Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi sheila, when I'm sitting in the Doctors/hospital waiting room, there is always posters about diabetes,heart disease,stopping smoking etc, all deserving causes, none for thyroid, what Syndrome is this called DENIAL. Best wishes > that the posh name for functional somatoform disorder is Briquet's syndrome > (BS) which is also known as Fat File Syndrome (FFS) ? Well now you do and > you can impress your friends - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Why would perfectly reasonable people who present with symptoms of hypothyroidism suddenly be making up all their symptoms after taking levo? Doesn't make sense to me at all. I never 'pretended' I still had symptoms after taking levo - the symptoms never went away despite using levo!!! P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi P, Doctors who drop Briquettes often don't 'get it'.... they have CFF (as above).... the ability to project their own incompentences onto patients never ceases to astonish me...... We're going to have to start a creche for Failing Doctors, where they can get their diapers changed on a regular basis, holler and shout at the top of their voices, get it out of their systems, then get their (fat)heads down and decide, yes I'm going to treat my patients, at least, adequately......by the Hypocratic standard...better still, the Helsinki Declaration. best wishes Bob > > Why would perfectly reasonable people who present with symptoms of > hypothyroidism suddenly be making up all their symptoms after taking > levo? Doesn't make sense to me at all. I never 'pretended' I still > had symptoms after taking levo - the symptoms never went away despite > using levo!!! > P > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Then you must rectify this situation and next time you visit, take the TPA-UK Thyroid Poster and ask the receptionist to post it on their notice board. Here is a link to it http://www.tpa-uk.org.uk/tpauk_poster_a2.pdf It would help if all our members took a copy of this poster and asked their GP to put it up in the waiting room, take it to the local hospital, to the library, slimming clubs, any public buildings where they have a public notice board. We need to get the word around. Luv - Sheila Hi sheila, when I'm sitting in the Doctors/hospital waiting room, there is always posters about diabetes,heart disease,stopping smoking etc, all deserving causes, none for thyroid, what Syndrome is this called DENIAL. Best wishes _,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi All, In case your memory has been shortened substantially, please remember the adverse influence that the General Medical Council can have upon proper and ethical medical treatment if the establishment has taken an improper or unethical stance. Remember the damages that have been done to the doctors who have championed this cause. Dr. Peatfield had a practice, but now he is an advisor. Dr. Skinner has a practice but it is restricted by oversight. You have to recognized that the practicing physician, when encountering mimics of hypothyroidism, are between the proverbial rock and a hard place. On the one hand, he is driven (albeit to greater or lesser degrees) to properly treat the patient. On the other hand, if he does pay attention to medical science and treats the such patients properly, he becomes liable to the GMC and the wrath of the British Thyroid Association. The frustration, your frustration, should not be aimed at the physician you see, but at the commanding associations, like the British Thyroid Association, the American Association of Clinical Endocrinologists, and the American Thyroid Association. You should ask why the guideline for hypothermia is so much more complete than any of the guidelines for hypothyroidism. The hypothermia guideline is patient oriented and offer many potential causes for low body temperature -- including hypothyroidism. The hypothyroidism guidelines are levothyroxine sodium oriented -- if that does not fix you then -- per Doctor Professor Weetman, it is all in your head -- it could not be as science tells us, potentially in the post thyroid operations of peripheral metabolism or peripheral cellular hormone reception. MMMM, why does the endocrinology establishment exhibit more human frailties than the hypothermia establishment? Have a great day, > > Doctors who drop Briquettes often don't 'get it'.... > they have CFF (as above).... > > the ability to project their own incompentences onto patients never > ceases to astonish me...... >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi Gillian - the one thing to learn fast is that such doctors are desperate to find excuses to stop treating us because they have no idea how to deal with our complaint, so they uses such excuses and reasons to put the blame squarely on the shoulders of their patients. The reason members join forums such as this is for no other reason than the NHS has seriously let them down and they are prepared to do anything and everything they can to regain their health once again. Actually, not all doctors agree with Professor Weetman - there is many who do not, but they keep quiet about it as they don't want their livelihood jeopardised. These are powerful people, but we can fight them, and fight them we will. If you allow these idiots to make you feel neurotic, complaining or mentally disturbed, this is exactly what they want - so hold your head up high and get on with the task of making yourself well again by getting yourself educated with as much knowledge as you can about your illness, because knowledge is power, knowledge that they certainly haven't got. Luv - Sheila Good Lord...Sheila...this is very disturbing reading.I had to read it twice to make sure I'd read it right. So now I know I have got 'Fat File Syndrome'. No wonder the Doctor's don't take me seriously..its all starting to make sense now because nearly every GP is going to agree with Professor Weetman aren't they? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 I would thoroughly enjoy depositing some hefty home made Briquets right on top of the heads of the MIF's with their CFF and make sure I have consumed plenty of Brussels Sprouts, baked beans and a few cloves of garlic the day before. Anybody want to come along and join our band?...bring your own trumpet! Luv - Sheila I think one has to realise that some of the tosh in that article is about fat-head syndrome (Medically Induced Fatheads) ~ having listened to too much ...how can I put this without being offensive ~ b........ks. A case of Critical Faculty Failure (CFF) ~ make a note of that ! ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Oh Bob you've just cheered me up no end (see my 'rant' today bout futile visit to yet another endoprat or should I call him CFF!!). I literally laughed out loud when I read your email, you have such a wicked sense of humour. Well I don't care what they say about us I shall keep in touch and support TPA-UK. Its about the only thing that keeps me going. Who knows - if you can get in the news for making a funny complaint about Virgin airlines food I reckon one of your emails on could make you a celeb (well for a few minutes anyway). Rock on Bob. Kind regards > I think one has to realise that some of the tosh in that article is > about fat-head syndrome (Medically Induced Fatheads) Failure to use clinical judgement seems not to be subject to criticism any more, if they go by the lab results. > They're called 'critical faculties' for want of a better term.....most doctors seem to lack them. A case of Critical Faculty Failure (CFF) ~ make a note of that ! > So, alongside Briquet's Syndrome, we have the far more odious, > professionally damning and pervasive CFF. > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Oh Sheila you make me laugh... It would be worth breaking away from my oh-so-healthy diet and indulging in a curry and copious pints of Guinness.... > > I would thoroughly enjoy depositing some hefty home made Briquets right on > top of the heads of the MIF's with their CFF and make sure I have consumed > plenty of Brussels Sprouts, baked beans and a few cloves of garlic the day > before. Anybody want to come along and join our band?...bring your own > trumpet! > > > > Luv - Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi , putting changing guidelines aside, the, I was only following orders defence by doctors is a poor one, they should be ashamed of themselves. Best wishes > You have to recognized that the practicing physician, when > encountering mimics of hypothyroidism, are between the proverbial > rock and a hard place. On the one hand, he is driven (albeit to > greater or lesser degrees) to properly treat the patient. On the > other hand, if he does pay attention to medical science and treats > the such patients properly, he becomes liable to the GMC and the > wrath of the British Thyroid Association. > > The frustration, your frustration, should not be aimed at the > physician you see, but at the commanding associations, like the > British Thyroid Association, the American Association of Clinical > Endocrinologists, and the American Thyroid Association. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi If just one person gets a belly laugh a day, there's real hope that more will benefit from the wider (g)((m)irth ~ choose which first letter applies best...... Bob > > Oh Bob you've just cheered me up no end (see my 'rant' today bout > futile visit to yet another endoprat or should I call him CFF!!). I > literally laughed out loud when I read your email, you have such a > wicked sense of humour. Well I don't care what they say about us I > shall keep in touch and support TPA-UK. Its about the only thing that > keeps me going. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 WOW - reading your opening post, Sheila, I was speechless for once ! (doesn't happen often <G>) .... I would expect that doctors do make little notes on patients files, but I wasn't aware that there was a universally understood "diagnosis" amongst doctors at our expense.... Gillian - ***So now I know I have got 'Fat File Syndrome'. No wonder the Doctor'sdon't take me seriously..its all starting to make sense now I am assuming you were being sarcastic - but if your GP *really* had 'FFS 'written in your medical notes, I would be livid if in your shoes. You have a cast-iron diagnosis of Hashimoto's and your doctor has a moral duty to care and to treat your illness and to take your concerns seriously - I would take umbrage if anyone cast a doubt on a proven diagnosis of thyroid disease, let alone put a stamp of hypochondria in my medical notes. There would be hell to pay. In my view a "diagnosis" like 'FFS' or 'Briquets' in response to a *real and proven* illness amounts to character defamation of a patient, and I would not take kindly to being at the receiving end. Whilst I am somewhat sympathetic towards doctors who are restrained by the BTA's guidelines and are not prepared to risk their careers and livelihoods (they probably have mortgages to pay, too), my sympathy wanes quickly when a doctor misuses his or her position and presumes to be judge and jury over a patient. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 OOOO I bet I have all those written on my file through the years. I get this strange urge to go and see my medical notes lol. I want to see what the woman who sits in with you says to me when I ask what it means . Luv the CFF Bob, it should be a Universally used term lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 My thoughts exactly. kj In thyroid treatment , " auto_immune " <christina@...> wrote: - but if your GP *really* had 'FFS > 'written in your medical notes, I would be livid if in your shoes. You > have a cast-iron diagnosis of Hashimoto's and your doctor has a moral > duty to care and to treat your illness and to take your concerns > seriously - I would take umbrage if anyone cast a doubt on a proven > diagnosis of thyroid disease, let alone put a stamp of hypochondria in > my medical notes. There would be hell to pay. In my view a " diagnosis " > like 'FFS' or 'Briquets' in response to a *real and proven* illness > amounts to character defamation of a patient, and I would not take > kindly to being at the receiving end. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 If my symptoms went away I would be far too busy getting fit again to waste time pretending I was still ill. kj In thyroid treatment , " patersonia " <patersonia@...