Re: Chilblains or gout? or what??

[Guest guest]

Might be useful to tick the boxes on the blood test form relating to inflammation and rheumatic conditions if GP has not already done so...that might include gout in or out, but I believe gout classically attacks the big toe because there is a substantial joint there for the uric acide crystals to get stuck in.

Wouldn't want to worry you, but the first thing that comes up when you google butterfly rash is lupus, which apparently gives a butterfly rash completely different from that seen in rosacea. It can also cause vasculitis which can present in a similar way to chilblains.

Time to ask some serious questions of your GP I think - you may be under a major auto immune attack.

D

From: redharissa <redharissa@...>thyroid treatment Sent: Tue, 2 February, 2010 15:40:50Subject: Chilblains or gout? or what??

I've been practically immobilised by the mystery foot ailment all of January and am thoroughly fed up. 2 doctors haven't a clue what it is but I know that it is definitely connected to the oedema and a sudden worsening of hypothyroid symptoms. I feel like my toes (not the big toes though)are full of splinters of broken glass. They are so red, swollen and stiff that I cannot walk properly and now have a pronounced limp. My ankles and lower legs are also more swollen and puffy than the rest of me, which has been badly swollen for many months now. My entire body has a burning tingling sensation like I have a sun-burn all over. The butterfly rash has come back on my face - that was diagnosed last November as rosacea. I'm pretty sure that rosacea doesn't cause joints to swell so what I ghave now must be different.Thyroxine no longer seems to be effective for me but, of course, I've been made to wait for a blood test next Monday followed by a GP

appointment to discuss my results mid-March. The year is going the same way as my last 12 years went - suffering + totally messed up life quality, waiting for blood tests and them being told the bloods are OK so therefore I must be too.If I had a problem with uric acid, wouldn't the many urine and blood tests I've had have picked up on this? Has anyone else here had a similar problem? If so, please tell me how to stop the pain and swelling.Feeling fed up and crippled,Tracey

[Guest guest]

Hi - I agree with Sheila - your symptoms could be lupus (aka SLE) - the butterfly rash is classic and the symptoms you describe also sound like lupus. A work colleague's wife had a hell of a task and many years trying to get a diagnosis so you probably need to inform yourself about this - no change there then!

Gill

I've been practically immobilised by the mystery foot ailment all of January and am thoroughly fed up. 2 doctors haven't a clue what it is but I know that it is definitely connected to the oedema and a sudden worsening of hypothyroid symptoms. I feel like my toes (not the big toes though)are full of splinters of broken glass. They are so red, swollen and stiff that I cannot walk properly and now have a pronounced limp. My ankles and lower legs are also

[Guest guest]

Tracey - next time you ask for blood tests, don't allow them to

tell you they are 'normal' Ask for the figures and the reference ranges and

then post them on the forum. Have you not been thoroughly tested to see whether

you have Lupus or not yet?

Luv - Sheila

I've been practically immobilised by the

mystery foot ailment all of January and am thoroughly fed up. 2 doctors haven't

a clue what it is but I know that it is definitely connected to the oedema and

a sudden worsening of hypothyroid symptoms. I feel like my toes (not the big

toes though)are full of splinters of broken glass. They are so red, swollen and

stiff that I cannot walk properly and now have a pronounced limp. My ankles and

lower legs are also more swollen and puffy than the rest of me, which has been

badly swollen for many months now. My entire body has a burning tingling

sensation like I have a sun-burn all over. The butterfly rash has come back on

my face - that was diagnosed last November as rosacea. I'm pretty sure that

rosacea doesn't cause joints to swell so what I ghave now must be different.

[Guest guest]

Also

check out these pictures Tracey http://images.google.co.uk/images?hl=en & source=hp & q=lupus+rashes & gbv=2 & aq=0 & oq=lupus+rash

Luv

- Sheila

Might be useful to tick the boxes on the blood test form

relating to inflammation and rheumatic conditions if GP has not already done

so...that might include gout in or out, but I believe gout classically attacks

the big toe because there is a substantial joint there for the uric acide

crystals to get stuck in.

Wouldn't want to worry you, but the first thing that comes

up when you google butterfly rash is lupus, which apparently gives a butterfly

rash completely different from that seen in rosacea. It can also cause

vasculitis which can present in a similar way to chilblains.

Time to ask some serious questions of your GP I think - you

may be under a major auto immune attack.

D

[Guest guest]

Tracey - read the information in these two links and if you

think this could be you, then present yourself to A and E and get them to give

you a thorough examination and hopefully, a proper diagnosis. Tell them that

you have come to A and E because you can no longer stand the pain and your

doctors ignoring all of y our symptoms it is quite appalling how long you

have been left to suffer with no attempt by your surgery to investigate further

to find the cause for all your symptoms. http://www.springerlink.com/content/udlunkcmc9gyweyp/

http://www.springerlink.com/content/d43227864t686446/

Luv - Sheila

I've been practically immobilised by the mystery foot ailment all of January

and am thoroughly fed up. 2 doctors haven't a clue what it is but I know that

it is definitely connected to the oedema and a sudden worsening of hypothyroid

symptoms. I feel like my toes (not the big toes though)are full of splinters of

broken glass. They are so red, swollen and stiff that I cannot walk properly

and now have a pronounced limp. My ankles and lower legs are also

No virus

found in this incoming message.

