Still have Pins and Needles !!!

[Guest guest]

Hi Jo the vomiting is likely due to your adrenals. get the 24 hour salivary test done asap.if your adrenals are weak then no amount of thyroxine will help you. go to our files on the main site and read all about the adrenals and the way they work. angel.

[Guest guest]

Hi Jo , just a thought, you may be a bit hyperthyroid. mmmm. angel.

[Guest guest]

>

> HI Jo - I too am at a loss to know what is causing your problem -

apart from

> the fact there does seem an element of adrenal problems here.

However, I

> have today sent Dr Peatfield a FAX of your message in the hope he

might be

> able to shed some light on it. As soon as I hear from him (assuming

he is at

> home) I will post what he says.

>

>

>

> Luv - Sheila - who considers it necessary to leave the whole of

this message

> in tact.

>

>

>

Hi Sheila,

thanks so much for faxing my message to Dr P.

I so hope he will have an idea of what is going on.

I think I will have to arrange to go to see him to get to the bottom

of this. I honestly feel like throwing myself out of my bedroom

window !!!

Take care, Jo

>

[Guest guest]

>

> Hi Jo , just a thought, you may be a bit hyperthyroid. mmmm. angel.

>

Hi Angel,

I was slightly hyper about 10 days ago and have reduced my dose of

levothyroxine from 125mcg to 100mcg since then, but these symptoms have

stayed the same since October 2008.

I have honestly had enough of feeling like this.

thanks for your help, its really appreciated.

Take care, Jo

[Guest guest]

Hi Jo,

I had this before my amalgams were removed - well in hands, feet, and top of my head.

Val

yes I STILL have the most awful pins and needles/tingling/numbness down both arms and legs, in my hands and feet and also my face, lips and even scalp are affected !

[Guest guest]

>

> Hi Jo,

>

> The symptoms you describe sound verymuch like adrenal symptoms to me,

> have you done the adrenal questionnaire in the files??

>

> Low cortisol (adrenal fatigue) can cause nausea and vomiting, and can

> cause thyroxine not to be used/absorbed so that may be why they went

> sky high...

>

Hi Leah, I did the adrenal questions and got a score of 99.

Is that high ?

Do you think my thyroxine isnt being absorbed properly and is leading

to toxic levels ?

Sorry for all the questions.

Take care, Jo

[Guest guest]

>

> Hi Jo,

>

> I had this before my amalgams were removed - well in hands, feet, and

top of my head.

> Val

>

Hi Val,

did the pins and needles go after you had your amalgams removed ?

I wonder if anyone knows of a dentist in Lancashire or the Manchester

area who would remove my amalgam fillings for me ? They can have the

teeth too if it will stop these pins and needles !!! ha ha. You have to

laugh or you will cry.

Take care, Jo

[Guest guest]

Hi all

I also have this problem at my feet and lower part of my legs and it makes me extremely upset. It is worse at feet and gets less at legs.I am thinking it could be circulation problem as i notice situation gets worse when i smoke.I am also mercury poisoned but acute phase of it was about 6 years ago. i did not have this much pins and needles feeling at that time. It is much worse now. I am thinking this might be related to long term adrenal deficiency and /or exposure to excess adrenaline. What do you think?

thanks

nil

Re: Still have Pins and Needles !!!

Hi Jo,

I had this before my amalgams were removed - well in hands, feet, and top of my head.

Val

[Guest guest]

Hi Jo -

Don't do that, or we will never find out what is causing your pins and needles

( Seriously though, there are an awful lot of 'causes' for tingling

sensations and pins and needles. Have a look at this web site for a list of

them. http://www.wrongdiagnosis.com/symptoms/tingling/causes.htm#discussion

Luv -

Sheila

I think I will have to arrange to go to see him to get to the bottom

of this. I honestly feel like throwing myself out of my bedroom

window !!!

[Guest guest]

Hi,

I was seriously wondering if B complex causes this because I wake up

with pins and needles every morning now since I've been taking all

these new supplements. It wears off once I get up but it is unpleasant

all the same.

I did used to get this a few years ago and I remember I was taking B

complex back then along with some other menopausal supplements. I

stopped taking all the tablets and the pins and needles stopped.

I am going to try laying off the B complex for a while and by process

of elimination see if this makes any difference.

