What Do You Think?

[Guest guest]

Thanks for the advice about the Functional Behavior Assessment.

Unfortunately he does this behavior at home as well but anything will help

anyone in

helping him tell us what is really going on with out acting out.

I have been doing some reading on slaw about FBA and was wondering if

anyone has been successful in doing this in the past. It looks like you

really need someone versed in doing this and autism to get a good working one

and

I don't want the school district to (actually I should give them some

credit...and I dont' know why I would even think that) come up with something.

I

am getting smarter on this and I think I can call them on the carpet if they

veer off from what should happen but I am getting sick of being the

'overbearing 'mom' 'TOUGH I need help for my son and they are legally required

to help

him while he is in the building and not just stick him out in the hallway

when he has 'attention seeking behaviors',

On to his morning routine

thanks in advance

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[Guest guest]

You need to do what is best for you. I personally don't think 30 minutes is

over the top. He is in a safe place and enjoying himself bouncing and rocking

while you are making and finishing breakfast. Parents need some peace of mind

too. He doesn't need to be " engaged " in an activity all the time. Children

need to learn to entertain themselves and obviously he is doing a great job of

it.

Tricia

What do you think?

Hello all!

We currently use the First Steps program for Ben. I've been using the

same PT for the entire time we've been into it. A couple of weeks ago, I

had to decrease PT sessions from twice per week to once (we added SP).

Anyway, today the PT focusses on Ben's exersaucer which has always been

here and says, " How long does he spend in that a day? " . I reply, " About

thirty minutes first thing in the morning while I'm getting breakfast

finished " . Then at the end of the session she proceeded to instruct me

on all the options I should look into because the saucer is not age

appropriate.

When I started thinking about it later, I got a little miffed. I

honestly doubt that 30 minutes a day in an exersaucer is a detriment to

his development. Just last month she hailed us as being one of the best

families she's worked with as far as how much we work with Ben. Now, all

of sudden I feel attacked. Ben is 22 months assessed at 10.5 months. He

enjoys rocking and bouncing in the saucer. Does everything need to

revolve around work, work, work!!! He gets plent of opportunity

throughout the day to cruise and creep and walk behind toys.

I know I should just let it go...I just needed to vent. How would you

guys respond to such a thing? My husband wants me to fire her. He's

looking at the fact that she's never on time...sometimes 30-45 minutes

late. OTOH, she's a wealth of information and really knows her stuff.

This is not the first time we have endured condescending attitudes from

her.

I should just let it go, right?

Sheila

[Guest guest]

Sheila,

My opinion - you know what your child is enjoying and what he is capable of

- she said it isn't age appropriate - in what way did she mean that? Is he

too old for it, too big not big enough too young. If it isn't age

appropriate because she thinks he is working at a much younger age than he

is - ignore. I strongly believe our kids (like most kids) develop in

different areas at different times - not all children will develop all

skills as per the timelines in the book.

If, it could be hurting him in someway or could slow down physical

development then maybe think twice, but in reality it is something he enjoys

and gives you a break to get breakfast.

Unfortunately, again imo, therpists sometimes lose sight of the bigger

picture, especially if they are young and don't have children of their own.

Keep smiling

Jan, mother of Trent 23yo w/DS from the LandDownUnder

Re: What do you think?

You need to do what is best for you. I personally don't think 30 minutes is

over the top. He is in a safe place and enjoying himself bouncing and

rocking while you are making and finishing breakfast. Parents need some

peace of mind too. He doesn't need to be " engaged " in an activity all the

time. Children need to learn to entertain themselves and obviously he is

doing a great job of it.

Tricia

What do you think?

Hello all!

We currently use the First Steps program for Ben. I've been using the

same PT for the entire time we've been into it. A couple of weeks ago, I

had to decrease PT sessions from twice per week to once (we added SP).

Anyway, today the PT focusses on Ben's exersaucer which has always been

here and says, " How long does he spend in that a day? " . I reply, " About

thirty minutes first thing in the morning while I'm getting breakfast

finished " . Then at the end of the session she proceeded to instruct me

on all the options I should look into because the saucer is not age

appropriate.

When I started thinking about it later, I got a little miffed. I

honestly doubt that 30 minutes a day in an exersaucer is a detriment to

his development. Just last month she hailed us as being one of the best

families she's worked with as far as how much we work with Ben. Now, all

of sudden I feel attacked. Ben is 22 months assessed at 10.5 months. He

enjoys rocking and bouncing in the saucer. Does everything need to

revolve around work, work, work!!! He gets plent of opportunity

throughout the day to cruise and creep and walk behind toys.

