Re: Re: Sjogren's Syndrome & Alli

[Guest guest]

low endorphines is also a cause

On Thu, Apr 1, 2010 at 4:50 PM, Joanne <jojo@...> wrote:

 

Which does nothing to address the cause of the autoimmunity, which was what Bruce was doing. Bruce was right on about vitamin D deficiencies and food sensitivities. You're much better off addressing those than succumbing to the quick-fix supplement mentality.

Joanne

www.joanneunleashed.com

On Apr 1, 2010, at 5:43 AM, iodine wrote:

you better learn about low dose naltrexone before preaching.low dose

naltrexone does not function as a drug but it is a trick to boost theendorphines which many people who are auto-immune have shortage of.

[Guest guest]

I used VitalzymX, Iodoral and MegaH and eliminated ANA antibodies completely.LinnOn Apr 1, 2010, at 2:37 PM, cathyedens wrote:

Agree here - despite being on iodine for a couple of years it did not, unfortunately inhibit the onset of sjogren's nor did my antibodies reduce at all during that time despite trying gluten free diet, liver detox etc.

It has been great for thyroid function however, and my nodules are gone.....

But anything that reduces ANA antibodies would help for Sjogren's.

I am thinking of trying Low Dose Naltrexone for that.

> > >

> > > This info is not for me. I am doing a little research for a friend...

> > >

> > > Does anyone know about Sjogren's Syndrome & the relationship to

> > > iodine, if any? I think Limbrel is given to treat this disease.

> > >

> > > How about the drug(?) "Alli" that is sold for weight loss? Does

> > > anyone know how it works?

> > >

> > > Thanks in advance,

> > >

> > > Tim

> > >

> > > ------------------------------------

> > >

> > >

> > >

> > > All off topic posts should go to the IodineOT group IodineOT/

> > >

> > > Commonly asked questions: http://tinyurl.com/yhnds5e

> > > Links

>

[Guest guest]

Impressive on the VitalzymX and not many get me impressed/

I found the sidebar lol, good info for sure and a good product. = understatement.

Bruce

Re: Re: Sjogren's Syndrome & Alli

I used VitalzymX, Iodoral and MegaH and eliminated ANA antibodies completely.

Linn

On Apr 1, 2010, at 2:37 PM, cathyedens wrote:

Agree here - despite being on iodine for a couple of years it did not, unfortunately inhibit the onset of sjogren's nor did my antibodies reduce at all during that time despite trying gluten free diet, liver detox etc. It has been great for thyroid function however, and my nodules are gone.....But anything that reduces ANA antibodies would help for Sjogren's.I am thinking of trying Low Dose Naltrexone for that.> > >> > > This info is not for me. I am doing a little research for a friend...> > >> > > Does anyone know about Sjogren's Syndrome & the relationship to > > > iodine, if any? I think Limbrel is given to treat this disease.> > >> > > How about the drug(?) "Alli" that is sold for weight loss? Does > > > anyone know how it works?> > >> > > Thanks in advance,> > >> > > Tim> > >> > > ------------------------------------> > >> > >> > >> > > All off topic posts should go to the IodineOT group IodineOT/> > >> > > Commonly asked questions: http://tinyurl.com/yhnds5e > > > Links>

[Guest guest]

Linn:

What's ANA antibodies?

Tammy

Re: Re: Sjogren's Syndrome & Alli

I used VitalzymX, Iodoral and MegaH and eliminated ANA antibodies completely.

Linn

On Apr 1, 2010, at 2:37 PM, cathyedens wrote:

Agree here - despite being on iodine for a couple of years it did not, unfortunately inhibit the onset of sjogren's nor did my antibodies reduce at all during that time despite trying gluten free diet, liver detox etc. It has been great for thyroid function however, and my nodules are gone.....But anything that reduces ANA antibodies would help for Sjogren's.I am thinking of trying Low Dose Naltrexone for that.> > >> > > This info is not for me. I am doing a little research for a friend...> > >> > > Does anyone know about Sjogren's Syndrome & the relationship to > > > iodine, if any? I think Limbrel is given to treat this disease.> > >> > > How about the drug(?) "Alli" that is sold for weight loss? Does > > > anyone know how it works?> > >> > > Thanks in advance,> > >> > > Tim> > >> > > ------------------------------------> > >> > >> > >> > > All off topic posts should go to the IodineOT group IodineOT/> > >> > > Commonly asked questions: http://tinyurl.com/yhnds5e > > > Links>

