Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Hi laurel. I hope the salt you are taking is unrefined as this has all the minerals in it. Don't take iodized salt. It is stripped of the good stuff and the iodine in it is miniscule. It sounds like you have a lot going on. If you are asking whether you should take iodine I would research iodine supplementation and af. I think you will find info in support of this. One of the meds they use to treat this is a synthetic form of iodine. I wonder what your adrenal status is. Also do you have thyroid issues? Meredith Sent from my Verizon Wireless BlackBerry Intro - atril fibrillation Hello All, I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial fibrillation after 10 years of being dxed with PSVT's and 20 with chronic fatigue/fibromyalgia ( depending on which doctor I saw). I never believed I had CF or Fibro - nor have I been depressed, which nearly all my doctors have dismissed my symptoms as. The symptom that bothers me the most is EXTREME fatigue though brain fog and constant shortness of breath don't thrill me either. Any exercise exacerbates these symptoms, and pushing through and doing it anyway completely wipes me out for about a week. I've also been dxed with severe sleep apnea, and use a c-pap for that. I believe I had arrhythmia as early as age 10 or 11, and sleep apnea for as long. Some of the things that trigger bad episodes now, made me feel faint, overheated, dizzy, etc as a child. Complaints were viewed as whining and were good for a scolding so I was more inclined to hide any symptoms I had. I remember episodes of brain fog too. I was put on Diltiazem in 2000, and was on it for about a year and a half, during which time I was unable to wake up on my own - I'd awaken, try to sit up, and fall asleep before I got that far. Not surprising, since I've always had low blood pressure! Brain fog was particularly bad during this period, so I was slow in insisting my prescription be changed. I can't remember what else I took -several things that sometimes helped a bit initially but all resulted in fatigue andreverting back to the same symptoms in short order. I had an ablation in 2001. It was not successful but I did learn I had five different versions of PSVTs. I was also told I had a really strong heart and to go home and stop worrying about it - just live with the symptoms and be glad it is nothing dangerous. At my next appointment with my regular cardiologist, she told me , told me that there wasn't really a reason to continue seeing her. I asked her who I should see, and she shrugged and said she had no idea. She thought perhaps someone who specializes in toxins, because she thought some sort of toxin exposure might have caused this. My primary doctor dismissed pursuing anything of that sort and my insurance wouldn't cover anything of this sort so that went nowhere. There is reason to suspect toxin exposure and also reason to consider a genetic link because my grandfather had a pacemaker at a time when that was quite rare. No one else in my family has had any sort of heart disease nor do I have any of the risk factors for it other than the fact that once I got really sick I stopped being active and gained weight. I was always on the thin side before. At no point did she suggest I see an electrophysiologist other than for the ablation, nor did he see any reason to continue seeing him or another. During my sleep study I had a bad episode of palpitations and so was sent to the ER, and consequently to an electrophysiologist. He only seemed interested in how often I fainted and what sorts of things made me faint. He wanted to do a tilt table test, which I thought was silly, since I can faint on command. I agreed, and then he kept canceling on me at the last moment, so I finally asked what he'd do if I did pass out, and he said tell me to eat salt. Okie dokie, salt it is. I've been taking salt tabs every summer since I was a child who was prone to heat prostration ( runs in my family - same side as the GF with a pacemaker) Evident ally we all have low BP. My kids both do too. We're like those fainting goats, ha ha. Since then, I've gobbled salt, continued to ask doctors for help with fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s but no solutions. Long story short, during a recent physical, an EKG showed AF in addition to PSVTs. In fact, it was so bad I was told it looked like the EKG of a person minutes away form a heart attack. This EKG was done the very last day that i had insurance with one company - so I had to immediately find another doctor and wait to get in to see her. This doctor did another EKG to make sure the AF wasn't a fluke. She asked a number of questions about family history, and then made me an appointment with an EP. I see him on Wednesday. I have really good blood work - not just cholesterol. but everything, except for some signs of inflammation and I often have a slightly elevated glucose, but never enough to cause alarm. This is very puzzling to people who find my EKG's alarming. BTW, I am currently taking an aspirin a day for the AF s per my new doctor. No telling what this EP will want to put me on - I am not enthusiastic about being a guinea pig for more meds. My hunch is the root of my problem is an inability to utilize minerals well. I told my new doctor this and she said surely I've had blood work done, and I said yes, and it looks good, but that only means it is in my blood, not that I am able to access it, right? I added that my dd and I share a rare from of migraine, and magnesium totally controls it. Also said I stated taking potassium for my heart and it seems to help a bit, but drinking electrolytes helps the most. She said there may be something to my theory but it is difficult to test for. Thanks for your patience and consideration in reading all of this. I'm curious to hear what others think might be going on. Laurel ------------------------------------ All off topic posts should go to the IodineOT group IodineOT/ Commonly asked questions: http://tinyurl.com/yhnds5e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Hi Laurel, A lot to chew on... One thing is the relationship of iodine and magnesium and the heart. I'm including two liks that I believe address these issues very well; http://iodine4health.com/body/heart/heart.htm One cannot take iodine if on some heart drugs such as below: " Nontoxic and Effective Treatment So if you suffer from atrial fibrillation, ventricular tachycardia, ventricular fibrillation, or any other cardiac arrhythmia, you will probably be prescribed the toxic drug Amiodarone along with the rat poison warfarin (Coumadin). All the while you probably need Iodine Therapy. But take note.you cannot proceed with Iodine Therapy while you are taking Amiodarone. The combination of safe iodine with the drug's toxic iodine would overwhelm the body. " Dr Bruce West. And with magnesium; http://magnesiumforlife.com/medical-application/the-insulin-magnesium-story/ Both of these sites explain things very well. The first one has a doc by Bruce West on Iodine and the heart which is good. And as Meridith said, natural sea salt, something like Celtic is way better than refined which is somewhat toxic. One of the iodine doctors, Brownstein has a good book on salt, he talks of it some below; http://iodine4health.com/special/nutrients/salt/brownstein_salt.htm. A good start and welcome! Bruce -----Original Message----- From: " laurelp " <acorniv@...> Hello All, I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial fibrillation after 10 years of being dxed with PSVT's and 20 with chronic fatigue/fibromyalgia ( depending on which doctor I saw). I never believed I had CF or Fibro - nor have I been depressed, which nearly all my doctors have dismissed my symptoms as. The symptom that bothers me the most is EXTREME fatigue though brain fog and constant shortness of breath don't thrill me either. Any exercise exacerbates these symptoms, and pushing through and doing it anyway completely wipes me out for about a week. I've also been dxed with severe sleep apnea, and use a c-pap for that. I believe I had arrhythmia as early as age 10 or 11, and sleep apnea for as long. Some of the things that trigger bad episodes now, made me feel faint, overheated, dizzy, etc as a child. Complaints were viewed as whining and were good for a scolding so I was more inclined to hide any symptoms I had. I remember episodes of brain fog too. I was put on Diltiazem in 2000, and was on it for about a year and a half, during which time I was unable to wake up on my own - I'd awaken, try to sit up, and fall asleep before I got that far. Not surprising, since I've always had low blood pressure! Brain fog was particularly bad during this period, so I was slow in insisting my prescription be changed. I can't remember what else I took -several things that sometimes helped a bit initially but all resulted in fatigue andreverting back to the same symptoms in short order. I had an ablation in 2001. It was not successful but I did learn I had five different versions of PSVTs. I was also told I had a really strong heart and to go home and stop worrying about it - just live with the symptoms and be glad it is nothing dangerous. At my next appointment with my regular cardiologist, she told me , told me that there wasn't really a reason to continue seeing her. I asked her who I should see, and she shrugged and said she had no idea. She thought perhaps someone who specializes in toxins, because she thought some sort of toxin exposure might have caused this. My primary doctor dismissed pursuing anything of that sort and my insurance wouldn't cover anything of this sort so that went nowhere. There is reason to suspect toxin exposure and also reason to consider a genetic link because my grandfather had a pacemaker at a time when that was quite rare. No one else in my family has had any sort of heart disease nor do I have any of the risk factors for it other than the fact that once I got really sick I stopped being active and gained weight. I was always on the thin side before. At no point did she suggest I see an electrophysiologist other than for the ablation, nor did he see any reason to continue seeing him or another. During my sleep study I had a bad episode of palpitations and so was sent to the ER, and consequently to an electrophysiologist. He only seemed interested in how often I fainted and what sorts of things made me faint. He wanted to do a tilt table test, which I thought was silly, since I can faint on command. I agreed, and then he kept canceling on me at the last moment, so I finally asked what he'd do if I did pass out, and he said tell me to eat salt. Okie dokie, salt it is. I've been taking salt tabs every summer since I was a child who was prone to heat prostration ( runs in my family - same side as the GF with a pacemaker) Evident ally we all have low BP. My kids both do too. We're like those fainting goats, ha ha. Since then, I've gobbled salt, continued to ask doctors for help with fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s but no solutions. Long story short, during a recent physical, an EKG showed AF in addition to PSVTs. In fact, it was so bad I was told it looked like the EKG of a person minutes away form a heart attack. This EKG was done the very last day that i had insurance with one company - so I had to immediately find another doctor and wait to get in to see her. This doctor did another EKG to make sure the AF wasn't a fluke. She asked a number of questions about family history, and then made me an appointment with an EP. I see him on Wednesday. I have really good blood work - not just