Re: All Hypothyroid Patients Have High Autoantibodies

[Guest guest]

Hi ,

Well, as you probably guessed, he's wrong. Only people with Hashimotos disease

have high anti bodies.. but many people have hashimotos so he's on the right

track. I don't think that having high anti bodies is enough to warrant

sending you to an endo unless you aren't being treated at all. With high

antibodies then you really should be recieving thyroid hormones.

Do you have test results that show you as hyper in 2007?

Are you on meds? Why did you go to the doc and what were you hoping to

achieve?. If you fill us in a bit more detail, we can offer suggestions, but at

the moment am floundering in the dark..... The hyperthyroidism can be linked

to the thyroid putting out extra when under attack from antibodies.

You could write a letter to your doc and a copy to the head of practise, listing

your hypothyrod symptoms and ask for a dose increase or say that as it's not

being very well managed, you would like to request a referral. However, post

your results first....

Many of us have had battles with our docs. You're not stupid and you have

support here. It sounds like you weren't well enough prepared to do battle

with the idiot, but you'll do so much better next time.

xx

>

> That is according to my doctor?? went to see my registered doctor. I told him

I wanted to discuss my last blood tests and that my autoantibodies where high at

1300 (range 0 -60) and could I possibly see an endo his reply WHY? so I repeated

high antibodies and that is when he said that was normal for people with

hypothyroidism?

>

> I also explained that I was hyperthyroid in 2007 and he said I haven't seen

you before so I don't know your history!!!!!! so I said but you are my

registered doctor!! his reply we don't have registered doctors anymore you are

registered with the group...

[Guest guest]

Hi!

Thanks for replying. I posted my blood test results earlier and Sheila kindly

interpreted them for me.

I am very low in VitaminD3 and I researched this in our files & google and found

out that the terrible pain that I am experiencing in my knee & shoulder plus

agonising backache/pain could be down to a condition caused by low vitd3

'Osteomalacia' This more than anything I wanted sorting out as I have already

had cortisone injections in my shoulder the last was about 5 weeks ago but the

pain is coming back..

The reason I am thinking it is Osteomalacia as it all seems to fit together. For

approx 2 years I would not go out of the house unless forced to do so I would

not get dressed for days on end and prefered to stay in bed, I lost all interest

in my hobbies, suicidal,you all know what I mean!! I was diagnosed hypo & doctor

gave me levothyroxine which didn't ease any of my symptoms but since taking erfa

I now have an interest in life hobbies ect

but still remain a prisoner because my knee is so painful plus the backache/pain

it is now stopping me from going out, so it makes sense to me that I would be

low in VitD3.

At the doctors appointment I started out by saying I wanted to discuss my blood

tests but because I had taken papers to remind me what I wanted to say ..he tut

tutted and said not to believe everything you read on the internet he said this

without even looking at my paperwork, after that HE concentrated on the

thyroid..

I am fed up of being given anti-depressants which I no longer take now that I am

taking Erfa, injections, morphine based pain killers.

He is sending me for an x-ray on my knee and said that if it is internal there

is nothing he can do but give me stronger pain killers.

He just did not want to listen to me.... His parting words.... Now here is a

laugh!! he said he wanted to treat the symptoms not the thyroid condition..He

also said I cannot blame everything on my thyroid .. who the hell was??????

I just feel so let down and deflated all I wanted was for the doctor to at least

just work with me, even if he didn't agree with me self medicating and to treat

me as though I had a brain.

I am really worried about self medicating without a so called professional which

is why I asked to see an endo cos I know none of the doctors at 'The Group' give

a monkeys about their patients but I know I have a lot of good people here

helping if I need it but I still do worry.

love

xx

>

> Hi ,

>

> Well, as you probably guessed, he's wrong. Only people with Hashimotos

disease have high anti bodies.. but many people have hashimotos so he's on the

right track. I don't think that having high anti bodies is enough to warrant

sending you to an endo unless you aren't being treated at all. With high

antibodies then you really should be recieving thyroid hormones.

[Ed]

[Guest guest]

Your

interaction with your doctor is the very reason why I keep telling our members

to WRITE letters to their doctors setting out any questions and requests for

blood tests etc. This idiot is saying what he is to you as a cop-out. Don't

allow this. Write to your doctor requesting a referral to an endocrinologist

because you need an expert in the field, and as your doctor is just a general

practitioner, he has no qualifications whatsoever in endocrinology, and you are

EXTREMELY concerned that he believes patients with such a HIGH number of

antibodies doesn't know that this is NOT normal. Sock it to 'em and

don't allow him to walk over you in this way, believing all his patients are

idiots without a brain cell in our head.

