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There's a debate on whether SMA directly affects the heart or if it's just a

secondary symptom. Text books say that SMA only affects voluntary muscles,

but Drs are now looking into involuntary muscles like the heart. I was at

MDA clinic in 7th grade when they noticed my heart was beating very fast. As a

kid I thought these runs of tachycardia were normal, obviously they weren't.

It's thought that the strain on the heart from things like compromised

respiratory muscles occurs in some people and affects the heart. You should

probably mention this to your PCP or maybe neuro who can decide if you need a

cardiology consult. If you do you'll probably have to wear a Halter monitor

which is basically a little tape recorder. Sometimes it's only anxiety but if

it's bothersome I'd tell your Dr. I personally have a few heart problems and

heart disease does not run in my family.

Smiles,

Kimi

In a message dated 2/19/2007 10:02:34 P.M. Eastern Standard Time,

j0yeuxx@... writes:

Hi-Lately I have been having a lot of heart fluttery feelings and I am not

sure why. Do many of you have your heart checked regularly because of SMA? My

regular doctor never checks anything! And my neuro hasn't checked this yet

because I haven't seen him. I wonder if I should mention it. I read online it

could be anxiety which I don't think I have or too much caffeine which I don't

think I have either. Anyone else experience this?

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Yea i think that the heart flutter is caused by aniexty because i have aniexty

attacks sometimes and my heart flutters and beats really fast. I was told by my

neurologist that people with sma dont have heart problems.

- Heart Flutters

Hi-Lately I have been having a lot of heart fluttery feelings and I am not sure

why. Do many of you have your heart checked regularly because of SMA? My regular

doctor never checks anything! And my neuro hasn't checked this yet because I

haven't seen him. I wonder if I should mention it. I read online it could be

anxiety which I don't think I have or too much caffeine which I don't think I

have either. Anyone else experience this?

---------------------------------

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In a message dated 2/19/2007 10:02:34 PM Eastern Standard Time,

j0yeuxx@... writes:

Hi-Lately I have been having a lot of heart fluttery feelings and I am not

sure why. Do many of you have your heart checked regularly because of SMA? My

regular doctor never checks anything! And my neuro hasn't checked this yet

because I haven't seen him. I wonder if I should mention it. I read online it

could be anxiety which I don't think I have or too much caffeine which I don't

think I have either. Anyone else experience this?

I get flutters infrequently at best and usually just when my anxiety level

is out of control. My pulmo did an echo in '03 and found trace mitral

regurgitation. I'd have it checked out to rule out anything serious.

Amy

Wife to Will 11/3/95

Mama to Olivia Isabelle 9/18/03

&

Phineas Maximilian 11/30/05

<BR><BR><BR>**************************************<BR> Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across the

web, free AOL Mail and much more.

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I've had that problem off and on. It was related to

my anxiety I guess because it was controlled with

anti-anxiety meds.

Jenn

>

> Hi-Lately I have been having a lot of heart fluttery feelings and I am not

sure why. Do

many of you have your heart checked regularly because of SMA? My regular doctor

never

checks anything! And my neuro hasn't checked this yet because I haven't seen

him. I wonder

if I should mention it. I read online it could be anxiety which I don't think I

have or too much

caffeine which I don't think I have either. Anyone else experience this?

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Hi

I had heart flutters once when I was in ICU with pneumonia. They were due to low

potassium levels. The low potassium was caused by fasting due to the illness.

Probably the whole incident could have been prevented if the doctors had been

more knowledgeable about nutrition issues of people with SMA.

smiles

-Taya

SMA type II

Re: Re: Heart Flutters/ recent deaths

In a message dated 2/20/2007 1:58:36 PM Eastern Standard Time,

alrt@... writes:

This interests me because of my experience with having drops in my

potassium level affecting my heart, blood pressure, and body

temperature. Potassium is difficult to get right, especially for

those of us who don't eat much.

Have you ever needed potassium infusions? Back in September when I had

metabolic acidosis, I had to have like 3 bags in my IV.

Amy

Wife to Will 11/3/95

Mama to Olivia Isabelle 9/18/03

&

Phineas Maximilian 11/30/05

<BR><BR><BR>**************************************<BR> Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across

the

web, free AOL Mail and much more.