cholesterol. but everything, except for some signs of inflammation and I often have a slightly elevated glucose, but never enough to cause alarm. This is very puzzling to people who find my EKG's alarming. BTW, I am currently taking an aspirin a day for the AF s per my new doctor. No telling what this EP will want to put me on - I am not enthusiastic about being a guinea pig for more meds. My hunch is the root of my problem is an inability to utilize minerals well. I told my new doctor this and she said surely I've had blood work done, and I said yes, and it looks good, but that only means it is in my blood, not that I am able to access it, right? I added that my dd and I share a rare from of migraine, and magnesium totally controls it. Also said I stated taking potassium for my heart and it seems to help a bit, but drinking electrolytes helps the most. She said there may be something to my theory but it is difficult to test for. Thanks for your patience and consideration in reading all of this. I'm curious to hear what others think might be going on. Laurel ------------------------------------ All off topic posts should go to the IodineOT group IodineOT/ Commonly asked questions: http://tinyurl.com/yhnds5e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Have you saliva tested your hormones? Estrogen, progesterone, testosterone, DHEA and cortisol 4x. If not, I would highly suggest this. Sometimes cardiovascular disorders are because of unbalanced hormone levels. This is especially seen in peri-menopausal and menopausal women. Are you over-weight? What is your diet like? Exercise? Stress levels (adrenal fatigue)? Pure water consumption? Digestive Track, Liver/Gallbladder, Parasite cleansing? Signs and Symptoms of Adrenal Fatigue Tendency to gain weight and unable to lose it, especially around the waist. High frequency of getting the flu and other respiratory diseases and these symptoms tend to last longer than usual. Tendency to tremble when under pressure. Reduced sex drive. Lightheaded when rising from a horizontal position. Unable to remember things. Lack of energy in the mornings and in the afternoon between 3 to 5 pm. Feel better suddenly for a brief period after a meal. Often feel tired from 9 - 10 pm, but resist going to bed. Need coffee or stimulants to get going in the morning. Cravings for salty, fatty, and high protein food such as meat and cheese. Increased symptoms of PMS for women; periods are heavy and then stop, or are almost stopped on the 4th day, only to start flow again on the 5th or 6th day. Pain in the upper back or neck with no apparent reason. Feels better when stress is relieved, such as on a vacation. Difficulties in getting up in the morning. Lightheaded. Other signs and symptoms include: Mild depression Food and or inhalant allergies Lethargy and lack of energy Increased effort to perform daily tasks Decreased ability to handle stress Dry and thin skin Hypoglycemia Low body temperature Nervousness Palpitation Unexplained hair loss Alternating constipation and diarrhea Dyspepsia Many times docs will give a diagnosis of fibro/cf or depression when they cannot come up with a sure-fire diagnosis. In the case of hormone imbalance much of the time the doc will prescribe a anti-depressant and send the patient on their way. Why? Because the symptoms didn’t fit into any of the doctor’s diagnosis boxes so surely the patient is depressed or everything is “in their mind.” You are wise to step-out-of-the-box and do your own research. Be Well Dr.L Intro - atril fibrillation Hello All, I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial fibrillation after 10 years of being dxed with PSVT's and 20 with chronic fatigue/fibromyalgia ( depending on which doctor I saw). I never believed I had CF or Fibro - nor have I been depressed, which nearly all my doctors have dismissed my symptoms as. The symptom that bothers me the most is EXTREME fatigue though brain fog and constant shortness of breath don't thrill me either. Any exercise exacerbates these symptoms, and pushing through and doing it anyway completely wipes me out for about a week. I've also been dxed with severe sleep apnea, and use a c-pap for that. I believe I had arrhythmia as early as age 10 or 11, and sleep apnea for as long. Some of the things that trigger bad episodes now, made me feel faint, overheated, dizzy, etc as a child. Complaints were viewed as whining and were good for a scolding so I was more inclined to hide any symptoms I had. I remember episodes of brain fog too. I was put on Diltiazem in 2000, and was on it for about a year and a half, during which time I was unable to wake up on my own - I'd awaken, try to sit up, and fall asleep before I got that far. Not surprising, since I've always had low blood pressure! Brain fog was particularly bad during this period, so I was slow in insisting my prescription be changed. I can't remember what else I took -several things that sometimes helped a bit initially but all resulted in fatigue andreverting back to the same symptoms in short order. I had an ablation in 2001. It was not successful but I did learn I had five different versions of PSVTs. I was also told I had a really strong heart and to go home and stop worrying about it - just live with the symptoms and be glad it is nothing dangerous. At my next appointment with my regular cardiologist, she told me , told me that there wasn't really a reason to continue seeing her. I asked her who I should see, and she shrugged and said she had no idea. She thought perhaps someone who specializes in toxins, because she thought some sort of toxin exposure might have caused this. My primary doctor dismissed pursuing anything of that sort and my insurance wouldn't cover anything of this sort so that went nowhere. There is reason to suspect toxin exposure and also reason to consider a genetic link because my grandfather had a pacemaker at a time when that was quite rare. No one else in my family has had any sort of heart disease nor do I have any of the risk factors for it other than the fact that once I got really sick I stopped being active and gained weight. I was always on the thin side before. At no point did she suggest I see an electrophysiologist other than for the ablation, nor did he see any reason to continue seeing him or another. During my sleep study I had a bad episode of palpitations and so was sent to the ER, and consequently to an electrophysiologist. He only seemed interested in how often I fainted and what sorts of things made me faint. He wanted to do a tilt table test, which I thought was silly, since I can faint on command. I agreed, and then he kept canceling on me at the last moment, so I finally asked what he'd do if I did pass out, and he said tell me to eat salt. Okie dokie, salt it is. I've been taking salt tabs every summer since I was a child who was prone to heat prostration ( runs in my family - same side as the GF with a pacemaker) Evident ally we all have low BP. My kids both do too. We're like those fainting goats, ha ha. Since then, I've gobbled salt, continued to ask doctors for help with fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s but no solutions. Long story short, during a recent physical, an EKG showed AF in addition to PSVTs. In fact, it was so bad I was told it looked like the EKG of a person minutes away form a heart attack. This EKG was done the very last day that i had insurance with one company - so I had to immediately find another doctor and wait to get in to see her. This doctor did another EKG to make sure the AF wasn't a fluke. She asked a number of questions about family history, and then made me an appointment with an EP. I see him on Wednesday. I have really good blood work - not just cholesterol. but everything, except for some signs of inflammation and I often have a slightly elevated glucose, but never enough to cause alarm. This is very puzzling to people who find my EKG's alarming. BTW, I am currently taking an aspirin a day for the AF s per my new doctor. No telling what this EP will want to put me on - I am not enthusiastic about being a guinea pig for more meds. My hunch is the root of my problem is an inability to utilize minerals well. I told my new doctor this and she said surely I've had blood work done, and I said yes, and it looks good, but that only means it is in my blood, not that I am able to access it, right? I added that my dd and I share a rare from of migraine, and magnesium totally controls it. Also said I stated taking potassium for my heart and it seems to help a bit, but drinking electrolytes helps the most. She said there may be something to my theory but it is difficult to test for. Thanks for your patience and consideration in reading all of this. I'm curious to hear what others think might be going on. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 I think it is just amazing that no one has helped you with adrenal support. OMG. you can google McK Jefferies MD who wrote Safe Uses of Cortisol. even though you don't feel that you have CF/fibro I think you will find the meds for this to be what you need--iodine/thyroid/adrenal. look at http://www.fibromyalgiarecovery.com will your present doc give you HC/cortef for adrenals? have you looked at iodine protocol on http://www.naturalthyroidchoices.com ? Gracia laurelp wrote: > > Hello All, > > I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial > fibrillation after 10 years of being dxed with PSVT's and 20 with > chronic fatigue/fibromyalgia ( depending on which doctor I saw). I > never believed I had CF or Fibro - nor have I been depressed, which > nearly all my doctors have dismissed my symptoms as. The symptom that > bothers me the most is EXTREME fatigue though brain fog and constant > shortness of breath don't thrill me either. Any exercise exacerbates > these symptoms, and pushing through and doing it anyway completely > wipes me out for about a week. I've also been dxed with severe sleep > apnea, and use a c-pap for that. > > I believe I had arrhythmia as early as age 10 or 11, and sleep apnea > for as long. Some of the things that trigger bad episodes now, made me > feel faint, overheated, dizzy, etc as a child. Complaints were viewed > as whining and were good for a scolding so I was more inclined to hide > any symptoms I had. I remember episodes of brain fog too. > > I was put on Diltiazem in 2000, and was on it for about a year and a > half, during which time I was unable to wake up on my own - I'd > awaken, try to sit up, and fall asleep before I got that far. Not > surprising, since I've always had low blood pressure! Brain fog was > particularly bad during this period, so I was slow in insisting my > prescription be changed. I can't remember what else I took -several > things that sometimes helped a bit initially but all resulted in > fatigue andreverting back to the same symptoms in short order. > > I had an ablation in 2001. It was not successful but I did learn I had > five different versions of PSVTs. I was also told I had a really > strong heart and to go home and stop worrying about it - just live > with the symptoms and be glad it is nothing dangerous. At my next > appointment with my regular cardiologist, she told me , told me that > there wasn't really a reason to continue seeing her. I asked her who I > should see, and she shrugged and said she had no idea. She thought > perhaps someone who specializes in toxins, because she thought some > sort of toxin exposure might have caused this. My primary doctor > dismissed pursuing anything of that sort and my insurance wouldn't > cover anything of this sort so that went nowhere. There is reason to > suspect toxin