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TREASURY SPENDING CHALLENGE - our topic removed

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I have 2 user names on

It was probably Littlehomesteader

or less likely Blindernylon ( Word's spellchecker's version of my previous name - Belinda Nolan!)

I don't remember whether I posted on this thread, but I certainly have all over the various petitions there are up at the moment.

There are plenty of rats to smell here, aren't there.

Keep up the good work, and well done for being so suspicious. Just cos we're paranoid, it doesn't mean they aren't out to getcha!

Love

Belinda

TREASURY SPENDING CHALLENGE - our topic removed

It appears that our original topioc "HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR" with over 70 comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv - Sheila

[Ed]

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No doubt inappropriate comments. Many are being removed by the moderators, and having to be reinstated. Particularly when they are atracting many votes. Also the system crashed as too many users.

It is easier to remove or edit a perceived inapproprate comment than close the whole comment down - Police state or what!

From: SheilaT <sheila@...>thyroid treatment Sent: Thu, 15 July, 2010 10:41:39Subject: TREASURY SPENDING CHALLENGE - our topic removed

It appears that our original topioc "HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR" with over 70 comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators. We have written to the Administrators asking for an expanation as to othe reason why, but none of us, as yet, have had any response. I personally believe that the topoic could well have been deleted as having "inappropriate content" because most of us were complaining about the lack of care by the NHS in the diagnosing the symptoms of hypothyroidism or being allowed a choice of treatment because of the RCP and BTA guidance on the Diagnosing and Management of Primary Hypothyroidism. There were some excellent comments which needed to be aired, and hopefully, they would have convinced the CONDEM Government to take this sorry mess forward for further discussion and investigationl. We were near to the top of the

ratings out of over 500 topics, which the Government had promised would be the one's they would be looking at.

However, I do believe the hand of the BTA, RCP is making these puppetts do what they want, and everybody's message has been removed. In fact, we could not even log in so you may find you need to log in again.

Our suggestion is that there are several other topics with the word 'thyroxine' - 'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a comment on the original (now removed) thread, please send me the 'Username' you used, and I will send you a copy of the comment you sent (I saved them all) and you can then repost it on all of these and give a 5 star rating. We need to push these topics all the way to the top. If the Administrators decide to remove ALL the topics containing these words, then we need to ask questions via the Media.

I sincerely hope that the CONDEM Government is not going to CONDEMN everything we write about this topic - it is long overdue for further investigatikons to be made and a public enquiry is the only way to go - we are capable of saving the government millions of pounds and the BTA, RCP are capable of giving back normal health to over 250,000 UK citizens.

If we are all determined enough to make this work -IT WILL. There will be people of note out there taking account of what we have written. We will NOT sit back and allow the RCP and the BTA to win - but it's good to know we are making the RCP,BTA et all very uncomfortable.

http://spendingchal lenge.hm- treasury. gov.uk/@@ search?text= hypothyroidism

http://spendingchal lenge.hm- treasury. gov.uk/@@ search?text= thyroxine

http://spendingchal lenge.hm- treasury. gov.uk/@@ search?text= thyroxine

Luv - Sheila

No

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Hi Sheila,What do you think about us copy and pasting original letter and all the comments saved right back up there?If they keep taking it off we then have proof, I've got a suspicious mind too and they could maybe say forinstance it was a mistake first time around but they won't be able to do that if we keep putting it back up.LoveTess xxthyroid treatment From: sheila@...Date: Thu, 15 Jul 2010 09:41:39 +0000Subject: TREASURY SPENDING CHALLENGE - our topic removed

It appears that our original topioc "HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR" with over 70 comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators. We have written to the Administrators asking for an expanation as to othe reason why, but none of us, as yet, have had any response. I personally believe that the topoic could well have been deleted as having "inappropriate content" because most of us were complaining about the lack of care by the NHS in the diagnosing the symptoms of hypothyroidism or being allowed a choice of treatment because of the RCP and BTA guidance on the Diagnosing and Management of Primary Hypothyroidism. There were some excellent comments which needed to be aired, and hopefully, they would have convinced the CONDEM Government to take this sorry mess forward for further discussion and investigationl. We were near to the top of the ratings out of over 500 topics, which the Government had promised would be the one's they would be looking at.

However, I do believe the hand of the BTA, RCP is making these puppetts do what they want, and everybody's message has been removed. In fact, we could not even log in so you may find you need to log in again.