[Guest guest]

Antinuclear antibodies - can indicate lupus, Sjogren's, Scleroderma, Raynaud's disease, rheumatoid arthritis, dermatomyositis, mixed connective tissue disease, and other autoimmune conditions. LinnOn Apr 1, 2010, at 5:18 PM, Freedom Alternatives wrote: Linn: What's ANA antibodies? Tammy Re: Re: Sjogren's Syndrome & Alli I used VitalzymX, Iodoral and MegaH and eliminated ANA antibodies completely. Linn On Apr 1, 2010, at 2:37 PM, cathyedens wrote: Agree here - despite being on iodine for a couple of years it did not, unfortunately inhibit the onset of sjogren's nor did my antibodies reduce at all during that time despite trying gluten free diet, liver detox etc. It has been great for thyroid function however, and my nodules are gone.....But anything that reduces ANA antibodies would help for Sjogren's.I am thinking of trying Low Dose Naltrexone for that.> > >> > > This info is not for me. I am doing a little research for a friend...> > >> > > Does anyone know about Sjogren's Syndrome & the relationship to > > > iodine, if any? I think Limbrel is given to treat this disease.> > >> > > How about the drug(?) "Alli" that is sold for weight loss? Does > > > anyone know how it works?> > >> > > Thanks in advance,> > >> > > Tim> > >> > > ------------------------------------> > >> > >> > >> > > All off topic posts should go to the IodineOT group IodineOT/> > >> > > Commonly asked questions: http://tinyurl.com/yhnds5e > > > Links>

[Guest guest]

Vitacost sometimes has MegaH at a better price than Phi Sciences.

Linn

On Apr 1, 2010, at 3:11 PM, Bruce P wrote:

>

> Interesting Linn, enzymes and a major antioxidant plus.

>

> MegaH from http://www.phisciences.com/megah.html ?

>

> Interesting, they don't have a lot of info but will look around.

> The enzymes look like a powerful combo as well

> This one? http://www.vitalzym-review.com/vitalzymx

>

> Bruce

>

>

> ----- Original Message -----

> From: Linn

>

>

>

> I used VitalzymX, Iodoral and MegaH and eliminated ANA antibodies

> completely.

>

>

> Linn

>

>

> On Apr 1, 2010, at 2:37 PM, cathyedens wrote:

>

>

> ------------------------------------

>

> All off topic posts should go to the IodineOT group http://

> health./group/IodineOT/

>

>

> Commonly asked questions: http://tinyurl.com/yhnds5e

> Groups Links

>

>

>

[Guest guest]

I'm an avid fan. :-)LinnOn Apr 1, 2010, at 3:17 PM, Bruce P wrote: Impressive on the VitalzymX and not many get me impressed/ I found the sidebar lol, good info for sure and a good product. = understatement. Bruce Re: Re: Sjogren's Syndrome & Alli I used VitalzymX, Iodoral and MegaH and eliminated ANA antibodies completely. Linn On Apr 1, 2010, at 2:37 PM, cathyedens wrote: Agree here - despite being on iodine for a couple of years it did not, unfortunately inhibit the onset of sjogren's nor did my antibodies reduce at all during that time despite trying gluten free diet, liver detox etc. It has been great for thyroid function however, and my nodules are gone.....But anything that reduces ANA antibodies would help for Sjogren's.I am thinking of trying Low Dose Naltrexone for that.> > >> > > This info is not for me. I am doing a little research for a friend...> > >> > > Does anyone know about Sjogren's Syndrome & the relationship to > > > iodine, if any? I think Limbrel is given to treat this disease.> > >> > > How about the drug(?) "Alli" that is sold for weight loss? Does > > > anyone know how it works?> > >> > > Thanks in advance,> > >> > > Tim> > >> > > ------------------------------------> > >> > >> > >> > > All off topic posts should go to the IodineOT group IodineOT/> > >> > > Commonly asked questions: http://tinyurl.com/yhnds5e > > > Links>

[Guest guest]

I was likely preaching to the converted. Then reacted to foolish accusations rather than ignoring them as I should have

All I was saying is look for source/resolution of problem rather than a pill. Not referring to anyone here, just a general principle.