Tell

him also about your history in 2007 and that your history is in your case notes

and he should be able to pull it up on the computer. It matters not whether you

are registered with the group or the doctor, the fact is at that particular

time he WAS the doctor you were seeing, and not all the other doctors who

worked in the 'registered group'. However, in some areas,

you can visit new GP-led health centres, which are open from 8am to 8pm,

seven days a week. Anyone can book an appointment or simply walk in and wait to

be seen. You can register at these centres if you live in the local area and if

your surgery is one such GP led health centre, then he is right. Check the

information here before hitting him over the head with your rolling pin http://www.nhs.uk/choiceintheNHS/Yourchoices/GPchoice/Pages/ChoosingaGP.aspx

Write in your letter all the questions you wanted to ask but was

too upset to at the time and ask him to respond in writing.

Keep your chin up , there is always TPA to fall back on,

and we have helped hundreds of sufferers to get back their health. NHS doctors

are not taught about the metabolic workings of the body or about other

conditions that go along with being hypothyroid.

There is light out there - honestly.

Luv - Sheila

That is according to my doctor?? went to see my

registered doctor. I told him I wanted to discuss my last blood tests and that

my autoantibodies where high at 1300 (range 0 -60) and could I possibly see an

endo his reply WHY? so I repeated high antibodies and that is when he said that

was normal for people with hypothyroidism?

I don't know what to do? as a change of doctor is practically out of the

question as there is only one other independent surgery as all the doctors in

town amalgamated to form 'The Group' to the detriment of the patients.

A very sad and disheartened xx

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18:35:00

[Guest guest]

I went to see the " group " of docs today and saw the second GP in my life who was

actually good and had a bit of empathy.

I have been seeing docs since 1993 and in that time i have seen a range of

doctors who could not give two hoots why i was ill.

The first good doc i saw was in 2004 and i saw her once. This was pre-thyroid

knowledge and i was a " depressed " patient. I wasnt actually depressed, but i

was ill. I think she could see this and actually asked me why i thought i had

depression. By then i had accepted it (i had been going in to the docs since

1993 until about the late 90's saying something was wrong with my hormones) and

i just said i have no idea why i have depression and that my life was pretty

good. She left it there, but that was the first time any doc had tried to get

under the skin of why i was coming in to see them.

Well today i saw a lovely indian GP (uk national) to get some more thyroxine and

i also explained to her i was taking T3 and could i see the endo again to get

his permission to take the T3 officially.

Well she told me i knew much more about the thyroid condition than herself, she

recommended i have an ECG and related the low fertility to the thyroid - amazing

as i knew this all along, but not one doc had ever thought of mentioning it. I

told her of the NHS letting me down and she said the NHS was really very good.

She was a very nice person and i could see she cared about her patients. I will

be seeing her again and just wish we could have more caring GP's out there.

ps. I wonder what the new changes to the health system will have on our care.

Will it mean GP's become more focused on making us better ? I have no idea.

[Guest guest]

I read the book The Vitamin D Revolution and it finally penetrated the brain fog

that I like most people must be way low so I got some Now Foods 5,000iu D3 and a

month or so later see a big difference. well worth the money, and unlikely to

overdose at that level.

I gave up on GPs years ago.

Muriel

>

>

>

>

> Hi!

>

> Thanks for replying. I posted my blood test results earlier and Sheila kindly

interpreted them for me.

>

> I am very low in VitaminD3 and I researched this in our files & google and

found out that the terrible pain that I am experiencing in my knee & shoulder

plus agonising backache/pain could be down to a condition caused by low vitd3

'Osteomalacia' This more than anything I wanted sorting out as I have already

had cortisone injections in my shoulder the last was about 5 weeks ago but the

pain is coming back..

> The reason I am thinking it is Osteomalacia as it all seems to fit together.

[Ed]

[Guest guest]

, I honestly would be more scared about being treated by

these doctors who refuse to keep their medical knowledge up to date - they are

KILLING us with their lack of knowledge and they absolutely refuse to do the

necessary research, but then, who can blame them when every minute of their day

is taken over with patient after patient after patient coming in with

non-specific 'symptoms' they have no idea how to either diagnose or treat. It

is SO easy to self medicate once you get the basic knowledge of how thyroid

hormones work - honestly.

Buy some Vitamin D3 (again, see the info. in the Files) and

treat yourself accordingly. If your glands are not secreting the hormones they

should be, there is ho option but to replace that particular hormone, and if

your body is not making the vitamins and minerals it should be, then you must

replace those minerals and vitamins.

Luv - Sheila

I am fed up of being given anti-depressants which I no longer take now that I

am taking Erfa, injections, morphine based pain killers.

He is sending me for an x-ray on my knee and said that if it is internal there

is nothing he can do but give me stronger pain killers.

He just did not want to listen to me.... His parting words.... Now here is a

laugh!! he said he wanted to treat the symptoms not the thyroid condition..He

also said I cannot blame everything on my thyroid .. who the hell was??????