Our suggestion is that there are several other topics with the word 'thyroxine' - 'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a comment on the original (now removed) thread, please send me the 'Username' you used, and I will send you a copy of the comment you sent (I saved them all) and you can then repost it on all of these and give a 5 star rating. We need to push these topics all the way to the top. If the Administrators decide to remove ALL the topics containing these words, then we need to ask questions via the Media.

I sincerely hope that the CONDEM Government is not going to CONDEMN everything we write about this topic - it is long overdue for further investigatikons to be made and a public enquiry is the only way to go - we are capable of saving the government millions of pounds and the BTA, RCP are capable of giving back normal health to over 250,000 UK citizens.

If we are all determined enough to make this work -IT WILL. There will be people of note out there taking account of what we have written. We will NOT sit back and allow the RCP and the BTA to win - but it's good to know we are making the RCP,BTA et all very uncomfortable.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv - Sheila

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Hi Sheila, I can use the site where your article is still there.

Love Ina

In a message dated 15/07/2010 GMT Daylight Time, sheila@... writes:

It appears that our original topioc "HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR" with over 70 comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators. We have written to the Administrators asking for an expanation as to othe reason why, but none of us, as yet, have had any response. I personally believe that the topoic could well have been deleted as having "inappropriate content" because most of us were complaining about the lack of care by the NHS in the diagnosing the symptoms of hypothyroidism or being allowed a choice of treatment because of the RCP and BTA guidance on the Diagnosing and Management of Primary Hypothyroidism. There were some excellent comments which needed to be aired, and hopefully, they would have convinced the CONDEM Government to take this sorry mess forward for further discussion and investigationl. We were near to the top of the ratings out of o ver 500

topics, which the Government had promised would be the one's they would be looking at.

However, I do believe the hand of the BTA, RCP is making these puppetts do what they want, and everybody's message has been removed. In fact, we could not even log in so you may find you need to log in again.

Our suggestion is that there are several other topics with the word 'thyroxine' - 'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a comment on the original (now removed) thread, please send me the 'Username' you used, and I will send you a copy of the comment you sent (I saved them all) and you can then repost it on all of these and give a 5 star rating. We need to push these topics all the way to the top. If the Administrators decide to remove ALL the topics containing these words, then we need to ask questions via the Media.

I sincerely hope that the CONDEM Government is not going to CONDEMN everything we write about this topic - it is long overdue for further investigatikons to be made and a public enquiry is the only way to go - we are capable of saving the government millions of pounds and the BTA, RCP are capable of giving back normal health to over 250,000 UK citizens.

If we are all determined enough to make this work -IT WILL. There will be people of note out there taking account of what we have written. We will NOT sit back and allow the RCP and the BTA to win - but it's good to know we are making the RCP,BTA et all very uncomfortable.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv - Sheila

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Afternoon everyone.

I just followed the link, found your letter Sheila, lots of comments and I

registered and added mine. Maybe all the complaints made them put it all back

on site.

Regards

Jane

>

>

> Hi again

>

>

>

> You are not doing TOO badly Sheila as your have one comment on twice plus

another on this one!

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-t\

o-deliver-more-for-less/doctors-should-be-made-aware-of-all-thyroid-meds-availab\

le This comment is good too as I didn't realise the training was quite so

intensive as this!

>

>

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I don't know if anyone else subscribes to the benefits and work newsletter but

they sent out one this week regarding some of the posts on that site, 'benefit

claimants should be sterilised' is one that immediately springs to mind and

there were several others that I saw myself which were highly prejudiced against

everyone really but lots about sick people and people on benefits and many that

were blatently racist which I was under the impression was a criminal offence

nowadays.

So I cannot understand for the life of me how they can justify deleting Sheila's

post and our comments whilst allowing posts like the above to remain.

If they keep doing it then maybe someone should get the press involved because

the idea of 'listening to the people' and actively looking at suggestions that

get the most votes kind of disappears out the window if you are just going to

delete the ones with the most votes that you don't like. It just makes a

mockery of the whole thing to me - it's like 'we're listening but we've got

selective hearing.'

I've posted again but if they keep doing things like that surely they are going

to end up scuppering their own site anyway because people will start to notice

and will just lose confidence and not bother.

Personally I never did trust them as far as I could throw them, which right now

isn't very far, but I was willing to give them the benefit of the doubt, but

Sheila's post being deleted is indeed a worrying sign.