Just a thought.

Gillian

Seriously though, there are an awful lot of 'causes' for

> tingling sensations and pins and needles.

[Guest guest]

Hi Gillian,

It may be that the folic acid and vit B12 is too low for the higher

amounts of B vitamins. It may be that folic acid and Vit B12 are too

low anyway, independent of whether you take a high strength B

supplement.

It has taken me about 6-12 months to regain my folic acid status and

I've also started supplementing with 50mcg/day (roughly) of vit B12

to avoid long-term deficits.

Blood tests for (serum) folate were said to be above the minimum of

the range and therefore didn't need supplementing (according to

dogma).

My failing short-term memory said otherwise, as did stumbling around

first thing in the morning.

I got the first hints of improvement about 6weeks into taking 5mg/day

of folic acid, then more definate signs after three months.

What I didn't realise until much later, was that my intellectual

functioning had also declined quite markedly, along with my short-

term memory. I couldn't credit that I had written some of my posts

from about two-three years ago !

The high strength folic acid (5mg/day) is available on prescription

only, owing to its possibility of hiding a vit B12 deficit, with

irreparable consequences, and that may interract with MS (or cause

it?).

Folinic acid is an alternate supply of this nutrient.

(suggested by Pam).

It may be that I had a mercury problem too, but impossible to get it

confirmed by any doctor or dentist, since that confirmatory work is

scandalously embargoed by the NHS and Department of Health.

A problem that 'does not exist' can't possibly be tested for.....

Recall that the Nuremburg trials were about experimenting on

prisoners, along with all the other horrors.

They only took cadmium out of the amalgam fillings (post-war) because

it was ~~ wait for it ~~~~~~~~~~'too toxic'....and causes kidney

failure.

Tobacco, being a cadmium accumulator, obviously did our troops a

power of good with military issue cigarettes.....hmmmm, did you

notice ~ the Emperor's got no clothes...

best wishes

Bob

(A. H. apart from anything else, must have been cadmium poisoned too,

and perhaps 'loopy' ~ to boot [black and shiny?])

>

> Hi,

>

> I was seriously wondering if B complex causes this because I wake

> up with pins and needles every morning now since I've been taking

> all these new supplements. It wears off once I get up but it is

> unpleasant all the same.

> I did used to get this a few years ago and I remember I was taking

> B complex back then along with some other menopausal supplements.

> I stopped taking all the tablets and the pins and needles stopped.

[Guest guest]

Thanks for this Bob, it looks like I will have to ask to get my

(serum) folate level checked again.

I do know that I've always had a high iron count...it was 17 last

time.

Its quite a game getting the right balance with all these vits and

supplements, lot of risks and guesswork involved. Then, there's my

husband who is of the philosophy... " that if it ain't broke..don't

fix it " .

I do wonder if I should leave well alone sometimes...but then again

we thyroidians need all the nutritional help we can get.

As for the short term memory, you think you've got it bad...I

sometimes can't remember what I did yesterday!

Best wishes,

Gillian

> Blood tests for (serum) folate were said to be above the minimum of

> the range and therefore didn't need supplementing (according to

> dogma).

> My failing short-term memory said otherwise, as did stumbling

around > first thing in the morning.

> What I didn't realise until much later, was that my intellectual

> functioning had also declined quite markedly, along with my short-

> term memory. I couldn't credit that I had written some of my posts

> from about two-three years ago !

[Guest guest]

Hi Jo, I'm not an expert on this but I think that score indicates a

moderate degree of AF. The reason I said it sounds like it, was

because you wrote that you felt that you were shaking inside but that

your hands were steady... This sounds like internal shaking to me,

have a look at Dr Rinds chart of adrenal and thryoid symptoms:

http://www.drrind.com/scorecardmatrix.asp

and these pages about adrenal symptoms and assessment:

http://www.stopthethyroidmadness.com/adrenal-info/

http://www.stopthethyroidmadness.com/adrenal-info/symptoms-low-

cortisol/

As far as not allowing the thyroxine to be absorbed - I know that low

cortisol can prevent the T4 being used properly and can cause

symptoms of hyper when you are still hypo, and can cause the levels

to build making them look excessively high.

HTH

Leah x

> I did the adrenal questions and got a score of 99.