exposure and also reason to consider a genetic link > because my grandfather had a pacemaker at a time when that was quite > rare. No one else in my family has had any sort of heart disease nor > do I have any of the risk factors for it other than the fact that once > I got really sick I stopped being active and gained weight. I was > always on the thin side before. At no point did she suggest I see an > electrophysiologist other than for the ablation, nor did he see any > reason to continue seeing him or another. > > During my sleep study I had a bad episode of palpitations and so was > sent to the ER, and consequently to an electrophysiologist. He only > seemed interested in how often I fainted and what sorts of things made > me faint. He wanted to do a tilt table test, which I thought was > silly, since I can faint on command. I agreed, and then he kept > canceling on me at the last moment, so I finally asked what he'd do if > I did pass out, and he said tell me to eat salt. Okie dokie, salt it > is. I've been taking salt tabs every summer since I was a child who > was prone to heat prostration ( runs in my family - same side as the > GF with a pacemaker) Evident ally we all have low BP. My kids both do > too. We're like those fainting goats, ha ha. > > Since then, I've gobbled salt, continued to ask doctors for help with > fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s > but no solutions. > > Long story short, during a recent physical, an EKG showed AF in > addition to PSVTs. In fact, it was so bad I was told it looked like > the EKG of a person minutes away form a heart attack. This EKG was > done the very last day that i had insurance with one company - so I > had to immediately find another doctor and wait to get in to see her. > This doctor did another EKG to make sure the AF wasn't a fluke. She > asked a number of questions about family history, and then made me an > appointment with an EP. I see him on Wednesday. > > I have really good blood work - not just cholesterol. but everything, > except for some signs of inflammation and I often have a slightly > elevated glucose, but never enough to cause alarm. This is very > puzzling to people who find my EKG's alarming. > > BTW, I am currently taking an aspirin a day for the AF s per my new > doctor. No telling what this EP will want to put me on - I am not > enthusiastic about being a guinea pig for more meds. > > My hunch is the root of my problem is an inability to utilize minerals > well. I told my new doctor this and she said surely I've had blood > work done, and I said yes, and it looks good, but that only means it > is in my blood, not that I am able to access it, right? I added that > my dd and I share a rare from of migraine, and magnesium totally > controls it. Also said I stated taking potassium for my heart and it > seems to help a bit, but drinking electrolytes helps the most. She > said there may be something to my theory but it is difficult to test for. > > Thanks for your patience and consideration in reading all of this. I'm > curious to hear what others think might be going on. > > Laurel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Hello Laurel, This is classic for magnesium and potassium imbalances and deficiencies...a hair analysis would help to see what toxic metals you have high in that are interfering with those, if you are also taking those. Most cases clear within a day to 2 days if the minerals are correct. If you would like more help, contact me privately and I will send you the info. If iodine is not adequate, you will not uptake those cations properly anyway. To your good health! Linsey McLean Biochemist Vita Royal Prod Inc vitaroyal.com On Apr 26, 2010, at 7:09 PM, laurelp wrote: > Hello All, > > I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial fibrillation after 10 years of being dxed with PSVT's and 20 with chronic fatigue/fibromyalgia ( depending on which doctor I saw). I never believed I had CF or Fibro - nor have I been depressed, which nearly all my doctors have dismissed my symptoms as. The symptom that bothers me the most is EXTREME fatigue though brain fog and constant shortness of breath don't thrill me either. Any exercise exacerbates these symptoms, and pushing through and doing it anyway completely wipes me out for about a week. I've also been dxed with severe sleep apnea, and use a c-pap for that. > > I believe I had arrhythmia as early as age 10 or 11, and sleep apnea for as long. Some of the things that trigger bad episodes now, made me feel faint, overheated, dizzy, etc as a child. Complaints were viewed as whining and were good for a scolding so I was more inclined to hide any symptoms I had. I remember episodes of brain fog too. > > I was put on Diltiazem in 2000, and was on it for about a year and a half, during which time I was unable to wake up on my own - I'd awaken, try to sit up, and fall asleep before I got that far. Not surprising, since I've always had low blood pressure! Brain fog was particularly bad during this period, so I was slow in insisting my prescription be changed. I can't remember what else I took -several things that sometimes helped a bit initially but all resulted in fatigue andreverting back to the same symptoms in short order. > > I had an ablation in 2001. It was not successful but I did learn I had five different versions of PSVTs. I was also told I had a really strong heart and to go home and stop worrying about it - just live with the symptoms and be glad it is nothing dangerous. At my next appointment with my regular cardiologist, she told me , told me that there wasn't really a reason to continue seeing her. I asked her who I should see, and she shrugged and said she had no idea. She thought perhaps someone who specializes in toxins, because she thought some sort of toxin exposure might have caused this. My primary doctor dismissed pursuing anything of that sort and my insurance wouldn't cover anything of this sort so that went nowhere. There is reason to suspect toxin exposure and also reason to consider a genetic link because my grandfather had a pacemaker at a time when that was quite rare. No one else in my family has had any sort of heart disease nor do I have any of the risk factors for it other than the fact that once I got really sick I stopped being active and gained weight. I was always on the thin side before. At no point did she suggest I see an electrophysiologist other than for the ablation, nor did he see any reason to continue seeing him or another. > > During my sleep study I had a bad episode of palpitations and so was sent to the ER, and consequently to an electrophysiologist. He only seemed interested in how often I fainted and what sorts of things made me faint. He wanted to do a tilt table test, which I thought was silly, since I can faint on command. I agreed, and then he kept canceling on me at the last moment, so I finally asked what he'd do if I did pass out, and he said tell me to eat salt. Okie dokie, salt it is. I've been taking salt tabs every summer since I was a child who was prone to heat prostration ( runs in my family - same side as the GF with a pacemaker) Evident ally we all have low BP. My kids both do too. We're like those fainting goats, ha ha. > > Since then, I've gobbled salt, continued to ask doctors for help with fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s but no solutions. > > Long story short, during a recent physical, an EKG showed AF in addition to PSVTs. In fact, it was so bad I was told it looked like the EKG of a person minutes away form a heart attack. This EKG was done the very last day that i had insurance with one company - so I had to immediately find another doctor and wait to get in to see her. This doctor did another EKG to make sure the AF wasn't a fluke. She asked a number of questions about family history, and then made me an appointment with an EP. I see him on Wednesday. > > I have really good blood work - not just cholesterol. but everything, except for some signs of inflammation and I often have a slightly elevated glucose, but never enough to cause alarm. This is very puzzling to people who find my EKG's alarming. > > BTW, I am currently taking an aspirin a day for the AF s per my new doctor. No telling what this EP will want to put me on - I am not enthusiastic about being a guinea pig for more meds. > > My hunch is the root of my problem is an inability to utilize minerals well. I told my new doctor this and she said surely I've had blood work done, and I said yes, and it looks good, but that only means it is in my blood, not that I am able to access it, right? I added that my dd and I share a rare from of migraine, and magnesium totally controls it. Also said I stated taking potassium for my heart and it seems to help a bit, but drinking electrolytes helps the most. She said there may be something to my theory but it is difficult to test for. > > Thanks for your patience and consideration in reading all of this. I'm curious to hear what others think might be going on. > > Laurel > > > > ------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Gracia, I will definitely check out those websites - thanks! I have asked doctors about adrenals but they rolled their eyes or just dismissed it. How do you get a doctor to take this seriously? Is it based on blood work that is abnormal? I have perfect bloodwork, which sounds wonderful but it has been a detterrant to getting help. Ccoupled with a crazy erratic EKG, they have me pegged as a stress-oholic. I tell them I don't smoke, drink, drive fast, and I've been happily married over 20 years. Out comes the trump card - how much coffee do I drink? I've never drunk coffee and caffeine in other forms doesn't affect me at all. My stress was in my childhood, which was extremely traumatic. I may well have burned up a lifetime of adrenals then but the experience taught me good coping skills and to deal with stress as it happens. The rheumotologist I saw just told me to get plenty or rest, and I think he is the one that put me on lexapro ( for anxiety). It didn't' help. One of your links has thyroid in the address. I was dxed with Hashimotos 16 years ago. I took Synthroid for 2-3 years and then was dropped on the grounds that my blood tests were normal. It took over a decade to find a doctor who would consider meds based on symptoms. She recently put me on Armour for a test run. I felt much better for two days and then completely tanked. That is when AF showed up on my EKG so I went off of it. My new doctor has tested my thyroid again - including doing free T3 and free T4 which almost no one does. Haven't gotten results yet of those and I don't know if she will want to put me back on Armour if the tests are normal. Thanks again, Laurel > > > > Hello All, > > > > I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial > > fibrillation after 10 years of being dxed with PSVT's and 20 with > > chronic fatigue/fibromyalgia ( depending on which doctor I saw). I > > never believed I had CF or Fibro - nor have I been depressed, which > > nearly all my doctors have dismissed my symptoms as. The symptom that > > bothers me the most is EXTREME fatigue though brain fog and constant > > shortness of breath don't thrill me either. Any exercise exacerbates > > these symptoms, and pushing through and doing it anyway completely > > wipes me out for about a week. I've also been dxed with severe sleep > > apnea, and use a c-pap for that. > > > > I believe I had arrhythmia as early as age 10 or 11, and sleep apnea > > for as long. Some of the things that trigger bad episodes now, made me > > feel faint, overheated, dizzy, etc as a child. Complaints