Bunny

>

>

> It appears that our original topioc " HYPOTHYROIDISM - URGENT PUBLIC

> ENQUIRY CALLED FOR " with over 70 comments and a top rating of 4.8 our of

> 5.0 has been removed by the Moderators. We have written to the

> Administrators asking for an expanation as to othe reason why, but none

>>

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Hi Sheila,

I am absolutely disgusted to hear this. My

username is WSKeen and I would be very grateful if you could send me my comment

as it did take a little while to write and get it just right and, though I usually

do save these things, this one time I didn’t !!!!

I await with bated to breath to find out

why they have removed this topic. Me-thinks you have certainly ruffled some

feathers!

Thanks,

;o)

From:

thyroid treatment

[mailto:thyroid treatment ] On Behalf Of SheilaT

Sent: 15 July 2010 10:42

thyroid treatment

Subject:

TREASURY SPENDING CHALLENGE - our topic removed

It appears that our original topioc

" HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR " with over 70

comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators.

We have written to the Administrators asking for an expanation as to othe reason

why, but none of us, as yet, have had any response. I personally believe that

the topoic could well have been deleted as having " inappropriate

content " because most of us were complaining about the lack of care by the

NHS in the diagnosing the symptoms of hypothyroidism or being allowed a choice

of treatment because of the RCP and BTA guidance on the Diagnosing and

Management of Primary Hypothyroidism. There were some excellent comments which

needed to be aired, and hopefully, they would have convinced the CONDEM

Government to take this sorry mess forward for further discussion and

investigationl. We were near to the top of the ratings out of over 500 topics,

which the Government had promised would be the one's they would be looking at.

However, I do believe the hand of the BTA, RCP

is making these puppetts do what they want, and everybody's message has

been removed. In fact, we could not even log in so you may find you need to log

in again.

Our suggestion is that there are several other

topics with the word 'thyroxine' - 'thyroid' and 'hypothyroidism' in them, See

these links below. If you posted a comment on the original (now removed)

thread, please send me the 'Username' you used, and I will send you a

copy of the comment you sent (I saved them all) and you can then repost it

on all of these and give a 5 star rating. We need to push these topics all the

way to the top. If the Administrators decide to remove ALL the topics

containing these words, then we need to ask questions via the Media.

I sincerely hope that the CONDEM Government is

not going to CONDEMN everything we write about this topic - it is

long overdue for further investigatikons to be made and a public enquiry is the

only way to go - we are capable of saving the government millions of pounds

and the BTA, RCP are capable of giving back normal health to over 250,000 UK

citizens.

If we are all determined enough to make this

work -IT WILL. There will be people of note out there taking account of what we

have written. We will NOT sit back and allow the RCP and the BTA to win - but

it's good to know we are making the RCP,BTA et all very uncomfortable.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv - Sheila

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Dear Sheila,

ekp290340 was deleted.

There was also another one that sounded quite scientifically based that was gone too.

Have a great day,

TREASURY SPENDING CHALLENGE - our topic removed

It appears that our original topioc "HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR" with over 70 comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators. We have written to the Administrators asking for an expanation as to othe reason why, but none of us, as yet, have had any response. I personally believe that the topoic could well have been deleted as having "inappropriate content" because most of us were complaining about the lack of care by the NHS in the diagnosing the symptoms of hypothyroidism or being allowed a choice of treatment because of the RCP and BTA guidance on the Diagnosing and Management of Primary Hypothyroidism. There were some excellent comments which needed to be aired, and hopefully, they would have convinced the CONDEM Government to take this sorry mess forward for further discussion and investigationl. We were near to the top of the ratings out of o ver 500 topics, which the Government had promised would be the one's they would be looking at.

However, I do believe the hand of the BTA, RCP is making these puppetts do what they want, and everybody's message has been removed. In fact, we could not even log in so you may find you need to log in again.

Our suggestion is that there are several other topics with the word 'thyroxine' - 'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a comment on the original (now removed) thread, please send me the 'Username' you used, and I will send you a copy of the comment you sent (I saved them all) and you can then repost it on all of these and give a 5 star rating. We need to push these topics all the way to the top. If the Administrators decide to remove ALL the topics containing these words, then we need to ask questions via the Media.

