she felt shaky on Tuesday.I know everyone is going to say she was on too much T3 and was going hyper,but I'm not convinced.She is also taking 322mg of ferrous fumerate for low ferritin and wondered if that has anything to do with it. > > My thought was that the ferrous fumerate is starting to work which in turn has meant that the T3 is being better absorbed,which would cause symptoms of hyper.But since the reduction in T3,she is more tired than before.I DONT KNOW WHAT TO DO!!! She is still very symptomatic of hypo and I know her ferritin level needs to be better,but if the ferrous fumerate means she needs to reduce her T3,how do I reduce the symptoms of hypo? > > She wants to try Erfa and her gp is ok with that and I suggested I buy it first and see what happens,then our gp said he would approach the PCT to fund it.But I just dont know what to do for the better,I just wish it would all go away,I'm fed up with knowing what to do for the best.HELP!!! > > Best wishes Sharon > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Sharon, Do you not have ANY blood results for your daughter? Not even old ones? What were her results before you put her on T3? I know you say the t4 is low, but how low? Out of range low, or at the bottom of the range, there is a difference. The high T3 may be reverse t3. Reverse t3 is made to get rid of unused t4. You might have high reverse t3 hence the low t4? Can you post results for your husband too.... Already have your son's results at TSH 1.32 (.35 - .54) T4 12.8 (10-23) T3 5.5.. T4 a bit low but T3 good. TSH slightly raised was he on meds when this was taken? Does he have hashimotos? Have you started doing your own temps and vitamins? You have to get yourself well before you deal with everyone else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Hi Sharon. Could you not call surgery and ask for her last results? It only takes 15 seconds to take her pulse then times it by 4. Why is she on such a high dose of T3. was it GP who put her on it? He/she should surely be monitoring it instead of leaving all this to you, especially when you yourself are suffering? One thing to remember is not everyone loses weight when Hyper, the majority do but you all seem to have the bad luck to be in the minority where treatment is concerned. How " stressy " is she? I think you need to get yourself sorted and rather than trying to second guess your daughters symptoms kick her backside back to doctors and let them test her again and sort out her dose accordingly. You sound like its having a big effect on you and you won't be any good to any of your family if you keep trying to take all this on your own. Doctor will be able to check out your theory on her iron levels as well for her. I know how much of a worry it is, my oldest daughter got tested for thyroid a few wks back and I don't like the look of her results but in order to fight for them..we need to be as fit as we can be :-) Is it Hashis you all have? Take care Love Tess > > Hi Tess, > Â > Â Â Â Â Â Â Â Â Â Â I dont know what her test results were as for the first time ever,she went in to see our gp on her own.I think her T3 level was ok,its my hubby who had a higher T3 I think but he may have taken his dose to close to his blood test.But my hubby,daughter and son have low T4 levels and our gp doesnt understand why. > Â > I've never taken my daughters pulse or temps,as maybe being a stressy teenager she cant be bothered,no matter how much I say she should.I really dont know why she became hyper,my only theory is that her iron tablets are being absorbed better and it enabled her T3 to be absorbed better too,which meant she was now on too much. > Â > I'm finding it increasingly difficult to cope with all our ills and not getting the right medication or dose right and its having a detrimental effect on my own health.> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Hi Sharon, I take it GP tested her for the RT3 issues? He can still test her T3 he dosen't need to put amount she's taking only that she is taking it. You can take her pulse when she's feeling shaky, I found pulse to be best indicator of Hyper for me at the end up. It's a bit irresponsible of your GP to say that it's impossible to monitor her and leave it up to you...as I said he just needs to write " on T3 on form " How the hell does he know if the RT3 issues are getting better...dosen't surprise me though...my old GP left me to go into Thyroid Storm after marking a result normal and my T3 was through the roof. Is she still shaky after you lowered dose? Maybe you could lower her to the 60mcg and then your doc has no excuse. No wonder you're stressed with all that happening to you! Hope you get it all sorted out. My daughter's 