Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 I had an ultrasound in 06 that revealed a irregular goiter, a nodule (scan), abnormal antibodies. I was told I had hashimotos. My first appt with an endocrinologist was rushed. I was given synthroid (it made all of my symptoms worse) & told it would make me feel better but I'd feel alot of muscle aches at first. I had heart palpitations very bad ear pain with burning and cysts behind them. My neck was tender, had difficulty swallowing, swelling neck caused difficulty breathing, fatigue, within time these symptoms have gotten worse. Cold hands (sweaty/clamy) and feet and nervousnes- since I was a young girl, hair loss started after I had my first baby at 17. Also breast pain/itchiness that radiated towards the side (from 03 or 04, car accident in 02) gradually getting worse now in the back of my shoulder blade, upper shoulder (not exactly where the joint is) towards right arm. The pain goes into the bone in the wide area surrounding the shoulder blade & the arm now but the side of the breast still hurts. Someone online suggested a rare from of breast cancer--padgets disease. That was back in 07. I found my old posts yesterday & re-read them, I thought i did a search on it? The symptoms made so much sense to me. I saw a gyn that said it was normal to have breast pain. Another Dr said my painful urinating problem sounded like intersticial cysitis . That's been a problem since around 2003-2004 until now.It's permenant & there is a lingering pain that's there 24/7. The pain in the right upper back is also nonstop, it's horrible-gets so strong that I break down & cry.I regret not pushing my new Dr that I've had since the begining of 07. I think the symptoms always got the best of me. I tend to shut down & feel like a faliure everytime my Dr. wouldn't do more than prescribe a pain med or acid reducer. She did the most when I was a new patient. Ordered an ultrasound, cat scan, mri to see if it was nerve related. Since I was a child I was shy & as I became a young girl struggled with socializing and speaking out. It continued even when I was a teen, my self esteem was low. I married at 16 & have 5 children. Even though people gave me advice. I don't think I ever got the full picture on how dangerous it really is or what really meant what. Like for example aoutoimmune disease I thought it was a seperate condition than hashimotos or graves. The levels I just recently understood b/c I ended up in the ER & was told I'm hyper my levels were a 0. The ER Dr was shocked so he ran them again just to make sure. I had seen an endocrinologist once in sept 06 & since we were having financial problems I waited to get my husbands insurance to establish care with a new local Dr. As soon as we got it I scheduled appts right away. Wasn't sure about going back to the endo since he kind of seemed annoyed when I mentioned thyroid cancer. he said there was no way I could have it- only 5% of the population got it. I started feeling much worse than usual in the begining of January 2010. It was probably what they call a thyroid storm? My heart & blood pressure were elevated. My heart rate had been in the 50's days before this and went up to 107. Severe tiredness my neck got extremely swollen & I had difficulty breathing & eating (swallowing/painful) my throat basically closed in on itself felt like I had a bone stuck, so hard to eat for at least 2 weeks. Extreme weakness,unbalanced, dizziness- no matter what position I was in, severe ear/neck pain, sores in back of throat that I still have and sores on inner lip. I shouldn't forget my voice became very horse. That also lasted the 2 weeks. The whole month of January was horrible I thought I wasn't going to make it to the next hour or day. My throat is still hurting & have difficulty swallowing probably because of the goiter. even though the weakness & dizzines is much better I'm still having problems with my throat/neck/ears & have some sores that have been there at least 3 weeks maybe more. So after googling my symptoms it indicated several things. Thyroid cancer, tonsil cancer, esophogul/larnyx cancer, toxic goiter. During my pregnancy my gallbladder gave me terrible attacks. It got better sometime after my baby was born but still pokes at me. The pain I'm having in the side of my right breast all the way towards the spine & through right arm. Sounds like the rare breast cancer disease padgets disease when it has reached the bones. From going to the ER I was referred to see a breast specialist. Got a mammogram/ultrasound which the lady probably lasted about 5 minutes doing the ultrasound. The report didn't show any lumps or cysts. Except I did have lumps & I have a mass on the side, and itchiness. My new holistic Dr felt the lumps the next day. I hope the milk I still