I sincerely hope that the CONDEM Government is not going to CONDEMN everything we write about this topic - it is long overdue for further investigatikons to be made and a public enquiry is the only way to go - we are capable of saving the government millions of pounds and the BTA, RCP are capable of giving back normal health to over 250,000 UK citizens.

If we are all determined enough to make this work -IT WILL. There will be people of note out there taking account of what we have written. We will NOT sit back and allow the RCP and the BTA to win - but it's good to know we are making the RCP,BTA et all very uncomfortable.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv - Sheila

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> It is easier to remove or edit a perceived inapproprate comment than close the

whole comment down - Police state or what!

>

Agreed! And hardly democratic. What's the betting of how long my posting will

last this time? More than 24 horus? Will be interested to see if I (and other

people)get deleted again (without explanation).

Fiona.

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Hi Ina - the important topic that was taken down is not this

one, it is 'Hypothyroidism - Urgent Public Enquiry Called For'. We had over 70

comments and votes. Every comment has been removed including the original

'Idea'. Fortunately, I had copied most of that original message on to another

topic, and we now have to work to get this high enough in the ratings to bring

it to the attention of the Treasury so that they will enter into further

discussion and investigate this matter further. If you have not yet commented

or star rated it, it is VERY important that you do so now, and post the thread

wherever you can for others to follow. I have no idea whether Thyroid UK has

taken this up or Thyroid Disease.org - the other two main UK Internet Thyroid

Support Forums, but if somebody could post the following link there telling

them how important this is and asking them to comment, please will you do so. Also,

if anybody can post this link on their Facebook or Twitter or wherever else it

might be noticed, please do so. This is as close as we have got to getting the

Government to listen to us. They simply must NOT take down this Topic as they

have done with the other one.

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-investigated

Luv - Sheila

Hi Sheila, I can use the site where your article is still

there.

Love Ina

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Hi , here is a copy of your comment: You can post it and

star rate the message here http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-investigated

Posted

by WSKeen

July 13, 2010 at 12:48

Excellent

suggestions. Regretfully, I am now a classic case of a “financial

burden” on the government purely because the NHS will not recognise and

treat my blindingly obvious health problems. For the last 10 years my health

has gradually deteriorated. Having been dismissed time and again by the NHS I

sought private medical assistance and was diagnosed by three independent

specialists with long standing hypothyroidism and hypoadrenalism. However,

despite thousands of pounds worth of tests and consultations, my NHS GP is not

able to recognise this diagnosis and treat me accordingly because my TSH is

3.9. In 2007 I was forced to give up my full time career that involved a lot of

driving when my health became worse. Since then I have been mostly housebound

but have managed to stay off benefits, and just about keep my head above water,

by working as a self employed business consultant from home. Since March this

year I became so ill with “Chronic Fatigue Syndrome” (which is the

only “diagnosis” my GP can certify) that I have been mostly bedridden

and have had to relinquish my self employed contracts. So, I now live off

benefits (ESA Support Group) and get Disability Living Allowance as I cannot do

any of the normal tasks like shopping, cooking, cleaning, bathing and dressing.

Last week it was confirmed that I am also now borderline diabetic. If I was

properly diagnosed and treated by the NHS I could be out there working,

financially independent and contributing to society with my skill set.

Moreover, I could actually be experiencing a life worth living rather than, at

the age of 40, feeling like I am trapped in a body that will never function

properly again. The diagnosis and treatment of hypothyroidism in the UK is

beyond comprehension. These ridiculous TSH reference ranges and the NHS policy

to use them as confirmation of this condition is costing our country untold and

totally avoidable money in benefits, wasted skills and careers cut short. Such

simple changes as suggested above would reap such incredible results. I implore

the Government – do it…. do it now!

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of S

Keen

Sent: 15 July 2010 13:25

thyroid treatment

Subject: RE: TREASURY SPENDING CHALLENGE - our

topic removed

Hi Sheila,

I am

absolutely disgusted to hear this. My username is WSKeen and I would be very

grateful if you could send me my comment as it did take a little while to write

and get it just right and, though I usually do save these things, this one time

I didn’t !!!!

I await

with bated to breath to find out why they have removed this topic. Me-thinks

you have certainly ruffled some feathers!