> wrote: > > Why would perfectly reasonable people who present with symptoms of > hypothyroidism suddenly be making up all their symptoms after taking > levo? Doesn't make sense to me at all. I never 'pretended' I still > had symptoms after taking levo - the symptoms never went away despite > using levo!!! > P > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Mine too Dawn although after today's fiasco it probably says 'HETUTS-NF' (had every test under the sun-nothing found)!!! I'm getting absolutely fed up with endo's who 'focus' in on one symptom and then pursue it with test after test - mostly outside their 'specialism' in the desperate hope it'll let them off the hook. So then they can sit there like the over qualified pompous condecending numnuts did today and say " look at all these tests your previous endo has done and nothing has been found " . Managed to stop this one in his tracks before he got to the 'somatoform disorder' line but unfortunately didn't reel out all my symptoms as by then he'd clearly lost interest as he'd offered up yet another stupid solution. I was so worried about my husband being late for work (the students he picks up have learning disabilities so he can't be late) I forgot to deliver my parting shot of 'so this sleep clinic will sort out my swollen feet, numb hands and the ringing in my ears then will it?! I did however manage to point to my non existent eyebrows and thin hair though!! Cheers all > > OOOO I bet I have all those written on my file through the years. I > get this strange urge to go and see my medical notes lol. I want to > see what the woman who sits in with you says to me when I ask what it > means . > Luv the CFF Bob, it should be a Universally used term > > lotsa luv > Dawnx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 They would say you were attention seeking - like they said about that poor young girl who died of ME . Lilian If my symptoms went away I would be far too busy getting fit again to waste time pretending I was still ill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Yes I was being sarcastic ! I could not believe what I was reading. I have to say I abhor the inferences that are made by this Professor whatnot to mental disorder, neurosis, dissociation, hysteria, hypochondria etc....it beggars belief.. One thing I am not is unstable in any degree and it worries me a little that I might come across as too 'over anxious' for my own good when I go to the Doctor's. I have been in and out the Doctor's so many times over the last few years with one thing and another, that was before they even found out I was hypo, hashi or whatever. Until then I assumed I was just another typical overweight middle aged menopausal woman. I keep changing Doctor's because I can't find one I like or trust, so I hope they are not looking at me now and stereotyping me with Briquet's, or Fat File syndrome. Hope you're bearing up OK with the Armour. Best wishes, Gillian > > Gillian - ***So now I know I have got 'Fat File Syndrome'. > I am assuming you were being sarcastic - but if your GP *really* > had 'FFS 'written in your medical notes, I would be livid if in > your shoes. > You have a cast-iron diagnosis of Hashimoto's and your doctor has a > moral duty to care and to treat your illness and to take your > concerns seriously Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 I must remember that one - as they have sent me to the sleep apnoea clinic because I have been so tired during the day but taking no notice of all the other symptoms and signs. Lilian I forgot to deliver my parting shot of 'so this sleepclinic will sort out my swollen feet, numb hands and the ringing in myears then will it?! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 I almost feel guilty going to the doctors despite having been medically diagnosed with underactive thyroid. I am almost decided to try HRT patches as my remaining symptoms are being put down to the menopause which makes it difficult for me to persist with an increase of the Levo, but I am feeling so confused by it all. I hadn't heard of the young girl who died of ME, I thought doctors acknowledged ME now. kj In thyroid treatment , " Lilian " <lilian15@...> wrote: > > They would say you were attention seeking - like they said about that poor young girl who died of ME . > > Lilian > If my symptoms went away I would be far too busy getting fit again to > waste time pretending I was still ill. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Kj - watch this - it is about the girl who died of ME/CFS. http://uk.youtube.com/watch?v=7mZMpvtD3rg & eurl=http://meagenda.wordpress.com/2009/01/15/youtube-what-happened-to-sophia-mirza-who-died-from-mecfs/ or if it is easier: http://tinyurl.com/au4b49 Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Very sad. It's interesting how it says on her website that the mother believed that toxins from the air vent in her daughters flat had something to do with the onset of all these symptoms. I can relate to that but this poor girls condition was much worse than anything I have ever heard of. Interesting too to note that she had dyslexia, many people on the spectrum have sensitivities to light and sound so it seems that Sophie could have been dealing with multiple causes to her ill health, conditions that doctors do not readily recognise or have no specific medical test with which to confirm a diagnoses. kj In thyroid treatment , " Lilian " <lilian15@...> wrote: > > Kj - watch this - it is about the girl who died of ME/CFS. > http://uk.youtube.com/watch? v=7mZMpvtD3rg & eurl=http://meagenda.wordpress.com/2009/01/15/youtube- what-happened-to-sophia-mirza-who-died-from-mecfs/ > > or if it is easier: http://tinyurl.com/au4b49 > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Hi, Never feel guilty about seeing the doc if you feel ill- that's their job to help you get well- even if they don't do it properly all the time. Subject: Re: BRIQUET'S SYNDROME I almost feel guilty going to the doctors despite having been medically diagnosed with underactive thyroid. I am almost decided to try HRT patches as my remaining symptoms are being put down to the menopause which makes it difficult for me to persist with an increase of the Levo, but I am feeling so confused by it all. I kj ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
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