what to do next

[Guest guest]

Hi everybody,

I would like to offer a few thoughts that have crossed my mind, and see what

other people

would think of my take on where we should go next.

whilst we all are shocked by the news that the armour is no longer even a remote

possibility on prescription now, we should be thinking about what we must do

about it.

Firstly I would like to say that if it is at all possible to buy our own armour

then we must

do that, as people becoming more ill than necessary is counterproductive and

playing into

the hands of our tormenters. If 'they' would be moved by the pitiful sight of

people made

ill by their actions then there are many examples out there - and it hasn't made

any

difference as yet. It is important that we have lives worth living as that was

the whole

point of the campaign in the first place.

I wonder if we should divide the mission up into two parts, instead of trying to

do it all at

once.

In my mind the case of undertreatment and denial of treatment should be easier

to tackle

because of the other european countries who treat their patients at a much

earlier stage in

their illness. It should be a much simpler task to say that the british

patients are at a

disadvantage within the european union. A lot of patients should benefit if the

ruling on

this was changed. I wonder if anyone has the details of what treatment people

will be

offered in the various countries, so we can complain about it. Maybe if we had

the details

we could all go to see our MP etc.

The case of armour will be a more difficult case in my opinion as there is not

any use of it

within europe as far as I know. If we could divide off this part of the

mission from the

other and treat them as separate issues we may make a difference a bit sooner.

I know it

will not be nice for those of us who take armour but if even part of the problem

can be

solved it will be helpful to great numbers of people, and we could run both

issues in

tandem but not mix them up into the same protests.

If armour is going to be more expensive now we have to pay tax and the post

office, is

there any alternative stuff that would make a 'second best ' solution that is

cheaper ? My

mind has been running along the lines of contraband pork sausages !!! But

seriously if

anyone knows of another cheaper treatment could they let us all know about it.

My

husband has been thinking along the lines of the chinese doctors (no wonder

there is one

in every town). Has anyone tried this and what was the outcome? Do they have a

herbal

alternative to armour I wonder.

The service I most value from TPA is that I have had support and guidance to get

my

health back, and I am making good progress. This is the unique part of our

group as I

don't think there is anyone else out there who will help individuals to this

level. For the

few of us that have found their way to the forum it has made all the difference.

love Janet