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>> Now, I cannot even log back into the web site - it will not accept either my> username or my password. What IS going on?> http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-servic> es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-for

Same here, Sheila - it won't accept my username nor password. I can't log on - I did, however manage to get onto the site via another topic - our topic is nowhere to be seen. How scared they must be to resort to exclusion....

Same old story, it seems.... I bet they found an opt-out clause somewhere in the topic or its comments violating some of their rules and they have moderated the topic and taken it out. Why am I not surprised?

You could send a query on their homepage to the moderators to ask what has happened to this topic....- in fact, we all could.... I think that is possible even without having to log on, but I have been clicking so much in the past 20 minutes, I don't know any more what is working and what isn't..... let's try it.

love, xx

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Hi Shelia

I had to type my login in several times but although not recognised I

noticed top right had corner that I was logged in??????

I get 16 topics on the thyroid search, although our one seems to have

disappeared???????

x

>

> Now, I cannot even log back into the web site - it will not accept

either my

> username or my password. What IS going on?

>

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\

rvic

>

es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\

for

>

>

>

>

> Luv - Sheila

>

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I

am leaving this until tomorrow morning and if I have not been contacted by

10.00a.m. I will be left with no other option but to assume that our topic has

been hacked - because we are getting too close for comfort in certain quarters.

If we have been hacked, all I can suggest is that we use the other topics with

'Hypothyroidism' in their name and post our messages there. Before I

logged off, after checking the original message to the government, something

seemed " strange " and scrolling down to where the comments were, where

it was written under each message " Report this message if the content is

inappropriate " or something like that, all it showed was the name 'GURU-Meditation'-

just that. Wasn't it GURU something or other who reported Dr Myhill to the

General Medical Council.

I may

need to write to everybody individually and ask them to report this matter to

the Government Web site Moderators (can you give us a link ) and inundated

them with demands to get our topic up and running again. I still am unable to

access the web site as neither my username or password now works.

This STINKS!!

Luv - Sheila

>> Now, I cannot even log back into the web

site - it will not accept either my

> username or my password. What IS going on?

> http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-servic

> es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-for

Same here, Sheila - it won't accept my username nor password. I can't

log on - I did, however manage to get onto the site via another topic -

our topic is nowhere to be seen. How scared they must be to

resort to exclusion....

Same old story, it seems.... I bet they found an opt-out

clause somewhere in the topic or its comments violating some of their

rules and they have moderated the topic and taken it out. Why am I not

surprised?

You could send a query on their homepage to the moderators to ask what has

happened to this topic....- in fact, we all could.... I think that is possible

even without having to log on, but I have been clicking so much in the past 20

minutes, I don't know any more what is working and what isn't..... let's try

it.

love, xx

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10

18:36:00

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hi Shelia

Your Inappropriate Treatment for Hypothyroidism should be Investigated

is still there. And top of the " ideas with most comments " . The one

that has disappeared is the Urgent Govenment Enquiry??????

x

>

> Now, I cannot even log back into the web site - it will not accept

either my

> username or my password. What IS going on?

>

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\

rvic

>

es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\

for

>

>

>

>

> Luv - Sheila

>

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unless it is something to do with computer cookies as I already looked at it

today I can still find it when i search for thyroid - it comes up third on the

list.

Alice

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The following is the page for contacting the administrators, Sheila. I have copied and pasted the actual page underneath, but I doubt if this can be used like this, and it is specific to my username - so hopefully this link will work…. Good luck !!

Love, xx

http://spendingchallenge.hm-treasury.gov.uk/contact-info

Skip to Main Content

Her Majesty's Government: Spending Challenge Consultation

Kaye

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No, that is not the one. I posted that a couple of days ago but

that is not our main TOPIC. The topic in question is 'Hypothyroidism - Urgent

Public Enquiry Called For' - Had they changed the name, all the 70 odd votes and

60 odd messages would have still been there. They are not, they have gone. I

think we start posting our messages onto the other 5 topics and see whether

they also disappear into the ether. Somebody needs to be answering some

questions.

