Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Will wait in anticipation Margaret. Problem with Free T3 test, it is the local laboratories that appear to have taken it upon themselves NOT to test for Free T3, even though GP's request it. However, I do believe they will test this if it is the endocrinologists who request the test - so don't be too hard on your doctor. Your endocrinologist obviously didn't state why he wanted the Free T3 done. I hope you find a better doctor, surely you can't find one as bad as your present one. Thank you for your response Sheila.I posted copy of Endoprat letter to you last night.I awoke at 3am livid over " Your not dead " comment.I do give up now and have a couple of days off work so will join another surgery although I don't know how much better they will be.I rang Endo secretary this morning demanding to know why I did not have T3 test as requested and promised. I do well and truly give up.If you don't do as you are told you have had it. I do feel though if you are seeing an Endo (even though mine is only a GP with an interest) then this lets your own GP " off the Hook " they just go by what the Hospital say.Anyway I have started adrenal supps again.Then in a few days I will return to my 3 grains of Armour.I will wait 6 weeks and have blood test off GP then I will make an appointment to see Dr P. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.12.9/2087 - Release Date: 04/29/09 18:03:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 Hi Sheila I am off work today waiting for puter man to come and sort me puter.Had to nip to the library to email you.After ringing the hospital complaining over this and that I have just received a letter from Endo this morning.He had in fact requested new blood tests and the one I sent you were the ones taken with the GP.I have no idea why he wrote to the GP with the same tests.Anyway I have just received my tests taken on the 16th April at hospital TSH 0.2 (0.5-5.5) Free T4 13.4 (11.5-22.7 ) Free T3 5.0 (0.1-7 Cortisol 631 (180-600) He said Cortisol bit high but was taken at 11am but will monitor.I am gob smacked over TSH that it could change in 2 weeks from 9.2 I dont know I really dont.I am wondering now if the 9.2 was an error.I dont care , surely this proves the Armour is working please tell me it is.If I had listen to them I would be upping and downing on Eltoxin for the rest of my life. Margaret From: Sheila <sheila@...>thyroid treatment Sent: Thursday, 30 April, 2009 16:44:23Subject: RE: Sheila GP Visit Will wait in anticipation Margaret. Problem with Free T3 test, one. Thank you for your response Sheila.I posted copy of Endoprat letter to you last night.I awoke at 3am livid over "Your not dead" comment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 There is something seriously wrong here Margaret that needs some investigation. Whoever reported that your TSH was 9.2 when you were taking 3 grains of Armour Thyroid was way out. Your TSH should have been as it is right now, completely suppressed. However, your FT4 is low and could be higher, so you might need to add some synthetic T4 into your Armour as many of us do, me included. I add 25 mcgs T4 to my 3 grains of Armour and it makes all the difference. As soon as I leave it out, some of the old symptoms come back. The T4 and T3 in Armour is standardised to the specifications laid down by USP - and as I keep saying, a size 5 shoe doesn't fit all of us. Had you started taking your NAE again when you had your cortisol tested, and if so, how much were you taking. If you were not taking NAE or any other adrenal supplementation. Margaret, have a look at this link http://www.endocrine.niddk.nih.gov/pubs/cushings/cushings.htm and see if there might be a possibility with your high cortisol level that you could be developing Cushing's Syndrome. It might account for the strange symptoms you are getting and why Armour doesn't appear to be working well for you. Let me know what you think. Can you let me know again the results of your 24 hour salivary adrenal profile and how long ago was that done. Cortisol is highest first thing in a morning when you wake and then gradually decreases throughout the day, but the fact that your cortisol blood test shows above the range at 1.1.00a.m. needs watching. If you have never had the 24 hour salivary adrenal profile, I would recommend you get this done now. Luv - Sheila 16th April at hospital TSH 0.2 (0.5-5.5) Free T4 13.4 (11.5-22.7 ) Free T3 5.0 (0.1-7 Cortisol 631 (180-600) He said Cortisol bit high but was taken at 11am but will monitor.I am gob smacked over TSH that it could change in 2 weeks from 9.2 I dont know I really dont.I am wondering now if the 9.2 was an error.I dont care , surely this proves the Armour is working please tell me it is.If I had listen to them I would be upping and downing on Eltoxin for the rest of my life. Margaret From: Sheila <sheila@...> thyroid treatment Sent: Thursday, 30 April, 2009 16:44:23 Subject: RE: Sheila GP Visit Will wait in anticipation Margaret. Problem with Free T3 test, one. Thank you for your response Sheila.I posted copy of Endoprat letter to you last night.I awoke at 3am livid over " Your not dead " comment. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.12.11/2089 - Release Date: 04/30/09 17:53:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 I have just spoken to a GP today who told me that the practice or lab will not allow FT3 on the NHS & then wanted to charge me to take my blood for me to have a private FT3 blood test. When I complained strongly he said that in future if the endo writes a specific letter saying that I need the FT3 done then the practice will take the blood free for me to then send off for a private test. He also intimated that I could arrange the FT3 privately through them, but there is no way they will pay for it. I have arranged this through Genova and thought I would take the opportunity to do the full panel including both antibody tests & RT3 as well. They had been doing my FT3 regularly since 1993, but no more. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2009 Report Share Posted May 1, 2009 I wonder if somewhere along the line someone hit the 9 instead of the 0 on their keyboard - hence 0.2 would display as 9.2? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 Hi Sheila Thanks for your reply.No I was not taking NAX when test done and only started that again 4 days ago.I did have the saliva test and will post to you (still no puter at home in work at the mo) The endo chap will not be in clinic now until Thursday and does not want to see me for 3 months maybe I should ring his secretary and ask for expanation and she could ask him!!! I will get same old rubbish back though.I am taking one NAX a day and builing slowly as you advised. Lottsa luv Margaret From: Sheila <sheila@...>thyroid treatment Sent: Friday, 1 May, 2009 14:50:58Subject: RE: Sheila GP Visit There is something seriously wrong here Margaret that needs some investigation. Whoever reported that your TSH was 9.2 when you were taking 3 grains of Armour Thyroid was way out. Your TSH should have been as it is right now, completely suppressed. Had you started taking your NAE again when you had your cortisol tested, and if so, how much were you taking. If you were not taking NAE or any other adrenal supplementation. Can you let me know again the results of your 24 hour salivary adrenal profile and how long ago was that done. 16th April at hospital TSH 0.2 (0.5-5.5) Free T4 13.4 (11.5-22.7 ) Free T3 5.0 (0.1-7 Cortisol 631 (180-600) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 Did you stop your Nutri Adrenal Extra because your endocrinologist told you in his letter that he had analysed your cortisol level and it had fallen " into the normal range " . The NHS does not test for low adrenal reserve, only 's Disease and Cushing's Syndrome - the two extremes of cortisol production. I still cannot imagine how he recommended you increase your thyroid hormone when, at the top of the letter it clearly shows your TSH to be 9.2. Why didn't he query this, even if it does turn out to be a typing error. He should have noticed this. Luv - Sheila Hi Sheila Thanks for your reply.No I was not taking NAX when test done and only started that again 4 days ago.I did have the saliva test and will post to you (still no puter at home in work at the mo) The endo chap will not be in clinic now until Thursday and does not want to see me for 3 months maybe I should ring his secretary and ask for expanation and she could ask him!!! I will get same old rubbish back though.I am taking one NAX a day and builing slowly as you advised. Lottsa luv Margaret No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.12.11/2089 - Release Date: 05/01/09 17:52:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 I'd put money on the 9.2 being a typo. When I saw an endoprat recently, his secretary mis-typed my blood pressure in the letter to my GP - apparently, it was 138 / 16 I'd be dead if that was true! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 Hi Sheila I stopped the NAX a while back because I had rushed it and could not sleep so I stopped for weeks before any blood tests so NAX has nothing to do with tests.I satarted Nax again a few days ago as I decided to give it another try.Endo DID see the TSH at 9.2 and told me to increase Eltroxin (does not know about Armour) I refused to upp it and demanded a full thyroid blood tests which are the ones I posted yesterday which were fine.I do beleive now it was a typing error and yes you are right they should never have tried to increase anything without checking again.Dr (YOUR NOT DEAD) wanted to upp it there and then.I will be finding out over the holiday what happened. Margaret Harrickey From: Sheila <sheila@...>thyroid treatment Sent: Saturday, 2 May, 2009 9:36:56Subject: RE: Sheila GP Visit Did you stop your Nutri Adrenal Extra because your endocrinologist told you in his letter that he had analysed your cortisol level and it had fallen "into the normal range". I still cannot imagine how he recommended you increase your thyroid hormone when, at the top of the letter it clearly shows your TSH to be 9.2. Why didn't he query this, even if it does turn out to be a typing error. He should have noticed this. Luv - Sheila Hi Sheila Thanks for your reply.No I was not taking NAX when test done and only started that again 4 days ago. Lottsa luv Margaret No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 8.0.238 / Virus Database: 270.12.11/2089 - Release Date: 05/01/09 17:52:00 Quote Link to comment Share on other sites More sharing options...
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