Re: what the, feeling better!

[Guest guest]

Please, please, please, please, please do NOT use Chinese herbalists!! Do you

realise they still use bits of Tigers, Pandas and Gorillas in their remedies?

They are the main reason tigers are on the extinction danger list!!

Glynis

>

> So far good feeling here if anyone is interested at all. Energy better and

> feeling like well normal again so far so good. Try Chinese herbalist for

> this combo for thyroid ... Perhaps this combo is the workability here for

> this.

>

> Nei xiao luo li w(something unclear as stickered)

>

>

>

> On the back of the bottle.

>

> Fritillaria and figwort combination.

>

>

>

> Astragalus membranaceus root

>

> Gentiana scabra herb

>

> Scrophularlia ningpoensis root

>

>

>

> Carcuma zedoaria rhizome

>

>

>

> Eritillaria cirrhosa tuber

>

> Sargassum fusiforme herb

>

> Sparganium stoloniferum tyber

>

> Citrus reticulate fruit peel

>

>

>

> Good luck Rosemary

>

[Guest guest]

Oh please! There are no panda or any other

creatures in these herbs as stated roots, rhizomes and tubers. As a TCM student

not all herbalist are saturn.

Chinese herbs are herbs not any other!

Hope you do not enjoy fish battered or

meat balls, chicken kiev.

I am Buddhist, please.

There are many chemicals in many things

not meant for human needs at all.

Rosemary

From:

thyroid treatment

[mailto:thyroid treatment ]

On Behalf Of glynisrose06

Sent: Monday, 26 October 2009 7:17

PM

thyroid treatment

Subject:

Re: what the, feeling better!

Please, please, please, please, please do NOT use

Chinese herbalists!! Do you realise they still use bits of Tigers, Pandas and

Gorillas in their remedies? They are the main reason tigers are on the

extinction danger list!!

Glynis

>

> So far good feeling here if anyone is interested at all. Energy better and

> feeling like well normal again so far so good. Try Chinese herbalist for

> this combo for thyroid ... Perhaps this combo is the workability here for

> this.

>

> Nei xiao luo li w(something unclear as stickered)

>

>

>

> On the back of the bottle.

>

> Fritillaria and figwort combination.

>

>

>

> Astragalus membranaceus root

>

> Gentiana scabra herb

>

> Scrophularlia ningpoensis root

>

>

>

> Carcuma zedoaria rhizome

>

>

>

> Eritillaria cirrhosa tuber

>

> Sargassum fusiforme herb

>

> Sparganium stoloniferum tyber

>

> Citrus reticulate fruit peel

>

>

>

> Good luck Rosemary

>

[Guest guest]

Hi

Rosemary

Welcome

to our forum where I hope you get the help and support you need. If you need

questions answering, ask away and somebody hopefully will be along with an

answer. If anybody has been given a diagnosis of hypothyroidism, it is because

their thyroid is not excreting enough thyroid hormone, and you can ONLY replace

this with either synthetic thyroid hormone (thyroxine) or with natural

desiccated porcine thyroid extract such as the brand names Armour Thyroid,

Nature Throid or Westhroid. There is nothing on this earth that can be

substituted for thyroid hormones and we certainly never recommend herbs,

whether Chinese or from anywhere else for the treatment of hypothyroidism.

Luv

- Sheila

[Guest guest]

From:

thyroid treatment

[mailto:thyroid treatment ] On Behalf Of Sheila

Sent: Monday, 26 October 2009 8:36

PM

To:

thyroid treatment

Subject: RE:

what the, feeling better!

Hi Sheila

Is it that only some can discuss some selective areas only?

Examples: medications such as prednosinone, T4/3, vitamin b, anaemia’s, Vitamin

D and so on. Many foods as mentioned re pineapple enzymes and so on help

with energy transfer systems in the organs which thyroid illnesses affect

including the simple digestion of food for energy re diabetes issues indeed all

areas.

I also need salt due to a tick years ago which I read a while ago

adding to serious muscle weakness. I was near death so had to seek my own

health, good for me I guess.

Rosemary is a herb for remembrance by the way also brain function

and for study and inflammation.

Some even use it with lamb.