Thanks,

;o)

From:

thyroid treatment [mailto:thyroid treatment ]

On Behalf Of SheilaT

Sent: 15 July 2010 10:42

thyroid treatment

Subject: TREASURY SPENDING CHALLENGE - our

topic removed

It

appears that our original topioc " HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY

CALLED FOR " with over 70 comments and a top rating of 4.8 our of 5.0 has

been removed by the Moderators. We have written to the Administrators asking

for an expanation as to othe reason why, but none of us, as yet, have had any

response. I personally believe that the topoic could well have been deleted as

having " inappropriate content " because most of us were complaining

about the lack of care by the NHS in the diagnosing the symptoms of

hypothyroidism or being allowed a choice of treatment because of the RCP and

BTA guidance on the Diagnosing and Management of Primary Hypothyroidism. There

were some excellent comments which needed to be aired, and hopefully, they

would have convinced the CONDEM Government to take this sorry mess forward for

further discussion and investigationl. We were near to the top of the ratings

out of over 500 topics, which the Government had promised would be the one's

they would be looking at.

However,

I do believe the hand of the BTA, RCP is making these puppetts do what

they want, and everybody's message has been removed. In fact, we could not even

log in so you may find you need to log in again.

Our

suggestion is that there are several other topics with the word 'thyroxine' -

'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a

comment on the original (now removed) thread, please send me the

'Username' you used, and I will send you a copy of the comment you sent (I

saved them all) and you can then repost it on all of these and give a 5 star

rating. We need to push these topics all the way to the top. If the Administrators

decide to remove ALL the topics containing these words, then we need to ask

questions via the Media.

I

sincerely hope that the CONDEM Government is not going to CONDEMN

everything we write about this topic - it is long overdue for further

investigatikons to be made and a public enquiry is the only way to go - we

are capable of saving the government millions of pounds and the BTA, RCP are

capable of giving back normal health to over 250,000 UK citizens.

If

we are all determined enough to make this work -IT WILL. There will be people

of note out there taking account of what we have written. We will NOT sit back

and allow the RCP and the BTA to win - but it's good to know we are making the

RCP,BTA et all very uncomfortable.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv

- Sheila

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/15/10

02:26:00

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Guest guest

No jane, this is not the same one, the thread you are talking

about now is a new one because the other had disappeared, but now even this new

one has disappeared too. Personally, I think it is ME they want to disappear.

Luv - Sheila

Afternoon everyone.

I just followed the link, found your letter Sheila, lots of comments and I

registered and added mine. Maybe all the complaints made them put it all back

on site.

Regards

Jane

>

>

> Hi again

>

>

>

> You are not doing TOO badly Sheila as your have one comment on twice plus

another on this one! http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/doctors-should-be-made-aware-of-all-thyroid-meds-available

This comment is good too as I didn't realise the training was quite so

intensive as this!

>

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/15/10

02:26:00

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Guest guest

Sheila, this is an outrage! I'll include it in my letter to my MP. My user name was susanr. Could you copy my comment back to me please?SueSent from iPhoneOn 15 Jul 2010, at 10:41, "SheilaT" <sheila@...> wrote:

It appears that our original topioc "HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR" with over 70 comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators. We have written to the Administrators asking for an expanation as to othe reason why, but none of us, as yet, have had any response. I personally believe that the topoic could well have been deleted as having "inappropriate content" because most of us were complaining about the lack of care by the NHS in the diagnosing the symptoms of hypothyroidism or being allowed a choice of treatment because of the RCP and BTA guidance on the Diagnosing and Management of Primary Hypothyroidism. There were some excellent comments which needed to be aired, and hopefully, they would have convinced the CONDEM Government to take this sorry mess forward for further discussion and investigationl. We were near to the

top of the ratings out of over 500 topics, which the Government had promised would be the one's they would be looking at.

However, I do believe the hand of the BTA, RCP is making these puppetts do what they want, and everybody's message has been removed. In fact, we could not even log in so you may find you need to log in again.

Our suggestion is that there are several other topics with the word 'thyroxine' - 'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a comment on the original (now removed) thread, please send me the 'Username' you used, and I will send you a copy of the comment you sent (I saved them all) and you can then repost it on all of these and give a 5 star rating. We need to push these topics all the way to the top. If the Administrators decide to remove ALL the topics containing these words, then we need to ask questions via the Media.

I sincerely hope that the CONDEM Government is not going to CONDEMN everything we write about this topic - it is long overdue for further investigatikons to be made and a public enquiry is the only way to go - we are capable of saving the government millions of pounds and the BTA, RCP are capable of giving back normal health to over 250,000 UK citizens.

