Re: GP not interested in Adrenal Saliva test results

[Guest guest]

I doubt you will

find many GP's who will even understand what the results mean on any other test

outside of the NHS - that's all they are taught, and rather than show their

ignorance (it isn't their fault) they push the problem on to somebody else.

However, why is your GP making YOU do all the work - he should be chasing the

short synacthen test for you, not asking you to chase the endo for the results.

When you have the

short synacthen test at the hospital, all they are looking for is to see

whether you are putting out too little cortisol ('s disease' or you are

putting out too much cortisol (Cushing's syndrome). What they do not recognise

is any shades of grey in-between the two that show you might be suffering with 'low

adrenal reserve '- or 'adrenal fatigue'. The NHS only test your cortisol at ONE

time during the day, usually around 9.00a.m. and therefore, they have no idea

what cortisol production (or not) you are putting out the rest of the day,

which is important. You should have a high reading of cortisol in the morning

to help you get through the daily chores, then gradually throughout the day,

your cortisol decreases until by the time you go to bed, your cortisol is at

its lowest in order that you can sleep peacefully. Unfortunately, for a lot of

people who find they are unable to have a good nights refreshing sleep, waking

several times or not being able to get off to sleep at all, this is because

their cortisol is too high.

Do ask your

endocrinologist for all the results of your tests - this means asking for the

figures and the reference range for each test. It's OK a doctor saying all your

tests were 'normal' but the figures could be at the very bottom, the middle, or

right at the top of the reference range. You also need to read what one test

results is against another test. We need the reference range for your synacthen

test for us to comment on your results.

Your FT4 of 19 is

very high. Did they do a Free T3 test to see whether you are converting the T4

to T3? It could be that your T4 is not converting and therefore doing

absolutely nothing - swimming around in your blood and going nowhere, and

probably causing a toxic effect. Try to get a Free T3 test done, even if you

have to go private. Again, with no reference range for Vit D (was this a Vit D2

or a Vit D3 test btw?). Doctors cannot withhold blood test results and they

must also give you the reference range for each of the tests done. They can get

these from the laboratory. Did they test your Ferritin level (stored iron)?

This test is very important, as is zinc, magnesium and copper. If any of these

are low in the reference range, your thyroid hormone will not be getting

properly absorbed. Any of these if they are low need supplementing.

Luv - Sheila

The GP also said that to be fair the endo had done quite a few tests but didnt

tell me what they were, I only learnt these when the next day a letter arrived

from the endo saying that my short synacthen test was normal with the baseline

level at 189 and 30 mins post synathen level 852.(taking into consideration it

took them 11 attemps to get these two samples of blood - Any comments on these

results?

Other results sorry no ranges stated were - TSH OF 0.62 AND A t4 OF 19.9, Vit D

19.9 along with normal kidney, liver function , normal plasma glucose of 4.7

and normalbone profile with cacium of 2.4 and corrected calcium of 2.13

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17:05:00

[Guest guest]

Hi

I am not very good at all this and rely on poor sheila for help.I did however have the saliva tests and took them to GP she refused to look at them and pushed them away from her.I took them to the Endo who did glance at them as I held them up but refused to touch them.Sheila said they are probably unable to read them.

Sorry hope this helps.xxx

Margaret

From: hjandjh <hjandjh@...>thyroid treatment Sent: Sunday, 17 May, 2009 14:39:21Subject: GP not interested in Adrenal Saliva test resultsWent to see my GP on Thursday armed with my Adrenal saliva test results. However he really was not interested. I askedif these could these be taken into consideration, as they showed exactly how I was feeling! He said to show them the endo at my next appointment as he was the expert. ------------------------------------

[Guest guest]

These are the only tests that I had before seeing the endo - they refused to do

any others you suggested saying that the labs are very strict now, Even the endo

said that!