By Rosemary

Hi

Rosemary

Welcome to our

forum where I hope you get the help and support you need. If you need questions

answering, ask away and somebody hopefully will be along with an answer. If

anybody has been given a diagnosis of hypothyroidism, it is because their

thyroid is not excreting enough thyroid hormone, and you can ONLY replace this

with either synthetic thyroid hormone (thyroxine) or with natural desiccated

porcine thyroid extract such as the brand names Armour Thyroid, Nature Throid

or Westhroid. There is nothing on this earth that can be substituted for

thyroid hormones and we certainly never recommend herbs, whether Chinese or

from anywhere else for the treatment of hypothyroidism.

Luv - Sheila

[Guest guest]

Hello Rosemary

This forum

is open to all discussions by everybody regarding thyroid disease. We have

another forum where you can chat about anything other than thyroid and if you

ask Lilian, she will send you an invitation. There you can chat about anything

and everything and perhaps the subject of Chinese Herbs should be discussed on

there. We are fully aware of the many vitamins, minerals, enzymes etc.,

which help support thyroid and adrenal function, but we do not recommend

any 'alternative medicines' such as Chinese herbs as a replacement for thyroid

hormone - because quite simply, there are none.

And yes, I

cook my lamb with sprigs of mint and have mint sauce with it too. I use a lot

of herbs in my cooking and am aware of the medicinal properties of many - and I

am also open to learning more.

Luv -

Sheila

Hi Sheila

Is it that only some can discuss some

selective areas only? Examples: medications such as prednosinone, T4/3, vitamin

b, anaemia’s, Vitamin D and so on. Many foods as mentioned re

pineapple enzymes and so on help with energy transfer systems in the organs

which thyroid illnesses affect including the simple digestion of food for

energy re diabetes issues indeed all areas.

I also

need salt due to a tick years ago which I read a while ago adding to serious

muscle weakness. I was near death so had to seek my own health, good for me I

guess.

Rosemary

is a herb for remembrance by the way also brain function and for study and

inflammation.

Some even

use it with lamb.

By Rosemary

[Guest guest]

If you buy herbs from a Chinese herbalist then you are supporting the decimation

of animals. Whether your preparations contain animal products is by the by, you

are still SUPPORTING them!!

> >

> > So far good feeling here if anyone is interested at all. Energy better and

> > feeling like well normal again so far so good. Try Chinese herbalist for

> > this combo for thyroid ... Perhaps this combo is the workability here for

> > this.

> >

> > Nei xiao luo li w(something unclear as stickered)

> >

> >

> >

> > On the back of the bottle.

> >

> > Fritillaria and figwort combination.

> >

> >

> >

> > Astragalus membranaceus root

> >

> > Gentiana scabra herb

> >

> > Scrophularlia ningpoensis root

> >

> >

> >

> > Carcuma zedoaria rhizome

> >

> >

> >

> > Eritillaria cirrhosa tuber

> >

> > Sargassum fusiforme herb

> >

> > Sparganium stoloniferum tyber

> >

> > Citrus reticulate fruit peel

> >

> >

> >

> > Good luck Rosemary

> >

>

[Guest guest]

Hi P xo

So sweet of you thank you.

As you may know by now so hope this gets

to you privately or otherwise.

This has been a trying time for me both

spiritually and physically. There is an apology here in Australia for

Forgotten Australians by the Gov. and some friends of mine are not included so

am helping them.

But as for being a student, I have been so

for a while, many years as no support at all was offered so I tried acupuncture

and needless as well with magnaton discs in 1980’s.

I had to detox big time after I could no

longer take meds for heart attack. I was literary on my back most of the day with

them and this for high BP which is actually low,(not high and never has been)

go figure this I can’t and it was to protected the kidney?. It has taken

many months now after a couple of years of this and am just feeling a bit

more normal whatever this means, only maybe I the last couple of months. It was

the predsnazone that did me in worse so made changes even if it literally killed

me.

As my herbalist said to me your foundation

is very weak no lifting, no stress do all slowly, very slowly and go for a

short walk only each day do nothing else. Still he says the same though improved

some now still, He says do all slowly take an hour to do it after thinking on

it.

It is such a thing re diabetes as well I

am now eating bitter melon as a tea though I can use it in soups as it is only

dried veg. Seems to support the diabetes and I feel better for it big time.

Bitter being sweet and all this idea. Sweet creates inflammation maybe? As they

often are heart foods therefore can not be utilized as out of balance and

hormones unavailable to me of course.

