Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 ENT just called and has my husband pretty convinced that he has to have the RAI treatment and NOW! Not even willing to let him wait until July to meet with an endo - he's been looking for one in our health plan who will fit him in sooner. AND this same doc, who, during our consultation prior to the thyroidectomy, told us he was stage I now says had it pretty bad and he shouldn't wait because of this. Also that his body is already starved of iodine and is ready for the treatment (surgery was two weeks ago tomorrow). My mind is drawing blanks on why he shouldn't have this and I still have no research that demonstrates why he shouldn't. PLEASE, PLEASE help me. I am so stressed out about this and can't even think. I can't put together rational arguments for him to convince him this doctor is wrong. He buys the doctor telling him if his brother were to have thyroid cancer, he'd advise him the same way. The doctor also told him his father in law did have it many years ago and is doing fine now. If you don't personally have factual information against RAI, do you know where I can go to get it? I still haven't found it on any of the sites that have been recommended. Desperately, Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 There are no doctors on my site (www.naturalthyroidchoices.com ) and yes iodine can be effective in eliminating thyroid cancer if done with the protocol. However, that being said, the holistic Dr's still recommend thyroidectomies to lessen the load of the cancer on the body and then clean it up from there. Iodine therapy IS helpful. Not sure where you read it isn't but that isn't on my site. Re: URGENT HELP! There is a lot of info why RAI is bad. BUT there is no info on how to beat the thyroid cancer without it. One of the docs from naturalythyroidchoices said iodine therapy is not helpful. It is helpful to stay in remission etc, but not when you have thyca allover. Please let me know if you have other info.> >> >> > ENT just called and has my husband pretty convinced that he has to > > have the RAI treatment and NOW! Not even willing to let him wait until > > July to meet with an endo - he's been looking for one in our health > > plan who will fit him in sooner. AND this same doc, who, during our > > consultation prior to the thyroidectomy, told us he was stage I now > > says had it pretty bad and he shouldn't wait because of this. > > Also that his body is already starved of iodine and is ready for the > > treatment (surgery was two weeks ago tomorrow).> >> > My mind is drawing blanks on why he shouldn't have this and I still > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > help me. I am so stressed out about this and can't even think. I can't > > put together rational arguments for him to convince him this doctor is > > wrong. He buys the doctor telling him if his brother were to have > > thyroid cancer, he'd advise him the same way. The doctor also told him > > his father in law did have it many years ago and is doing fine now.> >> > If you don't personally have factual information against RAI, do you > > know where I can go to get it? I still haven't found it on any of the > > sites that have been recommended.> >> > Desperately,> >> > Pamela> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 The doctors are on your site under " iodine practitioners " . About iodine not been helpful - is not from your site, but from the coversation with a doctor. I do want to add that evryone's situation is different and all doctors could have different opinions.. There is no one type of scenario for everybody. And RAI IS very dangerous and one has to consider all pros and cons very very carefully. I'm personally trying to not do it. I'm pro-iodine. > > > > > > > > > ENT just called and has my husband pretty convinced that he has to > > > have the RAI treatment and NOW! Not even willing to let him wait until > > > July to meet with an endo - he's been looking for one in our health > > > plan who will fit him in sooner. AND this same doc, who, during our > > > consultation prior to the thyroidectomy, told us he was stage I now > > > says had it pretty bad and he shouldn't wait because of this. > > > Also that his body is already starved of iodine and is ready for the > > > treatment (surgery was two weeks ago tomorrow). > > > > > > My mind is drawing blanks on why he shouldn't have this and I still > > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > > help me. I am so stressed out about this and can't even think. I can't > > > put together rational arguments for him to convince him this doctor is > > > wrong. He buys the doctor telling him if his brother were to have > > > thyroid cancer, he'd advise him the same way. The doctor also told him > > > his father in law did have it many years ago and is doing fine now. > > > > > > If you don't personally have factual information against RAI, do you > > > know where I can go to get it? I still haven't found it on any of the > > > sites that have been recommended. > > > > > > Desperately, > > > > > > Pamela > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 From: iodine [mailto:iodine ] On Behalf Of katerinka70 Sent: Friday, May 08, 2009 11:25 AM iodine Subject: Re: URGENT HELP! And RAI IS very dangerous and one has to consider all pros and cons very very carefully. I'm personally trying to not do it. I'm pro-iodine. > From: katerinka70 > iodine > Sent: Friday, May 08, 2009 10:31 AM > Subject: Re: URGENT HELP! > > > There is a lot of info why RAI is bad. So I keep hearing anecdotally – where are the facts that my husband can use to validly weigh his choices and intelligently discuss this with a doctor (even though the doctor is unlikely to accept any of it, it would be easier to argue facts instead of personal stories)? I haven’t found those yet. He wants factual proof and refuses to believe there is any conspiracy on the part of pharmaceutical companies and others to mislead doctors. Where did use of RAI even originate? How long has it been in use? What studies have been done to compare survival rates, rates of recurrence and rates of secondary cancers between thyroid cancer patients who chose to have RAI and those who didn’t? I can’t find any information that cites references that can be consulted and frankly, without that kind of information, he is unlikely to resist the doctors. He just made an appointment today with a different endo that first scheduled him 6 weeks sooner than the original endo (June 1 vs. July 15) and who, when discovering he had thyroid cancer, called back and rescheduled him for a consultation next week and told him to NOT take the Armour that our PCM did finally order for him. I’ve spent hours each and every day since learning he had cancer researching and seeking this information and it continues to elude me. Either it doesn’t exist or I am missing something in how I am searching for it. I had hoped to be able to ease up a bit on the research since I had over two months when we scheduled the July 15 appointment. Other things, including my children, are needing my attention and I’ve put much of it on hold in order to find out what I can for my husband. On top of that, I’m just plain exhausted. Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 This is where I get confused. On 's site she states " So.......Just say NO to Thyroidectomies, RAI and Synthetic hormones. " But then she says " the holistic Dr's still recommend thyroidectomies to lessen the load of the cancer on the body and then clean it up from there. " So is it yes to thyroidectomies or no, or yes to partial, Steph-can you elaborate on that please to clear up the mistunderstanding here:) > > > > > > > > > ENT just called and has my husband pretty convinced that he has to > > > have the RAI treatment and NOW! Not even willing to let him wait until > > > July to meet with an endo - he's been looking for one in our health > > > plan who will fit him in sooner. AND this same doc, who, during our > > > consultation prior to the thyroidectomy, told us he was stage I now > > > says had it pretty bad and he shouldn't wait because of this. > > > Also that his body is already starved of iodine and is ready for the > > > treatment (surgery was two weeks ago tomorrow). > > > > > > My mind is drawing blanks on why he shouldn't have this and I still > > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > > help me. I am so stressed out about this and can't even think. I can't > > > put together rational arguments for him to convince him this doctor is > > > wrong. He buys the doctor telling him if his brother were to have > > > thyroid cancer, he'd advise him the same way. The doctor also told him > > > his father in law did have it many years ago and is doing fine now. > > > > > > If you don't personally have factual information against RAI, do you > > > know where I can go to get it? I still haven't found it on any of the > > > sites that have been recommended. > > > > > > Desperately, > > > > > > Pamela > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 The doctors say that - I don't. I think that there is still hope to do it w/o surgeries since I have seen it done. Steph Re: URGENT HELP! This is where I get confused. On 's site she states "So.......Just say NO to Thyroidectomies, RAI and Synthetic hormones." But then she says "the holistic Dr's still recommend thyroidectomies to lessen the load of the cancer on the body and then clean it up from there." So is it yes to thyroidectomies or no, or yes to partial, Steph-can you elaborate on that please to clear up the mistunderstanding here:) > > >> > >> > > ENT just called and has my husband pretty convinced that he has to > > > have the RAI treatment and NOW! Not even willing to let him wait until > > > July to meet with an endo - he's been looking for one in our health > > > plan who will fit him in sooner. AND this same doc, who, during our > > > consultation prior to the thyroidectomy, told us he was stage I now > > > says had it pretty bad and he shouldn't wait because of this. > > > Also that his body is already starved of iodine and is ready for the > > > treatment (surgery was two weeks ago tomorrow).