Luv - Sheila

I think they just changed the TITLE. Here is

the link: http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-investigated

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10

18:36:00

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>> I think they just changed the TITLE. Here is the link: http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-to-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-investigated>

Thanks for finding that, Lynn - still, something very odd is going on. When I last looked (when I was still able to log on), there were 70 comments- on this link now there are only 36 left (I think). All of Sheila's comments have disappeared, as have my own.....- I smell fish !!!

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ink our messages were getting too close for comfort to certain

organisations i.e. BTA and RCP. Shows how frightened they are getting - knowing

we are not afraid to come forward and say what we think. Well, we will just

start posting them all again under the other thyroid topics, including the

other topic I opened. I will write to everybody tomorrow asking them to let me

have their user name, and I will send them a copy of their message - because

guess what, being the great big cynic that I am, I have kept a copy of

every message that was posted. You can all then post your message onto every

single Hypothyroid or Thyroxine topic and rate it five starts. They are not going

to get the better of us. Let's see if they DARE to take down every topic with

hypothyroidism in their title. This is going to take some determination, so I

am expecting you all to do your best. I am too tired tonight, but will wait

until 10.00a.m. tomorrow morning to give the administrators a chance to

respond, and if they do not, that will be our plan of action.

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of a.j.cane.t21@...

Sent: 14 July 2010 19:41

thyroid treatment

Subject: Re: Has our topic been HACKED?

Hi Shelia

I had to type my login in several times but although not recognised I

noticed top right had corner that I was logged in??????

I get 16 topics on the thyroid search, although our one seems to have

disappeared???????

x

>

> Now, I cannot even log back into the web site - it will not accept

either my

> username or my password. What IS going on?

>

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\

rvic

>

es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\

for

>

>

>

>

> Luv - Sheila

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10

18:36:00

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You MEAN ANOTHER TOPIC HAS DISAPPEARED???? Boy, the press should

be interested to know about such crookery!

Luv - Sheila

hi Shelia

Your Inappropriate Treatment for Hypothyroidism should be Investigated

is still there. And top of the " ideas with most comments " . The one

that has disappeared is the Urgent Govenment Enquiry??????

x

>

> Now, I cannot even log back into the web site - it will not accept

either my

> username or my password. What IS going on?

>

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-se\

rvic

>

es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-\

for

>

>

>

>

> Luv - Sheila

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10

18:36:00

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***I will write to everybody tomorrow asking them to let me have their user name, and I will send them a copy of their message - because guess what, being the great big cynic that I am, I have kept a copy of every message that was posted.

You clever girl Well done !!

love, xx

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bloody marvellous i've also contacted the site administrator to ask them what's going on!

x

>> > > > ***I will write to everybody tomorrow asking them to let me have their> user name, and I will send them a copy of their message - because guess> what, being the great big cynic that I am, I have kept a copy of every> message that was posted.> > > > You clever girl [;)] [:D] Well done !!> > love, xx>

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below is the message I have sent to the administrator.

Hi! I registered yesterday together with my family and when we tried to access

your site today it will not allow us to do so? yet we left comments on an issue

in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM -

URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has been

removed and for what reasons? and why our registrations have been removed and

again for what reasons?

This is tantamount to gagging and I am certain the press will think so to.

I look forward to an early response

WE ALL NEED TO RALLY NOW BEHIND SHEILA.... WE CAN'T LET THEM GET AWAY WITH IT..

xx

>

> Now, I cannot even log back into the web site - it will not accept either my

> username or my password. What IS going on?

> http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-servic

> es-to-deliver-more-for-less/hypothyroidism-urgent-public-enquiry-called-for

>

>

>

>

> Luv - Sheila

>

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I just clicked on link it took me to a page with a search then when I typed

hypothyorid it all appeared. Did not check the posts/ratings but your original

idea is there.

Sue

> >> Now, I cannot even log back into the web site - it will not accept either

> my

> > username or my password. What IS going on?