I have read also that at times replacement

is not always helpful so it may be for me only. I am different it seems.

Meditation is helpful to support relaxation under stress and aids much for

some. I used to seek the answer now I forgot the question this after RAI 131

killed my life for me. I hyperventilated for hours on end indeed months on ends

with breaks here and there so something had to be done apart from serapax to

keep me calmer. Loathed them as depression come down was bad and worse to cope

with.

I also have an Asian heritage gen’s

back so this resonates for me of course perhaps and TCM professionals are very

respectful in this with and to me as I don’t look anything like maybe. They

keep saying ‘oh you are very fortunate’.

All have offered to me generously and graciously

at all times including the areas here all temples are invited to join. I feel

very privileged in this to be so invited. Including Dali’s mountain

retreat.

As for different areas to help my husband

is amazed that I will try so many areas to help myself, my health ion this life

as an abused child of the system. So many have thyroid diseases of all kinds

including 2 of my doctors as well. Food has become a real issue for me as all

is not taken well so herbs, oils are out as they can make me worse. And I notice

they do big time as with meats as they are heat foods requiring added issues.

Also had total hysterectomy to young in my 30’s.

Thanks again

Rosemary

From:

thyroid treatment

[mailto:thyroid treatment ]

On Behalf Of patersonia

Sent: Tuesday, 27 October 2009

7:53 PM

thyroid treatment

Subject:

Re: what the, feeling better!

Hi Rosemary,

Thanks for this information. I think there needs to be a range of views on the

forum, so I appreciate the info about Chinese herbs, much as I appreciate

information about vitamins, minerals etc that can help too. I understand that

Sheila has certain guidelines for the forum, so if the discussion of herbs is

not permitted, that is fine, but I think it is a shame, because many of our

pharmaceuticals are based on herbs anyway, but I respect her wishes as

moderator of the forum, so am happy to discuss this in a different forum such

as chat or by private email.

Chinese medicine is 1000's of years old - much older than Western medicine. I

personally am interested in learning of such things. Of course, like anything

that anyone suggests, we need to check things out with a health professional to

make sure that it suits our particular body and medical condition.

Even though (like Sheila stated) thyroid replacement hormone is necessary, I

believe there are different modalities that can help thyroid conditions, and if

Chinese medicine has helped you, that is great. I have a friend who uses

Chinese medicine for advanced bone marrow cancer and she has found that this

medicine has helped her enormously. Chinese medicine and acupuncture is

currently keeping her on her feet, as she is extremely unwell. She is a

Buddhist nun and doesn't harm animals because it is against her religion. Her

Chinese herbs DO NOT contain animal products (she made sure of it!) and she has

benefited tremendously from using them. I know that animal products are used in

some Chinese medicine formulations and I would not EVER advocate the use of

such medicines for the reasons that another forum member mentioned, but I would

bet my bottom dollar that a lot of animals went through a lot of pain to give

us our thyroid replacement hormones too due to testing requir! ements, so

really we can't win. I eat a vegetarian diet, but I know that animals would

have died when reaping the crops, so it doesn't matter what you do - creatures

are always harmed or killed.

I personally have used Tibetan medicine and found it helped me get over 'Delhi

Belly' within hours. I was seen by a Senior Doctor at the Dalai Lama's Medical

Clinic in Dharamsala who prescribed the tummy herbs. I also used Tibetan herbs

that were collected on a hillside in Tibet and made into a tea (so I

guess I will probably never have that tea again!!!) which helped ease anxiety

symptoms tremendously. The effects were quite extraordinary. I didn't feel

anything except the anxiety completely disappear. Other than that, I felt 'normal'.

Anyhow, that is my 2c worth.

P xo

>

> So far good feeling here if anyone is interested at all. Energy better and

feeling like well normal again so far so good. Try Chinese herbalist for this

combo for thyroid ... Perhaps this combo is the workability here for

this..........

[Guest guest]

Private email Ibrose@...

From:

thyroid treatment

[mailto:thyroid treatment ]

On Behalf Of patersonia

Sent: Tuesday, 27 October 2009

7:53 PM

thyroid treatment

Subject:

Re: what the, feeling better!

