Re: Please advise re Adrenal Stress profile results

[Guest guest]

On Tue, 25 Aug 2009 17:34:12 -0000, you wrote:

>2.6 range 12-22

>1.5 5.0-9.0

>2.1 3.0-7.0

>0.5 1.0-3.0

Ouch! that's low.

Hopefully someone can give you treatment advice,

Nick

[Guest guest]

No wonder you don't feel well Judy - every single cortisol

result is way below the bottom of the reference range throughout the day. I

would definitely show these to your P and pray that he is a caring enough man

to look at these results closely and to agree to refer you to an

endocrinologist (preferably one who also actually cares about his patients).

They may agree to do the short synacthen test but this test does only check to

see whether you have 's disease (too little cortisol or no cortisol) or

Cushing's syndrome (too high a level of cortisol). 's is characterised

by weight loss, muscle weakness, fatigue, low blood pressure, and

sometimes darkening of the skin in both exposed and nonexposed parts of the

body. Darkening of the skin is most visible on scars; skin folds; pressure

points such as the elbows, knees, knuckles, and toes; lips; and mucous

membranes. I remember your very bad reaction to the shock of the car

crash quite some time ago - it took you an awful long time to get over that.

If your GP decides not to take this further, then I would telephone

Dr Peatfield to get his recommendations. I am glad you decided to get the 24

hour salivary adrenal profile Judy, so many members do not appreciate exactly

how important this test is.

Luv - Sheila

I have received the results and would value any

advice/thoughts.

Cortisol level

2.6 range 12-22

1.5 5.0-9.0

2.1 3.0-7.0

0.5 1.0-3.0

[Guest guest]

" Sheila " <sheila@...> wrote:

>

> No wonder you don't feel well Judy - every single cortisol result is way

> below the bottom of the reference range throughout the day.

>

> If your GP decides not to take this further, then I would telephone Dr

> Peatfield to get his recommendations. I am glad you decided to get the 24

> hour salivary adrenal profile Judy, so many members do not appreciate

> exactly how important this test is.

>

>

>

> Luv - Sheila

Hi Sheila,

I could have wept when I read the results today with relief that there is

something wrong. I have just felt so ill even thought I had changed to taking

Armour.

I have been back and forth to my doctors and have seen three different GP's and

none have been able to tell me what was wrong. I have to keep going because my

daughter is so ill but most of the time I hardly cope and have to keep lying

down.

But it's good now I know I can do something about it.

Dr P's comments written on the test result: This is a flat-lining result and

indicates fatigue, reaching levels of exhaustion.You really do need the adrenal

support in full measure.

I don't think I have 's as I haven't lost weight or have dark marks in

skin folds but I do have muscle weakness and fatigue.

Its a shame I have just missed Dr P clinic in Stockport but I will ring him and

get his advice.

judy

>

>

>

>

>

>

>

> I have received the results and would value any advice/thoughts.

>

> Cortisol level

> 2.6 range 12-22

> 1.5 5.0-9.0

> 2.1 3.0-7.0

> 0.5 1.0-3.0

>

[Guest guest]

Hi judy - I think

you are one person that might need to skip the Adrenal glandular supplements

and go straight on to Hydrocortisone. Be assured that once you start replacing

the missing cortisol, you will start to function so much better. Your Armour

will also start working properly, but first, you will need to stop your Armour

for about 1 week when you start the HC>

Let us know what Dr

Peatfield says.

Luv - Sheila

Hi Sheila,

I could have wept when I read the results today with relief that there is

something wrong. I have just felt so ill even thought I had changed to taking

Armour.

I have been back and forth to my doctors and have seen three different GP's and

none have been able to tell me what was wrong. I have to keep going because my

daughter is so ill but most of the time I hardly cope and have to keep lying

down.

But it's good now I know I can do something about it.

Dr P's comments written on the test result: This is a flat-lining result and

indicates fatigue, reaching levels of exhaustion.You really do need the adrenal

support in full measure.

I don't think I have 's as I haven't lost weight or have dark marks in

skin folds but I do have muscle weakness and fatigue.

Its a shame I have just missed Dr P clinic in Stockport but I will ring him and

get his advice.

judy

>

>

>

>

>

>

>

> I have received the results and would value any advice/thoughts.

>

> Cortisol level

> 2.6 range 12-22

> 1.5 5.0-9.0

> 2.1 3.0-7.0

> 0.5 1.0-3.0

>

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12:55:00

[Guest guest]

Hi Sheila,

I'm in a quandary, do I see the GP and see if she will prescribe HC or even

refer me to endo and will he/she prescribe HC? or do I self treat.

