Campaign letter to MPs

[Guest guest]

Many thanks for taking so much time to do the MP letter.

Does anybody have Cameron or Nick Clegg as their local MP?

I was wondering (perhaps already done or thought of) if the campaign letter must

be sent to them. After all they are the ones talking about public sector cuts

and benefits cuts.

You would think that it wouldn't take me long to correctly address it. However

at the moment I am thinking that I need to put this on hold. You see my

story/thyroid rigmarole isn't over yet.

I am trying not to spend time second-guessing the consultant's next move or the

extent to which he is willing to treat me. I am hoping I won't have to have an

unearthly fight or return to private treatment, or have any benefits issues.

However I feel that in my situation those examples are the time when I ought to

contact my MP. That would be when I would somehow need all the help I can get.

There are so many people here self-funding Armour or T3 or both, or half and

half NHS and self-funding. I believe MPs ought to be aware of all this.

The way things are at the moment, after last year, the MP might think I am one

of those people who have nothing else to do, other than waste time sending her

letters and that anything I do send out to be correctly timed to my situation.

For example if I cannot get enough T3 in comparison to what Dr P had me using,

or the issue about do I go back on Armour and if this is necessary. All this is

surely an issue for 6 months time, by the time I have had two other

appointments.

I am currently on 75mcg Levo/20 T3. It's a start but not where I could be when I

was on 2 grains Armour and 50mcg Cytomel.

If for any reason the NHS cannot fully fund medication to match that level of

functioning, or even better it (why settle for second best). THIS is when I will

send MP letters, see the MP in person and god knows what else as after 18 months

or should I say 4 years of mucking about I will feel very strongly!

The truth is a year ago I spent time sending MP letters regarding ME/CFS and the

thyroid but she doesn't seem to respond well to medically related letters. She

might find such letters too long and involved and prefer contact in person. A

limited response was that the MP is more interested in new legislation and that

I ought to take up matters with the PCT.

Having done that, or at least gone to the GP. The result was coming off tablets

and starting from scratch. Granted I have official diagnosis but a year on, my

health isn't where it was when I was under the advice of Dr P. I do feel that at

some point my MP ought to be aware of the rigmarole and the lengths I have had

to go to though.

Fiona