Hi Rosemary,

Thanks for this information. I think there needs to be a range of views on the

forum, so I appreciate the info about Chinese herbs, much as I appreciate

information about vitamins, minerals etc that can help too. I understand that

Sheila has certain guidelines for the forum, so if the discussion of herbs is

not permitted, that is fine, but I think it is a shame, because many of our

pharmaceuticals are based on herbs anyway, but I respect her wishes as

moderator of the forum, so am happy to discuss this in a different forum such

as chat or by private email.

Chinese medicine is 1000's of years old - much older than Western medicine. I

personally am interested in learning of such things. Of course, like anything

that anyone suggests, we need to check things out with a health professional to

make sure that it suits our particular body and medical condition.

Even though (like Sheila stated) thyroid replacement hormone is necessary, I

believe there are different modalities that can help thyroid conditions, and if

Chinese medicine has helped you, that is great. I have a friend who uses

Chinese medicine for advanced bone marrow cancer and she has found that this

medicine has helped her enormously. Chinese medicine and acupuncture is

currently keeping her on her feet, as she is extremely unwell. She is a

Buddhist nun and doesn't harm animals because it is against her religion. Her

Chinese herbs DO NOT contain animal products (she made sure of it!) and she has

benefited tremendously from using them. I know that animal products are used in

some Chinese medicine formulations and I would not EVER advocate the use of

such medicines for the reasons that another forum member mentioned, but I would

bet my bottom dollar that a lot of animals went through a lot of pain to give

us our thyroid replacement hormones too due to testing requir! ements, so

really we can't win. I eat a vegetarian diet, but I know that animals would

have died when reaping the crops, so it doesn't matter what you do - creatures

are always harmed or killed.

I personally have used Tibetan medicine and found it helped me get over 'Delhi

Belly' within hours. I was seen by a Senior Doctor at the Dalai Lama's Medical

Clinic in Dharamsala who prescribed the tummy herbs. I also used Tibetan herbs

that were collected on a hillside in Tibet and made into a tea (so I

guess I will probably never have that tea again!!!) which helped ease anxiety

symptoms tremendously. The effects were quite extraordinary. I didn't feel

anything except the anxiety completely disappear. Other than that, I felt

'normal'.

Anyhow, that is my 2c worth.

P xo

>

> So far good feeling here if anyone is interested at all. Energy better and

feeling like well normal again so far so good. Try Chinese herbalist for this

combo for thyroid ... Perhaps this combo is the workability here for

this..........

[Guest guest]

Hi P

Discussions on

herbs are permitted here in the same way as discussions on vitamins and

minerals that will support thyroid and adrenal function are permitted. What I

will not allow are suggestions telling members that Chinese Herbs can be used

as thyroid hormones. This is simply not true. Such suggestions from unqualified

people can be potentially dangerous. We are all aware of the value of medicinal

and culinary herbs, it matters not where from.

Luv - Sheila

Thanks for this information. I think there needs to be a range of views on the

forum, so I appreciate the info about Chinese herbs, much as I appreciate

information about vitamins, minerals etc that can help too. I understand that

Sheila has certain guidelines for the forum, so if the discussion of herbs is

not permitted, that is fine, but I think it is a shame, because many of our

pharmaceuticals are based on herbs anyway, but I respect her wishes as

moderator of the forum, so am happy to discuss this in a different forum such

as chat or by private email.

[Guest guest]

Hi Rosemary

When you respond to a message, please will you delete most of

the previous message before clicking 'SEND'. This is because many members get

all their messages via a Daily Digest where they have up to 25 messages in one

email, or others read direct from the forum web site. For those people who

leave previous messages still attached, it means they get very frustrated

having to scroll and scroll to get through all the messages. If you have

trouble with this, let us know and somebody will tell you how to do it.

Luv - Sheila

Private

email Ibrose@...

Hi Rosemary,

Thanks for this information. I think there needs to be a range of views on the

forum, so I appreciate the info about Chinese herbs, much as I appreciate

information about vitamins, minerals etc that can help too. I understand that

Sheila has certain guidelines for the forum, so if the discussion of herbs is

not permitted, that is fine, but I think it is a shame, because many of our

pharmaceuticals are based on herbs anyway, but I respect her wishes as

moderator of the forum, so am happy to discuss this in a different forum such

as chat or by private email.

