Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 >> Now, I cannot even log back into the web site - it will not accept either my> username or my password. What IS going on?> http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-servic> es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-for Same here, Sheila - it won't accept my username nor password. I can't log on - I did, however manage to get onto the site via another topic - our topic is nowhere to be seen. How scared they must be to resort to exclusion.... Same old story, it seems.... I bet they found an opt-out clause somewhere in the topic or its comments violating some of their rules and they have moderated the topic and taken it out. Why am I not surprised? You could send a query on their homepage to the moderators to ask what has happened to this topic....- in fact, we all could.... I think that is possible even without having to log on, but I have been clicking so much in the past 20 minutes, I don't know any more what is working and what isn't..... let's try it. love, xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 I think they just changed the TITLE. Here is the link: http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-t\ o-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-inv\ estigated Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 Hi Shelia I had to type my login in several times but although not recognised I noticed top right had corner that I was logged in?????? I get 16 topics on the thyroid search, although our one seems to have disappeared??????? x > > Now, I cannot even log back into the web site - it will not accept either my > username or my password. What IS going on? > http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\ rvic > es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\ for > > > > > Luv - Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 I am leaving this until tomorrow morning and if I have not been contacted by 10.00a.m. I will be left with no other option but to assume that our topic has been hacked - because we are getting too close for comfort in certain quarters. If we have been hacked, all I can suggest is that we use the other topics with 'Hypothyroidism' in their name and post our messages there. Before I logged off, after checking the original message to the government, something seemed " strange " and scrolling down to where the comments were, where it was written under each message " Report this message if the content is inappropriate " or something like that, all it showed was the name 'GURU-Meditation'- just that. Wasn't it GURU something or other who reported Dr Myhill to the General Medical Council. I may need to write to everybody individually and ask them to report this matter to the Government Web site Moderators (can you give us a link ) and inundated them with demands to get our topic up and running again. I still am unable to access the web site as neither my username or password now works. This STINKS!! Luv - Sheila >> Now, I cannot even log back into the web site - it will not accept either my > username or my password. What IS going on? > http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-servic > es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-for Same here, Sheila - it won't accept my username nor password. I can't log on - I did, however manage to get onto the site via another topic - our topic is nowhere to be seen. How scared they must be to resort to exclusion.... Same old story, it seems.... I bet they found an opt-out clause somewhere in the topic or its comments violating some of their rules and they have moderated the topic and taken it out. Why am I not surprised? You could send a query on their homepage to the moderators to ask what has happened to this topic....- in fact, we all could.... I think that is possible even without having to log on, but I have been clicking so much in the past 20 minutes, I don't know any more what is working and what isn't..... let's try it. love, xx No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 hi Shelia Your Inappropriate Treatment for Hypothyroidism should be Investigated is still there. And top of the " ideas with most comments " . The one that has disappeared is the Urgent Govenment Enquiry?????? x > > Now, I cannot even log back into the web site - it will not accept either my > username or my password. What IS going on? > http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\ rvic > es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\ for > > > > > Luv - Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 unless it is something to do with computer cookies as I already looked at it today I can still find it when i search for thyroid - it comes up third on the list. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 The following is the page for contacting the administrators, Sheila. I have copied and pasted the actual page underneath, but I doubt if this can be used like this, and it is specific to my username - so hopefully this link will work…. Good luck !! Love, xx http://spendingchallenge.hm-treasury.gov.uk/contact-info Skip to Main Content Her Majesty's Government: Spending Challenge Consultation Kaye Log out About the dialogue Home Search Search Ideas Contact form Info If you want to contact the site administrators, please use the form below. If you are having a problem with this site, please tell us what operating system and browser you are using, e.g. Windows Vista : Internet Explorer 7. Your information will not be disclosed to third parties. Contact Name (optional) Please enter your full name Subject (required) Please enter the subject of the message you want to send Message (required) Please enter the message you want to send · Contact · About the dialogue · How to use this site · Privacy policy · Moderation policy · Created by Delib Dialogue App by Delib Ltd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 No, that is not the one. I posted that a couple of days ago but that is not our main TOPIC. The topic in question is 'Hypothyroidism - Urgent Public Enquiry Called For' - Had they changed the name, all the 70 odd votes and 60 odd messages would have still been there. They are not, they have gone. I think we start posting our messages onto the other 5 topics and see whether they also disappear into the ether. Somebody needs to be answering some questions. Luv - Sheila I think they just changed the TITLE. Here is the link: http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-investigated No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 >> I think they just changed the TITLE. Here is the link: http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-investigated> Thanks for finding that, Lynn - still, something very odd is going on. When I last looked (when I was still able to log on), there were 70 comments- on this link now there are only 36 left (I think). All of Sheila's comments have disappeared, as have my own.....- I smell fish !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 ink our messages were getting too close for comfort to certain organisations i.e. BTA and RCP. Shows how frightened they are getting - knowing we are not afraid to come forward and say what we think. Well, we will just start posting them all again under the other thyroid topics, including the other topic I opened. I will write to everybody tomorrow asking them to let me have their user name, and I will send them a copy of their message - because guess what, being the great big cynic that I am, I have kept a copy of every message that was posted. You can all then post your message onto every single Hypothyroid or Thyroxine topic and rate it five starts. They are not going to get the better of us. Let's see if they DARE to take down every topic with hypothyroidism in their title. This is going to take some determination, so I am expecting you all to do your best. I am too tired tonight, but will wait until 10.00a.m. tomorrow morning to give the administrators a chance to respond, and if they do not, that will be our plan of action. Luv - Sheila From: thyroid treatment [mailto:thyroid treatment ] On Behalf Of a.j.cane.t21@... Sent: 14 July 2010 19:41 thyroid treatment Subject: Re: Has our topic been HACKED? Hi Shelia I had to type my login in several times but although not recognised I noticed top right had corner that I was logged in?????? I get 16 topics on the thyroid search, although our one seems to have disappeared??????? x > > Now, I cannot even log back into the web site - it will not accept either my > username or my password. What IS going on? > http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\ rvic > es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\ for > > > > > Luv - Sheila > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 You MEAN ANOTHER TOPIC HAS DISAPPEARED???? Boy, the press should be interested to know about such crookery! Luv - Sheila hi Shelia Your Inappropriate Treatment for Hypothyroidism should be Investigated is still there. And top of the " ideas with most comments " . The one that has disappeared is the Urgent Govenment Enquiry?????? x > > Now, I cannot even log back into the web site - it will not accept either my > username or my password. What IS going on? > http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\ rvic > es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\ for > > > > > Luv - Sheila > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 ***I will write to everybody tomorrow asking them to let me have their user name, and I will send them a copy of their message - because guess what, being the great big cynic that I am, I have kept a copy of every message that was posted. You clever girl Well done !! love, xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 bloody marvellous i've also contacted the site administrator to ask them what's going on! x >> > > > ***I will write to everybody tomorrow asking them to let me have their> user name, and I will send them a copy of their message - because guess> what, being the great big cynic that I am, I have kept a copy of every> message that was posted.> > > > You clever girl [] [] Well done !!> > love, xx> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 below is the message I have sent to the administrator. Hi! I registered yesterday together with my family and when we tried to access your site today it will not allow us to do so? yet we left comments on an issue in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has been removed and for what reasons? and why our registrations have been removed and again for what reasons? This is tantamount to gagging and I am certain the press will think so to. I look forward to an early response WE ALL NEED TO RALLY NOW BEHIND SHEILA.... WE CAN'T LET THEM GET AWAY WITH IT.. xx > > Now, I cannot even log back into the web site - it will not accept either my > username or my password. What IS going on? > http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-servic > es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-for > > > > > Luv - Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 I just clicked on link it took me to a page with a search then when I typed hypothyorid it all appeared. Did not check the posts/ratings but your original idea is there. Sue > >> Now, I cannot even log back into the web site - it will not accept either > my > > username or my password. What IS going on? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 Hi,Sheila, I have checked this link, i have posted two comments in the last two days, am i being a bit dense, i cant find my posts, am i confused, did you have another one on their and i posted that one. If you had only this one, my posts have gone. love stevie > > I think they just changed the TITLE. Here is the link: http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-t\ o-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-inv\ estigated > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 Hi I've just registered (10.30pm) and rated Shelia's document, with no problems. > > below is the message I have sent to the administrator. > > Hi! I registered yesterday together with my family and when we tried to access your site today it will not allow us to do so? yet we left comments on an issue in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has been removed and for what reasons? and why our registrations have been removed and again for what reasons? [Ed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 - I think it did the trick!! I have managed to leave my 'one-liner' (all I could think of through today's 'brain-fog') and vote and everything. Good work! > > below is the message I have sent to the administrator. > > Hi! I registered yesterday together with my family and when we tried to access your site today it will not allow us to do so? yet we left comments on an issue in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has been removed and for what reasons? > > I look forward to an early response > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 My comment is not there either... Another comment by a researcher is not there too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 The topic is still showing, I did have to dig deep to find it however. Loads of prebious comments, mine included have been taken off the post. I truly believe this exercise to be futile, the government are not being genuine in this as far as I see it if they are removing posts. http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-t\ o-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-inv\ estigated Luv Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Hi, That's a greatway to make sure folk can't find it when we tell everybody where it is. Still can't get in though. Get a new e-mail account with Hotmail - Free. Sign-up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Posted by ekp290340 July 13, 2010 at 17:01 The NHS takes its hypothyroidism related advice from the BTA and the RCP. That advice, as dictated in medical practice guidelines and statements, has two major faults. First, the dictated therapy has a 13% failure rate as found by Saravanan, et al. What responsible organization can withstand such a failure rate? Second, the dictated diagnostics hide the need for therapies other than the dictated one -- only levothyroxine sodium, which only replaces T4. The unrecognized malady, euthyroid hypometabolism, circa 1960, diagnosed those with the symptoms of hypothyroidism but also had properly functioning thyroid glands and treated them successfully with the approved, but banned, liothyronine sodium, T3. The dictated diagnostic tests do not address adrenal deficiency, deficiency in other supporting chemicals, or excesses in toxins. Since there is no enforcement of laws upon the BTA or the RCP, these organizations are effectively above the law. Not only are the effectively above the law of man, they are above the laws of medicine. The patient's welfare is NOT first and foremost as required by numerous standards of medical ethics. A standard of medical ethics requires that physicians be honest in all medical relationships. However, the patient with continuing symptoms of hypothyroidism is not informed of the potential for any deficiency other than the thyroid deficiency. OH, the physician may excuse medicine's lack of success by blaming the patient for having a malady that can not be diagnosed or by claiming the patient is some sort of nut case who is imagining her ills. The reality is quite simple. Medical science has warned medical practice that a T4-only therapy does not always work at least as early as 1947 and again in 1954. An alternative source of these symptoms was empirically found in 1960. By 1970, the post thyroid functions that can cause these continuing symptoms were discovered. Later, Belgian physicians, Drs. Baisier, Hertoghe, and Eeckhaut studied endocrinology's failures and treated them successfully with one of the banned hormone replacements, dessicated thyroid. There are quite undesirable side effects of not mitigating the symptoms of hypothyroidism besides the obvious. The associated lack of energy reduces the body's ability to fight