> > >> > > My mind is drawing blanks on why he shouldn't have this and I still > > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > > help me. I am so stressed out about this and can't even think. I can't > > > put together rational arguments for him to convince him this doctor is > > > wrong. He buys the doctor telling him if his brother were to have > > > thyroid cancer, he'd advise him the same way. The doctor also told him > > > his father in law did have it many years ago and is doing fine now.> > >> > > If you don't personally have factual information against RAI, do you > > > know where I can go to get it? I still haven't found it on any of the > > > sites that have been recommended.> > >> > > Desperately,> > >> > > Pamela> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 Try googling " radioactive thyroid ablation side effects. " This is from just the first one listed. " The most common chronic side effect after RAI treatment is decreased saliva production. Severe long-term side effects are rare. Organ-specific side effects are found in salivary glands, lacrimal glands, bone marrow, lungs and reproductive organs (ovary and testis. " Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 I should have given the reference. Reading further it says that RIA may spread cancer to the brain, cause leukemia, etc. http://www.hkcr.org/publ/Journal/vol8no3/full/127-135%20Side.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 I should also add that the Dr's have not walked in the shoes of those that have removed their thyroids and will never feel the same. I will forever be dependant on a Dr to give me thyroid medication and will never know what is lurking because I have no thyroid but have measurable levels of proteins created by both the thyroid and cancer. If I had a thyroid and all my levels were in normal range - I (notice I) would feel bettter. Steph Re: URGENT HELP! This is where I get confused. On 's site she states "So.......Just say NO to Thyroidectomies, RAI and Synthetic hormones." But then she says "the holistic Dr's still recommend thyroidectomies to lessen the load of the cancer on the body and then clean it up from there." So is it yes to thyroidectomies or no, or yes to partial, Steph-can you elaborate on that please to clear up the mistunderstanding here:) > > >> > >> > > ENT just called and has my husband pretty convinced that he has to > > > have the RAI treatment and NOW! Not even willing to let him wait until > > > July to meet with an endo - he's been looking for one in our health > > > plan who will fit him in sooner. AND this same doc, who, during our > > > consultation prior to the thyroidectomy, told us he was stage I now > > > says had it pretty bad and he shouldn't wait because of this. > > > Also that his body is already starved of iodine and is ready for the > > > treatment (surgery was two weeks ago tomorrow).> > >> > > My mind is drawing blanks on why he shouldn't have this and I still > > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > > help me. I am so stressed out about this and can't even think. I can't > > > put together rational arguments for him to convince him this doctor is > > > wrong. He buys the doctor telling him if his brother were to have > > > thyroid cancer, he'd advise him the same way. The doctor also told him > > > his father in law did have it many years ago and is doing fine now.> > >> > > If you don't personally have factual information against RAI, do you > > > know where I can go to get it? I still haven't found it on any of the > > > sites that have been recommended.> > >> > > Desperately,> > >> > > Pamela> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 And the next one. From http://jcem.endojournals.org/cgi/content/full/83/12/4201 Does RAI ablation decrease the recurrence and death rates? The available data demonstrating apparently beneficial effects of RAI ablation in terms of recurrence and mortality rates are not particularly convincing (2). RAI ablation is clearly not beneficial to patients with small intrathyroid tumors (<1–1.5 cm) (3, 4) and does not influence recurrence rates in patients with node-positive papillary thyroid microcarcinoma (5). In patients with larger tumors ( 1.5 cm) and multifocality, tumor extension beyond the thyroid capsule or lymph node metastases, the beneficial effects of RAI continue to be debated Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 I can also add that it does damage to the hypothalamus. I didn't realize this until I continued to have hormonal issues and issues with my weight. If you look up the functions of the hypothalamus you will see it is part of the thyroid / pituitary axis and is hormonally driven. I now take a herbal formula that supports it plus a glandular to support both the hypothalamus and pit. I am also gluten intolerant now from RAI, early menopause with "trashed" ovaries. It's not a good deal. Also RAI seems to destroy your teeth as many report lots of dental carries post RAI. Re: URGENT HELP! I should have given the reference. Reading further it says that RIA may spread cancer to the brain, cause leukemia, etc. http://www.hkcr.org/publ/Journal/vol8no3/full/127-135%20Side.