Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 Poor - but I think your problems are not because you stopped Thyroxine, but that you are not yet on enough HC to start making you feel better. However, as you say, you were off Thyroxine for 3 weeks, whereas most people only stop it for a week. Having said that, it is important to stop for a couple of weeks to give your HC a chance to start working before introducing your thyroxine again. As stated previously, if I was in your situation, I see no reason not to add another 25 mcgs as you were on 150 mcgs before. Luv - Sheila I will NEVER stop my thyroxine again, not for anything, anyone else out there be warned by the HELL i am going through now No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 But Sheila if there arent enough thyroid hormones knocking around the HC cant do its work can it? My levels must have dropped really quick but we just dont know whats going to happen do we? I could probably have afforded to go back on 75mcg but again its best to be causious, we all react differently. By stopping The T4 I have probably given my anti bodies a licence to run a muck and thats why I am suffering now. I never wanted to ever feel like this again--- On Tue, 9/9/08, sheilaturner <sheilaturner@...> Poor - but I think your problems are not because you stopped Thyroxine, but that you are not yet on enough HC to start making you feel better. Luv - Sheila I will NEVER stop my thyroxine again, not for anything, anyone else out there be warned by the HELL i am going through now No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 Hi - when being prescribed this HC and being told to stop the thyroxine, were you not given any firm directives on exactly what to do, does it not say on the prescriptions? This is mind boggling. Chris > > But Sheila if there arent enough thyroid hormones knocking around the HC cant do its work can it? My levels must have dropped really quick but we just dont know whats going to happen do we? I could probably have afforded to go back on 75mcg but again its best to be causious, we all react differently. By stopping The T4 I have probably given my anti bodies a licence to run a muck and thats why I am suffering now. I never wanted to ever feel like this again > > > > --- On Tue, 9/9/08, sheilaturner <sheilaturner@...> > > > > > > > > > Poor - but I think your problems are not because you stopped Thyroxine, but that you are not yet on enough HC to start making you feel better. >  > Luv - Sheila > > > > > I will NEVER stop my thyroxine again, not for anything, anyone else out > there be warned by the HELL i am going through now > > > > > > > No virus found in this incoming message. > Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008  Hi , The short answer to your question is NO - when starting HC you don't want thyroid hormones knocking around. The problem of treating hypothyroidism in somebody who also has low adrenal reserve is that treatment, when thyroid hormone replacement is being used, could cause an adrenal crisis, where there is sudden acute adrenal exhaustion and consequent shock. This, in some cases could be fatal. Every doctor, before starting their patients on thyroid hormone therapy should really check to see whether you do have low adrenal reserve first. This is printed on the Patient Information Leaflet in your box of L-thyroxine. Why do doctors choose to ignore this? If your adrenals are not treated, any thyroid replacement may well not work at all, or you may get symptoms of thyroid overdose, even on quite low levels of synthetic thyroxine, due to conversion or uptake failure, and this is why, where low adrenal reserve is suspected, it could be dangerous to treat you without supplementation of the adrenal weakness first. This is the reason you needed to stop your L-thyroxine before starting HC to clear as much as possible out of your system In most cases, HC has the problem of very rapid uptake by the system, and since it should be given every four hours, this can create practical problems for many patients. If you are phoning Dr P tomorrow, ask him whether you might be better taking Prednisolone, which lasts in the body for 24 hours. 2.5 mg daily is usually given to start with, increasing to 5mg or even 7.5mg Most patients feel benefit within a few days, but you are still on a maintenance dose only, though it sometimes takes many weeks to get the full benefits. In a large number of cases the adrenal insufficiency related to low thyroid function corrects itself as thyroid levels improve, and after a period of a few weeks or a few months, the adrenals will have recovered sufficiently for the HC therapy to be stopped. See what Dr P says tomorrow - and in the meanwhile, please try not to stress yourself.Everything you are doing is correct. Luv - Sheila But Sheila if there arent enough thyroid hormones knocking around the HC cant do its work can it? My levels must have dropped really quick but we just dont know whats going to happen do we? I could probably have afforded to go back on 75mcg but again its best to be causious, we all react differently. By stopping The T4 I have probably given my anti bodies a licence to run a muck and thats why I am suffering now. I never wanted to ever feel like this again No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 Hi Chris The whole business for many hypothyroid sufferers trying to get a proper diagnosis and the correct treatment is mind-boggling' This is why the majority of our members joined this forum, where they get more information than the average NHS doctor is even aware exists. We have excellent Medical Advisers thank goodness, who are giving the benefit of their experience to help us all get through this - and thank goodness for them. Sheila Hi - when being prescribed this HC and being told to stop the thyroxine, were you not given any firm directives on exactly what to do, does it not say on the prescriptions? This is mind boggling.Chris>> But Sheila if there arent enough thyroid hormones knocking around the HC cant do its work can it? My levels must have dropped really quick but we just dont know whats going to happen do we? I could probably have afforded to go back on 75mcg but again its best to be causious, we all react differently. By stopping The T4 I have probably given my anti bodies a licence to run a muck and thats why I am suffering now. I never wanted to ever feel like this again> > > > --- On Tue, 9/9/08, sheilaturner <sheilaturner@...> > > > > > > > > > Poor - but I think your problems are not because you stopped Thyroxine, but that you are not yet on enough HC to start making you feel better.