I know I should just let it go...I just needed to vent. How would you

guys respond to such a thing? My husband wants me to fire her. He's

looking at the fact that she's never on time...sometimes 30-45 minutes

late. OTOH, she's a wealth of information and really knows her stuff.

This is not the first time we have endured condescending attitudes from

her.

I should just let it go, right?

Sheila

[Guest guest]

“Unfortunately, again imo, therpists sometimes lose sight of the bigger

picture, especially if they are young and don't have children of their own.”

This is SOO true. I have found that even though so many kids with DS now

got to routine therapies; the specialists are still at a loss. I can not

tell you how many times I had to correct our Early intervention team members

on what is OK and what would be beneficial for my son.

I am lucky to work in a teaching hospital that I now take Sam to. We have

students and interns constantly rotating through. I am glad that Sam can

teach them. Our regular PT has been in the biz for 30+ years and is still

baffled by my little guy. Sam has created new heights in rejecting and

compensating. He will be 3 in April – smart as a whip, refuses to walk.

Just when we think we figured out what would motivate him – he changes the

rules. His trunk muscles and thigh muscles do not want to do the work, so he

uses his knees (locked) and all his back and neck muscles to walk. He can

only get three steps before he lowers himself to the ground. We call him

the collapsible frink (Dr. Seuss reference).

I guess I got sidetracked, sorry. I think that we should look at our kids

closely – THEY will guide us to their needs. Sam used his Excersaucer until

he became too large and heavy. It allowed me to take a shower once in a

while and he loved it!

Barb in Oregon. Mom to (10) singer, guitar player; (8) gymnast,

pianist and Sam (2 ½ ) comedian, explorer and mentor to all physical

therapists.

Re: What do you think?

You need to do what is best for you. I personally don't think 30 minutes is

over the top. He is in a safe place and enjoying himself bouncing and

rocking while you are making and finishing breakfast. Parents need some

peace of mind too. He doesn't need to be " engaged " in an activity all the

time. Children need to learn to entertain themselves and obviously he is

doing a great job of it.

Tricia

What do you think?

Hello all!

We currently use the First Steps program for Ben. I've been using the

same PT for the entire time we've been into it. A couple of weeks ago, I

had to decrease PT sessions from twice per week to once (we added SP).

Anyway, today the PT focusses on Ben's exersaucer which has always been

here and says, " How long does he spend in that a day? " . I reply, " About

thirty minutes first thing in the morning while I'm getting breakfast

finished " . Then at the end of the session she proceeded to instruct me

on all the options I should look into because the saucer is not age

appropriate.

When I started thinking about it later, I got a little miffed. I

honestly doubt that 30 minutes a day in an exersaucer is a detriment to

his development. Just last month she hailed us as being one of the best

families she's worked with as far as how much we work with Ben. Now, all

of sudden I feel attacked. Ben is 22 months assessed at 10.5 months. He

enjoys rocking and bouncing in the saucer. Does everything need to

revolve around work, work, work!!! He gets plent of opportunity

throughout the day to cruise and creep and walk behind toys.

I know I should just let it go...I just needed to vent. How would you

guys respond to such a thing? My husband wants me to fire her. He's

looking at the fact that she's never on time...sometimes 30-45 minutes

late. OTOH, she's a wealth of information and really knows her stuff.

This is not the first time we have endured condescending attitudes from

her.

I should just let it go, right?

Sheila

[Guest guest]

I had the same type of physical therapist for Amelia. Wealth of information,

frequently late, one day we were great, next day stern admonitions that she

needed more of one thing, less of the other...yada yada yada. I would always

agree with her and then do whatever I decided was best. ly you can't win

with the therapists sometimes. They usually believe their education and

training outweighs your intimate knowledge of your child. If you listen to every

word they say you are a " good " parent. If you don't you are " in denial " or

negligent-heavy sigh etc. So I don't get into it with the therapist. No one

wants more for Amelia then I do. No one. With that in mind I gobble up therapy

for her, but the bottom line is that she is a member of our family and sometimes

we do what is best for the family, because her family is her greatest resource.

More so even then all the medical professionals and teachers etc. In your case I

see it as Mom is making breakfast and baby is

toodling around the kitchen having fun-everybody is happy and content. That is

worth preserving.