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 How many cases have you seen it done without surgery? > > > Re: URGENT HELP! > > > This is where I get confused. On 's site she states " So.......Just say NO to Thyroidectomies, RAI and Synthetic hormones. " > But then she says " the holistic Dr's still recommend thyroidectomies to lessen the load of the cancer on the body and then clean it up from there. " > So is it yes to thyroidectomies or no, or yes to partial, Steph-can you elaborate on that please to clear up the mistunderstanding here:) > > > > > > > > > > > > > > ENT just called and has my husband pretty convinced that he has to > > > > have the RAI treatment and NOW! Not even willing to let him wait until > > > > July to meet with an endo - he's been looking for one in our health > > > > plan who will fit him in sooner. AND this same doc, who, during our > > > > consultation prior to the thyroidectomy, told us he was stage I now > > > > says had it pretty bad and he shouldn't wait because of this. > > > > Also that his body is already starved of iodine and is ready for the > > > > treatment (surgery was two weeks ago tomorrow). > > > > > > > > My mind is drawing blanks on why he shouldn't have this and I still > > > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > > > help me. I am so stressed out about this and can't even think. I can't > > > > put together rational arguments for him to convince him this doctor is > > > > wrong. He buys the doctor telling him if his brother were to have > > > > thyroid cancer, he'd advise him the same way. The doctor also told him > > > > his father in law did have it many years ago and is doing fine now. > > > > > > > > If you don't personally have factual information against RAI, do you > > > > know where I can go to get it? I still haven't found it on any of the > > > > sites that have been recommended. > > > > > > > > Desperately, > > > > > > > > Pamela > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 When we look for something from conventional medicine (clinical trials, etc) that says don't do a recommended protocol because…..most likely the search will be futile. This is the standard procedure for thyroid cancer and it will not be questioned by most in conventional medicine. Conventional medicine as a whole will not support natural medicine. While individual testimonies are anecdotal, at best, they should never be discounted. Doesn’t mean that one’s experience will be another’s experience, but it does mean that it could and thus should be weighed as a possibility. By the way, the “all important” clinical trials are not that reliable either. Most are skewed toward who is paying for the trial. I would highly suggest that your husband try to get an appointment with one of the docs in Dr. Brownstein's office (or find an iodine literate doc in your area) in order to at least get another opinion from someone not so tied to conventional medicine and its standard protocols. It will definitely be worth the money and the time to have some answers from docs that are having success using a non-toxic treatment. Has your husband read the following? http://www.stopthethyroidmadness.com/rai/ It makes no sense whatsoever to cut and radiate and then think one will never have any more problems. The root of the concern has not been remotely addressed. All that was done was a temporary removal of symptoms. Radiation CAUSES cancer and wrecks havoc with the body -- always has and always will. Any time the body is radiated the immune system is brought down tremendously. A compromised immune system can be a time bomb since it is the foundation for many other diseases. I have found that most oncologists/radiologists never mention the immediate side-effects or the long-term health concerns that may come up after or during treatment unless pressed very hard for those answers. And most patients never ask because they TRUST conventional medicine to have their best interest at heart. Most docs have never gone through conventional cancer treatment and its side-effects, I suspect that if more of them were required to take their own medicine, we might be closer to a cure. It takes cancer a long time to get to where it can even be picked up by a scan, etc. Your husband does has time to research and decide what he wants to do. Other than a dire life/death emergency, any doctor that pressures someone to " DO IT NOW, BECAUSE IT’S REALLY BAD " is dealing in fear tactics. They know that fear controls. What exactly does this doc mean when he says " pretty bad " ? Docs that deal with cancer almost always present a sense of " urgency " because they know they " may " lose a patient if the patient has time to research and/or talk with others. The cancer industry is a " cash cow " for pharmaceutical companies and doctors. No real good evidence in cure-rate since Nixon declared war on cancer in 1971. Yet, people still line up for chemotherapy, radiation and surgery like they will be the one that it actually works for. Cure rate for cancer, using conventional medicine, is around 3-5% depending on who you read. Not good odds, in my book. Some of the very real side effects of RAI experienced by patients: (from the article mentioned above) 1. The skin on the body peels off in a similar fashion as mild sunburn. This may include the mucosal linings. 