[Guest guest]

Food, herbs is all the same ‘‘thyroid

disease’ is a disease’ this combo in tablet form was offered as a

support for my thyroid disease including other herbs for me by a highly qualified

practioner. In my case this was for treatment as part of a comprehensive

management for my over all health including thyroid not as a ‘replacement at all for hormones’ that

frankly are not there for me to utitize in any case at all. It is ‘dead

RAI 131’ therefore not nor able to be in functioning mode, made sure of

that along with doctors and Endo. No advice, nothing, no replacement for many

years. Till I near died perhaps and with pain so great as a friend of mine is

also including chronic pain syndrome issues now.

All back up of all kinds of thyroid hormones

for thyroid function has not been available at all. Calcium can not be absorbed

as no hormone to utilize this food at all so greatly advertised. Which can add

a cause cancer I am to understand for women perhaps from my own research.

I have read some in a site for thyroid time

back now both natural and synthetic have advantages and disadvantages perhaps I

wouldn’t know as I have not trialled them. As I have been left to

do for myself since the age of 5 in all areas. So maybe I am not so special.

Just ill now.

It is supporting me for now who is to know

if it is worthwhile at all or just a waste of money again.

From:

thyroid treatment

[mailto:thyroid treatment ]

On Behalf Of Sheila

Sent: Tuesday, 27 October 2009

10:10 PM

thyroid treatment

Subject: RE:

Re: what the, feeling better!

Hi P

Discussions on herbs are permitted here in the same way

as discussions on vitamins and minerals that will support thyroid and adrenal

function are permitted. What I will not allow are suggestions telling members

that Chinese Herbs can be used as thyroid hormones. This is simply not true.

Such suggestions from unqualified people can be potentially dangerous. We are

all aware of the value of medicinal and culinary herbs, it matters not where

from.

Luv - Sheila

Thanks for this information. I think there needs to be a range of views on the

forum, so I appreciate the info about Chinese herbs, much as I appreciate

information about vitamins, minerals etc that can help too. I understand that

Sheila has certain guidelines for the forum, so if the discussion of herbs is

not permitted, that is fine, but I think it is a shame, because many of our

pharmaceuticals are based on herbs anyway, but I respect her wishes as

moderator of the forum, so am happy to discuss this in a different forum such

as chat or by private email.

[Guest guest]

Dear Rosemary,

Thanks for your message and for sharing things about your life. I hope that

things continue to improve for you.

P xo

[Guest guest]

Thanks for clarifying that Sheila. Out of interest, my Tibetan doctor and I

agreed that I should continue any western medicines I was prescribed, and to use

the Tibetan medicine as an adjunct to things that my GP gave me. My GP knew I

was using Tibetan medicine and was supportive. I was lucky on both fronts

because they worked together, albeit in different hemispheres of the globe!

P

>

Discussions on herbs are permitted here in the same way as discussions on

vitamins and minerals that will support thyroid and adrenal function are

permitted. What I will not allow are suggestions telling members that Chinese

Herbs can be used as thyroid hormones. This is simply not true. Such suggestions

from unqualified people can be potentially dangerous. We are all aware of the

value of medicinal and culinary herbs, it matters not where from.

[Guest guest]

That's

fine Rosemary, sorry that you have been going through so much, but I was just

concerned you were advocating Chinese herbs instead of thyroid hormone

replacement as there are people out there who do believe they work as well.

Luv

- Sheila

Food,

herbs is all the same ‘‘thyroid disease’ is a disease’

this combo in tablet form was offered as a support for my thyroid disease

including other herbs for me by a highly qualified practioner. In my case this

was for treatment as part of a comprehensive management for my over all health

including thyroid not as a ‘replacement at all for hormones’

that frankly are not there for me to utitize in any case at all. It is

‘dead RAI 131’ therefore not nor able to be in functioning mode,

made sure of that along with doctors and Endo. No advice, nothing, no

replacement for many years. Till I near died perhaps and with pain so great as

a friend of mine is also including chronic pain syndrome issues now.

[Guest guest]

Hi P - it is great that you benefited from both Tibetan and

Western mainstream medicine. Certainly, we need to keep all our options open

and get the best supplements possible. Are you feeling any better re

thyroid yet?