Many have deficiencies and a toxic diet that will lead to serious problems if not addressed, and while it isn't easy to make major changes, it's neccessary.

It's human nature for us all to some point, and not saying there is anything wrong with it. But with drugs we have two dangers;

1) a lessening of symptoms encourages no change and situation can be getting worse as symptoms are being masked.

2) One does nothing to change or find the root of the problem as incentive isn't there as much.

And didn't mean it as a big deal, just an observation as I have seen people sitting around discussing/comparing the latest designer drug elsewhere, and when causes/solutions are brought up you get a weird look. Though the article had LDN it likely was higher doses, but it's still a drug and toxic, even if just a little toxic One can always find lots for/against all most anything. But the quick fix from some pharmacy is not the road to take unless neccessary and one has to short term.

Most finding some relief this way do little else unfortunately, and that leads to bad results long term.

And as Joanne wisely said earlier on this:

"Which does nothing to address the cause of the autoimmunity, which was what Bruce was doing. Bruce was right on about vitamin D deficiencies and food sensitivities. You're much better off addressing those than succumbing to the quick-fix supplement mentality. "

Which is right.

Bruce

Bruce

Re: Sjogren's Syndrome & Alli

Bruce, I'm not arguing with you about the risks, because I know you are the Research Guru around here, but those side effects sound more like the side effects for the 50 mg dose of Naltrexone they give to addicts, not the Low Dose. I take LDN for my MS and, other than some transient insomnia and vivid dreams, I've not had one side effect from LDN in the 2 yrs I've been taking it. Also, I belong to a LDN group, two of them, actually, and nobody on either of these groups had described anything like this.The worst I've ever heard from ANYONE taking LDN was the sleeplessness and vivid dreaming.And of course, you're right, it's not a stand-alone treatment. One must address the immune system nutritionally, food allergies, supplements, etc.Beverly> >> > Major Risks> > LDN should not be given to patients diagnosed with liver failure or> > hepatitis, according to Drugs.com. Even in small doses, naltrexone can build> > up, resulting in hepatotoxicity for patients prone to that condition. Anyone> > with a predetermined renal condition could also experience increased> > impairment.> > Naltrexone is not recommended for use by pregnant or nursing women.> > Research on the effect of the drug on a fetus is insufficient. Likewise, it> > is unknown if the drug could cause problems for breastfeeding children.> >> > Contraindications> > Naltrexone should not be prescribed for patients receiving opiate drugs for> > treatment purposes, because it will block opioid receptors and have minimal> > or no effect, according to Drugs.com. Addicts should not continue taking> > opiates while taking LDN. To do so could result in an overdose, bodily> > injury, coma or death.> >> > LDN should not be used in connection with nonsteroidal anti-inflammatory> > drugs, thioridazine or yohimbine. Taken with NSAIDS, naltrexone risks an> > elevation in liver enzymes. Taken with thioridzine, it could cause lethargy,> > making the use of equipment dangerous. When taken with yohimbine, LDN can> > elevate blood pressure and cause the pulse to race. Naltrexone can also> > block the medicinal intent of anti-diarrhea and cold medications. "> > http://www.ehow.co.uk/way_5766911_there-use-low-dose-naltrexone_.html> >> > Bruce> > > >>

[Guest guest]

I haven't been following this but just noticed LDN has come up. I might

agree with everything that was written, except that it was written about an

exception to the rule of Pharma Bad. I think it was a poor choice for

making a point about Pharma, and maybe that's already evident, but I need

to say my piece. peace.

>All I was saying is look for source/resolution of problem rather than a

>pill. Not referring to anyone here, just a general principle.

Nevertheless, the research that was presented as fact about LDN is not in

fact correct. LDN has been used by women who became pregnant, it has

facilitated conception and facilitated completion of pregnancies in women

who could not, previously, and the children born have been exceptionally

healthy. In addition, it is used for liver cancer and Hep C, so it's not

poisonous to the liver as you've quoted, and people with liver problems are

using it quite successfully. It is also being used to help autistic

children, in a protocol that includes diet and supplements.