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Don't forget sugar!!

Caffeine and anxiety may be the most common cause of heart flutters, but I was

told its our hearts way of " stretching " ... or re syncing itself.

Hearts are a smooth muscle and not a " victim " of SMA; what's your family tree

like for heart related concerns?

Angie

On Monday 19 February 2007 21:59, Joy wrote:

> Hi-Lately I have been having a lot of heart fluttery feelings and I am not

> sure why. Do many of you have your heart checked regularly because of SMA?

> My regular doctor never checks anything! And my neuro hasn't checked this

> yet because I haven't seen him. I wonder if I should mention it. I read

> online it could be anxiety which I don't think I have or too much caffeine

> which I don't think I have either. Anyone else experience this?

>

>

>

> ---------------------------------

> Want to start your own business? Learn how on Small Business.

>

>

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i used to have flutters and aches in the chest. that lasted for quite a while,

until i`ve had ecg done. it didn`t show anything because of high tense in

muscules. so i was wearing holter machine. it showed up i have arythmia and

that`s were all the flutters and pains come from. i`ve started taking

beta-blockers and that helped. sometimes i have some " extra " fluttering, but

that`s when i`m anxious or the weather is changing. so then i usually take extra

pill and that`s all i need. but i don`t do regular heart check-ups.

patrycja

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I hope it's potassium and not cardiac arrest coming on!

Taija Heinonen KOTI <taija.heinonen@...> wrote:

Hi

I had heart flutters once when I was in ICU with pneumonia. They were due to low

potassium levels. The low potassium was caused by fasting due to the illness.

Probably the whole incident could have been prevented if the doctors had been

more knowledgeable about nutrition issues of people with SMA.

smiles

-Taya

SMA type II

Re: Re: Heart Flutters/ recent deaths

In a message dated 2/20/2007 1:58:36 PM Eastern Standard Time,

alrt@... writes:

This interests me because of my experience with having drops in my

potassium level affecting my heart, blood pressure, and body

temperature. Potassium is difficult to get right, especially for

those of us who don't eat much.

Have you ever needed potassium infusions? Back in September when I had

metabolic acidosis, I had to have like 3 bags in my IV.

Amy

Wife to Will 11/3/95

Mama to Olivia Isabelle 9/18/03

&

Phineas Maximilian 11/30/05

**************************************

Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across the

web, free AOL Mail and much more.

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It really doesn't matter who says what...age old debate yada yada.

Heart disease is the leading cause of death in women and if you (any of

us) think there could be a heart problem, see a cardiologist.

Joy, Your regular doctor is putting you at risk if he isn't providing

basic testing to monitor your health status. Why do you go to him again?

L

Ksmile96@... wrote:

>

>

> There's a debate on whether SMA directly affects the heart or if it's

> just a

> secondary symptom. Text books say that SMA only affects voluntary

> muscles,

> but Drs are now looking into involuntary muscles like the heart. I was at

> MDA clinic in 7th grade when they noticed my heart was beating very

> fast. As a

> kid I thought these runs of tachycardia were normal, obviously they

> weren't.

> It's thought that the strain on the heart from things like compromised

> respiratory muscles occurs in some people and affects the heart. You

> should

> probably mention this to your PCP or maybe neuro who can decide if you

> need a

> cardiology consult. If you do you'll probably have to wear a Halter

> monitor

> which is basically a little tape recorder. Sometimes it's only anxiety

> but if

> it's bothersome I'd tell your Dr. I personally have a few heart

> problems and

> heart disease does not run in my family.

> Smiles,

> Kimi

>

>

> In a message dated 2/19/2007 10:02:34 P.M. Eastern Standard Time,

> j0yeuxx@... <mailto:j0yeuxx%40> writes:

>

> Hi-Lately I have been having a lot of heart fluttery feelings and I am

> not

> sure why. Do many of you have your heart checked regularly because of

> SMA? My

> regular doctor never checks anything! And my neuro hasn't checked this

> yet

> because I haven't seen him. I wonder if I should mention it. I read

> online it

> could be anxiety which I don't think I have or too much caffeine which

> I don't

> think I have either. Anyone else experience this?