I just feel so let down and deflated all I wanted was for the doctor to at

least just work with me, even if he didn't agree with me self medicating and to

treat me as though I had a brain.

I am really worried about self medicating without a so called professional

which is why I asked to see an endo cos I know none of the doctors at 'The

Group' give a monkeys about their patients but I know I have a lot of good

people here helping if I need it but I still do worry.

love

[Guest guest]

hi hilary, Have you seen http://www.drlowe.com your joint pains may be due to low D3- as you are indoors a lot low levels are likely, but such pain can also be the result of inability to convert T4 to T4. The T4 lodges in the joints causing pain and inflammation. -This may be why you feel better on Erfa, as there is some T3 available, but there may still be too much T4 for you system to cope with- and need to replace some Erfa with T3 ( as I do). > thyroid treatment > From: hilary77@...> Date: Sat, 17 Jul 2010 12:20:19 +0000> Subject: Re: All Hypothyroid Patients Have High Autoantibodies> > > > > Hi! > > Thanks for replying. I posted my blood test results earlier and Sheila kindly interpreted them for me.> > I am very low in VitaminD3 and I researched this in our files & google and found out that the terrible pain that I am experiencing in my knee & shoulder plus agonising backache/pain could be down to a condition caused by low vitd3 'Osteomalacia' This more than anything I wanted sorting out as I have already had cortisone injections in my shoulder the last was about 5 weeks ago but the pain is coming back..> The reason I am thinking it is Osteomalacia as it all seems to fit together. For approx 2 years I would not go out of the house unless forced to do so I would not get dressed for days on end and prefered to stay in bed, I lost all interest in my hobbies, suicidal,you all know what I mean!! I was diagnosed hypo & doctor gave me levothyroxine which didn't ease any of my symptoms but since taking erfa I now have an interest in life hobbies ect> but still remain a prisoner because my knee is so painful plus the backache/pain it is now stopping me from going out, so it makes sense to me that I would be low in VitD3. > > At the doctors appointment I started out by saying I wanted to discuss my blood tests but because I had taken papers to remind me what I wanted to say ..he tut tutted and said not to believe everything you read on the internet he said this without even looking at my paperwork, after that HE concentrated on the thyroid..> > I am fed up of being given anti-depressants which I no longer take now that I am taking Erfa, injections, morphine based pain killers.> > He is sending me for an x-ray on my knee and said that if it is internal there is nothing he can do but give me stronger pain killers.> > He just did not want to listen to me.... His parting words.... Now here is a laugh!! he said he wanted to treat the symptoms not the thyroid condition..He also said I cannot blame everything on my thyroid .. who the hell was??????> > I just feel so let down and deflated all I wanted was for the doctor to at least just work with me, even if he didn't agree with me self medicating and to treat me as though I had a brain.> > I am really worried about self medicating without a so called professional which is why I asked to see an endo cos I know none of the doctors at 'The Group' give a monkeys about their patients but I know I have a lot of good people here helping if I need it but I still do worry.> > > love> > xx > > > >> > Hi ,> > > > Well, as you probably guessed, he's wrong. Only people with Hashimotos disease have high anti bodies.. but many people have hashimotos so he's on the right track. I don't think that having high anti bodies is enough to warrant sending you to an endo unless you aren't being treated at all. With high antibodies then you really should be recieving thyroid hormones.> > [Ed]> > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Hi! - Thanks for the link I think you may be right in thinking it is

thyroid related as it all seemed to start around the same time I was diagnosed

hypo but the pain has got progressively worse which would make sense..plus I am

still gaining weight at an alarming rate which I assumed was contributing to the

joint pain in the knee.

I have ordered some Cytomel (T3) with the reasoning it can't do me any harm but

may alleviate this awful pain

I am also going to get the T3 test done (lab21) but I am 99.9% sure you are

correct and I have also ordered VitD3 tabs as well just to cover all bases

lol.

I have ordered the 25mcg Cytomel and am currently taking 7 x erfa

which I think equates to 3 1/2 grains what dosage of cytomel should I replace

with what dosage of erfa please?

I am also taking 1x B12,2x Kelp,3x NAX plus I use iodised salt.

I have also written a letter detailing all the questions I wanted answers to at

my last doctors visit!! which I have sent to the practice as per Sheila's

advice, thanks Sheila and thanks to all of you for your support it means a great

deal to me, I don't know what I would have done without it as I was so down.

A very appreciative HIlary xx

>

>

> hi hilary,

> Have you seen http://www.drlowe.com your joint pains may

be due to low D3- as you are indoors a lot low levels are likely, but such pain

can also be the result of inability to convert T4 to T4. The T4 lodges in the

joints causing pain and inflammation. -This may be why you feel better on Erfa,

as there is some T3 available, but there may still be too much T4 for you system

to cope with- and need to replace some Erfa with T3 ( as I do).

>