While in general I am not a fan of Pharma, occasionally they make a mistake

and do something good (and remember, LDN utilizes a drug that is out of

patent and largely ignored by the medical world). If diet and supplements

could fix MS, I'm sure a lot more people would be cured instead of

inexorably deteriorating. What LDN does is encourage the body to

manufacture more endorphins, which the body then uses intelligently to cure

its ailments. And I do mean cure, not just mask symptoms. Research on LDN

shows that people with MS have a reversal of clinical pathologies such as

brain lesions, as evidenced by before-and-after MRIs. People with HIV/AIDS

get tested and their viral loads have gone to zero, and stay at zero. I'm

sorry, but all the diet in the world has not been curing that particular

disease (that I have lost many friends to).

I take LDN, and it made an instant reversal in my daily suffering

(fibromyalgia), allowing me to make a whole lot of other changes that I

could not at that time, such as doing the research that led me to the

iodine protocol, but also such things as the ability to get exercise, grow

my vegetable garden, to eat well.

So educated people can disagree on whether or not any Pharma drug can ever

be of service to anyone, but presenting research (not all of which is the

most current) on large doses of naltrexone is not proper research for a

completely different protocol involving a microdose. A lot of research has

been done on LDN and more is in the pipeline. The information presented is

not accurate about LDN, including the list of drugs not to be taken with it

(NSAIDS are fine).

>Most finding some relief this way do little else unfortunately, and that

>leads to bad results long term.

Actually, this doesn't square with the research on LDN. It turns out that

increasing the body's endorphins *IS* addressing core causes. It turns out

that people ARE getting better. Would people get even stronger if their

diets were ideal and nutritional supplementation optimized and they stopped

taking a load of other Pharma drugs? no doubt. But in the case of LDN,

and that's all I'm talking about here, it actually creates deep

healing. It does not, in the long run, lead to " bad results " .

LDN is one of the exceptions that proves the rule that Pharma Bad. I'm all

for realistic talk about Pharma, but I'm not able to stand by while LDN is

slandered (which I realize was inadvertent, but still).

Anyone interested in the facts can visit www.lowdosenaltexone.org and there

are several discussion groups for LDN on .

--

>I was likely preaching to the converted. Then reacted to foolish

>accusations rather than ignoring them as I should have

>All I was saying is look for source/resolution of problem rather than a

>pill. Not referring to anyone here, just a general principle.

>Many have deficiencies and a toxic diet that will lead to serious problems

>if not addressed, and while it isn't easy to make major changes, it's

>neccessary.

>

>It's human nature for us all to some point, and not saying there is

>anything wrong with it. But with drugs we have two dangers;

>1) a lessening of symptoms encourages no change and situation can be

>getting worse as symptoms are being masked.

>2) One does nothing to change or find the root of the problem as incentive

>isn't there as much.

>

>And didn't mean it as a big deal, just an observation as I have seen

>people sitting around discussing/comparing the latest designer drug

>elsewhere, and when causes/solutions are brought up you get a weird look.

>Though the article had LDN it likely was higher doses, but it's still a

>drug and toxic, even if just a little toxic One can always find lots

>for/against all most anything. But the quick fix from some pharmacy is not

>the road to take unless neccessary and one has to short term.

>

>Most finding some relief this way do little else unfortunately, and that

>leads to bad results long term.

>

>And as Joanne wisely said earlier on this:

>

> " Which does nothing to address the cause of the autoimmunity, which was

>what Bruce was doing. Bruce was right on about vitamin D deficiencies and

>food sensitivities. You're much better off addressing those than

>succumbing to the quick-fix supplement mentality. "

>

>Which is right.

>

>Bruce

>

>

>

>Bruce

>

> Re: Sjogren's Syndrome & Alli

>

>

>

>Bruce, I'm not arguing with you about the risks, because I know you are

>the Research Guru around here, but those side effects sound more like the

>side effects for the 50 mg dose of Naltrexone they give to addicts, not

>the Low Dose.