>

>

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I was going to my reg doctor because she was in walking distance and then hubby

didn't have to take off work to bring me and I didn't have to deal with a bus.

Now that I've moved I should find a new doctor, but they have always been the

same-clueless about sma and couldn't care less. I have terrible insurance that

won't pay for anything so that could be why my doctors don't care.

My neuro seems to care so I will tell him and she what he says.

Lori <those2@...> wrote:

It really doesn't matter who says what...age old debate yada yada.

Heart disease is the leading cause of death in women and if you (any of

us) think there could be a heart problem, see a cardiologist.

Joy, Your regular doctor is putting you at risk if he isn't providing

basic testing to monitor your health status. Why do you go to him again?

L

Ksmile96@... wrote:

>

>

> There's a debate on whether SMA directly affects the heart or if it's

> just a

> secondary symptom. Text books say that SMA only affects voluntary

> muscles,

> but Drs are now looking into involuntary muscles like the heart. I was at

> MDA clinic in 7th grade when they noticed my heart was beating very

> fast. As a

> kid I thought these runs of tachycardia were normal, obviously they

> weren't.

> It's thought that the strain on the heart from things like compromised

> respiratory muscles occurs in some people and affects the heart. You

> should

> probably mention this to your PCP or maybe neuro who can decide if you

> need a

> cardiology consult. If you do you'll probably have to wear a Halter

> monitor

> which is basically a little tape recorder. Sometimes it's only anxiety

> but if

> it's bothersome I'd tell your Dr. I personally have a few heart

> problems and

> heart disease does not run in my family.

> Smiles,

> Kimi

>

>

> In a message dated 2/19/2007 10:02:34 P.M. Eastern Standard Time,

> j0yeuxx@... writes:

>

> Hi-Lately I have been having a lot of heart fluttery feelings and I am

> not

> sure why. Do many of you have your heart checked regularly because of

> SMA? My

> regular doctor never checks anything! And my neuro hasn't checked this

> yet

> because I haven't seen him. I wonder if I should mention it. I read

> online it

> could be anxiety which I don't think I have or too much caffeine which

> I don't

> think I have either. Anyone else experience this?

>

>

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Don't forget sugar? you mean I need more or less? I hardly ever eat sweets. I

like carbs and know they turn to sugar so I am trying to eat good carbs which of

course taste yucky lol

Family tree is fine.

Angie <angie@...> wrote:

Don't forget sugar!!

Caffeine and anxiety may be the most common cause of heart flutters, but I was

told its our hearts way of " stretching " ... or re syncing itself.

Hearts are a smooth muscle and not a " victim " of SMA; what's your family tree

like for heart related concerns?

Angie

On Monday 19 February 2007 21:59, Joy wrote:

> Hi-Lately I have been having a lot of heart fluttery feelings and I am not

> sure why. Do many of you have your heart checked regularly because of SMA?

> My regular doctor never checks anything! And my neuro hasn't checked this

> yet because I haven't seen him. I wonder if I should mention it. I read

> online it could be anxiety which I don't think I have or too much caffeine

> which I don't think I have either. Anyone else experience this?

>

>

>

> ---------------------------------

> Want to start your own business? Learn how on Small Business.

>

>

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Joy,

I have an ECHO and EKG once a year with my cardiologist just to check everything

out.

Milinovich

Heart Flutters

Hi-Lately I have been having a lot of heart fluttery feelings and I am not sure

why. Do many of you have your heart checked regularly because of SMA? My regular

doctor never checks anything! And my neuro hasn't checked this yet because I

haven't seen him. I wonder if I should mention it. I read online it could be

anxiety which I don't think I have or too much caffeine which I don't think I

have either. Anyone else experience this?

------------ --------- --------- ---

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:(

Joy wrote:

>

> I was going to my reg doctor because she was in walking distance and

> then hubby didn't have to take off work to bring me and I didn't have

> to deal with a bus. Now that I've moved I should find a new doctor,

> but they have always been the same-clueless about sma and couldn't

> care less. I have terrible insurance that won't pay for anything so

> that could be why my doctors don't care.

>

> My neuro seems to care so I will tell him and she what he says.

>

>

>

>

> Lori <those2@... <mailto:those2%40houston.rr.com>> wrote:

>

> It really doesn't matter who says what...age old debate yada yada.