were viewed > > as whining and were good for a scolding so I was more inclined to hide > > any symptoms I had. I remember episodes of brain fog too. > > > > I was put on Diltiazem in 2000, and was on it for about a year and a > > half, during which time I was unable to wake up on my own - I'd > > awaken, try to sit up, and fall asleep before I got that far. Not > > surprising, since I've always had low blood pressure! Brain fog was > > particularly bad during this period, so I was slow in insisting my > > prescription be changed. I can't remember what else I took -several > > things that sometimes helped a bit initially but all resulted in > > fatigue andreverting back to the same symptoms in short order. > > > > I had an ablation in 2001. It was not successful but I did learn I had > > five different versions of PSVTs. I was also told I had a really > > strong heart and to go home and stop worrying about it - just live > > with the symptoms and be glad it is nothing dangerous. At my next > > appointment with my regular cardiologist, she told me , told me that > > there wasn't really a reason to continue seeing her. I asked her who I > > should see, and she shrugged and said she had no idea. She thought > > perhaps someone who specializes in toxins, because she thought some > > sort of toxin exposure might have caused this. My primary doctor > > dismissed pursuing anything of that sort and my insurance wouldn't > > cover anything of this sort so that went nowhere. There is reason to > > suspect toxin exposure and also reason to consider a genetic link > > because my grandfather had a pacemaker at a time when that was quite > > rare. No one else in my family has had any sort of heart disease nor > > do I have any of the risk factors for it other than the fact that once > > I got really sick I stopped being active and gained weight. I was > > always on the thin side before. At no point did she suggest I see an > > electrophysiologist other than for the ablation, nor did he see any > > reason to continue seeing him or another. > > > > During my sleep study I had a bad episode of palpitations and so was > > sent to the ER, and consequently to an electrophysiologist. He only > > seemed interested in how often I fainted and what sorts of things made > > me faint. He wanted to do a tilt table test, which I thought was > > silly, since I can faint on command. I agreed, and then he kept > > canceling on me at the last moment, so I finally asked what he'd do if > > I did pass out, and he said tell me to eat salt. Okie dokie, salt it > > is. I've been taking salt tabs every summer since I was a child who > > was prone to heat prostration ( runs in my family - same side as the > > GF with a pacemaker) Evident ally we all have low BP. My kids both do > > too. We're like those fainting goats, ha ha. > > > > Since then, I've gobbled salt, continued to ask doctors for help with > > fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s > > but no solutions. > > > > Long story short, during a recent physical, an EKG showed AF in > > addition to PSVTs. In fact, it was so bad I was told it looked like > > the EKG of a person minutes away form a heart attack. This EKG was > > done the very last day that i had insurance with one company - so I > > had to immediately find another doctor and wait to get in to see her. > > This doctor did another EKG to make sure the AF wasn't a fluke. She > > asked a number of questions about family history, and then made me an > > appointment with an EP. I see him on Wednesday. > > > > I have really good blood work - not just cholesterol. but everything, > > except for some signs of inflammation and I often have a slightly > > elevated glucose, but never enough to cause alarm. This is very > > puzzling to people who find my EKG's alarming. > > > > BTW, I am currently taking an aspirin a day for the AF s per my new > > doctor. No telling what this EP will want to put me on - I am not > > enthusiastic about being a guinea pig for more meds. > > > > My hunch is the root of my problem is an inability to utilize minerals > > well. I told my new doctor this and she said surely I've had blood > > work done, and I said yes, and it looks good, but that only means it > > is in my blood, not that I am able to access it, right? I added that > > my dd and I share a rare from of migraine, and magnesium totally > > controls it. Also said I stated taking potassium for my heart and it > > seems to help a bit, but drinking electrolytes helps the most. She > > said there may be something to my theory but it is difficult to test for. > > > > Thanks for your patience and consideration in reading all of this. I'm > > curious to hear what others think might be going on. > > > > Laurel > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Many thanks to all who responded with such helpful information. Meredith, I use sea salt, but will look into improving the quality. I responded about Thyroid (have hashimotos, but now test normal - recent test of Armour based on symptoms made ahrrythmia worse worse). I've never had my adrenals tested. Dr West, my understanding is that warfarin is only prescribed to elderly patients ( ?) or if aspirin does not help (?). I really appreciate the heads up before I see the electrophysiologist tomorrow. I'm eager to read the articles and may print them out to take with me. Dr L, Regarding the list of adrenal symptoms - I do have nearly all of them, but have been told those are symptoms of a million other things too. I've never had any hair or saliva testing done. I was recently given the name of an OBGYN who uses Spectracell testing. Do you know anything about this? How would you make a request of a doctor who is pretty traditional? Do patients ever have the right to demand a test if a doctor says no? I was underweight most of my life and never overweight until recently - not being able to be active, eating for energy plus menopause are conducive to weight gain. Given that I was not overweight when this began, I don't think weight is a major factor. I have the usual stresses that come with parenting teens, elder care, and the usual life in the 21st century. I am good about not adding stress I can help and handle what I do have fairly well. My diet is decent-ish. I stick to the outside aisles of the grocery store (love simple rules like that!) and don't eat a lot of fast or prepared food. Exercise is a major frustration for my active family. I do have good home equipment and use it when I feel up to it, but as I said in my intro, a little activity wipes me out for days. I do stay hydrated (drink water filtered through my fridge - not otherwise purified). Never had serious digestive problems - just minor complaints. Test results for thyroid, liver, etc are good. I've never had parasite cleansing, but am curious about it, and again, I suggested testing several years ago and was dismissed. Considering my parents were archeologists, and I spent every summer living in tents with dirt floors, swimming in rivers ponds, lakes, etc, I certainly could have picked up something. I foster sick, abused and wild animals for the Humane Society and intestinal parasites are a constant. I also have a friend who hosted a sick little girl from Africa brought here for intensive parasite testing. I know from these things just how difficult to test for (and treat) many parasites are. I know there are 1000's of kinds and no one cure for all. That makes me a little skeptical about testing - how can it be thorough enough? In the US, we only test for a small percentage of the parasites people get world wide, but people travel her ( and we there) every day. I also know firsthand how treatment resistant some parasites are. Last fall I adopted a terrific kitten that could not cleared for general adoption because of her health. She came to me with coccidiosis and treatment resistant giardia. She's doing really well, but will likely never totally be cured of it, and it will flare and wane her whole life. My own symptoms have not changed since I started fostering, even though I've had plenty of exposure. Obviously I try to be careful about washing hands, etc. but... I will definitely read all the information you all sent and thanks so much. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Most traditional docs don't recognize adrenal disease until it is addisons. They don't recognize adrenal fatigue of which there are four phases. Some of your symptoms sounded adrenal to me low bp fainting etc. Dr L,s recommendation of cortisol saliva testing will help you tease this out. Some here take adrenal supps and some take hydrocortisone a med. Keep up with the salt Sent from my Verizon Wireless BlackBerry Re: Intro - atril fibrillation Many thanks to all who responded with such helpful information. Meredith, I use sea salt, but will look into improving the quality. I responded about Thyroid (have hashimotos, but now test normal - recent test of Armour based on symptoms made ahrrythmia worse worse). I've never had my adrenals tested. Dr West, my understanding is that warfarin is only prescribed to elderly patients ( ?) or if aspirin does not help (?). I really appreciate the heads up before I see the electrophysiologist tomorrow. I'm eager to read the articles and may print them out to take with me. Dr L, Regarding the list of adrenal symptoms - I do have nearly all of them, but have been told those are symptoms of a million other things too. I've never had any hair or saliva testing done. I was recently given the name of an OBGYN who uses Spectracell testing. Do you know anything about this? How would you make a request of a doctor who is pretty traditional? Do patients ever have the right to demand a test if a doctor says no? I was underweight most of my life and never overweight until recently - not being able to be active, eating for energy plus menopause are conducive to weight gain. Given that I was not overweight when this began, I don't think weight is a major factor. I have the usual stresses that come with parenting teens, elder care, and the usual life in the 21st century. I am good about not adding stress I can help and handle what I do have fairly well. My diet is decent-ish. I stick to the outside aisles of the grocery store (love simple rules like that!) and don't eat a lot of fast or prepared food. Exercise is a major frustration for my active family. I do have good home equipment and use it when I feel up to it, but as I said in my intro, a little activity wipes me out for days. I do stay hydrated (drink water filtered through my fridge - not otherwise purified). Never had serious digestive problems - just minor complaints. Test results for thyroid, liver, etc are good. I've never had parasite cleansing, but am curious about it, and again, I suggested testing several years ago and was dismissed. Considering my parents were archeologists, and I spent every summer living in tents with dirt floors, swimming in rivers ponds, lakes, etc, I certainly could have picked up something. I foster sick, abused and wild animals for the Humane Society and intestinal parasites are a constant. I also have a friend who hosted a sick little girl from Africa brought here for intensive parasite testing. I know from these things just how difficult to test for (and treat) many parasites are. I know there are 1000's of kinds and no one cure for all. That makes me a little skeptical about testing - how can it be thorough enough? In the US, we only test for a small percentage of the parasites people get world wide, but people travel her ( and we there) every day. I also know firsthand how treatment resistant some parasites