Now I know what the problem is I want to get started but equally I am finding

going alone a bit tricky mainly because I haven't told my GP and if I need other

treatment would be happier if she knew what I am taking.

judy

>

> Hi judy - I think you are one person that might need to skip the Adrenal

> glandular supplements and go straight on to Hydrocortisone. Be assured that

> once you start replacing the missing cortisol, you will start to function so

much better.

[Edit Abbrev Mod]

[Guest guest]

You first see your GP - if you treat yourself, you will be left

with the funding for your HC - and that can be very expensive, depending on how

long you would need to take it. Tell your GP urgently that you need the advice

of an endocrinologist regarding this if your GP is not happy to go along with

prescribing this. You can tell your GP you were concerned about your symptoms

and because you felt they were adrenal related, did the necessary research and

decided to do a full cortisol and DHEA 24 hour salivary adrenal profile as

confirmation of your research.

Luv - Sheila

I'm in a quandary, do I see the GP and see if she will prescribe HC or even

refer me to endo and will he/she prescribe HC? or do I self treat.

Now I know what the problem is I want to get started but equally I am finding

going alone a bit tricky mainly because I haven't told my GP and if I need

other treatment would be happier if she knew what I am taking.

judy

---

[Guest guest]

Hi Sheila,

I saw my GP on Friday. She didn't know what an Adrenal Stress Profile was. I

explain to her about how I have been feeling and why I did the test. And that

Genova Diagnostics is a reputable lab. She doesn't believe there is such a

illness as adrenal fatigue at all.

She said to leave it with her and she would look into it. She phone later to say

she had spoken to someone at the local hospital who suggested a short synacthen

test. She also said they put little store in saliva tests.

I am having the synacthen test on Friday at the surgery. Is this usual? I'm a

bit worried about it in case I have a reaction in some why and the nurse won't

know what to do. Am I worrying unnecessary?

Also no one seems to know if I need to do anything before the test. ie is it a

fasting test and should I stop taking Armour. I'm not taking HC or NAX just Vit

C, Siberian Ginseng and Q10 as directed by Dr P.

Judy

>

> You first see your GP - if you treat yourself, you will be left with the

> funding for your HC - and that can be very expensive, depending on how long

> you would need to take it. Tell your GP urgently that you need the advice of

> an endocrinologist regarding this if your GP is not happy to go along with

> prescribing this. You can tell your GP you were concerned about your

> symptoms and because you felt they were adrenal related, did the necessary

> research and decided to do a full cortisol and DHEA 24 hour salivary adrenal

> profile as confirmation of your research.

>

>

>

> Luv - Sheila

>

>

>

>

>

> I'm in a quandary, do I see the GP and see if she will prescribe HC or even

> refer me to endo and will he/she prescribe HC? or do I self treat.

> Now I know what the problem is I want to get started but equally I am

> finding going alone a bit tricky mainly because I haven't told my GP and if

> I need other treatment would be happier if she knew what I am taking.

>

> judy

>

> ---

>

[Guest guest]

These poor, poor doctors - they are so brain-washed by the BTA

and Big Pharma, they really know so little and what is more frightening, they

don't seem to be prepared to do any of the necessary research to find out

whether such problems as adrenal insufficiency have any connection with

hypothyroidism or not. OK - so she doesn't believe there is such an

illness as adrenal fatigue, she says " they " put no store in saliva

tests - hasn't she any curiosity as to whether what she is being told is the

correct information or not? I could go on and give her reams of citations to

show her that the salivary adrenal profile is way better than a short snatches

test, which tests ONLY to see whether you have 's disease (too little or

no cortisol) or Cushing's Syndrome (too high a cortisol level). If you do have

either of these problems, then fine, the short snatches test is invaluable.

OK Judy, so what will happen is that when you arrive at the

hospital, they will take your blood. Then they will give you a shot (injection)

of Snatches (Adrenaline) and after an hour, they will take another blood sample

to see how your adrenals coped with this extra adrenaline. I have heard that

quite often, the shot of Snatches makes people feel absolutely great - this can

last up to 24 hours in some cases - and sometimes longer - the snatches has

given your poor ailing adrenals the shot they have been needing for a long time

- so, when your second blood draw is taken, unless you do have 's

disease, you will be told that your adrenals are absolutely fine and they are

not a problem.

I would still do your own private test through Genova

Diagnostics (they would not be allowed to remain in business if their blood,

urine, saliva tests were no good btw). The 24 hour saliva test checks your

cortisol and DHEA levels at 8.00a.m. - 12 Noon - 4.00p.m. and again around

midnight. The NHS short snatches test will be done at only one time during the

day, and that is early in the morning.

There is no need for you to stop any of your medication because

you are not taking anything that would influence the test results.

