BUMP Re: New to forum, not new to thyroid/adrenal problems!

[Guest guest]

,

Thanks for the reply.

Do you think it could be a problem with my ear drum even though several GPs have

looked at it and not found a problem? I don't know much about glue ear but it

does sound likely?

You know one doctor did say to me it's likely to be a build up of fluid behind

the ear drum and I couldn't do anything about it without an operation - hmm,

sounds similar doesn't it?

Although my GP thinks it could be related to my thyroid, not sure about that.

Regards thyroid - I have considered swapping to NDT but I've tried serveral

combos of levo + T3 and levo + T4 etc (under the guidence of Dr Skinner) - my

bloods look optimal on T4 alone but obviousy my symptoms still shout hypo hence

paying more attention to my adrenals.

I did try a low dose of prednisilone (with Dr S) but that was horrible and made

all my symptoms so much worse. I did not withdraw thyroid replacement before I

started it so I wonder if that was the problem there. Dr S thinks I need higher

meds but I can't tolerate them at the moment.

I' trying glandulars right now and when I came off levo to try this I felt a

little more connected to the world - as soon as I re-introduced the levo my

'detached' symptoms became worse again.

>

>

>

> Hello , ***How awful for you! And has this resolved now your ear

> is *fixed*? Yes, thankfully it has. The moment I woke up after the

> last operation (last August), I felt " normal " again. Apparently the

> whole area around my inner ear and the Eustachian tube, as well as this

> bone that one can feel behind the ear, were saturated with treacly fluid

> that could not drain away. I had gradually become totally deaf on that

> side and I felt horrible beyond words. But this " out of body experience "

> started the second he squirted the fluid inside the ear and it was gone

> the minute I woke up after the last operation. I was over the moon

> about that after having lived in a cocoon for the previous 4 months and

> with the entire problem of a 'glue ear' for nearly a full year.... I now

> have some permanent damage to my hearing levels, but at least I can hear

> again " in stereo " .... but this whole episode has left me with constant

> and loud high pitched tinnitus (

>

> ***I have had a problem with my right ear for many many years now, it

> feels blocked

> all the time and if I yawn to relieve it within a few seconds it's

> blocked

> again. It's been looked at so many times without proper explanation. I

> can only recommend for you to go and see a good ENT specialist. What you

> are describing sounds to me like glue ear too. It started with a

> blocked ear with me too after the flu virus in October 2008....my ear

> just blocked up and I could not unblock it for the next 5 months until

> he put the first grommet in.... it got worse by the day, because the

> fluid was building up behind the ear drum. I lost nearly a year of my

> life because of this problem. The specialist said let's wait at first,

> but after 5 months of waiting I had enough and he operated.... if only I

> had had it done under G.A. in the first place, I would probably have

> been all right....

>

> ***I wondered if it was a reaction to the levo but I have swapped brands

> anyway

> when I learned that Eltroxin was better than others, didn't seem to make

> any

> difference? Have you ever considered swapping to NDT ? Perhaps you are

> not converting enough? ***The sensation started for me literally one

> afternoon. I'd been struggling with

> fatigue for a long time anyway and suddenly, literally out of the blue

> became

> very depressed and detached (I can pinpoint the date and time!) - I

> wasn't on

> any meds at all then.

> Spoke to Dr P this morning and he said he knows this symptom well and

> it's

> usually because the thyroid hormone is not being put to use properly.

> That's interesting - I didn't know that this is a well known hypo

> symptom. But it's strange that it should have come on so suddenly with

> you as it did with me .... Did Dr. P. really mean this " out of body "

> experience and not the general " spaced out " feeling that many of us get

> when our thyroid levels are low? The spaced out one I have been getting

> for years and I still get it now from time to time. I am used to that

> feeling, but the " out-of-body " feeling was very different.... that was

> surreal.

> Best wishes,

>