>

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Hi,Sheila,

I have checked this link, i have posted two comments in the last two days, am i

being a bit dense, i cant find my posts, am i confused, did you have another one

on their and i posted that one. If you had only this one, my posts have gone.

love stevie

>

> I think they just changed the TITLE. Here is the link:

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-t\

o-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-inv\

estigated

>

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Hi

I've just registered (10.30pm) and rated Shelia's document, with no problems.

>

> below is the message I have sent to the administrator.

>

> Hi! I registered yesterday together with my family and when we tried to access

your site today it will not allow us to do so? yet we left comments on an issue

in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM -

URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has been

removed and for what reasons? and why our registrations have been removed and

again for what reasons?

[Ed]

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- I think it did the trick!!

I have managed to leave my 'one-liner' (all I could think of through today's

'brain-fog') and vote and everything.

Good work!

>

> below is the message I have sent to the administrator.

>

> Hi! I registered yesterday together with my family and when we tried to access

your site today it will not allow us to do so? yet we left comments on an issue

in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM -

URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has been

removed and for what reasons?

>

> I look forward to an early response

>

>

>

>

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The topic is still showing, I did have to dig deep to find it however.

Loads of prebious comments, mine included have been taken off the post. I truly

believe this exercise to be futile, the government are not being genuine in this

as far as I see it if they are removing posts.

http://spendingchallenge.hm-treasury.gov.uk/how-can-we-rethink-public-services-t\

o-deliver-more-for-less/inappropriate-treatment-for-hypothyroidism-should-be-inv\

estigated

Luv Lynne

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Hi, That's a greatway to make sure folk can't find it when we tell everybody where it is. Still can't get in though. Get a new e-mail account with Hotmail - Free. Sign-up now.

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Posted

by ekp290340

July 13, 2010 at 17:01

The NHS

takes its hypothyroidism related advice from the BTA and the RCP. That advice,

as dictated in medical practice guidelines and statements, has two major

faults. First, the dictated therapy has a 13% failure rate as found by

Saravanan, et al. What responsible organization can withstand such a failure

rate? Second, the dictated diagnostics hide the need for therapies other than

the dictated one -- only levothyroxine sodium, which only replaces T4. The

unrecognized malady, euthyroid hypometabolism, circa 1960, diagnosed those with

the symptoms of hypothyroidism but also had properly functioning thyroid glands

and treated them successfully with the approved, but banned, liothyronine

sodium, T3. The dictated diagnostic tests do not address adrenal deficiency,

deficiency in other supporting chemicals, or excesses in toxins. Since there is

no enforcement of laws upon the BTA or the RCP, these organizations are

effectively above the law. Not only are the effectively above the law of man,

they are above the laws of medicine. The patient's welfare is NOT first and

foremost as required by numerous standards of medical ethics. A standard of

medical ethics requires that physicians be honest in all medical relationships.

However, the patient with continuing symptoms of hypothyroidism is not informed

of the potential for any deficiency other than the thyroid deficiency. OH, the

physician may excuse medicine's lack of success by blaming the patient for

having a malady that can not be diagnosed or by claiming the patient is some

sort of nut case who is imagining her ills. The reality is quite simple.

Medical science has warned medical practice that a T4-only therapy does not

always work at least as early as 1947 and again in 1954. An alternative source

of these symptoms was empirically found in 1960. By 1970, the post thyroid

functions that can cause these continuing symptoms were discovered. Later,

Belgian physicians, Drs. Baisier, Hertoghe, and Eeckhaut studied

endocrinology's failures and treated them successfully with one of the banned

hormone replacements, dessicated thyroid. There are quite undesirable side

effects of not mitigating the symptoms of hypothyroidism besides the obvious.

The associated lack of energy reduces the body's ability to fight disease.

Indeed, these symptoms promote life's great killers, heart disease and

diabetes. Properly treating the 13% of those inadequately treated per BTA/RCP

dictates, by personal experience, may save 1,500 GBP annually each. That is

about 375,000,000 GBP. Treatment for serious disease no included. Euthyroid

Hypometabolism, which is completely ignored by western medicine, affected 6% of

the general population, per the study by Dr. Marshall Goldberg. One may

speculated that proper care for these folks may save another 3 billion GBP.

