Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Am in the midst of total crash here and also feeling guilty for posting this, knowing the conference is coming up and everyone is probably totally preoccupied with that. However, tears are streaming, sleep totally up the creek again (having stabilised recently for first time ever) brain cells are completely trashed so can't think straight or read and extract info sensibly. Reasons? 1. Am 6 days off LevoT on advice from here because started taking NAE - did that without having adrenal saliva test for financial reasons on basis of adrenal stress questionnaire 2. LevoT was giving me lots of aches and pains - so was searching for underlying reasons - came to conclusion probably linked to ?uptake problems with T4 problem either because of adrenal problems or T4/T3 conversion problems 3. Reading around a lot to try and see if could better inform self in order to make it all work for me - LevoT had cleared my brain somewhat so that for first time for ages was beginning to grapple (albeit not totally effectively) with things I couldn't begin on before LevoT 4. Reading around lead to concerns re: links breast cancer and hypothyroid status - mixed research data found, but more advocating treatment for hypot than otherwise 5 Ordered ebook by Dr Haskell - which claims to look at the connection between breast disease and the Thyroid. Most of the book is actually devoted to a look at hypothyroid problems, identifyng 7 causes and 7 symptoms. The section on breast cancer is brief, but (if my head is working at all, which i am now seriously doubting as I have a crashing headache amidst the tears, panic and confusion that is setting in).....but, as far as i can understand it the main points seem to be that taking T4 alone (which I am doing) may be damaging - I think (but am not sure) this conclusion is basedin some way on the concept that doing so may also increase reverse T3 unless T3 is also taken (whether in synthetic or natural dessicated formula) I feel unable to be sure if I have understood the text properly. Unable to differentiate whether the conclusions it reaches are based on sound data or whether they are hype. If anyone wants to act as a " reader " , and see if they can interpret the data, i cannot see that I would be infringing any ccopyright by forwarding the ebook on for this purpose- I badly need a capable brain to look at it and to help me work my way through this whole thing. Obviously with the current treatment schedules in the NHS I am going to find it hard to get a test which covers T3 and reverse T3 unless I get it done privately. Equally I have muddled myself up by taking NAE without getting the saliva test done and cannot even work out if I can or should get one done now as I have started taking NAE. I really wanted to have the NHS involved in my treatment to be sure I could afford to maintain it financially long term and to be sure that I was not doing anything too stupid in terms of possibly exacerbating the breast cancer in my desperation to treat the thyroid problem and to hopefully regain some quality of life. I desperately do not want to antagonise my very lovely GP who has tried incredibly hard and finally allowed recognition of hypothyroid status within the NHS. After all my reading around I am now in a state of almost paralytic indecision, feeling forced into a world that the NHS will no doubt equate to potential quackery becuase it is not on their agenda. I feel I am likely to be regarded as totally neurotic if I start to voice concerns about adrenal or T4-T3 conversion problems to my GP.....from the past I know that I will almost inevitably be greeted with a patronising smile if I mention the names of some people involved in this field who are outside the NHS system. It seems more than " a bit much " to have to cope with not only the physical traumas of hypot and the enormous ups and downs of treatments but to also have to cope with lack of recognition of the problems within the NHS or breaking with the NHS because I decide to go outside it (which in and of itself would mean a large credit card debt which I would take months and months to repay). So I am screaming, reduced to infant status and emotionally just falling apart once again. Each time I tell myself to pull it together and seem to get a handle on things within days I am falling apart at the seams and totally indecisive about which way to go next. So - now I am just going to post this and let my scream out......yes, I hear Sheila say be positive - but my child side is screaming too much to put it all together and somehow I feel as I keep getting to half truth the whole time, the complete picture eluding me. The stakes are high, the breast cancer links elusive and the terror is taking over. Sorry, I know I am ranting...have lost objectivity and that is really why I am posting this. Vicky Quote Link to comment Share on other sites More sharing options...
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