are. Last fall I adopted a terrific kitten that could not cleared for general adoption because of her health. She came to me with coccidiosis and treatment resistant giardia. She's doing really well, but will likely never totally be cured of it, and it will flare and wane her whole life. My own symptoms have not changed since I started fostering, even though I've had plenty of exposure. Obviously I try to be careful about washing hands, etc. but... I will definitely read all the information you all sent and thanks so much. Laurel ------------------------------------ All off topic posts should go to the IodineOT group IodineOT/ Commonly asked questions: http://tinyurl.com/yhnds5e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Hi I would be surprised if your labs come back normal. As for adrenal testing. If your doc is testing the frees then it may be likely that if you ask for saliva cortisol testing they may do it. There are good online labs who can do this check the files and you just get the doc to sign the paperwork that comes with the test. Not sure labs attached to hospitals really do this. As for caffeine affecting you. As you move to later stages of adrenal fatigue you may not see the same symptoms you one had. They adapt but not forever and some thyroid symptoms mirror adrenal symptoms. Good luck. Let us know how it goes Meredith Sent from my Verizon Wireless BlackBerry Re: Intro - atril fibrillation Gracia, I will definitely check out those websites - thanks! I have asked doctors about adrenals but they rolled their eyes or just dismissed it. How do you get a doctor to take this seriously? Is it based on blood work that is abnormal? I have perfect bloodwork, which sounds wonderful but it has been a detterrant to getting help. Ccoupled with a crazy erratic EKG, they have me pegged as a stress-oholic. I tell them I don't smoke, drink, drive fast, and I've been happily married over 20 years. Out comes the trump card - how much coffee do I drink? I've never drunk coffee and caffeine in other forms doesn't affect me at all. My stress was in my childhood, which was extremely traumatic. I may well have burned up a lifetime of adrenals then but the experience taught me good coping skills and to deal with stress as it happens. The rheumotologist I saw just told me to get plenty or rest, and I think he is the one that put me on lexapro ( for anxiety). It didn't' help. One of your links has thyroid in the address. I was dxed with Hashimotos 16 years ago. I took Synthroid for 2-3 years and then was dropped on the grounds that my blood tests were normal. It took over a decade to find a doctor who would consider meds based on symptoms. She recently put me on Armour for a test run. I felt much better for two days and then completely tanked. That is when AF showed up on my EKG so I went off of it. My new doctor has tested my thyroid again - including doing free T3 and free T4 which almost no one does. Haven't gotten results yet of those and I don't know if she will want to put me back on Armour if the tests are normal. Thanks again, Laurel > > > > Hello All, > > > > I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial > > fibrillation after 10 years of being dxed with PSVT's and 20 with > > chronic fatigue/fibromyalgia ( depending on which doctor I saw). I > > never believed I had CF or Fibro - nor have I been depressed, which > > nearly all my doctors have dismissed my symptoms as. The symptom that > > bothers me the most is EXTREME fatigue though brain fog and constant > > shortness of breath don't thrill me either. Any exercise exacerbates > > these symptoms, and pushing through and doing it anyway completely > > wipes me out for about a week. I've also been dxed with severe sleep > > apnea, and use a c-pap for that. > > > > I believe I had arrhythmia as early as age 10 or 11, and sleep apnea > > for as long. Some of the things that trigger bad episodes now, made me > > feel faint, overheated, dizzy, etc as a child. Complaints were viewed > > as whining and were good for a scolding so I was more inclined to hide > > any symptoms I had. I remember episodes of brain fog too. > > > > I was put on Diltiazem in 2000, and was on it for about a year and a > > half, during which time I was unable to wake up on my own - I'd > > awaken, try to sit up, and fall asleep before I got that far. Not > > surprising, since I've always had low blood pressure! Brain fog was > > particularly bad during this period, so I was slow in insisting my > > prescription be changed. I can't remember what else I took -several > > things that sometimes helped a bit initially but all resulted in > > fatigue andreverting back to the same symptoms in short order. > > > > I had an ablation in 2001. It was not successful but I did learn I had > > five different versions of PSVTs. I was also told I had a really > > strong heart and to go home and stop worrying about it - just live > > with the symptoms and be glad it is nothing dangerous. At my next > > appointment with my regular cardiologist, she told me , told me that > > there wasn't really a reason to continue seeing her. I asked her who I > > should see, and she shrugged and said she had no idea. She thought > > perhaps someone who specializes in toxins, because she thought some > > sort of toxin exposure might have caused this. My primary doctor > > dismissed pursuing anything of that sort and my insurance wouldn't > > cover anything of this sort so that went nowhere. There is reason to > > suspect toxin exposure and also reason to consider a genetic link > > because my grandfather had a pacemaker at a time when that was quite > > rare. No one else in my family has had any sort of heart disease nor > > do I have any of the risk factors for it other than the fact that once > > I got really sick I stopped being active and gained weight. I was > > always on the thin side before. At no point did she suggest I see an > > electrophysiologist other than for the ablation, nor did he see any > > reason to continue seeing him or another. > > > > During my sleep study I had a bad episode of palpitations and so was > > sent to the ER, and consequently to an electrophysiologist. He only > > seemed interested in how often I fainted and what sorts of things made > > me faint. He wanted to do a tilt table test, which I thought was > > silly, since I can faint on command. I agreed, and then he kept > > canceling on me at the last moment, so I finally asked what he'd do if > > I did pass out, and he said tell me to eat salt. Okie dokie, salt it > > is. I've been taking salt tabs every summer since I was a child who > > was prone to heat prostration ( runs in my family - same side as the > > GF with a pacemaker) Evident ally we all have low BP. My kids both do > > too. We're like those fainting goats, ha ha. > > > > Since then, I've gobbled salt, continued to ask doctors for help with > > fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s > > but no solutions. > > > > Long story short, during a recent physical, an EKG showed AF in > > addition to PSVTs. In fact, it was so bad I was told it looked like > > the EKG of a person minutes away form a heart attack. This EKG was > > done the very last day that i had insurance with one company - so I > > had to immediately find another doctor and wait to get in to see her. > > This doctor did another EKG to make sure the AF wasn't a fluke. She > > asked a number of questions about family history, and then made me an > > appointment with an EP. I see him on Wednesday. > > > > I have really good blood work - not just cholesterol. but everything, > > except for some signs of inflammation and I often have a slightly > > elevated glucose, but never enough to cause alarm. This is very > > puzzling to people who find my EKG's alarming. > > > > BTW, I am currently taking an aspirin a day for the AF s per my new > > doctor. No telling what this EP will want to put me on - I am not > > enthusiastic about being a guinea pig for more meds. > > > > My hunch is the root of my problem is an inability to utilize minerals > > well. I told my new doctor this and she said surely I've had blood > > work done, and I said yes, and it looks good, but that only means it > > is in my blood, not that I am able to access it, right? I added that > > my dd and I share a rare from of migraine, and magnesium totally > > controls it. Also said I stated taking potassium for my heart and it > > seems to help a bit, but drinking electrolytes helps the most. She > > said there may be something to my theory but it is difficult to test for. > > > > Thanks for your patience and consideration in reading all of this. I'm > > curious to hear what others think might be going on. > > > > Laurel > > > > > ------------------------------------ All off topic posts should go to the IodineOT group IodineOT/ Commonly asked questions: http://tinyurl.com/yhnds5e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 You probably tanked because the Armour put too much stress on your adrenals. It clearly states on the information included with ANY thyroid med that adrenal function should be checked prior to beginning any thyroid therapy. There are a number of things you can do to help support your adrenals while helping your thyroid. Supplements like Pantothenic Acid (1500mg), a good B complex (I use Now B50 2 per day), Inositol (1000 mg), zinc (50mg), celtic sea salt (although you want to monitor your blood pressure), and a good adrenal supplement (I like RLC Adrenal Support). Get plenty of rest and limit any stress in your life. Even little things that would normally be stress-less can be stressful for someone with adrenal fatigue. I am now taking a small amount of HC, and it has made all the difference in the world. I would suggest reading Dr. 's book on adrenal fatigue. He actually lists certain foods to avoid and those that help. Caffeine (even in small amounts) and alcohol are absolute no-no's for anyone with adrenal fatigue. Good luck to you! > > > > > > Hello All, > > > > > > I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial > > > fibrillation after 10 years of being dxed with PSVT's and 20 with > > > chronic fatigue/fibromyalgia ( depending on which doctor I saw). I > > > never believed I had CF or Fibro - nor have I been depressed, which > > > nearly all my doctors have dismissed my symptoms as. The symptom that > > > bothers me the most is EXTREME fatigue though brain fog and constant > > > shortness of breath don't thrill me either. Any exercise exacerbates > > > these symptoms, and pushing through and doing it anyway completely > > > wipes me out for about a week. I've also been dxed with severe sleep > > > apnea, and use a c-pap for that. > > > > > > I believe I had arrhythmia as early as age 10 or 11, and sleep apnea > > > for as long. Some of the things that trigger bad episodes now, made me > > > feel faint, overheated, dizzy, etc as a child. Complaints were viewed > > > as whining and were good for a scolding so I was more inclined to hide > > > any symptoms I had. I remember episodes of brain fog too. > > > > > > I was put on Diltiazem in 2000, and was on it for about a year and a > > > half, during which time I was unable to wake up on my own - I'd > > > awaken, try to sit up, and fall asleep before I got that far. Not > > > surprising, since I've always had low blood pressure! Brain fog was > > > particularly bad during this period, so I was slow in insisting my > > > prescription be changed. I can't remember what else I took -several > > > things that sometimes helped a bit initially but all resulted in > > > fatigue andreverting back to the same symptoms in short order. > > > > > > I