Moreover, this may be the tip of systematically mistreated iceberg that creates

markets for expensive drugs when inexpensive ones are better. Indeed, I do

agree with an earlier comment. The " science " in this niche of a

sub-specialty is quite poor. It is so poor, that it should be described as

" junk science. " There are studies that " prove " the T4-only

therapy is right because the trial replacement of T3 did not improve the

subjects condition. Basically what these studies did was to claim that the

active hormone, T3, (Gross & Pitt-Rivers, circa 1952) was ineffective

whilst the relatively inactive hormone, T4, was effective. This was done by the

unscientific means of improper study design, administering insignificant doses

of T3, and discounting any positive results as being statistically

insignificant -- but then there is only a 13% problem with the T4 therapy. The

crushing evidence against the unscientific ban on T3 may be found in the

experiences of patient counterexamples. They demonstrated the lack of

reliability in the T4-only therapy theory because they experienced the failure

of T4 and the success of a T3-containing therapy. This patient abuse and the

consequential unnecessary costs have existed for far too long, over 60 years.

Undoubtedly over the physician education recommendations by the Royal College

of Physicians, it is time, it is past time, to introduce this niche of a

medical sub-specialty to medical science and medical realities and save

suffering and money.

. here is your comment (I saved them all as they came in) so

you can post it on the other 5 TOPICS with the word 'thyroxine' or

hypothyroidism' in the title - and give it a 5 star rating on each of the

topics. If the CONDEM government remove all of the topics on thyroxine or

hypothyroidism, then they will need to answer some questions.

The hands of the BTA are controlling the moderator puppetts I do

believe.

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of ekp290340

Sent: 15 July 2010 01:41

thyroid treatment

Subject: Re: Has our topic been HACKED?

My comment is not there either...

Another comment by a researcher is not there too.

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/3003 - Release Date: 07/13/10

18:36:00

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I would query one thing about what has been saying. At the moment T3 is not actually banned it is very much discouraged - or they have suggested banning it. I would hate a doctor who is prescribing it to read it and suddenly think he shouldn't because it is banned.

Also Armour is not actually banned, it is just not licensed here. If T3 and Armour were banned would we not have more difficulty in getting it over the internet.

The effect is as if it were banned. As they are not banned, yet another reason to question why these organisations do not want doctors to prescribe it when necessary.

We do not want to make it a self fulfilling prophesy (if that is the expression).

Lilian

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Hi - you will no doubt have read the message I am putting

out for everybody to send me the user name they used to post their comment on

our previous thread. I will then send you a copy of the message you wrote so

you can pass it on to all the other 'thyroid' thyroxine' and hypothyroidism

threads. Did you hear back from the Administrators. I have heard nothing.

Luv - Sheila

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

below is the message I have sent to the

administrator.

Hi! I registered yesterday together with my family and when we tried to access

your site today it will not allow us to do so? yet we left comments on an issue

in the HMT Spending Section which is close to our hearts 'HYPOTHYROIDISM -

URGENT PUBLIC ENQUIRY CALLED FOR' Please can you tell us why this topic has

been removed and for what reasons? and why our registrations have been removed

and again for what reasons?

This is tantamount to gagging and I am certain the press will think so to.

I look forward to an early response

WE ALL NEED TO RALLY NOW BEHIND SHEILA.... WE CAN'T LET THEM GET AWAY WITH IT..

xx

>

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Guest guest

You were probably looking at another thread I posted previously,

It is NOT 'Hypothyroidism - Urgent Public Enquiry Called For. If you posted a

message, let me know your user name and I will send you a copy of the original

message so you can post it onto the those topics with 'thyroxine' 'thyroid' or

'hypothyroidism' and rate each one with 5 stars. We cannot let the #RCP, BTA

beat us down - which is what they are determined to do to stop the work we are

involved in.

Luv - Sheila

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=hypothyroidism

http://spendingchallenge.hm-treasury.gov.uk/@@search?text=thyroxine

I just clicked on link it took me to a page

with a search then when I typed hypothyorid it all appeared. Did not check the

posts/ratings but your original idea is there.

Sue

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