If we are all determined enough to make this work -IT WILL. There will be people of note out there taking account of what we have written. We will NOT sit back and allow the RCP and the BTA to win - but it's good to know we are making the RCP,BTA et all very uncomfortable.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv - Sheila

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I am happy for us to do that Tess, but we need everybody to

upload their messages separately in order they can give their 5 star to rating

to help us get to the top of the list. Without that, we might as well not

bother. I have spent all day on this, I have a headache, I cannot cook 'cos too

tired, so decided to go out to our favourite Chinese Restaurant Alfe's. If

anybody would like to take this on, and post the original message and then ask

everybody to start pasting their original messages again, you are very welcome.

However, post the original Title of 'HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY

CALLED FOR'. See attached.

Luv - Sheila

Hi

Sheila,

What do you think about us copy and pasting original

letter and all the comments saved right back up there?

If they keep taking it off we then have proof, I've

got a suspicious mind too and they could maybe say for

instance it was a mistake first time around but they

won't be able to do that if we keep putting it back up.

Love

Tess

xx

thyroid treatment

From: sheila@...

Date: Thu, 15 Jul 2010 09:41:39 +0000

Subject: TREASURY SPENDING CHALLENGE - our topic

removed

It

appears that our original topioc " HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY

CALLED FOR " with over 70 comments and a top rating of 4.8 our of 5.0 has

been removed by the Moderators. We have written to the Administrators asking

for an expanation as to othe reason why, but none of us, as yet, have had any

response. I personally believe that the topoic could well have been deleted as

having " inappropriate content " because most of us were complaining about

the lack of care by the NHS in the diagnosing the symptoms of hypothyroidism or

being allowed a choice of treatment because of the RCP and BTA guidance on the

Diagnosing and Management of Primary Hypothyroidism. There were some excellent

comments which needed to be aired, and hopefully, they would have convinced the

CONDEM Government to take this sorry mess forward for further discussion and

investigationl. We were near to the top of the ratings out of over 500 topics,

which the Government had promised would be the one's they would be looking at.

However,

I do believe the hand of the BTA, RCP is making these puppetts do what

they want, and everybody's message has been removed. In fact, we could not even

log in so you may find you need to log in again.

Our

suggestion is that there are several other topics with the word 'thyroxine' -

'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a

comment on the original (now removed) thread, please send me the

'Username' you used, and I will send you a copy of the comment you sent (I

saved them all) and you can then repost it on all of these and give a 5 star

rating. We need to push these topics all the way to the top. If the

Administrators decide to remove ALL the topics containing these words, then we

need to ask questions via the Media.

I

sincerely hope that the CONDEM Government is not going to CONDEMN

everything we write about this topic - it is long overdue for further

investigatikons to be made and a public enquiry is the only way to go - we

are capable of saving the government millions of pounds and the BTA, RCP are

capable of giving back normal health to over 250,000 UK citizens.

If

we are all determined enough to make this work -IT WILL. There will be people

of note out there taking account of what we have written. We will NOT sit back

and allow the RCP and the BTA to win - but it's good to know we are making the

RCP,BTA et all very uncomfortable.

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

Luv

- Sheila

Get a new e-mail account with Hotmail – Free. Sign-up

now.

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/15/10

02:26:00

1 of 1 File(s)

COPY OF ARTICLE AND COMMENTS.doc

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Hi - here is the message you posted in the original TOPIC.

LUV - Sheila

Posted

by freeman9007

July 13, 2010 at 14:03

I was

left untreated and unable to function due to the flawed TSH blood test. It was

not until I obtained information myself that I found out about T3 (Tertroxin)

and after pleading and begging managed to get some, despite the Endo-Prat

considering it a placebo. My life improved overnight after 20 years of

disability. There are hundreds of thousands of people not correctly diagnosed

and suffering un-necessary, unable to work and dependent on government benefit.

This could be remedied by correct diagnosis and treatment.

Flag

this comment as inappropriate

>

>

> I think mine was freeman9007 or sunshine.

>

> jenny

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/15/10

02:26:00

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Here is your message to use elsewhere Adele - use on any thread

with thyroid/thyroxine or hypothyroidism in the title.

Luv - Sheila

Posted

by TBlack

July 13, 2010 at 13:55

I would

urge the government to take note of this excellent proposal which would save

both cost and unnecessary suffering.