> Heart disease is the leading cause of death in women and if you (any of

> us) think there could be a heart problem, see a cardiologist.

>

> Joy, Your regular doctor is putting you at risk if he isn't providing

> basic testing to monitor your health status. Why do you go to him again?

>

> L

>

> Ksmile96@... <mailto:Ksmile96%40aol.com> wrote:

> >

> >

> > There's a debate on whether SMA directly affects the heart or if it's

> > just a

> > secondary symptom. Text books say that SMA only affects voluntary

> > muscles,

> > but Drs are now looking into involuntary muscles like the heart. I

> was at

> > MDA clinic in 7th grade when they noticed my heart was beating very

> > fast. As a

> > kid I thought these runs of tachycardia were normal, obviously they

> > weren't.

> > It's thought that the strain on the heart from things like compromised

> > respiratory muscles occurs in some people and affects the heart. You

> > should

> > probably mention this to your PCP or maybe neuro who can decide if you

> > need a

> > cardiology consult. If you do you'll probably have to wear a Halter

> > monitor

> > which is basically a little tape recorder. Sometimes it's only anxiety

> > but if

> > it's bothersome I'd tell your Dr. I personally have a few heart

> > problems and

> > heart disease does not run in my family.

> > Smiles,

> > Kimi

> >

> >

> > In a message dated 2/19/2007 10:02:34 P.M. Eastern Standard Time,

> > j0yeuxx@... <mailto:j0yeuxx%40> writes:

> >

> > Hi-Lately I have been having a lot of heart fluttery feelings and I am

> > not

> > sure why. Do many of you have your heart checked regularly because of

> > SMA? My

> > regular doctor never checks anything! And my neuro hasn't checked this

> > yet

> > because I haven't seen him. I wonder if I should mention it. I read

> > online it

> > could be anxiety which I don't think I have or too much caffeine which

> > I don't

> > think I have either. Anyone else experience this?

> >

> >

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Good to know. I'll find out if I'm covered for this.

They seem to have gone away though. whew!!!

Milinovich <dvlwksp@...> wrote:

Joy,

I have an ECHO and EKG once a year with my cardiologist just to check everything

out.

Milinovich

Heart Flutters

Hi-Lately I have been having a lot of heart fluttery feelings and I am not sure

why. Do many of you have your heart checked regularly because of SMA? My regular

doctor never checks anything! And my neuro hasn't checked this yet because I

haven't seen him. I wonder if I should mention it. I read online it could be

anxiety which I don't think I have or too much caffeine which I don't think I

have either. Anyone else experience this?

------------ --------- --------- ---

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Hi I have these heart flutters all the time they come and go. I've had them for

many many years now. I have seen heart docs and many emergency rooms for them

cause they r kinda scary but actually they are not any danger to me! They r

called a PVC and they r basically just your heart changing it's beat rhythm.

your heart has two pumps the top and the bottom hearts pump top then bottom well

mine choses to beat top bottom top bottom bottom that is the flutter feeling! my

doctors told me they r not life threating or damaging at all just a little

annoying! lol.... Just tell your doc you think you might be haveing pvc's they

will explain it! hope this helps!

Thanks, Selina

Joy <j0yeuxx@...> wrote:

Good to know. I'll find out if I'm covered for this.

They seem to have gone away though. whew!!!

Milinovich <dvlwksp@...> wrote:

Joy,

I have an ECHO and EKG once a year with my cardiologist just to check everything

out.

Milinovich

Heart Flutters

Hi-Lately I have been having a lot of heart fluttery feelings and I am not sure

why. Do many of you have your heart checked regularly because of SMA? My regular

doctor never checks anything! And my neuro hasn't checked this yet because I

haven't seen him. I wonder if I should mention it. I read online it could be

anxiety which I don't think I have or too much caffeine which I don't think I

have either. Anyone else experience this?

------------ --------- --------- ---

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I've had tachycardia {a fast but even heart rate that sound like your

flutters experience} since 1976. They got unbarable on certain

medicatons so keep a log on your symptoms. Adjusting med doses on

sudafed, SSRIs, and especially albuterol helped. Atenenol {beta

blocker} had to be stopped and I felt way better for it.