2. No sense of taste for at least a month. Others have reported 3 months, and some never regain the sense of taste again. 3. Very swollen and painful salivary glands for a month. Some patients experience this years after RAI, and some have the loss of salivary gland function for life. (If one has ever had dry mouth – it is not fun!) 4. Digestive problems including food not being properly digested, constipation, or extreme diarrhea for long periods of time. 5. Sudden onset of allergies or food sensitivities including the inability to eat gluten. 6. Iodine deficiency due to low-iodine diet prior to RAI. 7. Adrenal fatigue 8. Compromised immune system 9. Burning tongue Most of these side-effects will require more drugs in order to “try” to alleviate them. It would be a good idea for you and your husband to write out all your questions and then take them to the doc for answers; also take them to an iodine literate doc. Don’t be afraid of hurting his/her feelings, etc. They work for you, not the other way around. Be nice, courteous and ask your questions in a tone of voice that is not accusatory or challenging, in any way. You want good answers not a doc that feels like he is being attacked. Ask if you can tape the question and answer period so that you can both review it later. (Most people research and ask more questions when buying a new car than they do when faced with a major health challenge.) Then sit down and calmly make a decision. Unfortunately in life not all decisions can be based on “if you do this then this will happen every time” simply because there are no guarantees – this is especially true when it comes to health concerns. Interviewing docs may be more eye-opening and provide more of the type of info that your husband is interested in. Ask about side-effects, long-term health concerns, cure rates (not response rates but cure rates – two very different things), why, if people cannot be around the person for a while after the RAI, is it not harmful to the person who is having it done?, what is the protocol and probability should the cancer comes back somewhere else?, what type of meds will he have to be on for the rest of his life?, etc., what are the side-effects of these meds? If he is willing to go through the side-effects and the very real possibility of cancer returning somewhere else because of the radiation, then there is nothing any one can say to convince otherwise. I watch family members try to convince and make decisions for cancer patients, all the time. They make the client’s appointments, talk for them, research for them, etc. and the one with cancer never takes any responsibility for their health thus making it difficult to be committed to getting well in a non-toxic manner. The one with cancer needs to research and decide what he/she is willing to do and what possibilities he/she is willing to live with. They need to research and read for themselves and become involved. Most of all, they need to believe that the course of action they have decided upon will help to get them well. If he/she is not willing or hesitant to try iodine therapy along with healthy diet, cleansing, detoxification, good supplementation, etc. then the choice has already been made. It takes a great deal of determination and discipline to heal from cancer using natural methods (it’s not just about popping supplements) and not all people are up for the challenge. And, it can be very difficult to stand-by and watch a loved-one make choices that may prove to be more harmful than good. Take your time and explain to your husband that doing due diligence now will most likely result in huge dividends down the road. Without one’s health, all other things in life, spiritual purpose, family, friends, possessions, hopes and dreams cannot be enjoyed to their fullest. Be Well Dr.L My Blog - Oasis of Health & Wellness Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 This is the kind of information I am looking for but unfortunately, it does not speak to my husband’s cancer – he falls in the second group – multifocal, 2.6 cm tumor extended beyond the capsule. Do not know what node-positive papillary thyroid microcarinoma is. From: iodine [mailto:iodine ] On Behalf Of dorothyroeder Sent: Friday, May 08, 2009 2:48 PM iodine Subject: Re: URGENT HELP! And the next one. From http://jcem.endojournals.org/cgi/content/full/83/12/4201 Does RAI ablation decrease the recurrence and death rates? The available data demonstrating apparently beneficial effects of RAI ablation in terms of recurrence and mortality rates are not particularly convincing (2). RAI ablation is clearly not beneficial to patients with small intrathyroid tumors (<1–1.5 cm) (3, 4) and does not influence recurrence rates in patients with node-positive papillary thyroid microcarcinoma (5). In patients with larger