Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 I wrote to my MP and got a similar reply to yours here. Eventually I got a letter from the Department of Health which was obviously a stock letter and basically refers to the BTA/F. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 I'll poke about a bit more and see what else I can come up with, I still think Prince might be worth enlisting - I'll see what I can manage. Jane RE: reply from mp No good writing to MP's about the Royal College, but we can write about all the other organisation involved, they DO NOT have a Royal Charter protecting them. Luv - Sheila I wrote to my MP and got a similar reply to yours here. Eventually I got a letter from the Department of Health which was obviously a stock letter and basically refers to the BTA/F. Lilian No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 8.0.238 / Virus Database: 270.11.21/2014 - Release Date: 03/20/09 06:59:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 Hi - thanks for sending this. If he writes back to you with a response from Alan , please will you follow up whatever they say they are going to do (if they actually do say they will do something) otherwise, if they say that they will look into this, after say, four weeks, write again and ask them what they have done. Too often they write in this way because they know we will not take it further, and we should keep on and on and on at them to make sure they are doing their duty. Luv - Sheila I hope that this is posted in the right place! I received the folloing reply from my mp this morning: Thank you for your recent email expressing your concerns about the diagnosing and treatment of primary hypothyroidism. I have written to the Alan at the Department of Health to ask about this, and I will write to you again when I have more information. signed. I will post again if I receive a further reply. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.21/2014 - Release Date: 03/20/09 06:59:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 just a thought on this topic are we the only country in the world where this is happening? how many other countries have moved to a synthetic thyroxine only treatment? what about the rest of the EU? Someone sent an email some time ago showing that other thyroid societies where narrowing the reference range so what about choice of treatment? Can we show that the UK is out of sync with the rest of the world/EU? Bronwyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 Yes, does anyone know about treatment in any other countries apart from the often quoted ranges in the USA and Germany? Miriam > just a thought on this topic are we the only country in the world where this is happening? how many other countries have moved to a synthetic thyroxine only treatment? what about the rest of the EU? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 Canada is no longer doing any tests for RT3. Lilian just a thought on this topic are we the only country in the world where this is happening? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 Hi All, " Just a thought on this topic are we the only country in the world where this is happening? How many other countries have moved to a synthetic Thyroxine only treatment? what about the rest of the EU? " I'm from Australia & here is how I see the situation in your country from all I've read here & elsewhere. I think the major problem in UK is the stranglehold the NHS has on treatment & Doctors. It seems to be taking the power AWAY from Docs ......to treat patients according to their own clinical judgement. And it seems it doesnt matter whether the Doc is " private " or " NHS " they are prursuing Docs & punushing them by imposing conditions/takeing away medical registration IF they do not " toe the part line " . We have Medicare here. But it operated very differently from the NHS. There is a " schedule " of benefits payable for Medical costs including Path Lab Tests, Doc visits etc. There is always a gap except for the few that qualify for a Health Concession card. There are no " Medicare " Path Labs. All Labs are privately owned & operated with the exception of those attached to Government owned Hospitals. Nor is their any Labs that you can " patient order " Labs. So to get Path Tests you MUST have Doc sign a Lab requisition form. However the Labs here do NOT decide whther to run certain tests or not. They must run whatever the doc asks for ... its NOT their job to over ride the Docs choices!!! Nor is there a distinction between private & Medicare services like there is in UK. Docs here retain the " freedom " if you like to decide what is required & what is best for the patient. If Medicare tried to dictate to Docs like it seems to over there the outcry would be enormous!!! There is no " equivalent " to the BTA Guideline here at all. While Endos here as every bit as bad as most in UK & USA seem to be they would also firmly resist ANY interference or dictating as to how they treat their patients. I'm sorry to say it but the Health system in UK sounds just appalling and sounds more & more like a Communist State dictated care where BOTH the patient & the Doc have very litte to say about what treatment, tests or dx they get!!! I'm not saying our system is perfect not that all our Docs know what they are doing. However we certainly have a better chance to get tested, dxed & treated than you do & it took me 7 years to get that far. I tried Endos too with absolutely NO success. It was only because I educated first myself and then the Doc I finally ended up with that I have got treated. I have now got both my Twin teenage sons & DH tested & dxed as well. DH has just started treatment while the Twins are just having nutrititional treatment at present. We do have a patient Thyroid group in Australia which is absolutely appalling & only tells people about T4 only meds & puts down anything else. It is well & truly in the Endo's camp on that!!! But as far as