had an ablation in 2001. It was not successful but I did learn I had > > > five different versions of PSVTs. I was also told I had a really > > > strong heart and to go home and stop worrying about it - just live > > > with the symptoms and be glad it is nothing dangerous. At my next > > > appointment with my regular cardiologist, she told me , told me that > > > there wasn't really a reason to continue seeing her. I asked her who I > > > should see, and she shrugged and said she had no idea. She thought > > > perhaps someone who specializes in toxins, because she thought some > > > sort of toxin exposure might have caused this. My primary doctor > > > dismissed pursuing anything of that sort and my insurance wouldn't > > > cover anything of this sort so that went nowhere. There is reason to > > > suspect toxin exposure and also reason to consider a genetic link > > > because my grandfather had a pacemaker at a time when that was quite > > > rare. No one else in my family has had any sort of heart disease nor > > > do I have any of the risk factors for it other than the fact that once > > > I got really sick I stopped being active and gained weight. I was > > > always on the thin side before. At no point did she suggest I see an > > > electrophysiologist other than for the ablation, nor did he see any > > > reason to continue seeing him or another. > > > > > > During my sleep study I had a bad episode of palpitations and so was > > > sent to the ER, and consequently to an electrophysiologist. He only > > > seemed interested in how often I fainted and what sorts of things made > > > me faint. He wanted to do a tilt table test, which I thought was > > > silly, since I can faint on command. I agreed, and then he kept > > > canceling on me at the last moment, so I finally asked what he'd do if > > > I did pass out, and he said tell me to eat salt. Okie dokie, salt it > > > is. I've been taking salt tabs every summer since I was a child who > > > was prone to heat prostration ( runs in my family - same side as the > > > GF with a pacemaker) Evident ally we all have low BP. My kids both do > > > too. We're like those fainting goats, ha ha. > > > > > > Since then, I've gobbled salt, continued to ask doctors for help with > > > fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s > > > but no solutions. > > > > > > Long story short, during a recent physical, an EKG showed AF in > > > addition to PSVTs. In fact, it was so bad I was told it looked like > > > the EKG of a person minutes away form a heart attack. This EKG was > > > done the very last day that i had insurance with one company - so I > > > had to immediately find another doctor and wait to get in to see her. > > > This doctor did another EKG to make sure the AF wasn't a fluke. She > > > asked a number of questions about family history, and then made me an > > > appointment with an EP. I see him on Wednesday. > > > > > > I have really good blood work - not just cholesterol. but everything, > > > except for some signs of inflammation and I often have a slightly > > > elevated glucose, but never enough to cause alarm. This is very > > > puzzling to people who find my EKG's alarming. > > > > > > BTW, I am currently taking an aspirin a day for the AF s per my new > > > doctor. No telling what this EP will want to put me on - I am not > > > enthusiastic about being a guinea pig for more meds. > > > > > > My hunch is the root of my problem is an inability to utilize minerals > > > well. I told my new doctor this and she said surely I've had blood > > > work done, and I said yes, and it looks good, but that only means it > > > is in my blood, not that I am able to access it, right? I added that > > > my dd and I share a rare from of migraine, and magnesium totally > > > controls it. Also said I stated taking potassium for my heart and it > > > seems to help a bit, but drinking electrolytes helps the most. She > > > said there may be something to my theory but it is difficult to test for. > > > > > > Thanks for your patience and consideration in reading all of this. I'm > > > curious to hear what others think might be going on. > > > > > > Laurel > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Wow, I practically checked off every symptom :| I just started taking Sub Adrene (adrenal cortex extract 20mg). Would you recommend something else or dropping off that or what? > > Have you saliva tested your hormones? Estrogen, progesterone, testosterone, > DHEA and cortisol 4x. If not, I would highly suggest this. Sometimes > cardiovascular disorders are because of unbalanced hormone levels. This is > especially seen in peri-menopausal and menopausal women. Are you > over-weight? What is your diet like? Exercise? Stress levels (adrenal > fatigue)? Pure water consumption? Digestive Track, Liver/Gallbladder, > Parasite cleansing? > > Signs and Symptoms of Adrenal Fatigue > > Tendency to gain weight and unable to lose it, especially around the waist. > High frequency of getting the flu and other respiratory diseases and these > symptoms tend to last longer than usual. > Tendency to tremble when under pressure. > Reduced sex drive. > Lightheaded when rising from a horizontal position. > Unable to remember things. > Lack of energy in the mornings and in the afternoon between 3 to 5 pm. > Feel better suddenly for a brief period after a meal. > Often feel tired from 9 - 10 pm, but resist going to bed. > Need coffee or stimulants to get going in the morning. > Cravings for salty, fatty, and high protein food such as meat and cheese. > Increased symptoms of PMS for women; periods are heavy and then stop, or are > almost stopped on the 4th day, only to start flow again on the 5th or 6th > day. > Pain in the upper back or neck with no apparent reason. > Feels better when stress is relieved, such as on a vacation. > Difficulties in getting up in the morning. > Lightheaded. > > > Other signs and symptoms include: > > > Mild depression > Food and or inhalant allergies > Lethargy and lack of energy > Increased effort to perform daily tasks > Decreased ability to handle stress > Dry and thin skin > Hypoglycemia > Low body temperature > Nervousness > Palpitation > Unexplained hair loss > Alternating constipation and diarrhea > Dyspepsia > > Many times docs will give a diagnosis of fibro/cf or depression when they > cannot come up with a sure-fire diagnosis. In the case of hormone imbalance > much of the time the doc will prescribe a anti-depressant and send the > patient on their way. Why? Because the symptoms didn't fit into any of the > doctor's diagnosis boxes so surely the patient is depressed or everything is > " in their mind. " You are wise to step-out-of-the-box and do your own > research. > > Be Well > Dr.L > > > Intro - atril fibrillation > > Hello All, > > I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial > fibrillation after 10 years of being dxed with PSVT's and 20 with chronic > fatigue/fibromyalgia ( depending on which doctor I saw). I never believed I > had CF or Fibro - nor have I been depressed, which nearly all my doctors > have dismissed my symptoms as. The symptom that bothers me the most is > EXTREME fatigue though brain fog and constant shortness of breath don't > thrill me either. Any exercise exacerbates these symptoms, and pushing > through and doing it anyway completely wipes me out for about a week. I've > also been dxed with severe sleep apnea, and use a c-pap for that. > > I believe I had arrhythmia as early as age 10 or 11, and sleep apnea for as > long. Some of the things that trigger bad episodes now, made me feel faint, > overheated, dizzy, etc as a child. Complaints were viewed as whining and > were good for a scolding so I was more inclined to hide any symptoms I had. > I remember episodes of brain fog too. > > I was put on Diltiazem in 2000, and was on it for about a year and a half, > during which time I was unable to wake up on my own - I'd awaken, try to sit > up, and fall asleep before I got that far. Not surprising, since I've always > had low blood pressure! Brain fog was particularly bad during this period, > so I was slow in insisting my prescription be changed. I can't remember what > else I took -several things that sometimes helped a bit initially but all > resulted in fatigue andreverting back to the same symptoms in short order. > > I had an ablation in 2001. It was not successful but I did learn I had five > different versions of PSVTs. I was also told I had a really strong heart and > to go home and stop worrying about it - just live with the symptoms and be > glad it is nothing dangerous. At my next appointment with my regular > cardiologist, she told me , told me that there wasn't really a reason to > continue seeing her. I asked her who I should see, and she shrugged and said > she had no idea. She thought perhaps someone who specializes in toxins, > because she thought some sort of toxin exposure might have caused this. My > primary doctor dismissed pursuing anything of that sort and my insurance > wouldn't cover anything of this sort so that went nowhere. There is reason > to suspect toxin exposure and also reason to consider a genetic link because > my grandfather had a pacemaker at a time when that was quite rare. No one > else in my family has had any sort of heart disease nor do I have any of the > risk factors for it other than the fact that once I got really sick I > stopped being active and gained weight. I was always on the thin side > before. At no point did she suggest I see an electrophysiologist other than > for the ablation, nor did he see any reason to continue seeing him or > another. > > During my sleep study I had a bad episode of palpitations and so was sent to > the ER, and consequently to an electrophysiologist. He only seemed > interested in how often I fainted and what sorts of things made me faint. He > wanted to do a tilt table test, which I thought was silly, since I can faint > on command. I agreed, and then he kept canceling on me at the last moment, > so I finally asked what he'd do if I did pass out, and he said tell me to > eat salt. Okie dokie, salt it is. I've been taking salt tabs every summer > since I was a child who was prone to heat prostration ( runs in my family - > same side as the GF with a pacemaker) Evident ally we all have low BP. My > kids both do too. We're like those fainting goats, ha ha. > > Since then, I've gobbled salt, continued to ask doctors for help with > fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s but no > solutions. > > Long story short, during a recent physical, an EKG showed AF in addition to > PSVTs. In fact, it was so bad I was told it looked like the EKG of a person > minutes away form a heart attack. This EKG was done the very last day that i > had insurance with one company - so I had to immediately find another doctor > and wait to get in to see her. This doctor did another EKG to make sure the > AF wasn't a fluke. She asked a number of questions about family history, and > then made me an appointment with an EP. I see him on Wednesday. > > I have really good blood work - not just cholesterol. but everything, except > for some signs of inflammation and I often have a slightly elevated glucose, > but never enough to cause alarm. This is very puzzling to people who find my > EKG's alarming. > > BTW, I am currently taking an aspirin a day for the AF s per my new doctor. > No telling what this EP will want to put me on - I am not enthusiastic about > being a guinea pig for more meds. > > My hunch is the root of my problem is an inability to utilize minerals well. > I told my new doctor this and she said surely I've had blood