Register of Counterexamples - where are you?

[Guest guest]

My last request a week or so ago asking for help to find the

email addresses of the owners of thyroid web sites, thyroid support groups and

Internet thyroid support groups, was met with silence, apart from a couple of

members who offered help. I sent my request for help to every one of our

members individually, plus the top thyroid forums. I also posted on to the

American support groups to see whether anybody there would organise a team to

find the email addresses of the owners of thyroid web sites or thyroid forums in

every State. Nobody responded.

I am also trying to find the email addresses of doctors who

might prescribe T3 in combination with T4 or who prescribe natural thyroid

extract in order that I can write to them and ask them if their secretary would

send the link to the Questionnaire to give their patients the opportunity to

sign it. Again, little response, but about three of you have already written to

give me the names of their endocrinologists and the hospital they work in so

many thanks for that.

PLEASE, if this Register of Counterexamples is going to work

- to show that levothyroxine (T4) doesn't work for everybody, we need to give

tens of thousands of sufferers the opportunity to respond, after which time, we

need to send it to all the Heads/Deans of Medical Schools, Medical Boards, World Health Organisation, Authors of Guidelines

on the diagnosis and management of hypothyroidism and endocrine/thyroid

associations throughout the world.

It would help

me if there is there somebody out there please who will try and find the email

addresses of the doctors mentioned here in Australia http://www.thyroid-info.com/topdrs/australia.htm

It would also help if somebody in the US would find the email addresses

of the American thyroid web sites and forums. I do, of course, have the main

ones.

Unless help

is forthcoming - we might as well give up any idea of creating such a Register,

which I, for one, consider to be absolutely vital if ever we are to bring about

changes in the treatment of the symptoms of hypothyroidism. It is a physical

impossibility to do such a massive job on our own.

Also, if your

Mother tongue is not English, we want the Questionnaire translating into as many

languages as we can. So far, we have German, and French translations, with

promises of Italian, Swedish, and Finnish. If you can translate to other

languages (and I don't mean by using Google translators) please let me know.

Luv - Sheila