Flag

this comment as inappropriate

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of Adele Ward

Sent: 15 July 2010 10:46

thyroid treatment

Subject: Re: TREASURY SPENDING CHALLENGE - our

topic removed

Can't believe this Sheila! What happened to freedon of

speech?!

My username is TBlack. Am happy to repost.

Adele x

From: SheilaT <sheila@...>

Subject: TREASURY SPENDING CHALLENGE - our topic

removed

thyroid treatment

Date: Thursday, July 15, 2010, 9:41 AM

It appears that our original topioc " HYPOTHYROIDISM -

URGENT PUBLIC ENQUIRY CALLED FOR " with over 70 comments and a top rating

of 4.8 our of 5.0 has been removed by the Moderators. We have written to the

Administrators asking for an expanation as to othe reason why, but none of

us, as yet, have had any response.

http://spendingchal lenge.hm-

treasury. gov.uk/@@ search?text= hypothyroidism

http://spendingchal lenge.hm-

treasury. gov.uk/@@ search?text= thyroxine

http://spendingchal lenge.hm- treasury. gov.uk/@@

search?text= thyroxine

Luv - Sheila

[Ed]

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/15/10

02:26:00

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Gosh, this is getting seriously creepy isn't it? Can't see you disappearing

Sheila, they don't know what they are up against ! Maybe the powers that be

think we all feel so awful that we won't have the energy to fight back.

Regards

Jane

>

> No jane, this is not the same one, the thread you are talking about now is a

> new one because the other had disappeared, but now even this new one has

> disappeared too. Personally, I think it is ME they want to disappear.

>

> Luv - Sheila

>

>

>

> Afternoon everyone.

> I just followed the link, found your letter Sheila, lots of comments and I

> registered and added mine. Maybe all the complaints made them put it all

> back on site.

>

> Regards

> Jane

>

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I just tried to put post up again....came back with errors " system could not

process given value " and Insufficient Priviledges???

Anyone else want to have a go at re posting it?

Love Tess

>

> I am happy for us to do that Tess, but we need everybody to upload their

> messages separately in order they can give their 5 star to rating to help us

> >

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Maybe they've taken them off to escalate them further up the chain as

they are good ideas with proven points.??

I know I'm the eternal optimist lol.

Love Tess

>

>

>

>

> Hi Sheila and everybody….

>

>

>

> I think we are fighting windmills here…. I just looked at the home

> page and found the following:

>

>

>

> A team has been put together right at the heart of government which is

> moderating

> <http://spendingchallenge.hm-treasury.gov.uk/moderation_policy> and

> reviewing your ideas. The team will remove ideas and comments which

> could be seen as offensive, or are libellous or illegal, as well as

> reviewing the volume of ideas and comments across different areas - for

> example, health, benefits, environment, to make sure that the debate is

> not focussing on too few areas.

>

> There have been a high volume of comments which have caused offence to

> our users, which our moderation team are working to clear. We will now

> close the site at periods of low traffic each day, to help us review and

> moderate more comments.

>

>

>

> So now we've been told ! Obviously our topic and comments have been

> classed as offensive, libelous or illegal – take your pick – and

> anything we say or do in the future no doubt will be " reviewed "

> and moderated (read removed) in the same fashion.

>

>

>

> This text, however, is in stark contrast to Osborne's

> soothing speech on the video clip above, where " all your ideas and

> suggestions " were welcome and promised to be looked at …. –

> what a farce !!!!!!!!!!!

>

>

>

> Anybody fancy writing to our dear chancellor a letter of complaint ?

>

>

>

>

>

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Hi Sheila & all,

Just a quick email to say that I have AT LAST, just managed to access the Gov. website and have left a message under the name of 'Cobragirl'.

BUT, will it be there tomorrow, I ask myself??

Marie

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Is this the link you are looking for Sheila?

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-t\

o-deliver-more-for-less/hypothyroidism-urgent-pulblic-enquiry-needed-to-save-mon\

ey

Love Tess

>

> which topic did you leave the message Marie - there are over 500. Can you

> find it and give us a link please.

>

> Luv - Sheila

>

>

>

>

>

> Hi Sheila & all,

>

>

>

> Just a quick email to say that I have AT LAST, just managed to access the

> Gov. website and have left a message under the name of 'Cobragirl'.