work done, and > I said yes, and it looks good, but that only means it is in my blood, not > that I am able to access it, right? I added that my dd and I share a rare > from of migraine, and magnesium totally controls it. Also said I stated > taking potassium for my heart and it seems to help a bit, but drinking > electrolytes helps the most. She said there may be something to my theory > but it is difficult to test for. > > Thanks for your patience and consideration in reading all of this. I'm > curious to hear what others think might be going on. > > Laurel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 Sorry for the late response. It's been a busy week. I saw the new electophysiologist on Wednesday. My EKG looked better than I have ever seen it. I told the doctor I was taking potassium and he asked if I was taking magnesium and calcium too and I said yes. He said that could definitely be helping my heart rhythm. He did show me some abnormal beats and said they are typically caused by a hole between the two upper chambers of the heart. He said they could do an echo cardiogram and inject a saline solution in my arm, which would create bubbles when it got to my heart If the bubbles pass through to the other chamber it means the hole is big enough to need patching. I agreed and they were able to schedule it for that afternoon so I went and had lunch and then did that. There were no bubbles and my heart looks as healthy as it did when I had a lot of tests and an ablation 9 years ago. so I was given a prescription for Flecainide and sent on my merry way. When I got home I looked up flecainide, saw all the side effects, and thought - I don't think so. Not at this point anyway. I want to explore this mineral and iodine thing a bit more. My blood work all came back just fine. This includes thyroid ( including free t3 and t4) and cortosol. So my next move will be to look into improving the mineral absorption issues and exploring iodine further. My conscious palpitations are now almost gone - meaning I have daily episodes but small ones as compared to a constant rollicking in my chest. My energy is - while not terrific, improved. I had a couple nights of little sleep due to a new foster ( I work for the Humane Society) - a duckling with severe separation anxiety. But she's settled in now and let me sleep last night, so we'll see how I feel once I catch up. I am my county's only foster for unusual species and medically fragile kittens, so I do lose sleep due to sitting up with one or another sometimes. I'm actively looking for someone who can take up the slack as I do think this affects my health. OTOH, this line of work has healing properties too :-) I'm at the point where I'm not convinced I do have a thyroid condition. Does anyone want to convince me otherwise? I do want to pursue the saliva testing, and some other things and see if I can improve things enough to get active again. Once I am active I will be able to lose weight and that should in turn improve things. Comments? Thanks so very much for all your helpful advice. I'd never have considered iodine had i not stumbled upon this group. I am grateful to have one more avenue to explore as I regard each possibility as hope. I still have much to mull over but will take my time and do it a step at a time so as not to miss anythng. Laurel > > Laurel > my personal/medical history is just like yours! I had a partial > thyroidectomy at age 22 and then no meds for 30 years b/c of " normal " > TSH. > you know AF can stand for atrial fib or adrenal fatigue! A-fib=adrenal > fatigue. this doc sounds maybe a little bit open to treating adrenals, > which would then allow you to take enough iodine and Armour. you can > learn about adrenals and testing at http://www.stopthethyroidmadness.com > let us know what happens, > Gracia > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 I TOTALLY agree that it looks like an adrenal gland issue. Classic symptoms. It is important that you not just take a one time morning cortisol blood test, (which is common for GP's to do) but that you get them to do a cortisol test that draws in the morning, the afternoon, and perhaps later in the evening. so you can see the diurnal pattern. Also take the 24 hour urine test and the ACTH test. These are the most important tests. If they won't give you the tests, or give you a referral to an endocrinologist, I'm pretty sure you can get the 24 hour saliva cortisol test online and perform it at home.That is at least a start and if it comes back abnormal you have some ammo for an endo referral. Calcified adrenals will show on an ultrasound, but normal adrenals would not. Infections around the kidneys, like pylonephritis, can damage the adrenal glands and cause problems. CT scans are sometimes used for further evaluation. If you are using salt- use the Himalayan salt. Magnesium, iodine, vit E, B5, Vit C, all support the adrenals. By all means, get rid of all man made oils like canola, vegetable, safflower, corn, etc. and substitute them for: raw virgin coconut oil and some olive oil. These oils have essential fatty acids that are converted to pregnenolone, the precursor to all other hormones...like cortisol and many others. Ashwaganda may help level out blood pressure problems or other imbalances. Licorice root can also assist in some adrenal issues, especially for your kind of symptoms. Some people would take 5 drops of extract at 11am, 5 pm, 10pm, ....but people need to be very careful of taking herbs that affect/mimic hormones. it should only be done under doctor supervision, because you can swing your hormones too far in the other direction - and then you still have an adrenal problem on your hands. On a side note, vitamin D supps are common and popular, but they act as a hormone. It is structurally similar to testosterone, cholesterol, and cortisol. Steroidal D3 keeps T3 out of the binding pocket, which appears to create autoimmune issues. Steroidal D2 competes with D3 for VDR receptors. high vit D levels will exacerbate magnesium deficiency, calcium deposits, calcifies cardiovascular system, lung, kidney, and CNS. Since calcified organs can be an issue in adrenal fatigue, avoidance of vit D supps is my personal choice. I even avoid vit D milk , and use half and half instead. Gail B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 Lots of good info. Thanks. One concern... If someone high BP and is taking meds for it, Licorice can cause the blood pressure to rise higher. That happened to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 Hello Laurel, I just read your whole thread. I so identify with much of what is true for you. At age 32 was on Lanoxin for tachycardia for 2 years until I got into therapy to deal with childhood issues. I have been diagnosed with fibromyalgia 15 years ago. 15 years before that I was so completely exhausted and burned out, absolutely no energy left. I felt like my body was shutting down. I had to leave my family to " save " myself, because I knew I was either going to end up extremely sick, in the psych ward or dead. The marriage was not good, no support, had no way to explain myself, everyone thought it was all stress. I went along with that theory. Did not have the ability to be a stong mother to two teens. Being separated from my kids nearly did me in. Then for the next 15 years was considered to be in low grade depression. Anti-depressants did nothing but flat-line my emotions. Finally a new chiropractor came to town who practiced from the nutritional perspective. She first diagnosed fibro, followed her recoms and supps, helped some. About 10 yr ago diagnosed with low thyroid, adrenals never checked at that time. I have had a GP who was willing to work with me in finding tx. Ordering lab tests I wanted (I am a former med technologist). Menopause was a nightmare, took bioidentical compounded hormones for 10 years. Brain fog, low energy. Limped along sub par not achieving life goals. Living on supps to keep me going. 6 years ago had three shoulder surgeries ... artifical ball in right arm. Loss full arm function. 2.5 years ago learned about adrenal fatigue, read 's book, has saliva tests through Diagnostech... yes, severe adrenal fatigue, no adrenal reserves. I was in the catabolic state of muscle breakdown. My guess, caused rotator cuff surgeries to not be successful. Blood tests, blood cortisol (done in a.m. when I had the lowest saliva cortisol) and ACTH, all normal. Followed 's protocol for a year and a half, until now. Celtic salt in a.m. helps. Got some help with his specific recommendations, but definitely not functioning up to par. Did iodine " cleanse " for several months. Did not really help. 1.5 years ago realized I was gluten intolerant. Hashimotos diagnosed at that time. Gluten, dairy, soy free. 6 weeks ago diag with RA. Learned about LDN. Found a holistic doctor who prescribes LDN in SE WI, 5 hours away. Saw him first time last week. Very thorough and different assessments and evaluation. His greatest concern was all the mercury in my mouth. 13 crowns and 5 root canals. I think I had celiac as a child and my teeth never formed correctly. Cannot afford to have that work redone. I'm guessing it all started with hidden celiac, setting the body up for auto-immune diseases, and mercury toxin mix. Now 100% gluten free, dairy and soy free(causes inflammed joints)and now nightshade, sugar, caffiene, etc. free. I am on a mercury detox, 20 mg hydrocortisone, LDN, yeast detox and bacterial treatment, 50 mg iodine, compounded Armour thyroid, pure chorella, magnesium oil, homoepathic,plus others. Walking, rebounder, mediation, relaxation all a part of tx plan. Eating organic when possible, only olive oil. My holistic doctor thought I have not been getting the benefit of supps that are caplets, not breaking down properly. I am hopeful, but it will take take time to regain at least enough health to feel functional. I have never had an ultasound or CT scan of my adrenals. Neg adrenal AB test. The good part is I have been on an incredible spiritual journey to see me through all of this. And have had some amazing training, but have not been able to carry through and use this as much as I would have liked. You can get an online saliva test. ZRT labs are good for this. There are some chiropractors and ND's that work with saliva testing. Allopathic docs don't use it, even though the astronauts check the impact of their levels of stess through saliva testing on board the space station. I share my story if any part of it might help you Laurel. Gail's info regarding Vit D supps is new to me. I hope she will pass on her source of info. To finding greater health! > > > Hello All, > > > > I'm a 56 yo woman, living near Atlanta. I have a new dx of atrial fibrillation after 10 years of being dxed with PSVT's and 20 with chronic fatigue/fibromyalgia ( depending on which doctor I saw). I never believed I had CF or Fibro - nor have I been depressed, which nearly all my doctors have dismissed my symptoms as. The symptom that bothers me the most is EXTREME fatigue though brain fog and constant shortness of breath don't thrill me either. Any exercise exacerbates these symptoms, and pushing through and doing it anyway completely wipes me out for about a week. I've also been dxed with severe sleep apnea, and use a c-pap for that. > > > > I believe I had arrhythmia as early as age 10 or 11, and sleep apnea for as long. Some of the things that trigger bad episodes now, made me feel faint, overheated, dizzy, etc as a child. Complaints were viewed as whining and were good for a scolding so I was more inclined to hide any symptoms I had. I remember episodes of brain fog