Vit D 14.9 (0-20)

3T4 18.8 (12.0 - 22.0)

antibodies TPO 203 (0-34)

B12 403 (191 - 663)

TSH 0.15 (0.03 - 4.6)

Sereum Folate 14.4 (4.6 - 18.7)

So since these, the latest results are the ones posted TSH of 0.62 and A t4 of

19.9, Vit D19.9. They were done at the same lab so I would think the ranges are

the same. The doctor did mention that the Vit d minimum was 20. I have called

and requested a print out of all blood results since January of this year, lets

see where I get with that. In your opinion Sheila Is there anything missing you

feel I would benefit from knowing ie: Getting which tests done private?

Many thanks for your help

x

[Guest guest]

These

are the only tests that I had before seeing the endo - they refused to do any

others you suggested saying that the labs are very strict now, Even the endo

said that!

This is quite appalling - what do they mean the labs are very

strict? Strict about what. If they refuse to test your ferritin level,

magnesium and zinc, I would write to them and ask them WHY, because if any of

these are low in the range, it is very likely the symptoms you are suffering

could be caused because of that. I would again ask for these to be tested. We

should not have to keep paying out of our own money to get the tests required

simply because the NHS is trying to save money - and not patients lives.

Luv - Sheila

Vit D 14.9 (0-20)

3T4 18.8 (12.0 - 22.0)

antibodies TPO 203 (0-34)

B12 403 (191 - 663)

TSH 0.15 (0.03 - 4.6)

Sereum Folate 14.4 (4.6 - 18.7)

[Guest guest]

HI

The British Thyroid Association and Royal College of Physicians have deemed that

these tests are not to be considered..... Probably because they might show a

need for something besides levothyroxine sodium.

Have a great day hanging together,

> I am not very good at all this and rely on poor sheila for help.I did however

have the saliva tests and took them to GP she refused to look at them and pushed

them away from her.I took them to the Endo who did glance at them as I held them

up but refused to touch them.Sheila said they are probably unable to read them.

>

> Sorry hope this helps.xxx

>  

> Went to see my GP on Thursday armed with my Adrenal saliva test results. 

However he really was not interested. I askedif these could these be taken into

consideration, as they showed exactly how I was feeling! He said to show them

the endo at my next appointment as he was the expert.

------------------------------------

>

[Guest guest]

I guess that is also the reason they have deemed the

Free T3 test should not be considered either.

Luv - Sheila

The British Thyroid Association and Royal College of Physicians have deemed

that these tests are not to be considered..... Probably because they might show

a need for something besides levothyroxine sodium.

Have a great day hanging together,

[Guest guest]

-

Sheila,

Am I right in saying the NHS won't prescribe suppliments? Then thats why they

won't want to know if we are lacking them - along with the T3.

A bit like dyslexia years ago, if the school admitted there was a problem then

they had to provide help.

Love Jane

-- In thyroid treatment , " Sheila " <sheila@...> wrote:

>

> I guess that is also the reason they have deemed the Free T3 test should not

> be considered either.

>

>

>

> Luv - Sheila

>

>

>

>

> The British Thyroid Association and Royal College of Physicians have deemed

> that these tests are not to be considered..... Probably because they might

> show a need for something besides levothyroxine sodium.

>

> Have a great day hanging together,

>

[Guest guest]

I believe they DO prescribe some supplements but they are very

few. We recognise this, and are prepared mainly to buy our own if necessary,

but surely a doctor should provide the tests if being low is affecting the

health of their patient. Somebody else might be able to help with this

question.

Luv - Sheila

Sheila,

Am I right in saying the NHS won't prescribe suppliments? Then thats why they

won't want to know if we are lacking them - along with the T3.

A bit like dyslexia years ago, if the school admitted there was a problem then

they had to provide help.

Love Jane

[Guest guest]

Hi Jane;

You can get some supplements on prescription, I am prescribed Ad-cal / D3

which is a soluble combination of calcium and D3. As I understand it, all of

my surgery's patients with osteoporosis/osteopenia have been prescribed this.

Kind regards

Jane >

> Am I right in saying the NHS won't prescribe suppliments?

> >

>