>

>I take LDN for my MS and, other than some transient insomnia and vivid

>dreams, I've not had one side effect from LDN in the 2 yrs I've been

>taking it. Also, I belong to a LDN group, two of them, actually, and

>nobody on either of these groups had described anything like this.

>

>The worst I've ever heard from ANYONE taking LDN was the sleeplessness and

>vivid dreaming.

>

>And of course, you're right, it's not a stand-alone treatment. One must

>address the immune system nutritionally, food allergies, supplements, etc.

>

>Beverly

> > >

> > > Major Risks

> > > LDN should not be given to patients diagnosed with liver failure or

> > > hepatitis, according to Drugs.com. Even in small doses, naltrexone

> can build

> > > up, resulting in hepatotoxicity for patients prone to that condition.

> Anyone

> > > with a predetermined renal condition could also experience increased

> > > impairment.

> > > Naltrexone is not recommended for use by pregnant or nursing women.

> > > Research on the effect of the drug on a fetus is insufficient.

> Likewise, it

> > > is unknown if the drug could cause problems for breastfeeding children.

> > >

> > > Contraindications

> > > Naltrexone should not be prescribed for patients receiving opiate

> drugs for

> > > treatment purposes, because it will block opioid receptors and have

> minimal

> > > or no effect, according to Drugs.com. Addicts should not continue taking

> > > opiates while taking LDN. To do so could result in an overdose, bodily

> > > injury, coma or death.

> > >

> > > LDN should not be used in connection with nonsteroidal anti-inflammatory

> > > drugs, thioridazine or yohimbine. Taken with NSAIDS, naltrexone risks an

> > > elevation in liver enzymes. Taken with thioridzine, it could cause

> lethargy,

> > > making the use of equipment dangerous. When taken with yohimbine, LDN can

> > > elevate blood pressure and cause the pulse to race. Naltrexone can also

> > > block the medicinal intent of anti-diarrhea and cold medications. "

> > >

>

<http://www.ehow.co.uk/way_5766911_there-use-low-dose-naltrexone_.html>http://ww\

w.ehow.co.uk/way_5766911_there-use-low-dose-naltrexone_.html

> > >

> > > Bruce

>

> > >

> > >

> >

>

>

>

>

>

>No virus found in this incoming message.

>Checked by AVG - www.avg.com

>Version: 9.0.795 / Virus Database: 271.1.1/2784 - Release Date: 04/01/10

>13:32:00

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Sorry I thought everyone understood this:

>All I was saying is look for source/resolution of problem rather than a >pill. Not referring to anyone here, just a general principle.

Bruce

This has all been taken out of context now. I so give up

Re: Sjogren's Syndrome & Alli>>>>Bruce, I'm not arguing with you about the risks, because I know you are >the Research Guru around here, but those side effects sound more like the >side effects for the 50 mg dose of Naltrexone they give to addicts, not >the Low Dose.>>I take LDN for my MS and, other than some transient insomnia and vivid >dreams, I've not had one side effect from LDN in the 2 yrs I've been >taking it. Also, I belong to a LDN group, two of them, actually, and >nobody on either of these groups had described anything like this.>>The worst I've ever heard from ANYONE taking LDN was the sleeplessness and >vivid dreaming.>>And of course, you're right, it's not a stand-alone treatment. One must >address the immune system nutritionally, food allergies, supplements, etc.>>Beverly> > >> > > Major Risks> > > LDN should not be given to patients diagnosed with liver failure or> > > hepatitis, according to Drugs.com. Even in small doses, naltrexone > can build> > > up, resulting in hepatotoxicity for patients prone to that condition. > Anyone> > > with a predetermined renal condition could also experience increased> > > impairment.> > > Naltrexone is not recommended for use by pregnant or nursing women.> > > Research on the effect of the drug on a fetus is insufficient. > Likewise, it> > > is unknown if the drug could cause problems for breastfeeding children.> > >> > > Contraindications> > > Naltrexone should not be prescribed for patients receiving opiate > drugs for> > > treatment purposes, because it will block opioid receptors and have > minimal> > > or no effect, according to Drugs.com. Addicts should not continue taking> > > opiates while taking LDN. To do so could result in an overdose, bodily> > > injury, coma or death.> > >> > > LDN should not be used in connection with nonsteroidal anti-inflammatory> > > drugs, thioridazine or yohimbine. Taken with NSAIDS, naltrexone risks an> > > elevation in liver enzymes. Taken with thioridzine, it could cause > lethargy,> > > making the use of equipment dangerous. When taken with yohimbine, LDN can> > > elevate blood pressure and cause the pulse to race. Naltrexone can also> > > block the medicinal intent of anti-diarrhea and cold medications. "> > > > <http://www.ehow.co.uk/way_5766911_there-use-low-dose-naltrexone_.html>http://www.ehow.co.uk/way_5766911_there-use-low-dose-naltrexone_.html> > >> > > Bruce>> > >> > >> >>>>>>>No virus found in this incoming message.>Checked by AVG - www.avg.com>Version: 9.0.795 / Virus Database: 271.1.1/2784 - Release Date: 04/01/10 >13:32:00>~~~ There is no way to peace; peace is the way ~~~~--A.J. Muste