Checked by AVG - www.avg.com

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12:37:00

[Guest guest]

Hi Tracey, My OH has rosacea on his face which is controlled with long courses of Oxytetracycline when he has a flare up, but the tabs get control of it quite quickly and he has to wear a hat in summer as sunlight makes it worse. I thought that a butterfly rash could be Lupus ( do a wikipedia search to check)? which can be systemic. As for gout and uric acid crystals in your poor feet- well it depends if they did test for it or not- you'll have to ask. > > I've been practically immobilised by the mystery foot ailment all of January and am thoroughly fed up. 2 doctors haven't a clue what it is but I know that it is definitely connected to the oedema and a sudden worsening of hypothyroid symptoms. The butterfly rash has come back on my face - that was diagnosed last November as rosacea. I'm pretty sure that rosacea doesn't cause joints to swell so what I ghave now must be different.> > If I had a problem with uric acid, wouldn't the many urine and blood tests I've had have picked up on this? > > Has anyone else here had a similar problem? If so, please tell me how to stop the pain and swelling.> > Feeling fed up and crippled,> Tracey> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Hi Sheila,

Can't take any form of diuretic apart from the very mild one that is part of my

tabs for high blood pressure.

Is there any natural way to dump excess fluid?

My doctor along with many other GP's couldn't give a toss, all she is concerned

about is blood tests!! (Which I won't allow the GP's surgery to do as they

don't know how to read them if you are on Armour)

Glynis

> Sounds as though you need to take some form of diuretic - preferably a

> potassium saving one such as Co-~Amilozide 50mgs. Why is your doctor

> allowing you to suffer so much. Ask for a referral Glynis because it is

> obvious your GP is not a specialist and isn't sure about what is happening.

>

> Luv - Sheila

[Guest guest]

I still don't know the actual blood test results in spite of having been bounced

around 6 different departments from the GP to the hospital! The GP's secretary

did search through my records but only found that my GP was merely sent a letter

saying my results were normal. I think that is scandalous - how the hell is my

GP supposed to make informed decisions about his patients if even he is being

fobbed off with the inananely simplistic " normal " crap??

Eventually I spoke to the dermatologist's secretary who cannot send ME the

results - which she assures me are several pages of lots of long words and

numbers (just what I need )) - but she is sending them to my GP at my request.

The whole system is stark staring bonkers with no one person accountable.

In the meantime I'm off to get my thyroid blood tests done on Monday. Possibly

having other bloods done too as the GP is stumped on what could be causing me to

swell up like this. Having looked at the stuff about gout online I can finally

appreciate why he is so reluctant to prescribe me any diuretics. I think he

hasn't a clue what is wrong and he is worried that diuretics might cause me more

harm than good. Certainly true about the benzofl...thingies. I have only taken 3

and my body definitely reacts badly to them. The side effects just aren't worth

the few hours of knee mobility I get in return, and the fluid buids up again

fairly rapidly.

My feet are finally recovering, after a whole month of extreme pain and

swelling. I bet that my Monday bloods will therefore miss my body's last month's

chemical unbalances altogether and come back normal again. Doh!

I do know that in a previous GP blood tests my calcium results came back flagged

red. I don't know whether this means they were too high or too low. Is calcium

connected in any way to body inflammation?

A friend has suggested that I ask my GP for a referral to a DIAGNOSTICIAN. I

have never heard of such a thing before and am wondering if anyone on the forum

can enlighten me.

Tracey

[Guest guest]

Glynis and , I've tried both of those in the past but they didn't work for

me. Fortunately they were not expensive so I'd definitely say it is always worth

a try. They mioght work for other people. What USED to work for me was good old

nettle soup made from freshy gathered springtime nettles. Strangely not even

that makes any difference to me now so I've come to the conclusion that my

body's toxin removal system is too badly impaired at present.

Tracey

>

>

> Hi glynis,

> Have you tried herbal stuff such as Dandelion tea - i think

there are pills called Waterfall too. Can I suggest you try another doc- this

one really isn't doing you any good.

>

[Guest guest]

Hi Tracey,

Have you thought about MLD : Manual Lymphatic Drainage? Parts of me used to

swell horribly, my feet, hands and the area around my eyes especially. I used

to feel considerably better after a visit to a therapist.

http://www.mlduk.org.uk/

Del.

>

> Glynis and , I've tried both of those in the past but they didn't work

for me. Fortunately they were not expensive so I'd definitely say it is always

worth a try. They mioght work for other people. What USED to work for me was

good old nettle soup made from freshy gathered springtime nettles. Strangely not

even that makes any difference to me now so I've come to the conclusion that my

body's toxin removal system is too badly impaired at present.

> Tracey

[Guest guest]

Last night a friend phoned me out of the blue and said she has tracked down a

qualified lymphatic drainage therapist who lives within reasonable travelling

distance. Even better, my son's father is so fed up with seeing me suffer that

he has offered to pay )

As a matter of interest how much did your sessions cost and how long did you get

each time? It really does look like something which could make a difference.

Tracey

> Hi Tracey,

>

> Have you thought about MLD : Manual Lymphatic Drainage? Parts of me used to

swell horribly, my feet, hands and the area around my eyes especially. I used

to feel considerably better after a visit to a therapist.

>

> http://www.mlduk.org.uk/

>

> Del.