Guest guest Posted April 15, 2010 Report Share Posted April 15, 2010 Wow, its hard to keep up with this group when you're a mum with 3 small children - sorry! Anyway, I decided to keep on 175mcg levo with my 20mcg lio in the morning. I am feeling quite good at the mo. I think it just took a while for my body to adjust. Still need to do the saliva test. I have also started ta,king Floradix which is a (very expensive) liquid iron formula. Much gentler on the stomach than prescription iron! I'll see how that goes. My appetite is also returning after 5 long yearf of very rarely feeling hungry! Still got a long way to go though. I have two friends who are hypo and dont like talking about it (they role their eyes when I start on my throid soap box!) Is it true then that most people do do well on levo alone, and aprox what percentage? (although, if you ask me they are undermdicated..I could list 5 symptoms they hav ejust by looking at them!!) Also, the advice is that you mustn't take calcium or iron until 4 hours after levo. But what about for example " ready Brek " which is fortified with iron and calcium - is that ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Is it really only 13-20%?? I thought it'd be a lot more! I assumed it was only 20% who did well on levo! > > > Hi sue, > It is believed that somewhere between 13% and 20% don't do well on T4 alone. This doesn't even count those who can't get a diagnosis in the first place. This is not surprising as a healthy thyroid produces about 10% of T3 to 90% T4, so going onto T4 therapy is making the body struggle anyway, so after a while the system breaks down and then you have all the symptoms of untreated hypo with a low TSH and decent T4 levels- they don't test T3 so noone finds out, and then you get labelled CFS ME fibromyalgia or just plain depressed- all due to lack of T3. [Ed] > http://clk.atdmt.com/UKM/go/197222280/direct/01/ > Do you have a story that started on Hotmail? Tell us now > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Well - it depends which results you want to follow: TPA did a survey of hypothyroid patients in 2005/2006. Of 1500 respondents to this survey, 93.8% (n=1407) had not been told of medicines other than L-thyroxine by their medical practitioner. 38.8% (n=768) felt they had “not been dealt with very well” or “not very well at all” by their doctor whilst seeking a diagnosis of their symptoms; 233 (15.5%) had given up paid employment; 300 (20%) had taken time off work as a result of thyroid illness; 500 (33.3%) felt their close relationships had been affected by thyroid illness. 632 (42.1%) had stopped or altered their exercise routines as a result of their symptoms. When asked of those patients undergoing L-thyroxine therapy, “Do you feel that you have fully regained your optimal state of health?” 1176 (78.4%) Answered “NO”. What did the BTA and RCP say when asked to respond – NOTHING - the silence is deafening! Luv - Sheila Is it really only 13-20%?? I thought it'd be a lot more! I assumed it was only 20% who did well on levo! > > > Hi sue, > It is believed that somewhere between 13% and 20% don't do well on T4 alone. This doesn't even count those who can't get a diagnosis in the first place. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Was the TPA survey completed by members of the forum or were hypothyroid patients picked from NHS GP surgeries to take part in the survey. L > > Well - it depends which results you want to follow: TPA did a survey of > hypothyroid patients in 2005/2006. Of 1500 respondents to this survey, 93.8% > (n=1407) had not been told of medicines other than L-thyroxine by their > medical practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 People who completed the survey came from all walks of life. We advertised the survey in every local and national newspaper through 'Letter to the Editor' columns plus many magazines. A link was sent to all the owners of thyroid and thyroid related Internet support forums to pass on to their members. Many TPA members took part (I believe we had about 400 members at that time). The survey was conducted through NSM Research in Oxford and they compiled the results, which can be seen on our web site here http://www.tpa-uk.org.uk/tpauk_survey.pdf We decided to stop the survey when 1500 respondents had taken part. Luv - Sheila From: thyroid treatment [mailto:thyroid treatment ] On Behalf Of oaktrees56 Sent: 17 April 2010 08:42 thyroid treatment Subject: Re: me again! Was the TPA survey completed by members of the forum or were hypothyroid patients picked from NHS GP surgeries to take part in the survey. L > > Well - it depends which results you want to follow: TPA did a survey of > hypothyroid patients in 2005/2006. Of 1500 respondents to this survey, 93.8% > (n=1407) had not been told of medicines other than L-thyroxine by their > medical practitioner. > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.437 / Virus Database: 271.1.1/2813 - Release Date: 04/16/10 18:31:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 I should make it clear that this was ONLY a UK Hypothyroid Patient Survey. It did not include anybody from outside of the UK. I next would like to do a European Hypothyroid Patients Survey, but we need £20,000 for that and am in the process of trying to raise funds for this. Perhaps I will have a Box for donations at our TPA Annual Spring Meeting on 24th April. Sheila People who completed the survey came from all walks of life. We advertised the survey in every local and national newspaper through 'Letter to the Editor' columns plus many magazines. A link was sent to all the owners of thyroid and thyroid related Internet support forums to pass on to their members. Many TPA members took part (I believe we had about 400 members at that time). The survey was conducted through NSM Research in Oxford and they compiled the results, which can be seen on our web site here http://www.tpa-uk.org.uk/tpauk_survey.pdf We decided to stop the survey when 1500 respondents had taken part. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 So, really if everyone knew all about hypo and all the different kinds of treatment, then maybe it would be like 5% of people who do well on levo alone! When I explain all about hypo and the GMC etc to my husband, he says " It all sounds a bit like some kind of Xfiles conspiracy theory " (cos he can't understand WHY the GMC are such idiots, not cos he doesn't believe me!) How true...its unbelievble, yet its real and true! The thing I most struggle with is knowing which of my " feelings/symptoms " are related to thyroid and which are just part of ageing/having 3 children etc. > > Well - it depends which results you want to follow: TPA did a survey of > hypothyroid patients in 2005/2006. Of 1500 respondents to this survey, 93.8% > (n=1407) had not been told of medicines other than L-thyroxine by their > medical practitioner. > > 38.8% (n=768) felt they had " not been dealt with very well " or " not very > well at all " by their doctor whilst seeking a diagnosis of their symptoms; > > 233 (15.5%) had given up paid employment; > > 300 (20%) had taken time off work as a result of thyroid illness; > > 500 (33.3%) felt their close relationships had been affected by thyroid > illness. > > 632 (42.1%) had stopped or altered their exercise routines as a result of > their symptoms. > > When asked of those patients undergoing L-thyroxine therapy, " Do you feel > that you have fully regained your optimal state of health? " 1176 (78.4%) > Answered " NO " . > > What did the BTA and RCP say when asked to respond - NOTHING - the silence > is deafening! > > Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Hi sue, Trust me- it's the thyroid! I just couldn't explain how much better and more energy I have now I'm on the right meds- it's truly amazing. I've gone from being not safe driving a car ( too slow reaction time) to riding a big motorbike-fast and I'll be 57 next week! > thyroid treatment > From: sue_harbour@...> Date: Sun, 18 Apr 2010 20:01:38 +0000> Subject: Re: me again!> > So, really if everyone knew all about hypo and all the different kinds of treatment, then maybe it would be like 5% of people who do well on levo alone!> > When I explain all about hypo and the GMC etc to my husband, he says "It all sounds a bit like some kind of Xfiles conspiracy theory" (cos he can't understand WHY the GMC are such idiots, not cos he doesn't believe me!) How true...its unbelievble, yet its real and true!> > The thing I most struggle with is knowing which of my "feelings/symptoms" are related to thyroid and which are just part of ageing/having 3 children etc.> > > > > >> > Well - it depends which results you want to follow: TPA did a survey of> > hypothyroid patients in 2005/2006. Of 1500 respondents to this survey, 93.8%> > (n=1407) had not been told of medicines other than L-thyroxine by their> > medical practitioner. > > > > 38.8% (n=768) felt they had "not been dealt with very well" or "not very> > well at all" by their doctor whilst seeking a diagnosis of their symptoms; > > > > 233 (15.5%) had given up paid employment; > > > > 300 (20%) had taken time off work as a result of thyroid illness; > > > > 500 (33.3%) felt their close relationships had been affected by thyroid> > illness.> > > > 632 (42.1%) had stopped or altered their exercise routines as a result of> > their symptoms. > > > > When asked of those patients undergoing L-thyroxine therapy, "Do you feel> > that you have fully regained your optimal state of health?" 1176 (78.4%)> > Answered "NO". > > > > What did the BTA and RCP say when asked to respond - NOTHING - the silence> > is deafening! > > > > Luv - Sheila> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Link to comment Share on other sites More sharing options...
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