[Guest guest]

i am coming so late into this subject, been at the hospital every day with my mother so missed this, but what brings on sjogrens? i don't really have time this moment, on my way to hospital, but will definitely read all this as soon as i can. thank you for the info..and what is so bad with aspirin, barring an overdose? diane, near philly, pa On Apr 1, 2010, at 2:35 PM, Pd wrote:Sjogren's is considered an arthritis related condition, can occur in either a primary or secondary form. A big distinction between this and other forms of arthritis is dryness of the mucus membranes. The eyes and mouth are commonly affected, which can lead to dental problems such as cavities and periodontal disease, or damage to the surface of the cornea. Life Extension Foundation (www.lef.org, http://www.lef.org/protocols/immune_connective_joint/sjogren_syndrome_01.htm) has the best article I found a few years ago when I was desperately hunting for more. There's a Sjogren's Syndrome Foundation (www.sjogrens.com) and National Sjogren's Syndrome Association (www.sjogrens.org). Dr. Rowen, an integrative MD, had a short article about it Aug 2009, from which I excerpted this: "I've suggested that there are certain of these plant chemicals that do more for certain tissues than others. For example, the flavonoids in blueberries are terrific protectors of your retina. It seems here that the flavonoids from green tea might be a specific protector of salivary glands." Relates to a mouse study, measuring lymphocyte activity in salivary glands either with or without EGCG (green tea extract). If you want me to send the whole, feel free to contact me directly.As far as iodine is concerned, the connection may only be the auto-immune factor.Pam H> >> > This info is not for me. I am doing a little research for a friend...> >> > Does anyone know about Sjogren's Syndrome & the relationship to > > iodine, if any? I think Limbrel is given to treat this disease.> >> > How about the drug(?) "Alli" that is sold for weight loss? Does > > anyone know how it works?> >> > Thanks in advance,> >> > Tim> >> > ------------------------------------> >> >> >> > All off topic posts should go to the IodineOT group IodineOT/> >> > Commonly asked questions: http://tinyurl.com/yhnds5e ! Groups > > Links

[Guest guest]

Our family has 3 generations of autoimmune disease problems also. My daughter has 3 types all by her little self. LinnOn Apr 2, 2010, at 6:36 PM, cathyedens wrote: I didn't take vitalyzme, but I have tried other therapies using some of the ingredients in vitalzyme. Nothing I've every tried reduced my antibodies to any meaningful degree, I have, I believe, a permanent genetic defect. My mom and aunt have it, and both my kids do. My nodules went away in about three months on iodoral and they have never come back. > > > > > > > > > > > > This info is not for me. I am doing a little research for a friend... > > > > > > > > > > > > Does anyone know about Sjogren's Syndrome & the relationship to > > > > > > iodine, if any? I think Limbrel is given to treat this disease. > > > > > > > > > > > > How about the drug(?) "Alli" that is sold for weight loss? Does > > > > > > anyone know how it works? > > > > > > > > > > > > Thanks in advance, > > > > > > > > > > > > Tim > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > All off topic posts should go to the IodineOT group IodineOT/ > > > > > > > > > > > > Commonly asked questions: http://tinyurl.com/yhnds5e > > > > > > Links > > > > > > > > > > > > >