RE: Is levo the right treatment

[Guest guest]

Hi Sharon

Are you treating by symptoms or test? that is, do you know for a fact that your

son is hypo-t or do you just think he might be? what was his TSH and T4 levels,

do u know?

>My son has a low T4 level and I convinced our gp to give him a trial of levo.He

is symptomatic of hypo and he now on 100mcg of levo.I asked him how he feels and

he told me he is more tired than normal and feels like falling to sleep more at

random times.

perhaps he is not hypothyroid though, how do you know he is not hyper-t on the

t4? if he is hypo-t, could he need more thyroid? could it be another problem

that is giving symptoms of thyroid?

chris

[Guest guest]

Hi Sharon,

I felt really yuk and really tired last week after taking Antihistamines for

just a couple of days so it could be that.

I'm certain someone posted about this just a few weeks ago as well.

Love Tess

>

> Hi all,

>  

>        My son has a low T4 level and I convinced our gp to give him a trial of

levo.He is symptomatic of hypo and he now on 100mcg of levo.I asked him how he

feels and he told me he is more tired than normal and feels like falling to

sleep more at random times.

>  

> >

[Guest guest]

Hi Sharon, Hayfever can be exhausting- and some antihistamines can also be sedative. Has you son had a FT4 recently? maybe 100mcg T4 isn't quite enough. Taking thyroid replacment can and does shut down natural production- so if the replacment isn't sufficient then there will be no benefit. thyroid treatment From: sprog1967@...Date: Sun, 4 Jul 2010 12:02:50 -0700Subject: Is levo the right treatment

Hi all,

My son has a low T4 level and I convinced our gp to give him a trial of levo.He is symptomatic of hypo and he now on 100mcg of levo.I asked him how he feels and he told me he is more tired than normal and feels like falling to sleep more at random times.

I know he is not hyper and has no symptoms of hyper and wondered if the levo is just not the right treatment for him.I tried levo so did my hubby and daughter and we all felt worse on it rather than better.My daughter and myself have RT3 issues and wondered if,as all 4 of us have not had any improvement on levo,if there is a family response to levo,if you know what I mean.Could there be a link in our body chemistry that doesnt allow levo to be utelised properly?

He feels like poo at the moment as his hayfever is really bad and he is dosed up on natural and over the counter meds.So he is not sure if its the hayfever that is making matters worse,or the levo is just not doing the job.Any suggestions?

Best wishes Sharon

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[Guest guest]

Hi Tess,

Take them just before you go to bed. I do this, but find that they seem to run out during the following evening - still this is better than feeling tired during the day.

Val

I felt really yuk and really tired last week after taking Antihistamines for just a couple of days so it could be that.I'm certain someone posted about this just a few weeks ago as well.Love Tess

[Guest guest]

>HI I had to stop taking antihistimes last week as they made me feel terrible.

They were Loratadine. I just ordered Nasaleze off the web (although available

in chemists too) and I have to say so far its fab. I suffer terribly with

hayfever but this has helped a lot plus its all natural.

ne

>

>

>

>

> >

> >

> > Hi Sharon,

> >

> > I felt really yuk and really tired last week after taking Antihistamines for

just a couple of days so it could be that.

> >

>

[Guest guest]

Thanks ,

Just checked....It was loratadine! I'll get the other ones, Asda's

great, I get quite a few vitamins from there 2 for £4 :-)

Love Tess x

>

> Tess,

>

> The antihistamines you're taking, there are two basic types one has loratadine

and one has cetirizine.

>

>

>

>

>

[Guest guest]

Thanks Val,

I was taking them before bed but had a horrible tiredness hanging over

me all the next day, gonna try the other ones mantioned.

Love Tess

>

> Hi Tess,

>

> Take them just before you go to bed. I do this, but find that they seem to

run out during the following evening

>

[Guest guest]

Hi Sheila,

I understand they can be the same symptoms,but if it was adrenal,why is his T4 level so low? We are always told that your TSH level doesnt really matter and that we should go by your T4 and T3 levels instead and symptoms too.As he didnt score very high with the adrenal questionnaire and he has a low T4 level,I would naturally assume that its a hypo problem.

best wishes Sharon

From: Sheila <sheila@...>Subject: RE: Re: Is levo the right treatmentthyroid treatment Date: Monday, July 5, 2010, 10:54 AM

Sharon, are you positive his symptoms are hypothyroid because many of the symptoms of adrenal fatigue cross over with those of hypothyroidism. Often when low adrenals are treated, the symptoms of hypothyroidism disappear because the thyroid hormone is suddenly able to be properly absorbed.

[Guest guest]

Hi ,

I always know when he needs a "top up".He would feel slightly better,then after a few weeks or so he would feel worse,which I take to be a sign that his body has got used to the dose he was on and needs more.I'm getting quite confused by everyones replies,as they are quite conflicting of each other and it makes me question whether I'm doing the right thing for my son.

I understand that it could be more than 1 thing that could be causing his symptoms,but none apart from hypo could cause a low T4 level that I know of.I dont want to make things work only better,so dont know what to do now.I naturally assumed that my son is someone who has a greater need for T4 to convert to T3 to keep him going.I believe that some people use or utelise more T4 to T3 than others,but maybe I am wrong.But from his blood results I dont think he is producing enough T4 to keep up with his need for T3,maybe I'm wrong again.He did have a test done a few weeks ago,but I dont know what the results were,but they cant have been that high or his gp wouldnt have increased his dose.

