any thoughts prior to hospital appointment next week?

[Guest guest]

This morning I phoned up to check that the consultant I saw last time is in

clinic on the given day. I am relieved to say that he is as I wouldn't want the

appointment turning into a waste of time with a registrar saying that I am on a

reasonable dose of Levothyroxine and leave it at that...

Anyhow I have been on the 100 Levothyroxine dose for a while now and while I

made some improvements since the 75 it isn't as dramatic as I was hoping for.

I still wake up stiff in the mornings and am slow to get going.

3pm approx crash in energy

Still make the odd cognitive failing although concentration is better

Poor functioning generally and I have to have a reason to go out, I do what I

need to do, rather than because I am doing stuff that I really want to do or am

doing stuff because I am so well.

Muscle cramps and aches. Arms ache when I dry my hair even.

If I get a shower I am back to having to have a proper rest on the bed again

afterwards and it wipes me out.

I know I have ME/CFS as well but I know a lot of this is treatable due to where

I was at this time last year on the 2 grains of Armour a day and indeed not back

to where I was on Armour and Cytomel. Last year I got similar symptoms but due

to twice the exertion and through doing moderate stuff rather than just basics.

Yep I am still going through this rigmarole of proving a point.

I know 100 dose is common, as is a little higher, but I really need to get all

this moving for myself.

I am going for my blood test this week, so I guess if the T3 side of things is

applicable will depend on where I am with the T4 in the blood.

Any thoughts about next weeks appointment?

I know I have really got to impress on him that I am no where near where I was

this time last year with my functioning and give everyday examples.

Cheers Fiona.

[Guest guest]

Hi Fiona,

There is a file about seeing an endocrinologist in the files section, I would

also get a copy of your blood test results if you don't already and this will

help you be in " advance " if you get my meaning.

Have you got a copy of Dr Peatfields book? It is very good and there is a

section on CFS which you might find interesting.

I have said this before on here but remember to take a notepad and pen and write

things down. Use words like its affecting my quality of life, then list the many

things you are no longer able to do.

Have you had your adrenals tested? You sound like a sensible person so make sure

you tell it like it is, don't hold back and best of luck with the appointment.

Luv Stephie

>

> This morning I phoned up to check that the consultant I saw last time is in

clinic on the given day. I am relieved to say that he is as I wouldn't want the

appointment turning into a waste of time with a registrar saying that I am on a

reasonable dose of Levothyroxine and leave it at that...

>

>> I know 100 dose is common, as is a little higher, but I really need to get

all this moving for myself.

>

> I am going for my blood test this week, so I guess if the T3 side of things is

applicable will depend on where I am with the T4 in the blood.

>

> Any thoughts about next weeks appointment?

>

> I know I have really got to impress on him that I am no where near where I was

this time last year with my functioning and give everyday examples.

>

> Cheers Fiona.

>