I've searched long far and wide to get answers and what I learned was-

1. most ladies over 20 with SMA get this.

2. as long as your heart rythem stays even and with no arythmia you'll

not have a heart attack, or explode, or die, or faint, etc. from it.

3. Most Neouro and pulmo drs dn't know what to do about this so get a

cariologist and check it at least once a year.

4. Consider yourself another SMA pioneer. Since SMAers now live longer

than before, there are medical conditions we never lived long enough

for drs to be aware of.- Until Us :)!

You're helping pave the way for future SMAers

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  • 2 years later...

I've gone back and tried to read about heart flutters and what to do about them. Here's what's going on with me. I take 5 60mg (300 mg) Thyroid S, and have been taking 50mg iodoral. About a week ago I began experiencing occasional heart flutters, so I cut began pulse dosing with the Iodoral..., every other day. The thing is that this is the first time I've actually lost any weight (only about 5 pounds, but I haven't lost any weight, even with dieting in 2 years on Thyroid S/Armour). Until 5 days ago I was taking 2000-3000 mg of Vit C.I'm taking Selenium with the Iodoral and taking a B/B12 complex. I have been lax about taking the Calcium/Magnesium/Zinc.I'm not sure if I should cut back to 240mg Thyroid S, or go back to 12.5 mg Iodoral.I really appreciate any input. This is kind of frightening, the heart flutters in the base of the throat.Cheryl (tx)

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cheryl,

magnesium and calcium. Mine went after two days on 500mg of magnesium. and

never returned.Then I discovered from test results I was low on calcium.

The RDA for magnesium tends to be low.

From: clhend <clhend@...>Subject: Heart fluttersiodine Date: Monday, 21 December, 2009, 3:23

I've gone back and tried to read about heart flutters and what to do about them. Here's what's going on with me. I take 5 60mg (300 mg) Thyroid S, and have been taking 50mg iodoral. About a week ago I began experiencing occasional heart flutters, so I cut began pulse dosing with the Iodoral..., every other day. The thing is that this is the first time I've actually lost any weight (only about 5 pounds, but I haven't lost any weight, even with dieting in 2 years on Thyroid S/Armour). Until 5 days ago I was taking 2000-3000 mg of Vit C.I'm taking Selenium with the Iodoral and taking a B/B12 complex. I have been lax about taking the Calcium/Magnesium/ Zinc.I'm not sure if I should cut back to 240mg Thyroid S, or go back to 12.5 mg Iodoral.I really appreciate any input. This is kind of frightening, the heart flutters in the base of the throat.Cheryl

(tx)

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Thank you, .

That'll teach me to be consistent in taking the mag/cal.

Cheryl (tx)

>

> cheryl,

> magnesium and calcium. Mine went after two days on 500mg of magnesium.

and

> never returned.Then I discovered from test results I was low on

calcium.

> The RDA for magnesium tends to be low.

>

>

>

>

>

> From: clhend clhend@...

> Subject: Heart flutters

> iodine

> Date: Monday, 21 December, 2009, 3:23

>

>

> Â

>

>

>

> I've gone back and tried to read about heart flutters and what to do

about them. Here's what's going on with me. I take 5 60mg (300 mg)

Thyroid S, and have been taking 50mg iodoral. About a week ago I began

experiencing occasional heart flutters, so I cut began pulse dosing with

the Iodoral..., every other day. The thing is that this is the first

time I've actually lost any weight (only about 5 pounds, but I haven't

lost any weight, even with dieting in 2 years on Thyroid S/Armour).

Until 5 days ago I was taking 2000-3000 mg of Vit C.

>

> I'm taking Selenium with the Iodoral and taking a B/B12 complex. I

have been lax about taking the Calcium/Magnesium/ Zinc.

>

> I'm not sure if I should cut back to 240mg Thyroid S, or go back to

12.5 mg Iodoral.

>

> I really appreciate any input. This is kind of frightening, the heart

flutters in the base of the throat.