> Is that high ?

> Do you think my thyroxine isnt being absorbed properly and is

> leading to toxic levels ?

> Sorry for all the questions.

> Take care, Jo

[Guest guest]

Hi Jo,

Yes I don't get them now, although very occasionally I can still get a numb top of head which is a weird feeling, but then I really need to get back to chelating, but my adrenals are not strong enough to do that at the moment. A lot of my symptoms went immediately I got rid of them, but there is supposed to be a 3 month low after this, when you can get funny symptoms (look at frequent-dose-chelation group for more info) and if you have not started chelating by then it is certainly time to. I intend to get back to chelating when I am feeling stronger in myself, but it would be silly to attempt while still on stress dosing levels of hc, and I will probably be on stress dosing hc for a few more months first.

Val

Hi Val,did the pins and needles go after you had your amalgams removed ?I wonder if anyone knows of a dentist in Lancashire or the Manchester area who would remove my amalgam fillings for me ? They can have the teeth too if it will stop these pins and needles !!! ha ha. You have to laugh or you will cry.Take care, Jo

[Guest guest]

Hi Gillian

It was waking at night with pins and needles in my hands that took me

to my GP who diagnosed carpal tunnel syndrome and followed up with

blood tests which found auto immune hypothyroidism. Two years on

thyroxine and along with all the other sypmtoms I STILL wake up

several times a night with numbness. Sheila has kindly given me the

ammunition to write to my (2nd) endoprat as his suggestion for

tiredness (he ignored my mention of pins and needles) is to send me to

a sleep clinic to be tested for sleep apneoa as I admitted after

questioning, to snoring badly (always have so long as I can - joke-

remember!!).

I personnally can't see a connection between supplements - folic acid

or otherwise and my pins and needles as I don't take any (supplements

that is) but everyone is different...Endoprat suggested increasing the

thyroxine but so far all that seems to have done is give me a headache

or rather an intermittent pain in my head. Still have the wretched

pins and needles.

I seriously must get something done about my 'intellectual' function

(or rather lack of it) as well as the physical probs as due to stuff

happening at work it looks like I might find myself job hunting soon

and all those in the same boat as me are around 30 years younger. If

anyone can come up with a solution its Bob so I'm off to get some

folic acid tomorrow and possibly a vat full of B Vitamins. Tried ginko

biloba once but all it seemed to do was give me really bad headaches.

Mind you they probably weren't as bad as the one I seem to have from

the increase in thyroxine.......

Good luck - if the B Vits & folic work I'll let you know,

Cheers

>

> As for the short term memory, you think you've got it bad...I

> sometimes can't remember what I did yesterday!

>

> Best wishes,

>

> Gillian

What I didn't realise until much later, was that my intellectual

functioning had also declined quite markedly, along with my short-

term memory. I couldn't credit that I had written some of my posts

from about two-three years ago !

[Guest guest]

Hi ,

Thanks for your take on this...

Boy....its like doing a giant jigsaw puzzle trying to piece all the

information I've got together here...everyone has advice but

sometimes it is very conflicting...like having 500 pieces of blue sky

and trying to see which bit fits best!

I've got high antibodies and I also get the bad heads like you so we

do have a bit in common here. What dose of levothyroxine are you on

by the way?

I am going to ask to be referred to an endocrinologist next week when

I go back to the Doctor's; knowing my luck he will be an endoprat too!

I will look forward to hearing if the B vits and folic work for you.

Good Luck,

Gillian

if the B Vits & folic work I'll let you know,

[Guest guest]

My vit b12 was above the top limit last year. Will have to recheck it. thanks.

nil

RE: Re: Still have Pins and Needles !!!

Hi Nil - have you had your vitamin B12 tested. If not, make this top priority. It might help you to get some sublingual Vitamin b12 tablets (1000mgs) from your local health food store to see if this helps. Many who suffer with pins and needless do so because of B12 deficiency. The brand I use is Solgar - more expensive, but the best.

Luv - Sheila

[Guest guest]

- do get your B12 level tested. Seriously, if your B12 level is low, no amount

of thyroid hormone will work for you, and it could be the cause of your

tingling. This is SO important. It sounds as if you need some form of thyroid

hormone replacement that contains T3 - as you may not be converting the mainly

inactive T4 to T3.