>

>

>

> BUT, will it be there tomorrow, I ask myself??

>

>

>

> Marie

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.441 / Virus Database: 271.1.1/3006 - Release Date: 07/15/10

> 02:26:00

>

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Guest guest

Every time I try to log on to the site now I am told it is being updated.My user name is magoo55 in the site and it appears both messages I have posted have been deleted. I swear they are trying to gag us.Luv Lynne xxxFrom: SheilaT <sheila@...>Subject: TREASURY SPENDING CHALLENGE - our topic removedthyroid treatment Date: Thursday, 15 July, 2010, 10:41

It appears that our original topioc "HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR" with over 70 comments and a top rating of 4.8 our of 5.0 has been removed by the Moderators. We have written to the Administrators asking for an expanation as to othe reason why, but none of us, as yet, have had any response. I personally believe that the topoic could well have been deleted as having "inappropriate content" because most of us were complaining about the lack of care by the NHS in the diagnosing the symptoms of hypothyroidism or being allowed a choice of treatment because of the RCP and BTA guidance on the Diagnosing and Management of Primary Hypothyroidism. There were some excellent comments which needed to be aired, and hopefully, they would have convinced the CONDEM Government to take this sorry mess forward for further discussion and investigationl. We were

near to the top of the ratings out of over 500 topics, which the Government had promised would be the one's they would be looking at.

However, I do believe the hand of the BTA, RCP is making these puppetts do what they want, and everybody's message has been removed. In fact, we could not even log in so you may find you need to log in again.

Our suggestion is that there are several other topics with the word 'thyroxine' - 'thyroid' and 'hypothyroidism' in them, See these links below. If you posted a comment on the original (now removed) thread, please send me the 'Username' you used, and I will send you a copy of the comment you sent (I saved them all) and you can then repost it on all of these and give a 5 star rating. We need to push these topics all the way to the top. If the Administrators decide to remove ALL the topics containing these words, then we need to ask questions via the Media.

I sincerely hope that the CONDEM Government is not going to CONDEMN everything we write about this topic - it is long overdue for further investigatikons to be made and a public enquiry is the only way to go - we are capable of saving the government millions of pounds and the BTA, RCP are capable of giving back normal health to over 250,000 UK citizens.

If we are all determined enough to make this work -IT WILL. There will be people of note out there taking account of what we have written. We will NOT sit back and allow the RCP and the BTA to win - but it's good to know we are making the RCP,BTA et all very uncomfortable.

http://spendingchal lenge.hm- treasury. gov.uk/@@ search?text= hypothyroidism

http://spendingchal lenge.hm- treasury. gov.uk/@@ search?text= thyroxine

http://spendingchal lenge.hm- treasury. gov.uk/@@ search?text= thyroxine

Luv - Sheila

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My user name is magoo55 - I kept a copy of my first post on the site and it is

posted below for you to see:

Asolutely in agreement, sensible, reasonable and put in an educated way that

cannot possibly be misunderstood by any reader. It must have cost millions in

unecessary medications over the number of years I have been treated and tested

and yet within months of my treating by my own symptoms, after discussion with

my G P, my thyroid is far better controlled.

Previous G P's and endocrinologists simply refused to listen and treated me like

some kind of imbecile, rather than someone who has a vested interest in their

own well being.

I urge this government to take note of what has been said here and act upon it

as a matter of urgency. They CAN make life worth living for those hypothyroid

patients who are not being given the best options as things are at the moment.

Unfortunately my second post has also disappeared and I hadn't kept a copy of

that one.

Luv Lynne

> >

> > No jane, this is not the same one, the thread you are talking about now is a

> > new one because the other had disappeared, but now even this new one has

> > disappeared too. Personally, I think it is ME they want to disappear.

> >

> > Luv - Sheila

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HI Sheila,

This is the link that I used as follows:-http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/hypothyroidism-urgent-pulblic-enquiry-needed-to-save-money

and, this was my message...

I would like to strongly urge the Government to take heed of the 250,000 hypothyroid sufferers throughout the UK, who, through no fault of their own, are unable to successfully function on Thyroxine (T4), and need Natural Dessicated Thyroid, or other T3 containing products, to enjoy a normal existance.

The real and genuine savings to the NHS, would run into millions of pounds and there would be a lot of very happy and relieved sufferers out there...

PLEASE LISTEN TO US!!!

Can't get in this morning though!!!

Marie

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