Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Dear Forum members, Thanks for the responses i received on the article , " i feel humiliated " and i will soon explain problems(social) i face being a person with hiv Thank you very much I feel the harassmaent done to individuals with hiv/AIDS varies from state to state,in my state(andhra pradesh) it is very open. I think the policy of humilliation on people with HIV/AIDS is deliberately carried on by the government agencies in association with the community. Hence central government along with " NACO " has to take steps on issues of human rights for the indviduals living with hiv/aids and protect them from inhuman elements As i have already mentioned i want to volunteer for any aids organisations " sandeep goud " E-mail:<s1kin@...> ___________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Christi,, Glad to read that Logan is doing better, cant help you with the nose question though, sorry. Hugs Helen and (7,systemic) > Thanks to all who responded to my first email. I really appreciate > the encouragement and information. My son has now been on Orapred > for three weeks. He is doing much better. He is swelling but I > understand this can be expected. I was wondering if anyone's child > has complained of his or her nose hurting? My son has seasonal > allerigies but he has never complained this much. I took him to see > his ENT today. He could not find any sores, etc. I do not know if > he is just so irritable because of the Orapred or what but he is > always fussing especially about his nose. > > Thanks, > Christi (Logan - systemic,3) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Christi, It's funny how you forget things until someone reminds you of them. We also had nose problems exactly one year ago after my son had just started pred. and mtx. I'd say it went on for 3-4 months. We kept mentioning it to the rheumy and the pediatrician and the only suggestions we got were to add a humidifier to his room at night and lubricate it and use the salt water nasal spray. Basically, treat the sypmtoms without knowing the cause. He was always dry and stuffy, but didn't have a cold. My son Hunter also has some seasonal allergies but had never experienced anything like this at this time of year. Personally, I attributed it to the pred. He quickly got the Cushings Syndrome, and with everything being so puffed up, I figure it affected his nasal passages also. Just my gut feeling. We had all kinds of this really strange stuff happpening all at once when he started the pred. and mtx., like unbelievably swollen testicles, and major constipation. I hope things get better quickly for Logan. Stacia and Hunter 8 systemic, iritis > Thanks to all who responded to my first email. I really appreciate > the encouragement and information. My son has now been on Orapred > for three weeks. He is doing much better. He is swelling but I > understand this can be expected. I was wondering if anyone's child > has complained of his or her nose hurting? My son has seasonal > allerigies but he has never complained this much. I took him to see > his ENT today. He could not find any sores, etc. I do not know if > he is just so irritable because of the Orapred or what but he is > always fussing especially about his nose. > > Thanks, > Christi (Logan - systemic,3) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Hi Christi, my daughter Mackenzie (she is 6) started complaining about her nose several months ago. It seemed she was always messing with it and constantly blowing it, she would do it so much it would bleed. We asked all the docs about it and no one could tell us anything. Then one day she blew her nose and (I am trying to figure out how to say this without sounding too gross ) there was what looked like cartilege in the tissue. To make a long story short, she now has a perforated septum. No one can tell me why or what caused it. It could have been from the massive amounts of steroids she received around the same time it happened. Another thing I guess I don't know is that if any of the docs could have figured out what was going on, if they could have stopped it from happening. Don't know if this helps or not, but maybe they can keep a closer eye it. > Thanks to all who responded to my first email. I really appreciate > the encouragement and information. My son has now been on Orapred > for three weeks. He is doing much better. He is swelling but I > understand this can be expected. I was wondering if anyone's child > has complained of his or her nose hurting? My son has seasonal > allerigies but he has never complained this much. I took him to see > his ENT today. He could not find any sores, etc. I do not know if > he is just so irritable because of the Orapred or what but he is > always fussing especially about his nose. > > Thanks, > Christi (Logan - systemic,3) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2004 Report Share Posted September 25, 2004 Hi Christi, The pred alone can make anyone severely sensative,they call it steroid sychosis(sp). It very well could be the allergies driving him crazy.Something to consider and probably has nothing to do with Logan or it would be quite obvious.Does it look like the cartlidge is his nose is swollen.The reason I ask is because systemic can effect anything and everything.My son would get severe swelling of his ears,it would leave the lower lobe alone but the cartlidge would swell and make his ears stick way out and turn red.When I looked it up it was called relapsing polychondritis and the ear and nose cartlidge was the first things to be effected. Most likely it's just minor,normal iritation to allergies but the pred is makeing him more sensative to his feelings. Hugs Becki and 6 systemic Quote Link to comment Share on other sites More sharing options...
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