Luv - Sheila

Thanks for clarifying that Sheila. Out of

interest, my Tibetan doctor and I agreed that I should continue any western

medicines I was prescribed, and to use the Tibetan medicine as an adjunct to

things that my GP gave me. My GP knew I was using Tibetan medicine and was

supportive. I was lucky on both fronts because they worked together, albeit in

different hemispheres of the globe!

P

---

[Guest guest]

Hi Sheila,

Thanks for asking. No, I'm not feeling better re my thyroid.

I went and saw my endo yesterday (3rd visit) and, like you, the endo said that

all of my thyroid levels (TSH, free T3, free T4) looked really good at the

moment. My free T3 level is now the highest it has EVER been 4.8 (in a range of

3.1 - 5.4), TSH is 0.3 (in range of 0.5 - 4.0) and free T4 16 (in range of 10 -

25). The endo was surprised about the free T4 level remaining constant over

time. They said they wanted all of the thyroid levels to be good, and to see

how I felt and then keep exploring different things to try and work out why I

still feel so bad.

The endo takes me very seriously when I tell them about how much my lifestyle

has changed since being diagnosed and they seem to really want to get to the

bottom of it all. The endo said they want to explore OTHER things as well, just

in case another health problems have been missed. About 3 months ago they ran a

swag of tests to look for other hormonal issues in order to try and get to the

bottom of my exhaustion and lack of comprehension and poor memory. At the time,

the endo did tests to check for pituitary problems and I had growth hormone

tests etc.

Guess what? After your months of gently reminding me that I should look into my

cortisol levels (via saliva tests) it is going to happen. I had a serum

cortisol test a while ago which was fine, but the endo wants to explore the

cortisol thing further via a saliva test. They said my 12kg weight gain (most

of it within the time that I've been seeing this endo) was too much and that it

was a bit unusual to gain so much so quickly. This is another reason why they

are looking into cortisol levels. I mentioned the 4 times a day saliva test

that you told me about, but in the first instance the endo has ordered just a

midnight saliva test (the endo told me the reason and the rationale made perfect

sense to me, but my brain can't remember it right now). The endo said that if

the midnight levels aren't in range they will order a swag of other tests

(saliva tests at different times of the day plus other tests) to really look

into the cortisol stuff. I'm quite impressed.

The endo has also ordered a CT scan to rule out any possible problems in that

regard. I had one in 2007 and they said it is good because it means there is a

baseline, but they want to repeat the CT scan for their peace of mind.

I asked about alternative treatments because now all my levels seem fine, but I

still feel awful and the endo mentioned supplementation with T3 (the endo

prescribes this to some people) but didn't think it was a good idea in my case,

given my past history with T3 and some of the awful symptoms I've had. The endo

doesn't want to discount that there might be other health issues, so they want

to explore other things.

So anyway, the long and the short of it Sheila is that I'm not feeling better,

but I'm still TRYING to get better. I feel like my endo is exploring heaps of

different things and genuinely wants to help me. They want me to get my Vit D

levels higher because that may decrease my slightly elevated parathyroid hormone

levels. See? The endo checked my Vit D and parathyroid levels last time too.

Seems to be very thorough.

So I haven't given up on getting better, however I don't feel better right now.

Thanks again for asking Sheila. I will be at our farm for about a week, but

would love to hear back from you and can check for a response upon my return.

P xo

>

> Hi P.......... Are you feeling any better re thyroid yet?

> Luv - Sheila

>

>

>

[Guest guest]

Hi P,

Mitochondrial problems would cause low energy and it's thought there are far

more people with mitochondrial problems than had previously been assumed.

I've been reading some interesting articles about Reactive Oxygen Species (ROS)

lately, and they make good sense.

I'll see if I can condense them into easily understood English.....:-)

There are some mitochondrially targeted supplements coming along (MitoQ is one

of them).

More on that later.

best wishes

Bob

> >

> > Hi P.......... Are you feeling any better re thyroid yet?

>

> > Luv - Sheila

> >

> >

> >

>

[Guest guest]

Hi P - I am absolutely delighted that your endo is taking so

much time with you - he obviously is a very caring man and wants to get to the

bottom of things. it will be interesting to see your cortisol results - can you

tell me, do you have problems sleeping at night because for many such people,

that is often because their cortisol level is high in the range at night when

it should be at its lowest. We will just have to wait and see on that

one. Did you ask for the blood tests for ferritin, B12, magnesium, zinc,

copper and folate? If not, remind him that if any of these are low, your

thyroid hormone cannot be absorbed properly.