too. > > > > I was put on Diltiazem in 2000, and was on it for about a year and a half, during which time I was unable to wake up on my own - I'd awaken, try to sit up, and fall asleep before I got that far. Not surprising, since I've always had low blood pressure! Brain fog was particularly bad during this period, so I was slow in insisting my prescription be changed. I can't remember what else I took -several things that sometimes helped a bit initially but all resulted in fatigue andreverting back to the same symptoms in short order. > > > > I had an ablation in 2001. It was not successful but I did learn I had five different versions of PSVTs. I was also told I had a really strong heart and to go home and stop worrying about it - just live with the symptoms and be glad it is nothing dangerous. At my next appointment with my regular cardiologist, she told me , told me that there wasn't really a reason to continue seeing her. I asked her who I should see, and she shrugged and said she had no idea. She thought perhaps someone who specializes in toxins, because she thought some sort of toxin exposure might have caused this. My primary doctor dismissed pursuing anything of that sort and my insurance wouldn't cover anything of this sort so that went nowhere. There is reason to suspect toxin exposure and also reason to consider a genetic link because my grandfather had a pacemaker at a time when that was quite rare. No one else in my family has had any sort of heart disease nor do I have any of the risk factors for it other than the fact that once I got really sick I stopped being active and gained weight. I was always on the thin side before. At no point did she suggest I see an electrophysiologist other than for the ablation, nor did he see any reason to continue seeing him or another. > > > > During my sleep study I had a bad episode of palpitations and so was sent to the ER, and consequently to an electrophysiologist. He only seemed interested in how often I fainted and what sorts of things made me faint. He wanted to do a tilt table test, which I thought was silly, since I can faint on command. I agreed, and then he kept canceling on me at the last moment, so I finally asked what he'd do if I did pass out, and he said tell me to eat salt. Okie dokie, salt it is. I've been taking salt tabs every summer since I was a child who was prone to heat prostration ( runs in my family - same side as the GF with a pacemaker) Evident ally we all have low BP. My kids both do too. We're like those fainting goats, ha ha. > > > > Since then, I've gobbled salt, continued to ask doctors for help with fatigue, and had numerous EKG,s which always illicit big " Oh, My! " s but no solutions. > > > > Long story short, during a recent physical, an EKG showed AF in addition to PSVTs. In fact, it was so bad I was told it looked like the EKG of a person minutes away form a heart attack. This EKG was done the very last day that i had insurance with one company - so I had to immediately find another doctor and wait to get in to see her. This doctor did another EKG to make sure the AF wasn't a fluke. She asked a number of questions about family history, and then made me an appointment with an EP. I see him on Wednesday. > > > > I have really good blood work - not just cholesterol. but everything, except for some signs of inflammation and I often have a slightly elevated glucose, but never enough to cause alarm. This is very puzzling to people who find my EKG's alarming. > > > > BTW, I am currently taking an aspirin a day for the AF s per my new doctor. No telling what this EP will want to put me on - I am not enthusiastic about being a guinea pig for more meds. > > > > My hunch is the root of my problem is an inability to utilize minerals well. I told my new doctor this and she said surely I've had blood work done, and I said yes, and it looks good, but that only means it is in my blood, not that I am able to access it, right? I added that my dd and I share a rare from of migraine, and magnesium totally controls it. Also said I stated taking potassium for my heart and it seems to help a bit, but drinking electrolytes helps the most. She said there may be something to my theory but it is difficult to test for. > > > > Thanks for your patience and consideration in reading all of this. I'm curious to hear what others think might be going on. > > > > Laurel > > > > > > > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 have you looked at http://www.fibromyalgiarecovery.com ? Gracia ldkirch wrote: > > > Hello Laurel > > She first diagnosed fibro, followed her recoms and supps, helped some. > that are caplets, not breaking down properly. I am hopeful, but it > will take take time to regain at least enough health to feel > functional. I have never had an ultasound or CT scan of my adrenals. > Neg adrenal AB test. The good part is I have been on an incredible > spiritual journey to see me through all of this. And have had some > amazing training, but have not been able to carry through and use this > as much as I would have liked. > > You can get an online saliva test. ZRT labs are good for this. There > are some chiropractors and ND's that work with saliva testing. > Allopathic docs don't use it, even though the astronauts check the > impact of their levels of stess through saliva testing on board the > space station. > > I share my story if any part of it might help you Laurel. Gail's info > regarding Vit D supps is new to me. I hope she will pass on her source > of info. > > To finding greater health! > > > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 Thanks Gracia, I was not aware of that updated website until last night. I have now read most of it. I had been following all the FMS info since being diagnosed until recent years and let a lot of it go. I chose to not go the allopathic route, did not see anyone get better with strong drugs. Have always taken high quality supps including magnesium and manganese and malic acid (fibroplex), EPA/DHA, grind my own flaxseed, and cook all my food from scratch. I have done most of what was suggested except guifasen. Intuitively I was not drawn to it. 14 years ago I helped set up a support group to look at Tx outside of the usual AMA recommedations. I did an iodine " cleanse " program, taking 4 Iodoral per day for several months, about 4 years ago when Brownstein and Abrahamson were the only ones talking about it. No significant difference. I see it is a differnt program now. I was surprised to see all the fibro docs now touting it too. It must have merit. In the past have done a complete yeast program with caprylic alc, etc. I hear Teitlebaum will be addressing LDN in his next newsletter. Everything I have tried has helped 5-10%, so that is progress. But/and ..... I still take 25 mg Iodoral as it alleviates feet, legs, and hand cramps, plus fibrous breast tissue has softened. I have had lots of massage, a year of myofacial release, rolfing, energy work, etc. all helping only temporarily. What I am looking for is, has the new iodine protocol made a differnce for anyone with Hashimotos thyroid disease? It did not change any of my lab values (or energy level) at that time and now my antibody levels keep rising. I read somewhere being cautioned to not take iodine with Hashimotos ... any comments regarding that would be welcome. So much info to sort through. > > > > > > Hello Laurel > > > > > She first diagnosed fibro, followed her recoms and supps, helped some. > > that are caplets, not breaking down properly. I am hopeful, but it > > will take take time to regain at least enough health to feel > > functional. I have never had an ultasound or CT scan of my adrenals. > > Neg adrenal AB test. The good part is I have been on an incredible > > spiritual journey to see me through all of this. And have had some > > amazing training, but have not been able to carry through and use this > > as much as I would have liked. > > > > You can get an online saliva test. ZRT labs are good for this. There > > are some chiropractors and ND's that work with saliva testing. > > Allopathic docs don't use it, even though the astronauts check the > > impact of their levels of stess through saliva testing on board the > > space station. > > > > I share my story if any part of it might help you Laurel. Gail's info > > regarding Vit D supps is new to me. I hope she will pass on her source > > of info. > > > > To finding greater health! > > > > > > - > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 for fibro look at this research http://snapl.stanford.edu/research/ldn.html now phase 2 was finished. ldn helps also hashimoto On Sat, May 8, 2010 at 12:31 AM, ldkirch <lindakcoach@...> wrote: Thanks Gracia,I was not aware of that updated website until last night. I have now read most of it. I had been following all the FMS info since being diagnosed until recent years and let a lot of it go. I chose to not go the allopathic route, did not see anyone get better with strong drugs. Have always taken high quality supps including magnesium and manganese and malic acid (fibroplex), EPA/DHA, grind my own flaxseed, and cook all my food from scratch. I have done most of what was suggested except guifasen. Intuitively I was not drawn to it. 14 years ago I helped set up a support group to look at Tx outside of the usual AMA recommedations. I did an iodine " cleanse " program, taking 4 Iodoral per day for several months, about 4 years ago when Brownstein and Abrahamson were the only ones talking about it. No significant difference. I see it is a differnt program now. I was surprised to see all the fibro docs now touting it too. It must have merit. In the past have done a complete yeast program with caprylic alc, etc. I hear Teitlebaum will be addressing LDN in his next newsletter. Everything I have tried has helped 5-10%, so that is progress. But/and ..... I still take 25 mg Iodoral as it alleviates feet, legs, and hand cramps, plus fibrous breast tissue has softened. I have had lots of massage, a year of myofacial release, rolfing, energy work, etc. all helping only temporarily. What I am looking for is, has the new iodine protocol made a differnce for anyone with Hashimotos thyroid disease? It did not change any of my lab values (or energy level) at that time and now my antibody levels keep rising. I read somewhere being cautioned to not take iodine with Hashimotos ... any comments regarding that would be welcome. So much info to sort through. > > > >> > Hello Laurel> >> > > She first diagnosed fibro, followed her recoms and supps, helped some. > > that are caplets, not breaking down properly. I am hopeful, but it > > will take take time to regain at least enough health to feel > > functional. I have never had an ultasound or CT scan of my adrenals. > > Neg adrenal AB test. The good part is I have been on an incredible > > spiritual journey to see me through all of this. And have had some > > amazing training, but have not been able to carry through and use this > > as much as I would have liked.> > > > You can get an online saliva test. ZRT labs are good for this. There > > are some chiropractors and ND's that work with saliva testing. > > Allopathic docs don't use it, even though the astronauts check the > > impact of their levels of stess through saliva testing on board the > > space station.> >> > I share my story if any part of it might help you Laurel. Gail's info > > regarding Vit D supps is new to me. I hope she will pass on her source > > of info.> >> > To finding greater health!> > > >> > -> >> Quote Link to comment Share on other sites More sharing options...
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