tumors ( 1.5 cm) and multifocality, tumor extension beyond the thyroid capsule or lymph node metastases, the beneficial effects of RAI continue to be debated Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 How was it done? Iodine/supplements? IPT? The iodine doc I spoke to did not have patients treated for thyca. > > > > > > > > > > > > ENT just called and has my husband pretty convinced that he has to > > > > have the RAI treatment and NOW! Not even willing to let him wait until > > > > July to meet with an endo - he's been looking for one in our health > > > > plan who will fit him in sooner. AND this same doc, who, during our > > > > consultation prior to the thyroidectomy, told us he was stage I now > > > > says had it pretty bad and he shouldn't wait because of this. > > > > Also that his body is already starved of iodine and is ready for the > > > > treatment (surgery was two weeks ago tomorrow). > > > > > > > > My mind is drawing blanks on why he shouldn't have this and I still > > > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > > > help me. I am so stressed out about this and can't even think. I can't > > > > put together rational arguments for him to convince him this doctor is > > > > wrong. He buys the doctor telling him if his brother were to have > > > > thyroid cancer, he'd advise him the same way. The doctor also told him > > > > his father in law did have it many years ago and is doing fine now. > > > > > > > > If you don't personally have factual information against RAI, do you > > > > know where I can go to get it? I still haven't found it on any of the > > > > sites that have been recommended. > > > > > > > > Desperately, > > > > > > > > Pamela > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 Detoxing, supporting nutrients (listed on my website - not all but a lot of them) and high doses of iodoral, vit C and I believe later on ATP Co-Factors as that was not originally part of the protocols. I know she has done a lot with organic diet as well. Steph Re: URGENT HELP! How was it done? Iodine/supplements? IPT? The iodine doc I spoke to did not have patients treated for thyca. > > > >> > > >> > > > ENT just called and has my husband pretty convinced that he has to > > > > have the RAI treatment and NOW! Not even willing to let him wait until > > > > July to meet with an endo - he's been looking for one in our health > > > > plan who will fit him in sooner. AND this same doc, who, during our > > > > consultation prior to the thyroidectomy, told us he was stage I now > > > > says had it pretty bad and he shouldn't wait because of this. > > > > Also that his body is already starved of iodine and is ready for the > > > > treatment (surgery was two weeks ago tomorrow).> > > >> > > > My mind is drawing blanks on why he shouldn't have this and I still > > > > have no research that demonstrates why he shouldn't. PLEASE, PLEASE > > > > help me. I am so stressed out about this and can't even think. I can't > > > > put together rational arguments for him to convince him this doctor is > > > > wrong. He buys the doctor telling him if his brother were to have > > > > thyroid cancer, he'd advise him the same way. The doctor also told him > > > > his father in law did have it many years ago and is doing fine now.> > > >> > > > If you don't personally have factual information against RAI, do you > > > > know where I can go to get it? I still haven't found it on any of the > > > > sites that have been recommended.> > > >> > > > Desperately,> > > >> > > > Pamela> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 Thank you ! How long did it take and what type of thyca? Whas the thyca spread? Asking for some incouragement. Working very hard here. > > Detoxing, supporting nutrients (listed on my website - not all but a lot of them) and high doses of iodoral, vit C and I believe later on ATP Co-Factors as that was not originally part of the protocols. I know she has done a lot with organic diet as well. > > Steph > > > Re: URGENT HELP! > > > > > > How was it done? Iodine/supplements? IPT? The iodine doc I spoke to did not have patients treated for thyca. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 There were three forms of cancer. She was given 2 mos to live and she had another fine needed 2 years later I believe and it was benign then. Steph Re: URGENT HELP!> > > > > > How was it done? Iodine/supplements? IPT? The iodine doc I spoke to did not have patients treated for thyca. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 Pamela, This is a story of a person who had surgery and RAI. Something to consider. Thyca/message/202179 > > This is the kind of information I am looking for but unfortunately, it does > not speak to my husband's cancer - he falls in the second group - > multifocal, 2.6 cm tumor extended beyond the capsule. Do not know what > node-positive papillary thyroid microcarinoma is. > > > > From: iodine [mailto:iodine ] On Behalf Of > dorothyroeder > Sent: Friday, May 08, 2009 2:48 PM > iodine > Subject: Re: URGENT HELP! > > > > > > > > > And the next one. From > http://jcem.endojournals.org/cgi/content/full/83/12/4201 > > Does RAI ablation decrease the recurrence and death rates? > > The available data demonstrating apparently beneficial effects of RAI > ablation in terms of recurrence and mortality rates are not particularly > convincing (2). > RAI ablation is clearly not beneficial to patients with small intrathyroid > tumors (<1-1.5 cm) (3, 4) and does not influence recurrence rates in > patients with node-positive papillary thyroid microcarcinoma (5). > In patients with larger tumors ( 1.5 cm) and multifocality, tumor extension > beyond the thyroid capsule or lymph node metastases, the beneficial effects > of RAI continue to be debated > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 > If you don't personally have factual information against RAI, do you know where I can go to get it? I still haven't found it on any of the sites that have been recommended.> > Pamela, See below for some info that may help. From Elaine 's website. http://www.elaine-moore.com/Home/tabid/36/Default.aspx http://www.elaine-moore.com/MyBlog/Blog/tabid/60/EntryId/112/Default.aspx Researchers have long known that radiation is the most significant risk factor for thyroid cancer. A recently published study shows that radiation is also associated with a deadlier form of thyroid cancer. has written an article describing this study. The findings show that patients who had RAI as a form of thyroid ablation for cancer or hyperthyroidism developed forms of cancer that were more aggressive and much more likely to metastasize. This study is important for anyone considering their options for treating hyperthyroidism and it's important for patients who have had RAI ablation. Dr. Francis Greenspan recommends that patients who have had RAI have annual checkups to look for signs of thyroid cancer and nodular growths. http://www.elaine-moore.com/MyArticles/GravesDisease/Radioiodine/tabid/69/Default.aspx Radioiodine Ablation RAI was first used to treat hyperthyroidism in the 1950's. Recent long-term studies show that RAI causes an increased risk of thyroid and small bowel cancers. Why is RAI still used most often to treat GD? Because it's the least expensive method, requiring few follow-up visits...only annual checkups for the resulting hypothyroidism. Radioiodine, usually I-131 taken orally, works by destroying thyroid cells, thereby reducing the amount of thyroid tissue capable of producing and releasing thyroid hormone. However, the thyroid is the victim in GD, not the cause. An immune system defect is responsible for symptoms in GD. Radioiodine can damage your salivary glands, causing symptoms much like those in Sjogren's syndrome. RAI can also damage your parathyroid glands. RAI is also known to trigger fibromyalgia. "Diagnosed with GD, I was told that I could suddenly go into thyroid storm. Now I know better, but then I rushed into having RAI ablation. For people with severe symptoms who are allergic to ATD's and who are surgical risks, RAI may be the only option. For me, it was the worst decision I've ever made. I'm now hypothyroid and I have pretibial myxedema. RAI affects other organs besides the thyroid. ATD's are capable of achieving remission in 90% of GD patients. Many people with mild to moderate symptoms have been successfully treated with alternative medicine." – Elaine Copyrighted © 2008 by Elaine Other Resources AtomicWomen.org Read how RAI cheated this woman of her health: Widebertha's Diary Thyroid cancer risk and RAI http://www.palmbeachpost.com/health/content/accent/epaper/2008/02/07/a5e_bone_col_0207.html An alternative treatment. Low dose Naltrexone boosts the immune system to fight cancer. http://www.elaine-moore.com/Resources/LowDoseNaltrexone/tabid/129/Default.aspx http://www.webspawner.com/users/ldnforcancer/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Here is some info - this was written with a treatment for Graves (lower dose of RAI so for thyroid cancer the risks are greater): The biggest study was published in 1974 and showed 19 thyroid cancers one year after radioiodine treatment. The Swedish group in a paper published on 1991, with a 10 year follow up after RAI, found significant increase in 3 cancers, stomach, bladder and brain. An important prospective study was published on March 1998 by the Birmingham group, UK, (N Engl J Med 1998 Mar 12;338(11):712-8). The cohort was very big 7209 persons, and so it was follow up period, nearly 40 years. Results showed that mortality from all causes was increased, especially mortality from thyroid disease, cerebro-vascular disease, cardio-vascular disease, and fractures of the femur, leading to death. This study was criticized in the USA, by AMA, ATA, and some other thyroid organizations and in July l998 E. Ron et al (The ative Thyrotoxicosis follow up Study Group) published a follow up of that big study dated 1974 quoted above, and summed up stating that "RAI appears to be safe" and "no significant increase in death rates was found". They add: "While there was an elevated risk of thyroid cancer mortality following I-131 treatment, in absolute terms the excess number of deaths was small, and the underlying thyroid disease appeared to play a role". (Note that this risk for thyroid cancer was increased by 4 fold after RAI. They do not explain how the "underlying thyroid disease" can cause it... ) However, one year later, the British group publishes another paper showing that deaths from small bowel cancer increased by 5 fold, deaths from cancer of the thyroid increased by 3.3 fold. Re: URGENT HELP! > If you don't personally have factual information against RAI, do you know where I can go to get it? I still haven't found it on any of the sites that have been recommended.