>

> Cheryl (tx)

>

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Hi Cheryl,

The one thing I have managed to get sorted is the heart banging away with my Graves. I can understand how uncomfortable and frightening it can be. When I am really sick with Graves my heart is 120 beats a minute just lying down in front of the TV for 2 hours and doing nothing at all. I can't sleep when it is that bad and I go down hill really fast because of the lack of sleep and my body just going way to fast. Magnesium is the answer. My thyroid results are really bad again because I have been exposed to chlorine and fluorine these last 3 months. The doctor was amazed my heart rate was so normal. When I told him it was the magnesium he just looked at me like I was weird.

Good luck

Lise

From: clhend <clhend@...>iodine Sent: Mon, December 21, 2009 1:23:13 PMSubject: Heart flutters

I've gone back and tried to read about heart flutters and what to do about them. Here's what's going on with me. I take 5 60mg (300 mg) Thyroid S, and have been taking 50mg iodoral. About a week ago I began experiencing occasional heart flutters, so I cut began pulse dosing with the Iodoral..., every other day. The thing is that this is the first time I've actually lost any weight (only about 5 pounds, but I haven't lost any weight, even with dieting in 2 years on Thyroid S/Armour). Until 5 days ago I was taking 2000-3000 mg of Vit C.I'm taking Selenium with the Iodoral and taking a B/B12 complex. I have been lax about taking the Calcium/Magnesium/ Zinc.I'm not sure if I should cut back to 240mg Thyroid S, or go back to 12.5 mg Iodoral.I really appreciate any input. This is kind of frightening, the heart flutters in the base of the throat.Cheryl

(tx)

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lise,

yes,that figgers. They don't like to be told their business. Actually what really bugs them is that they didn't think of that solution first.

From: Lise Brown <lise.brown@...>Subject: Re: Heart fluttersiodine Date: Monday, 21 December, 2009, 21:26

Hi Cheryl,

The one thing I have managed to get sorted is the heart banging away with my Graves. I can understand how uncomfortable and frightening it can be. When I am really sick with Graves my heart is 120 beats a minute just lying down in front of the TV for 2 hours and doing nothing at all. I can't sleep when it is that bad and I go down hill really fast because of the lack of sleep and my body just going way to fast. Magnesium is the answer. My thyroid results are really bad again because I have been exposed to chlorine and fluorine these last 3 months. The doctor was amazed my heart rate was so normal. When I told him it was the magnesium he just looked at me like I was weird.

Good luck

Lise

From: clhend <clhendgmail (DOT) com>iodinegroups (DOT) comSent: Mon, December 21, 2009 1:23:13 PMSubject: Heart flutters

I've gone back and tried to read about heart flutters and what to do about them. Here's what's going on with me. I take 5 60mg (300 mg) Thyroid S, and have been taking 50mg iodoral. About a week ago I began experiencing occasional heart flutters, so I cut began pulse dosing with the Iodoral..., every other day. The thing is that this is the first time I've actually lost any weight (only about 5 pounds, but I haven't lost any weight, even with dieting in 2 years on Thyroid S/Armour). Until 5 days ago I was taking 2000-3000 mg of Vit C.I'm taking Selenium with the Iodoral and taking a B/B12 complex. I have been lax about taking the Calcium/Magnesium/ Zinc.I'm not sure if I should cut back to 240mg Thyroid S, or go back to 12.5 mg Iodoral.I really appreciate any input. This is kind of frightening, the heart flutters in the base of the throat.Cheryl

(tx)

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Lise,

Thank you for that information. I took a mag/cal today, and only 240mg of

ThyroidS, and so far no flutters. I'll give it a couple of days, then I want to

try to go back up to 300mg of The TyroidS, as that seems to keep the hypo

symptoms down.

Thanks again,

Cheryl (tx)

>

> Hi Cheryl,

>

> The one thing I have managed to get sorted is the heart banging away with my

Graves. I can understand how uncomfortable and frightening it can be. When I am

really sick with Graves my heart is 120 beats a minute just lying down in front

of the TV for 2 hours and doing nothing at all. I can't sleep when it is that

bad and I go down hill really fast because of the lack of sleep and my body just

going way to fast. Magnesium is the answer. My thyroid results are really bad

again because I have been exposed to chlorine and fluorine these last 3 months.

The doctor was amazed my heart rate was so normal. When I told him it was the

magnesium he just looked at me like I was weird.

> Good luck

> Lise

>

>  

>

>

>

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