disease. Indeed, these symptoms promote life's great killers, heart disease and diabetes. Properly treating the 13% of those inadequately treated per BTA/RCP dictates, by personal experience, may save 1,500 GBP annually each. That is about 375,000,000 GBP. Treatment for serious disease no included. Euthyroid Hypometabolism, which is completely ignored by western medicine, affected 6% of the general population, per the study by Dr. Marshall Goldberg. One may speculated that proper care for these folks may save another 3 billion GBP. Moreover, this may be the tip of systematically mistreated iceberg that creates markets for expensive drugs when inexpensive ones are better. Indeed, I do agree with an earlier comment. The " science " in this niche of a sub-specialty is quite poor. It is so poor, that it should be described as " junk science. " There are studies that " prove " the T4-only therapy is right because the trial replacement of T3 did not improve the subjects condition. Basically what these studies did was to claim that the active hormone, T3, (Gross & Pitt-Rivers, circa 1952) was ineffective whilst the relatively inactive hormone, T4, was effective. This was done by the unscientific means of improper study design, administering insignificant doses of T3, and discounting any positive results as being statistically insignificant -- but then there is only a 13% problem with the T4 therapy. The crushing evidence against the unscientific ban on T3 may be found in the experiences of patient counterexamples. They demonstrated the lack of reliability in the T4-only therapy theory because they experienced the failure of T4 and the success of a T3-containing therapy. This patient abuse and the consequential unnecessary costs have existed for far too long, over 60 years. Undoubtedly over the physician education recommendations by the Royal College of Physicians, it is time, it is past time, to introduce this niche of a medical sub-specialty to medical science and medical realities and save suffering and money. . here is your comment (I saved them all as they came in) so you can post it on the other 5 TOPICS with the word 'thyroxine' or hypothyroidism' in the title - and give it a 5 star rating on each of the topics. If the CONDEM government remove all of the topics on thyroxine or hypothyroidism, then they will need to answer some questions. The hands of the BTA are controlling the moderator puppetts I do believe. Luv - Sheila From: thyroid treatment [mailto:thyroid treatment ] On Behalf Of ekp290340 Sent: 15 July 2010 01:41 thyroid treatment Subject: Re: Has our topic been HACKED? My comment is not there either... Another comment by a researcher is not there too. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10 18:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 I would query one thing about what has been saying. At the moment T3 is not actually banned it is very much discouraged - or they have suggested banning it. I would hate a doctor who is prescribing it to read it and suddenly think he shouldn't because it is banned. Also Armour is not actually banned, it is just not licensed here. If T3 and Armour were banned would we not have more difficulty in getting it over the internet. The effect is as if it were banned. As they are not banned, yet another reason to question why these organisations do not want doctors to prescribe it when necessary. We do not want to make it a self fulfilling prophesy (if that is the expression). Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Hi - you will no doubt have read the message I am putting out for everybody to send me the user name they used to post their comment on our previous thread. I will then send you a copy of the message you wrote so you can pass it on to all the other 'thyroid' thyroxine' and hypothyroidism threads. Did you hear back from the Administrators. I have heard nothing. Luv - Sheila http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine below is the message I have sent to the administrator. Hi! I registered yesterday together with my family and when we tried to access your site today it will not allow us to do so? yet we left comments on an issue in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has been removed and for what reasons? and why our registrations have been removed and again for what reasons? This is tantamount to gagging and I am certain the press will think so to. I look forward to an early response WE ALL NEED TO RALLY NOW BEHIND SHEILA.... WE CAN'T LET THEM GET AWAY WITH IT.. xx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 You were probably looking at another thread I posted previously, It is NOT 'Hypothyroidism - Urgent Public Enquiry Called For. If you posted a message, let me know your user name and I will send you a copy of the original message so you can post it onto the those topics with 'thyroxine' 'thyroid' or 'hypothyroidism' and rate each one with 5 stars. We cannot let the #RCP, BTA beat us down - which is what they are determined to do to stop the work we are involved in. Luv - Sheila http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine I just clicked on link it took me to a page with a search then when I typed hypothyorid it all appeared. Did not check the posts/ratings but your original idea is there. Sue Quote Link to comment Share on other sites More sharing options...
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