>  > Luv - Sheila> > > > > I will NEVER stop my thyroxine again, not for anything, anyone else out > there be warned by the HELL i am going through now> > > > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47> No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 I wasnt prescribed HC, I started it under the care of Dr P and yes he told me how to take it and I have read up on it, he didnt tell me how long I should stop the T4 before starting HC, but as it happens I had to wait longer for the HC to arrive so was off the T4 for perhaps longer than I should have been. Dr P recommends that when starting HC to stop thyroid meds for 2 weeks while you do this and then restart slowly--- On Tue, 9/9/08, chrischids <no_reply > Hi - when being prescribed this HC and being told to stop the thyroxine, were you not given any firm directives on exactly what to do, does it not say on the prescriptions? This is mind boggling.Chris>> But Sheila if there arent enough thyroid hormones knocking around the HC cant do its work can it? My levels must have dropped really quick but we just dont know whats going to happen do we? I could probably have afforded to go back on 75mcg but again its best to be causious, we all react differently. By stopping The T4 I have probably given my anti bodies a licence to run a muck and thats why I am suffering now. I never wanted to ever feel like this again> > > > --- On Tue, 9/9/08, sheilaturner <sheilaturner@ ...> > > > > > > > > > Poor - but I think your problems are not because you stopped Thyroxine, but that you are not yet on enough HC to start making you feel better.>  > Luv - Sheila> > > > > I will NEVER stop my thyroxine again, not for anything, anyone else out > there be warned by the HELL i am going through now> > > > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 Thanks Sheila I know the reasons why everything is done the way it is, but I just didnt expect to feel as bad as I have done and its come as a shock to feel so bad, so I start thinking 'my god what I have done'? and I begin doubting what I have done. I am going to increase T4 tonight to 75mcg and take 10mg of Hc in the morning instead of 5mg and see how that works, I dont mind dosing the Hc during the day and would rather not move on to another steriod at the moment  Hi , The short answer to your question is NO - when starting HC you don't want thyroid hormones knocking around. The problem of treating hypothyroidism in somebody who also has low adrenal reserve is that treatment, when thyroid hormone replacement is being used, could cause an adrenal crisis, where there is sudden acute adrenal exhaustion and consequent shock. This, in some cases could be fatal. Every doctor, before starting their patients on thyroid hormone therapy should really check to see whether you do have low adrenal reserve first. This is printed on the Patient Information Leaflet in your box of L-thyroxine. Why do doctors choose to ignore this? If your adrenals are not treated, any thyroid replacement may well not work at all, or you may get symptoms of thyroid overdose, even on quite low levels of synthetic thyroxine, due to conversion or uptake failure, and this is why, where low adrenal reserve is suspected, it could be dangerous to treat you without supplementation of the adrenal weakness first. Luv - Sheila But Sheila if there arent enough thyroid hormones knocking around the HC cant do its work can it? My levels must have dropped really quick but we just dont know whats going to happen do we? I could probably have afforded to go back on 75mcg but again its best to be causious, we all react differently. By stopping The T4 I have probably given my anti bodies a licence to run a muck and thats why I am suffering now. I never wanted to ever feel like this again No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 I agree Sheila, bob has given me more help today, spoke to him twice today, than I know any of my doctors could give me, let alone the time they would give me to explain anything. There would have been absolutely no point going to see my doctors today or ever when it comes to my thyroid situation. Hi Chris The whole business for many hypothyroid sufferers trying to get a proper diagnosis and the correct treatment is mind-boggling' This is why the majority of our members joined this forum, where they get more information than the average NHS doctor is even aware exists. We have excellent Medical Advisers thank goodness, who are giving the benefit of their experience to help us all get through this - and thank goodness for them. Sheila Hi - when being prescribed this HC and being told to stop the thyroxine, were you not given any firm directives on exactly what to do, does it not say on the prescriptions? This is mind boggling.Chris>> But Sheila if there arent enough thyroid hormones knocking around the HC cant do its work can it? My levels must have dropped really quick but we just dont know whats going to happen do we? I could probably have afforded to go back on 75mcg but again its best to be causious, we all react differently. By stopping The T4 I have probably given my anti bodies a licence to run a muck and thats why I am suffering now. I never wanted to ever feel like this again> > > > --- On Tue, 9/9/08, sheilaturner <sheilaturner@ ...> > > > > > > > > > Poor - but I think your problems are not because you stopped Thyroxine, but that you are not yet on enough HC to start making you feel better.>  > Luv - Sheila> > > > > I will NEVER stop my thyroxine again, not for anything, anyone else out > there be warned by the HELL i am going through now> > > > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47> No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.19/1662 - Release Date: 09/09/2008 10:47 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Hi .....the doctors don't have the time to be patient and explain what needs explaining. there seems to be an inhibition against prescribing hydrocortisone tablets, but you get it in Canestan? to cope with the skin problems (candida etc); crazy, but they go around the houses treating 'symptoms' sporadically, without ever realising the reality.... and the causes, it's as if they're blind to what's going on. There's a considerable element of patient advice/learning that is needed to get them up-to-speed with a thyroid problem. There should be courses every month, or so, run by volunteers with medical support. 5-10 patients would be well advised and not left to their own devices. Perhaps the DoH would consider costing this out for a trial run say, 3-6mths. best wishes Bob > > Hi - when being prescribed this HC and being told to stop the > thyroxine, were you not given any firm directives on exactly what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Hi Bob There was something like this done here last year. Chris > > > Hi > >> There should be courses every month, or so, run by volunteers with > medical support. > > 5-10 patients would be well advised and not left to their own > devices. Perhaps the DoH would consider costing this out for a trial > run say, 3-6mths. > > best wishes > Bob > Quote Link to comment Share on other sites More sharing options...
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