Luv - Sheila

Hi Sheila,

I saw my GP on Friday. She didn't know what an Adrenal Stress Profile was. I

explain to her about how I have been feeling and why I did the test. And that

Genova Diagnostics is a reputable lab. She doesn't believe there is such a

illness as adrenal fatigue at all.

She said to leave it with her and she would look into it. She phone later to

say she had spoken to someone at the local hospital who suggested a short snatches

test. She also said they put little store in saliva tests.

I am having the snatches test on Friday at the surgery. Is this usual? I'm a

bit worried about it in case I have a reaction in some why and the nurse won't

know what to do. Am I worrying unnecessary?

Also no one seems to know if I need to do anything before the test. i.e. is it

a fasting test and should I stop taking Armour. I'm not taking HC or NAX just Vat

C, Siberian Ginseng and Q10 as directed by Dr P.

Judy

>

> You first see your GP - if you treat yourself, you will be left with the

> funding for your HC - and that can be very expensive, depending on how

long

> you would need to take it. Tell your GP urgently that you need the advice

of

> an endocrinologist regarding this if your GP is not happy to go along with

> prescribing this. You can tell your GP you were concerned about your

> symptoms and because you felt they were adrenal related, did the necessary

> research and decided to do a full cortisol and DHEA 24 hour salivary

adrenal

> profile as confirmation of your research.

>

>

>

> Luv - Sheila

>

>

>

>

>

> I'm in a quandary, do I see the GP and see if she will prescribe HC or

even

> refer me to endow and will he/she prescribe HC? or do I self treat.

> Now I know what the problem is I want to get started but equally I am

> finding going alone a bit tricky mainly because I haven't told my GP and

if

> I need other treatment would be happier if she knew what I am taking.

>

> judy

>

> ---

>

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found in this incoming message.

Checked by AVG - www.avg.com

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05:51:00

[Guest guest]

Hi Sheila.

I have had the Genova test and the result's I took to the GP.

Cortisol level

2.6 range (12-22)

1.5 (5.0-9.0)

2.1 (3.0-7.0)

0.5 (1.0-3.0)

total daily cortisol 6.7 21-41

DHEA

am 0.31 range 0.20-0.70

pm 0.16

DHEA cortisol ratio 3.51 0.6-3.0

The short synacthen test is going to be done at the surgery and that was my

concern as I thought it was usually done at a hospital. I have already explain

to my GP I don't think I have Addision but this is the only test she knows to

do. I will copy some info for my GP, she is hypothyroid herself!

I really want a diagnoses through the GP or endo but if I have to I will self

treat. Dr P has advised I take supporting supplements first for three weeks and

then speak to him again.

Thanks for you support and advice Sheila.

Judy

>

> These poor, poor doctors - they are so brain-washed by the BTA and Big

> Pharma, they really know so little and what is more frightening, they don't

> seem to be prepared to do any of the necessary research to find out whether

> such problems as adrenal insufficiency have any connection with

> hypothyroidism or not. OK - so she doesn't believe there is such an illness

> as adrenal fatigue, she says " they " put no store in saliva tests - hasn't

> she any curiosity as to whether what she is being told is the correct

> information or not? I could go on and give her reams of citations to show

> her that the salivary adrenal profile is way better than a short snatches

> test, which tests ONLY to see whether you have 's disease (too little

> or no cortisol) or Cushing's Syndrome (too high a cortisol level). If you do

> have either of these problems, then fine, the short snatches test is

> invaluable.

>

[Guest guest]

All you can do is to wait and see what the short synacthen

test shows - if that comes back very low, then yes, they might give you a

course of hydrocortisone, but if it does not - they will not help you. You will

have to follow Dr Peatfield's recommendations.

As you are concerned about having this test done at your

surgery, I would mention your concern to your GP and hopefully, she will be

able to reassure you. I do know that many surgeries these days are taking on a

lot more work that used to be done in hospitals.

Side effects are rare - so please don't worry about that. Have a

look at this link from Wikipedia http://en.wikipedia.org/wiki/ACTH_stimulation_test

if you want to learn more about it. I see from googling now that the

second blood draw us usually done after 30 minutes, and I told you it was an

hour…

Good luck - your cortisol results are definitely VERY low, so

this test just might show it and then your endocrinologist/GP can decide what

treatment will be best.

Luv - Sheila

Hi Sheila.

I have had the Genova test and the result's I took to the GP.

Cortisol level

2.6 range (12-22)

1.5 (5.0-9.0)

2.1 (3.0-7.0)

0.5 (1.0-3.0)

total daily cortisol 6.7 21-41

DHEA

am 0.31 range 0.20-0.70

pm 0.16

DHEA cortisol ratio 3.51 0.6-3.0