Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hello I got Stills disease in my left side of my body really bad... my wrist is the worst. Does anyone else have sleeping problems from this or anything else? Maybe slight depression or anything that can relate to me, I get stressed to easily.. that causes problems. thanks nicole _________________________________________________________________ Send instant messages to anyone on your contact list with MSN Messenger 6.0. Try it now FREE! http://msnmessenger-download.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 My hips and wrists are the worst affected joints, they always have been, my right wrist continues to have swelling and puffiness that has never gone away, Im so used to it but my rheumy or other docs notice it everytime. I also have sleeping problems, Ive been taking ambien for about a month, it's not working like it was in the beginning, I also take antidepressents to help with sleep but I need to change them because I dont think they work any longer either. I have always had sleep problems though even before I got still's, I just think the still's made them worse. I see my doc military doc tomorrow and I'll see what he wants to change my meds too. Im thinking about changing the enbrel too and trying Humira. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hello , it's Pattymelt here. I get depression too because it's not easy living with a disease that takes so much away from us. Also the pain is very depressing at times for me. Sometimes I do alright and others I don't. If you need to talk my email is mellymelt@..., it's a new one. Hang in there, Melt Re: Aches and Pains > Hello I got Stills disease in my left side of my body really bad... my wrist > is the worst. Does anyone else have sleeping problems from this or anything > else? Maybe slight depression or anything that can relate to me, I get > stressed to easily.. that causes problems. thanks > > nicole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Hi - this is Todd. Oh yes, depression is a battle with this disease. It is only natural and whatever you do, don't beat yourself up about it. I battled with depression before the disease so maybe it is easier for me to see it amplified with the disease. Talk to the rheumy about how the disease is affecting you emotionally. He or she will understand, and if he doesn't, time to get a new one. There are many meds to help you deal with this part of the disease - if that's what your rheumy thinks is best. You're not alone - this disease is not easy to deal with. We're here to support you... P.S. - I guess you probably figured this out, but I'm on an anti-depressent, along with my MTX and Prednisone. > > > Re: Aches and Pains > > > > Hello I got Stills disease in my left side of my body really bad... my >wrist > > is the worst. Does anyone else have sleeping problems from this or >anything > > else? Maybe slight depression or anything that can relate to me, I get > > stressed to easily.. that causes problems. thanks > > > > nicole > > _________________________________________________________________ Never get a busy signal because you are always connected with high-speed Internet access. Click here to comparison-shop providers. https://broadband.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Hi All my Fellow Stilligans, This is Dave. I hope all of you are having a some what PAIN FREE day. I have severe aches and pains. I'm also experiencing severe painful involuntary Muscle spasms. I'm not doing well at all. I'm in excruciating pains but thats why I'm on Oxycontin. I was on Kineret, Enbrel, MTX, and I've been on Humira now for about 6 weeks. I use to take it every other week but, when I saw rheumy last which was 3 weeks ago. I'm now have to take it every week because I'm not doing well at all. I tried all those other ones nothing helped. The Methotrexate made me sick everytime I took it. I vomited from it within an hour. So now I have to take it every week and it really STINGS!!!!!! take it out of the refridgerator for a few hours and and then take it. It helps the stinging part but it still stings, but not that bad. I hope you feel better soon and you can try Humira. Good luck!!! This is for any of my fellow friends does anyone know of Auto-Immune/ Neurological disease called " STIFF MAN SYNDROME " If anyone at all please I would greatly appreciate all the info I could get. Sincerely your fellow Stilligan friend Dave, My e-mail address is wave678@... p.s. please anybody at all know of this disease. most likely I have it. like 99% of it. I WISH EVERYBODY A PAIN FREE DAY AND NIGHT!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Hi , I sometimes have trouble sleeping too. One thing that does help me is listening to music....nothing special, whatever you like. I use my walkman and bought the little earphones that go right in your ear so it is a bit more comfy. I've also learned some relaxation exercises, mainly to deal with my headaches (which are made worse by stress of course). I can recommend a book or two or give you some info on the relaxation I do - email me at shepp@... if you want. I also have trouble with my wrist. If the wrist pain keeps you up at night, here is something that helped me. I got a small thin pillow and would lay it against my chest. If I was laying on my back, I could rest my arm on the pillow. Seemed to help. Trish in PA Re: Aches and Pains > Hello I got Stills disease in my left side of my body really bad... my wrist > is the worst. Does anyone else have sleeping problems from this or anything > else? Maybe slight depression or anything that can relate to me, I get > stressed to easily.. that causes problems. thanks > > nicole > > _________________________________________________________________ > Send instant messages to anyone on your contact list with MSN Messenger > 6.0. Try it now FREE! http://msnmessenger-download.