On a side note. My husband's grandmother who lived with us for the past three

years died on New Year's Day. She and Amelia were total buds. Every night

they'd sit on " GG's " bed and watch Wheel of Fortune (which I swear helped Amelia

recognize letters better) and have a ball. When I told her that GG was gone she

said clear as a bell " Oh my God. That's awful. " Just like GG would say when

any disturbance, minor or major, came down the pike. She sounded just like her

great grandmother. Amelia at nearly 8 is able to talk now in such a way that we

can understand requests but not conversations. The chatting is very difficult

to understand but it is better then it was and will continue to improve I am

sure. I am saddened that Amelia (and myself) lost such a good friend. Her name

was Betty Lou Fishback Fabe Disario and she waited tables until the age of

79-full time, at a busy steak house. We had so much fun together-she and I and

the kids went out nearly every Saturday

night. Any time I had a hard time making it to a school function for Amelia

she would fill in for me. She never missed a beat when she heard that Amelia

was born with Down Syndrome. All I ever heard from her was how great my little

girl was. Always. She was such a great influence in the lives of my two kids

but quite specifically she helped me to see Amelia as a child first. She simply

never entertained any conversations about Amelia having Down Syndrome. She'd

nod politely but that was it. Part of it was her time and part of it was her

total acceptance of the gift that Amelia is to all of us. At her funeral her

numerous elderly friends came up to us and gushed about the kids (especially

Amelia) and said that the kids were the absolute joy of Betty's life. She will,

I think, prove irreplaceable.

Ann (mother to Amelia 7 and Jake 6)

---------------------------------

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[Guest guest]

Sounds as though you have the problem under control, . I know of

nothing else you can do except continue to teach more street

smarts.

granny

On Tue, Oct 20, 2009 at 11:27 PM, Kerrigan

<leslie-kerrigan@...>wrote:

>

>

> So, everyone looked at me at 's last IEP when I said " Ugggh,

> lunch " ...they looked like " what, what's wrong with lunch? " Having

> other kids, I know the drama and garbage that happens during this

> basically unsupervised time. But, we were running out of meeting time,

> so I basically said " well, I am concerned about during lunch,

> but let's see how the year goes, and talk about it after school begins. "

>

> Well, we've been in school a couple months now, and today I get the

> following email (there was also a note on the communications sheet from

> the aide.)

>

> " Patty will talk to you today about buying food for Mara. We

> keep telling Mara not to ask to buy food for her. Mara gets

> her to go and buy a pretzel or something. If you want, you can have

> the cafeteria only give her lunch and nothing else. Mara's

> mother finally had to do that but Mara's apparently found a way around

> that. I'll be letting her mom know what's going on also. "

>

> FYI, I prepay for lunches on her " account " and periodically add more

> money when it runs out, as she doesn't buy every day, so I'm never sure

> (with any of my kids) how long their " lunch account " should last.

>

> Today was the first I've heard of this, though from this email it sounds

> like this has been an ongoing problem. Apparently 's aide,

> Patty, talked to about this today because was quite

> indignant when I asked her about this that Mara was " taking advantage of

> me " by asking her to buy her pretzels and popsicles. DH and I are

> asking ourselves (and ) " Where are the adults? "

>

> So, we asked that question. Are you ready for this?

> Apparently her 1:1 has lunch at the same time as (no surprise,

> this has been done in the past) BUT it sounds like there is no one to

> take over, so is out there for 40 minutes without anyone

> having a watchful eye on her... I'm amazed she has ANY lunch money

> left! I don't think this little girl is horrible or anything, she's

> know 's since 2nd grade from the resource room, and has some

> issues herself (why is why Mom cut her money off, apparently!)

>

> So, I get this email this afternoon, and send a reply asking " is

> alone at lunch " and got no response yet. Is there anyone

> whose child is fully included with a 1:1 who thinks that it's a good

> idea to leave that child alone for the most unsupervised part of the

> day? Silly us, we never specifically asked who would be shadowing

> during lunch!

>

> I am going to go to the school tomorrow and ask the lunch ladies if I

> can get a printout of 's spending... I hope they can do that,

> and since you have to have your id card and number to buy, I'm hoping

> they can tell me what's up.

>

> Thoughts? Thanks in advance.

>

> , mom to (14), (11 DS) and Sammy (10)

>

>

[Guest guest]

Hello

I have been reading this list for a couple years now and have taken Iodoral (50 mgs a day) and companion nutrients sporadically for continued good health and general well being, I have never had any specific thyroid disease.

I have stopped occasionally due only to economic fluctuations but always feel better when I take it.

I now considering taking bio-identical hormones ( estrogen & progesterone cream ) as I am just beginning menopause but am also considering beginning the Iodoral again......would I be just better off just beginning the Iodoral and thinking maybe that will take care of some of the symptoms that are bothering me that I am attributing to menopause , such as brain fog and achey joints/knees....no hot flashes or night sweats or sleeplessness....

I would rather not spend money unnecessarily on products that I don’t need if I can help it.

All you experts, what do you think?

I realize this is an iodine list , not a hormone list....but I seem to recall this topic being discussed before.

Anyway, any thoughts would be appreciated.

Thank you and Happy New Year!