> > Pamela, See below for some info that may help. From Elaine 's website. http://www.elaine-moore.com/Home/tabid/36/Default.aspx http://www.elaine-moore.com/MyBlog/Blog/tabid/60/EntryId/112/Default.aspx Researchers have long known that radiation is the most significant risk factor for thyroid cancer. A recently published study shows that radiation is also associated with a deadlier form of thyroid cancer. has written an article describing this study. The findings show that patients who had RAI as a form of thyroid ablation for cancer or hyperthyroidism developed forms of cancer that were more aggressive and much more likely to metastasize. This study is important for anyone considering their options for treating hyperthyroidism and it's important for patients who have had RAI ablation. Dr. Francis Greenspan recommends that patients who have had RAI have annual checkups to look for signs of thyroid cancer and nodular growths. http://www.elaine-moore.com/MyArticles/GravesDisease/Radioiodine/tabid/69/Default.aspx Radioiodine Ablation RAI was first used to treat hyperthyroidism in the 1950's. Recent long-term studies show that RAI causes an increased risk of thyroid and small bowel cancers. Why is RAI still used most often to treat GD? Because it's the least expensive method, requiring few follow-up visits...only annual checkups for the resulting hypothyroidism. Radioiodine, usually I-131 taken orally, works by destroying thyroid cells, thereby reducing the amount of thyroid tissue capable of producing and releasing thyroid hormone. However, the thyroid is the victim in GD, not the cause. An immune system defect is responsible for symptoms in GD. Radioiodine can damage your salivary glands, causing symptoms much like those in Sjogren's syndrome. RAI can also damage your parathyroid glands. RAI is also known to trigger fibromyalgia. "Diagnosed with GD, I was told that I could suddenly go into thyroid storm. Now I know better, but then I rushed into having RAI ablation. For people with severe symptoms who are allergic to ATD's and who are surgical risks, RAI may be the only option. For me, it was the worst decision I've ever made. I'm now hypothyroid and I have pretibial myxedema. RAI affects other organs besides the thyroid. ATD's are capable of achieving remission in 90% of GD patients. Many people with mild to moderate symptoms have been successfully treated with alternative medicine." – Elaine Copyrighted © 2008 by Elaine Other Resources AtomicWomen.org Read how RAI cheated this woman of her health: Widebertha's Diary Thyroid cancer risk and RAI http://www.palmbeachpost.com/health/content/accent/epaper/2008/02/07/a5e_bone_col_0207.html An alternative treatment. Low dose Naltrexone boosts the immune system to fight cancer. http://www.elaine-moore.com/Resources/LowDoseNaltrexone/tabid/129/Default.aspx http://www.webspawner.com/users/ldnforcancer/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 ???? the other info is right here. ask the list owner. gracia katerinka70 wrote: > > > There is a lot of info why RAI is bad. BUT there is no info on how to > beat the thyroid cancer without it. One of the docs from > naturalythyroidchoices said iodine therapy is not helpful. It is > helpful to stay in remission etc, but not when you have thyca allover. > Please let me know if you have other info. > > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Thank you, . While it is an interesting study that should concern anybody who has received RAI, particularly for non-cancerous conditions, I’m not sure this study actually helps (although I do appreciate the efforts of people on this group to assist me in my quest!) This study involved papillary cancer patients who had RAI or other radiation exposures 3 years prior to diagnosis of thyroid cancer – which would imply presence of another form of cancer OR other thyroid problems. Regardless, there may be distinct differences in outcomes, etc. affected by the order in which things were done – times involved, etc., as well as other conditions (like hyperthyroid or Grave’s disease) that would not match the routine procedure of diagnosing thyroid cancer, followed by partial or complete thyroidectomy, followed by RAI. I do understand that RAI causes thyroid cancer – one of the questions I intend to ask is how something that causes the cancer we are treating could possibly play a role in its treatment or cure. Pamela Quote Link to comment Share on other sites More sharing options...
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