testing & dxing goes they seem Ok'ish. " Someone sent an email some time ago showing that other thyroid societies where narrowing the reference range so what about choice of treatment? Can we show that the UK is out of sync with the rest of the world/EU? " We dont have a Thyroid Society or anything like that that I am aware of. There are lots of Docs that rx NTH/Armour although much less that are up on Adrenal testing & treatment. But some are willing to learn along with the patient like my Doc was. Our TSH ranges have come DOWN over past 10 years or so. However so have some of the Labs ranges for Ft3 & Ft4. I have researched this & I judge my results by the OLD Free Ranges & my Doc is willing to go along with that. Same as for Ranges on other things like ACTH, Cortisol, B12 , etc but only because I research & give her the info I find. Lethal Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 Anything you can think of nowadays is in fact a Global issue. I may sound defeatist but I am not, however whoever wants these things is operating Globally. Prince is well into the Global things too strangely enough seeing as he is supposed to be next King. I had to laugh when he said we only had so long to stop Global warming, that the icecaps are melting methinks he has an inflated view of mans capabilities lol, they going up there with a large Fridgedaire are they? No, the best we can do is what they are doing with fluoridation push it back a little, buy time. People power doesn't work as well any more as it used to, for a start you now have to 'ask' to demonstrate, the corporations and someone behind them has control, I believe they also have control of many governments however people probably don't believe that. Who has control? Ah, now, that is the big question isn't it? I know one thing, they use money to do the controlling mostly. Some people would sell their own mum out. They also get people they want into all the organisations. You can look all over the western world and draw parallels to legislation in each country. Keep fighting, don't rely on any particular person though. lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Hi Dawn, Fluoridation and ignoring signs and symptoms of hypothyroidism go hand-in-hand. First they need 'permission' to mass fluoridate (water and food). Then, they need an 'excuse' to increase it bit-by-bit ( fraudulently if necessary ) 'Sedation' of the population in the face of massive breakdown in either government or markets will place extreme temptation in the hands of the autocratic right to continue running the dictatorship.....(hhmmmm...of the masses ?)...for the 'benefit' of the people... watch the goitres grow by the hour, by the day. I wonder how much this has already begun in the US, where excess weight is becoming problematic ~ o' course, it's nothing to do with fluoridation (just keeping the teeth nice and healthy and likewise, that's got nothing to do with lead/heavy metal poisoning?) Beautiful white teeth ~ but infertile. Untreated hypothyroidism ( "sub-clinical, I'm afraid" ) ~ but infertile Mercury poisoned ~ but infertile. Lashed up with estrogenic 'chemicals for keeping food "safe" ' ~ but infertile I wonder how much fluoride they used in Ireland, to 'sedate' the population? (North or South) >> Anything you can think of nowadays is in fact a Global issue. I may sound defeatist but I am not, however whoever wants these things is operating Globally. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 .....and Mercury doesn't (is the classic cause of) trigger autoimmune problems...... one more lie for the bonfire.... see, it's like this.......mercury doesn't cause Hashimoto's disease... that's hereditary...and anyway, we take no notice of familial pre-disposition to autoimmunity ( we don't like to intrude into family matters....hrrmph....only ~ just before elections ) as a 'government of the people' -- we don't like gouging them for more taxes to keep the banks afloat, so's they can indulge in more tax evasion, like the drug companies ~ fair's fair....let 'em all do it; how on earth would the tax havens prosper otherwise...... can we get Rory Bremner onto this?? >> Anything you can think of nowadays is in fact a Global issue. I may sound defeatist but I am not, however whoever wants these things is operating Globally. Prince is well into the Global things too strangely enough seeing as he is supposed to be next King. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 I read on another forum that Finland have withdrawn T3 and Armour as treatment for Hypo. Their only treatment is now T4. I think its more to do with the Global Drug companies. Basically Drug Companies and Weapons Companies run the world. They are above any governments contol. Regards a > just a thought on this topic are we the only country in the world where > this is happening? 11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Hi Lethal Lee, Are you sure that the ranges have actually come down, and not just that they are using a different method which has lower numbers. I am wondering if I am making what I am trying to say clear. Here some FT3 ranges are very much larger than others, but it is the position within the range which is important, not the actual numbers. e.g.. in quick succession I had 2 FT3 blood tests, one with an upper range of 10.4, the other 6.2 but my result was a similar position within the range - from 2 different labs. Val Our TSH ranges have come DOWN over past 10 years or so. However so have some of the Labs ranges for Ft3 & Ft4. I have researched this & I judge my results by the OLD Free Ranges & my Doc is willing to go along with that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi Bob, One way of dealing with the population explosion! ;- ( ! Subject: Re: reply from mp Hi Dawn, Fluoridation and ignoring signs and symptoms of hypothyroidism go hand-in-hand. Beautiful white teeth ~ but infertile. Untreated hypothyroidism ( " sub-clinical, I'm afraid " ) ~ but infertile Mercury poisoned ~ but infertile. Lashed up with estrogenic 'chemicals for keeping food " safe " ' ~ but infertile .