Best wishes Sharon

From: jenny stenning <jennystenning@...>Subject: RE: Is levo the right treatment"sheila turner" <thyroid treatment >Date: Monday, July 5, 2010, 10:57 AM

Hi Sharon, Hayfever can be exhausting- and some antihistamines can also be sedative. Has you son had a FT4 recently? maybe 100mcg T4 isn't quite enough. Taking thyroid replacment can and does shut down natural production- so if the replacment isn't sufficient then there will be no benefit.

thyroidpatientadvoc acygroups (DOT) comFrom: sprog1967 (DOT) comDate: Sun, 4 Jul 2010 12:02:50 -0700Subject: [thyroidpatientadvo cacy] Is levo the right treatment

Hi all,

My son has a low T4 level and I convinced our gp to give him a trial of levo.He is symptomatic of hypo and he now on 100mcg of levo.I asked him how he feels and he told me he is more tired than normal and feels like falling to sleep more at random times.

I know he is not hyper and has no symptoms of hyper and wondered if the levo is just not the right treatment for him.I tried levo so did my hubby and daughter and we all felt worse on it rather than better.My daughter and myself have RT3 issues and wondered if,as all 4 of us have not had any improvement on levo,if there is a family response to levo,if you know what I mean.Could there be a link in our body chemistry that doesnt allow levo to be utelised properly?

He feels like poo at the moment as his hayfever is really bad and he is dosed up on natural and over the counter meds.So he is not sure if its the hayfever that is making matters worse,or the levo is just not doing the job.Any suggestions?

Best wishes Sharon

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[Guest guest]

i just wondered if it was something else maybe. are all his other hormones ok?

you said he's short, right? was growth hormone etc ok?

C

[Guest guest]

Hi

Sharon, you really can't know whether how low his free T4 level is, as you have

told us that although your son has been tested, you don't yet have the actual

results. I do think that you should get his results together with the reference

range for all the thyroid function tests he had done. A low T4 level can be

caused by many conditions - read here http://www.wrongdiagnosis.com/sym/low_basal_free_t4.htm.

Also, with a low level of free T4 and normal TSH , this could mean a diseased

thyroid gland ~ OR ~ a non-functioning pituitary gland which is not stimulating

the thyroid to produce T4. Since the pituitary gland would normally release TSH

if the T4 is low, a high TSH level would confirm that the thyroid gland (not

the pituitary gland) is responsible for the hypothyroidism.

If the T4 level is low and TSH is not elevated, the pituitary gland is

more likely to be the cause for the hypothyroidism. Of course, this would

drastically effect the treatment since the pituitary

gland also regulates the body's other glands (adrenals, ovaries, and

testicles) as well as controlling growth in children and normal kidney

function. Pituitary gland failure means that the other glands may also be

failing and other treatment than just thyroid may be necessary. http://www.endocrineweb.com/tests.html

Luv - Sheila

Hi Sheila,

I understand they can be the same symptoms,but if it was adrenal,why is his

T4 level so low? We are always told that your TSH level doesnt really matter

and that we should go by your T4 and T3 levels instead and symptoms too.As he

didnt score very high with the adrenal questionnaire and he has a low T4

level,I would naturally assume that its a hypo problem.

best wishes Sharon

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[Guest guest]

Hi Sharon, Feeling better for a while after a dose increase then dropping off again is a normal reaction to a dose increase that has not reached optimum yet- a sign that a further dose increase is needed. If your son is adult sized then a full replacement dose is usually 125 to 150mcg so he is still below that. If he had some residual thyroid function than the meds will have to be higher than he was able to produce on his own before they start to have a beneficial effect, as the presence of thyroid meds will shut down residual function- rather than acting as a 'top up'. thyroid treatment From: sprog1967@...Date: Mon, 5 Jul 2010 10:41:45 -0700Subject: RE: Is levo the right treatment

Hi ,

I always know when he needs a "top up".He would feel slightly better,then after a few weeks or so he would feel worse,which I take to be a sign that his body has got used to the dose he was on and needs more.I'm getting quite confused by everyones replies,as they are quite conflicting of each other and it makes me question whether I'm doing the right thing for my son.

I understand that it could be more than 1 thing that could be causing his symptoms,but none apart from hypo could cause a low T4 level that I know of.I dont want to make things work only better,so dont know what to do now.I naturally assumed that my son is someone who has a greater need for T4 to convert to T3 to keep him going.I believe that some people use or utelise more T4 to T3 than others,but maybe I am wrong.But from his blood results I dont think he is producing enough T4 to keep up with his need for T3,maybe I'm wrong again.He did have a test done a few weeks ago,but I dont know what the results were,but they cant have been that high or his gp wouldnt have increased his dose.

Best wishes Sharon

thyroidpatientadvoc acygroups (DOT) comFrom: sprog1967 (DOT) comDate: Sun, 4 Jul 2010 12:02:50 -0700Subject: [thyroidpatientadvo cacy] Is levo the right treatment

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[Guest guest]

Hi

Sorry,I wasnt having a go at you,but I have been given so many scenarios when I just thought it was a hypo problem.He is shortish,he's about 5"5 and 21 years old,but he had so many problems at school,he wouldnt eat properly and became virtually anorexic when he was in the infants and juniors.I believe that has had an effect on his growth over the years and he still has problems with his appetite now.He's either eating nothing most of the day,or he eats loads!But he's never had any other hormones checked that I know of and

From: <chrisjtaylor46@...>Subject: Re: Is levo the right treatmentthyroid treatment Date: Monday, July 5, 2010, 6:45 PM

i just wondered if it was something else maybe. are all his other hormones ok? you said he's short, right? was growth hormone etc ok?C