25 and yeah I'm definitely up for the fight lol. She's got a lot of Hypo signs, T4 low in range but so is TSH! She had hyper symptoms at start of year when I was still ill but never got tested. I want to know where ger T3 levels are but her doc refused this week. I've told her to get another appointment and I'm going with her :-) BTW I was always stressy too...does she throw things lol...I did :-) Love Tess > > Hi Tess, > Â > Â Â Â Â Â Â Â Â Â Â She would have to get the results herself as she's 17 and they wont tell me. > What time of day should I take her pulse and remind me why I should take her pulse as I've forgotten! > She's on a high dose as she had RT3 issues and I put her on it,as our gp is only allowed to go up to 60mcg a day.He knows how much she is on,but cant comment as he is regulated and just said to make sure I dont give her too much.It would be impossible for him to monitor her at this dose,as he cant be seen to know she's taking this much.I dont think its that much,as I have seen a post on here from someone in America I think,saying she is on I think about 300mcg! > Â > My daughter is quite stressy,always has been and you sometimes dont know what she's going to say in reply to something and she's much better than she used to be! It wouldnt be worth me sending her back to the gp yet,as he said to wait about 3 or 4 months before getting her ferritin level checked again to see how well she is doing.Also,it takes weeks to get an appointment and he wouldnt suggest a dose of T3 over 60mcg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Sharon, Your daughters results don't look too bad, T4 on the low side but was she on meds at this time? The high amounts of T3 she's been on is worrying. Why did she feel the need to have high amounts? Come to it your hubbys don't look too bad either. Have they both recieved a diagnosis of Hypothyroidism from the doctor? Your temps, you need to take them to see how you are doing. What you do is take the first one 3 hours after you wake up, and write it down. Take the second one three hours later and write it down and the thirs one three hours after that and write it down. So if you get up at 8 am, take one temp at 11 am, one at 2 pm and one at 5 pm. Take the three readings for the day, Add them together and divide by 3 to get an average. You then plot this new average number on a chart every day. Simples!! After a week or so you'll be able to look at the chart and see a pattern. If it jumps around all over th place then that's rubbish adrenals, if it's pretty steady, but low, that's thyroid. Go and get a thermometer, keep on with the vits, and don't worry about the rest of the family, let them get on with it, they're all old enough and big enough. Just concentrate on your self Sharon. I have a friend who won't help himself, he expects it all done for him. I've given him loads of info, but he choses to suffer the way he has been for years. You sometimes have to stand back, you can't run after them all. xx > > > From: Galathea <galathea@...> > Subject: Re: shaky feelings > thyroid treatment > Date: Friday, July 16, 2010, 1:35 PM > > > Â > > > > Sharon, > > Do you not have ANY blood results for your daughter? Not even old ones? What were her results before you put her on T3? I know you say the t4 is low, but how low? Out of range low, or at the bottom of the range, there is a difference. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2010 Report Share Posted July 17, 2010 Hi, I get those off days too and am sure it's adrenal fatigue related. Things get too much after some family stress, an illness or something and then I'm laid up for a few days. I was watching seaside rescue or something the other day and a mum accidentally wacked her son in the face with a wooden cricket bat. The boy was OK but she collapsed, her blood pressure dropped and she started shaking and all the medics couldn't work out what was up with her....Adrenal I said. Bet she's got adrenal insufficiency and shock of upset at wacking her son took her over the edge adrenal wise and caused her to collapse and faint.. look after yourself- rest and try relax too! Helen x > I'm finding it increasingly difficult to cope with all our ills and not getting the right medication or dose right and its having a detrimental effect on my own health.I dont know whether they are adrenal attacks,but I am getting many " off " days where I cant cope with anything and cry at the slightest thing and feel like my world is ending.If it was just me it wouldnt be so bad,but I have 4 of us to deal with amongst other stressing problems. > Quote Link to comment Share on other sites More sharing options...
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