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Well Bob and the aim is to keep the world population around 500,000 so they will it seems eventually get their way.. according to the Georgia Guidestones anyway. lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Hi I too have just had a reply from my MP, Fiona Bruce, with a copy of the letter from Burstow. Fiona Bruce states she is sorry to send me what I will consider a disappointing response but trusts I will find the Minister's comments helpful by way of clarification. ''Doctors are encouraged not to rely too heavily on the results of blood tests, but to use their clinical knowledge and an assessment of the symptoms experienced by individual patients in making a diagnosis for thyroid treatment " ...........if only......... Margaret > > > At last - a reply from my MP, Brennan in Cardiff West, following the e-mail I sent to him, regarding lack of diagnosis in treating Hypothyroidism. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Hi Margaret - yet another of our members who has been sent exactly the same reply as others have been sent. Not once, anywhere do they tell us whether they are going to help with our problem or not, in fact, all they tell us what they do and what they stand for and what they can't do i.e. ask the RCP and BTA to re-write the guidelines. I wonder why. I will not let this go, but will wait until they have their feet back under the table and we have our meeting over with and then I will write to my MP again. with a view to taking this whole matter much further. Luv - Sheila I too have just had a reply from my MP, Fiona Bruce, with a copy of the letter from Burstow. Fiona Bruce states she is sorry to send me what I will consider a disappointing response but trusts I will find the Minister's comments helpful by way of clarification. ''Doctors are encouraged not to rely too heavily on the results of blood tests, but to use their clinical knowledge and an assessment of the symptoms experienced by individual patients in making a diagnosis for thyroid treatment " ...........if only......... Margaret > > > At last - a reply from my MP, Brennan in Cardiff West, following the e-mail I sent to him, regarding lack of diagnosis in treating Hypothyroidism. > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.445 / Virus Database: 271.1.1/3123 - Release Date: 09/08/10 17:41:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 They are MPs not doctors, they are always going to go directly to the very people who's minds we need to change, for any information on our plight. Its not going to happen while the drug companies have a hold on the NHS, we need a brand new strategy!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 You need to take this out of the realm where medicine rules. Get in the media where public opinion might rule. To that you need demonstrations by the afflicted and their supporters. But that was shot down by the lack of energy. You need to take this court. But the lack of energy translates to a lack of money..... So just how are you going throw off the cuffs of abuse? Have a great day, > > They are MPs not doctors, they are always going to go directly to the very people who's minds we need to change, for any information on our plight. > Its not going to happen while the drug companies have a hold on the NHS, we need a brand new strategy!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 Hi Kidnap the RCP and BTA et al bods and remove their thyroids and tell them that they cannot have any drugs to deal with the hypo symptoms until they are REALLY suffering and then have to re write all the cr-p guidelines in respectful consultation with Sheila and the loverly medical people that are on our side! Oh dear, I thought I had won the lottery as well and then I woke up - these magnesium drips are very loverly indeed!!! STacey > > I'm listening Glynis - can anybody come up with one? > > Luv - Sheila > > > > They are MPs not doctors, they are always going to go directly to the very > people who's minds we need to change, for any information on our plight. > Its not going to happen while the drug companies have a hold on the NHS, we > need a brand new strategy!! > > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.445 / Virus Database: 271.1.1/3123 - Release Date: 09/09/10 > 18:34:00 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 I love it!! Might be a tad difficult though, kidnapping is a serious offence!! Glynis > > Hi > Kidnap the RCP and BTA et al bods and remove their thyroids and tell them that they cannot have any drugs to deal with the hypo symptoms until they are REALLY suffering and then have to re write all the cr-p guidelines in respectful consultation with Sheila and the loverly medical people that are on our side! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 …and so is killing patients ;o( Luv - Sheila I love it!! Might be a tad difficult though, kidnapping is a serious offence!! Glynis > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 How about a picket of the new Q E hospital which is where the new head of the BTA works? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 That I like - but do we have anybody amongst our 1843 members who has the needed experience and is willing enough to start arranging such a picket? This would need the co-operation of UK thyroid forums such as Thyroid UK, Thyroid Disease.org and the many local Thyroid Support Groups. Is anybody willing to take this on please? Luv - Sheila How about a picket of the new Q E hospital which is where the new head of the BTA works? No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.445 / Virus Database: 271.1.1/3123 - Release Date: 09/10/10 18:41:00 Quote Link to comment Share on other sites More sharing options...
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