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Hi , I sometimes have trouble sleeping too. One thing that does help me is listening to music....nothing special, whatever you like. I use my walkman and bought the little earphones that go right in your ear so it is a bit more comfy. I've also learned some relaxation exercises, mainly to deal with my headaches (which are made worse by stress of course). I can recommend a book or two or give you some info on the relaxation I do - email me at shepp@... if you want. I also have trouble with my wrist. If the wrist pain keeps you up at night, here is something that helped me. I got a small thin pillow and would lay it against my chest. If I was laying on my back, I could rest my arm on the pillow. Seemed to help. Trish in PA Re: Aches and Pains > Hello I got Stills disease in my left side of my body really bad... my wrist > is the worst. Does anyone else have sleeping problems from this or anything > else? Maybe slight depression or anything that can relate to me, I get > stressed to easily.. that causes problems. thanks > > nicole > > _________________________________________________________________ > Send instant messages to anyone on your contact list with MSN Messenger > 6.0. Try it now FREE! http://msnmessenger-download.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Great post Chris! I agree. I am also on Celexa. One of the side effects I believe of prednisone is depression...I think...or maybe it is memory loss........ Covered in pumpkin guts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Great post Chris! I agree. I am also on Celexa. One of the side effects I believe of prednisone is depression...I think...or maybe it is memory loss........ Covered in pumpkin guts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Hi Caloline, It's Dave. I wanted to thank you very much for responding to my post. I greatly appreciate it friend. I'm definetly going to that web site. hope all is well with you and are some what having a PAIN FREE NIGHT!!! Take care and be well. Thanx again. Sincerely Dave, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Dave it sounds as if urn spasms are part of the STIFFMAN SYNDROME,hope they dont become as bad as ive read about.Where did you hear that you might have this bro,cause i for 1 can tell you i had violent spasms too.My arms and legs would just punch and kick in the hospital bed really freaky stuff.Mine did disappear so dont discount this as a Stills symptom i sure hope its not the other thing and hopefully will go away mine did.I found a support group for it though ill paste it for you,take care bro get better soon. d.Canada Stiff Man Syndrome is a neuromuscular condition in which a hyperactive startle reflex results in the contraction of the muscles causing violent spasms. These spasms are capable of slamming the victim into walls and furniture. The disorder's cause is unknown, although evidence is pointing increasingly to the fact that it is an autoimmune disorder. Although they appear completely normal, those afflicted with Stiff-Man Syndrome must avoid any situation where they might be exposed to sudden sounds or stimulation. Often, they remain isolated in their home and excluded from normal living. They are orphaned from society by this rare and ruthless disorder. Stiffman-request@... Re: Aches and Pains Hi All my Fellow Stilligans,This is Dave. I hope all of you are having a some what PAIN FREE day.I have severe aches and pains. I'm also experiencing severe painful involuntary Muscle spasms. I'm not doing well at all. I'm in excruciating pains but thats why I'm on Oxycontin. I was on Kineret, Enbrel, MTX, and I've been on Humira now for about 6 weeks. I use to take it every other week but, when I saw rheumy last which was 3 weeks ago. I'm now have to take it every week because I'm not doing well at all. I tried all those other ones nothing helped. The Methotrexate made me sick everytime I took it. I vomited from it within an hour. So now I have to take it every week and it really STINGS!!!!!! take it out of the refridgerator for a few hours and and then take it.It helps the stinging part but it still stings, but not that bad. I hope you feel better soon and you can try Humira. Good luck!!! This is for any of my fellow friends does anyone know of Auto-Immune/ Neurological disease called "STIFF MAN SYNDROME" If anyone at all please I would greatly appreciate all the info I could get. Sincerely your fellow Stilligan friend Dave, My e-mail address is wave678@...p.s. please anybody at all know of this disease. most likely I have it. like 99% of it. I WISH EVERYBODY A PAIN FREE DAY AND NIGHT!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Hi , It's Dave. I wanted to thank you very much for responding back to me. I greatly appreciate it. My Rheumy believes I have "Stiff Man Syndrome". He's sending me back to my Neurologist who is the best in the South florida. He's known world wide. So I'm very much so in the best hands their is. My rheumy told me that other Auto-immune Dz's can cause SMS. I have severe excruciating painful muscle spasms in my back, neck, legs, and my shoulder and arms. I'm on Oxycontin, and a muscle relaxant called Skelaxin. Well I gotta split. Take care and be well thanks again buddy for your responce. I WISH YOU, AND ALL MY FELLOW STILLIGANS A VERY PAIN FREE DAY AND WEEKEND!!!!!! Sincerely Dave, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 Hi Sharon, is there a reason why you think you may have toxicity .... do you think that you are not converting ? I went through long periods of aches and pains before I got my Armour dose up. If I miss my supplements, eat badly or do something else that effects my Armour absorption I also get achey. It has been a bit better since getting my D3 levels corrected. Basically there are many known and unknown reasons it seems that so many hypo t sufferers get aches and pains. I think you have to go through the list of all the associated conditions and treat them one by one, while getting your thyroid meds up to their optimum and keep an eye on adrenal status. Keeping a food, supplement, temperature and 'how you feel' diary can be really helpful...... if you can just find the energy to actually do that. julia Quote Link to comment Share on other sites More sharing options...
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