Enjoy your week on the farm.

Luv - Sheila xx

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of patersonia

Sent: 28 October 2009 10:12

thyroid treatment

Subject: Re: what the, feeling better!

Hi Sheila,

Thanks for asking. No, I'm not feeling better re my thyroid.

I went and saw my endo yesterday (3rd visit) and, like you, the endo said that

all of my thyroid levels (TSH, free T3, free T4) looked really good at the

moment. My free T3 level is now the highest it has EVER been 4.8 (in a range of

3.1 - 5.4), TSH is 0.3 (in range of 0.5 - 4.0) and free T4 16 (in range of 10 -

25). The endo was surprised about the free T4 level remaining constant over

time. They said they wanted all of the thyroid levels to be good, and to see

how I felt and then keep exploring different things to try and work out why I

still feel so bad.

The endo takes me very seriously when I tell them about how much my lifestyle

has changed since being diagnosed and they seem to really want to get to the

bottom of it all. The endo said they want to explore OTHER things as well, just

in case another health problems have been missed. About 3 months ago they ran a

swag of tests to look for other hormonal issues in order to try and get to the

bottom of my exhaustion and lack of comprehension and poor memory. At the time,

the endo did tests to check for pituitary problems and I had growth hormone

tests etc.

Guess what? After your months of gently reminding me that I should look into my

cortisol levels (via saliva tests) it is going to happen. I had a serum

cortisol test a while ago which was fine, but the endo wants to explore the

cortisol thing further via a saliva test. They said my 12kg weight gain (most

of it within the time that I've been seeing this endo) was too much and that it

was a bit unusual to gain so much so quickly. This is another reason why they

are looking into cortisol levels. I mentioned the 4 times a day saliva test

that you told me about, but in the first instance the endo has ordered just a

midnight saliva test (the endo told me the reason and the rationale made

perfect sense to me, but my brain can't remember it right now). The endo said

that if the midnight levels aren't in range they will order a swag of other

tests (saliva tests at different times of the day plus other tests) to really

look into the cortisol stuff. I'm quite impressed.

The endo has also ordered a CT scan to rule out any possible problems in that

regard. I had one in 2007 and they said it is good because it means there is a

baseline, but they want to repeat the CT scan for their peace of mind.

I asked about alternative treatments because now all my levels seem fine, but I

still feel awful and the endo mentioned supplementation with T3 (the endo

prescribes this to some people) but didn't think it was a good idea in my case,

given my past history with T3 and some of the awful symptoms I've had. The endo

doesn't want to discount that there might be other health issues, so they want

to explore other things.

So anyway, the long and the short of it Sheila is that I'm not feeling better,

but I'm still TRYING to get better. I feel like my endo is exploring heaps of

different things and genuinely wants to help me. They want me to get my Vit D

levels higher because that may decrease my slightly elevated parathyroid

hormone levels. See? The endo checked my Vit D and parathyroid levels last time

too. Seems to be very thorough.

So I haven't given up on getting better, however I don't feel better right now.

Thanks again for asking Sheila. I will be at our farm for about a week, but

would love to hear back from you and can check for a response upon my return.

P xo

>

> Hi P.......... Are you feeling any better re thyroid yet?

> Luv - Sheila

>

>

>

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15:50:00

[Guest guest]

Hi P,..not the paper I was reading on ROS/mitochondria, but just as immediately relevant for delayed sleep phase...http://www.jbc.org/content/282/7/4233.longMammalian Pinealocytes—The clock controlling the mammalian pinealocyte is located in the suprachiasmatic nucleus of the hypothalamus (SCN), which receives photic input from the retina via the retinohypothalamic tract. Light acts through this tract to entrain the clock and also acts downstream of the clock to block SCN stimulation of the pineal gland. The SCN is hardwired to the pineal gland by a neural pathway that traverses the brain, spinal cord, and superior cervical ganglia. Postganglionic projections from the latter innervate the pineal gland. At night, SCN stimulation releases norepinephrine into the pineal perivascular space (26, 45, 72). Norepinephrine activates adenylyl cyclase via β1-adrenergic receptors and increases intracellular Ca2+ and protein kinase C activity via α1B-adrenergic receptors (73, 74), thereby potentiating β1-adrenergic receptor activation of adenylyl cyclase (75). This "cross-talk" causes a large and rapid increase in cAMP (73, 76–78). above, may be the fast 'wake up call'...look at the abstract ~ then  the conclusion of the Discussion section.calming the ' cAMP '  looks to be useful...next question, how to do that reliably??best wishesBob

[Guest guest]

Hi again Bob,

I'm heading to our farm now, but when I get back I will have a good look at

this. Our circadian rhythms are interesting, aren't they?