had from nursing was not a problem. Some milk came out & I told the lady performing it.I have too many health issues that if one isn't cancerous then the other probably is. It's like trying to dodge a bullet. Going to the ER's didn't really get me anywhere. Probably b/c I have no insurance. I found out about iodoral by my holistic Dr which I chose out of desperation & because someone had left a review that he helped get rid of her goiter. The bad thing was that when I went in I probably should have been in an emergency room, I was shaky on top of my symptoms. ER Dr's looked at me like it was mainly anxiety even though I wasn't shaky, except for one Dr that knew what hyperthyroidism was- prescribed vicodin for my pain and told me to stop everything I was taking. Then refered me to see a regular endo which he wants me to be on anti-depressants? I told him that was one of the last things I'd do. He asked me nicely if I would please take it for 3 months that I would be glad I did. I said ok-- but I honestly don't want to. All I want is to feel better for this pain to go away. Don't want to taken vicodin. Unless there is a natural pain reliever.My holistic Dr went by lab tests that were done 6 months before, probably because he was trying to save me money, my husband is jobless. I know he meant well. This is how he started me 15mg of armour (was not on armour when I had the long month attack), 2xday 12.5 iodoral, 2xday selenium 200mg, lugols drops strong solution apply 3 times a day on thyroid & breasts (started lugols last week). Plus vitamin D 4000IU. My head will hurt when adding it. The iodoral made the pain and burning in my ears so strong. It was like my whole body had a reaction to it. I called my Dr he wasn't sure why but said that it was probably a sign that it was working. I kept taking it even if though I was in more pain and made my mouth so dry & made my throat feel tighter. When I took 2 at lunch as he suggested I felt like I was choking? So I'm staying on 2 a day. My head has been hurting since being on these meds. My whole neck/head hurts & my jaw bone/ ears. It hurts alot right now I just took the selenium & iodoral at the same time.I let my holistic Dr know I was hyper & not hypo- he still wanted me on iodoral & selenium & vitamin D. Since I was still having very bad weakness where I'd lay to sleep & my breathing would stop also felt like i wasn't here-very spaced out. He wanted me to get on armour 15mg. I haven't done it because when I had taken it-it caused a horrible headache that lasted all day. I think armour will make me worse, as it is I'm struggling so much to keep going. Friday I went to a new primary Dr. he prescribed prilosec & antibiotics. he thinks I have a viral infection & acid reflux. The Er Dr thought the same thing but didn't give me anything for it. Is it possible that I've had a viral infection that has been there since 06? He ran a liver test but doesn't want to order major testing yet, b/c I don't have insurance. I don't have heartburn but I was diagnosed with h-pylori in 07 & given antibiotics. My dad insisted I take garlic tea. He always takes it. I've been doing the tea & eating the garlic for 2-3 weeks, warm salt water rinses hoping to get rid of the sores. Tried cloves for numbing. Surprisingly I found a website that said garlic helps against h-pylori. Tried making my kids eat it, they ended up spitting it out.If I can only reverse my autoimmune disease maybe that would help that is if I don't have the big C. I have mercury fillings & that's something the Dr wants me to try & get rid of. All of my molars were filled, went in complaining of a toothache when none of my other teeth ever hurt. The dentist said I had small cavities in all of them, followed his orders & didn't have a clue they were bad or that they had white fillings.I'm hoping someone can give me suggestions if I should add anything else to my treatment for my hyperthyroid or just get the goiter/nodules taken out. That's something I'm considering. Is there is a possibilty that iodine can harm someone that has cancer by creating more nodules or spreading it? I remember reading something like this online.Then again I have read good things about iodoral & lugols. Any suggestions will be greatly appreciated. So sorry for this long e-mail. P.S. I'm thinking of leaving to Mexico with our income tax refund, to see a recommended Dr. They said I can find out in no more than 3 days everything that is wrong with me. Are there any suggestions on tests to avoid or ask for? Will I need to stop the iodoral in order to take a test? Thank you so much for taking the time to read this & for giving me the opportunity to join this group,~Norma Quote Link to comment Share on other sites More sharing options...
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