Luv -

Sheila

If anyone

can come up with a solution its Bob so I'm off to get some

folic acid tomorrow and possibly a vat full of B Vitamins. Tried ginko

biloba once but all it seemed to do was give me really bad headaches.

Mind you they probably weren't as bad as the one I seem to have from

the increase in thyroxine.......

Good luck - if the B Vits & folic work I'll let you know,

Cheers

>

,_._,___

[Guest guest]

,

You wrote:

> ... Two years on

> thyroxine and along with all the other sypmtoms I STILL wake up

> several times a night with numbness....

High potassium can cause that, too. Do you by any chance take iodine?

That can cause potassium retaining diuretics to be too efficient.

Chuck

[Guest guest]

Low Potassium also can cause the pins and needles. I have dealt with

that for a while and then increased my potassium and I have gotten a

lot of relief although it is not totally gone. I do take a diuretic

occ. so I do need the potassium.

Venizia

>

> gh potassium can cause that, too. Do you by any chance take iodine?

>

>

[Guest guest]

Hi Chuck , Venizia, Sheila and all

Thanks for all your suggestions. I do not take any supplements,

vitamins or minerals but will take up the suggestion to get B12

tested. I think previous endoprat tested for this around a year ago

but said it was normal - does B12 influence memory as well? If not it

may have been Vit D he was testing. Could never get any of the tests

off him. He said it was 'normal' (no change there then). I do take

very low dose of bendroflumethiade which seems to keep the swollen

feet and hands at reasonable levels (at least during the cold weather

it has) but I suppose the potassium level could be an issue. Can that

be tested too?

Must get my act together and write my epistle to endo prat as today

got letter with next appointment with him and isn't until 24 April.

Doesn't say if it's a follow up on the January appointment or test he

said he'd arrange on adrenals (short synacthen). I suspect the latter

in which case it'll be another few weeks after that before I see him

again. He said in January I could increase the thyroxine to 100mcg

despite bloods being 'in range' and suggested alternating doses of

75mcg/100mcg every other day as I get SVTs. I tried this once before

and it did nothing so went back to 75mcg.I actually tried going up to

100 and wonder if this is what the weekend head pain was all about -

seems to have gone today.

As you say its like a jigsaw puzzle all made of bits of sky but at

least endoprat virtually admitted that and actually said endocrinology

'wasn't an exact science'!!!

Cheers all

> >

> > gh potassium can cause that, too. Do you by any chance take iodine?

> >

> >

>

[Guest guest]

Dear All,

I just thought I would let you have an update about my continuing pins and

needles. Yes, I still have them ! They are constant, 24/7, and affect both arms,

legs, hands and feet. I am now into month 7 of this with no respite at all.

Today I have received a letter from my endocrinologist which says that I have

low vitamin D levels. I have to start taking Calcichew D3 forte tablets. I

really hope that this is the cause of the pins and needles.

I have had all tests known to man so far !!! I am even waiting for the results

of a brain MRI scan to rule out MS.

It would be great if these pins and needles finally go when I start taking the

tablets next week.

I will keep you informed.

Take care all. Many kind wishes, Jo

[Guest guest]

>. Has your doctor ruled out carpal tunnel syndrome -

> and B12 deficiency. What was the result of your last Ferritin and B12

> result? What dose Vitamin D3 has your endocrinologist put you on?

>

> Hi Sheila, no doctors have ever mentioned carpal tunnel syndrome.

I have had B12 and Folate tested. Folate was in range but low. B12 was just over

300 ( I think the range is 300 to 1000 ) So I have started taking both Folic

acid and B12 supplements.

I have to take 2 tablets of Calcichew D3 forte each day which I think is about

800iu of Vitamin D.

Apparently if your Vit D levels are low it means that your body will struggle to

absorb enough calcium, so thats why the Calcichew tablets contain calcium too.

I am currently taking 100mcg Levothyroxine daily, as my T4 levels were too high

when I was on 125mcg. ( My T3 levels were in range though !!!)

I have to go back to endo in May.

I will keep you posted. Many thanks for your help.

Take care, Jo

>

>

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.0.238 / Virus Database: 270.11.41/2040 - Release Date: 04/03/09

> 17:54:00

>