>

>

> Hi P,

>

> ..not the paper I was reading on ROS/mitochondria, but just as

> immediately relevant for delayed sleep phase...

>

[Guest guest]

Hi again Sheila,

Thanks for the suggestion, but I tried using melatonin in the past.

Unfortunately it didn't seem to alter my sleeping patterns nor help me get off

to sleep. Tried various doses and tried using it at various times before bed,

but alas it did nothing much at all!!!!

Here I am again at midnight and I'm not feeling particularly tired. I'll be

interested to see what the 'midnight cortisol' test result shows. Mind you, I

had a 'non drowsy' antihistamine tablet yesterday that made me sleep from 10am -

5pm yesterday. I then stayed up to midnight and slept for the rest of the night

and woke in an absolutely foul mood. Never taking THAT stuff again!!!!! I will

just put up with the intense itchiness of my midge bites. Eech.

The endo mentioned they wanted to do the midnight cortisol first (can't

remember the rationale, but it made sense at the time when my endo explained it

to me) and then if the midnight one is an issue they want to follow up with a

range of other tests for cortisol, including (I think!) 24 hour.

I'm really hoping this endo is 'onto' something and can help me.

By the way, I just want to say thanks again for your support and suggestions

over the years Sheila. This forum has been a real support to me.

P xo

>

> It might be worth getting the 24 hour salivary adrenal profile done to see

> if you do have too much Cortisol. I wonder if a course of taking Melatonin

> might help correct your sleep pattern?

>

> Luv - Sheila

[Guest guest]

I bet my bottom dollar that you will end up getting the 24 hour

salivary adrenal profile done P as it could well be your midnight cortisol

level is too high, causing your sleeplessness. Your adrenals might be what is

causing all your other problems i.e. not being able to take any form of T3 etc.

Don't delay this, get the test done as soon as you can - even if it means

nagging your endo.

Luv - Sheila

The endo mentioned they wanted to do the midnight cortisol first (can't

remember the rationale, but it made sense at the time when my endo explained it

to me) and then if the midnight one is an issue they want to follow up with a

range of other tests for cortisol, including (I think!) 24 hour.

I'm really hoping this endo is 'onto' something and can help me.

By the way, I just want to say thanks again for your support and suggestions

over the years Sheila. This forum has been a real support to me.

P xo

>

> It might be worth getting the 24 hour salivary adrenal profile done to see

> if you do have too much Cortisol. I wonder if a course of taking Melatonin

> might help correct your sleep pattern?

>

> Luv - Sheila

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23:52:00

[Guest guest]

Well, the endo is initially testing the midnight cortisol levels via a saliva

test, so it might show something up.

Now I wish I did the 24hr test when I had a test request form from my other doc,

, mainly because that was the time when I was REALLY bad and staying up until

2-3am. I guess I am usually up late though and was up to 1.30am last night, so

it might show something up in the test. For me, going to bed before midnight

(midnight is an early night for me) feels like the equivalent of a 'normal'

sleeper going to bed at 5.30pm in the afternoon!

It will be really interesting to see what the results show Sheila. If you like,

I will keep you informed.

Mind you, it is only 10.40pm at the moment and I'm feeling a little weary, but

that might have to do with the fact that it is 85 deg F (29.7deg C) here this

evening. Not great sleeping weather, but enough to knock the socks out of any

energy stores.

P xo

>

> I bet my bottom dollar that you will end up getting the 24 hour salivary

> adrenal profile done P as it could well be your midnight cortisol level is

> too high, causing your sleeplessness. Your adrenals might be what is causing

> all your other problems i.e. not being able to take any form of T3 etc.

> Don't delay this, get the test done as soon as you can - even if it means

> nagging your endo.