Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 I am currently watching a programme on the tv about the prescription of life saving cancer drug REV, and they are saying that it costs £43000 per person per year for this drug to be prescribed. NICE were represented in a debate and unfortunately the gentleman representing them did not even understand QUALY. The chap did say however that NICE was set up to prevent Post-Code lotteries. I know that this is not a complete description of their role. Pity he wasn't more knowledgeable about the ethos of NICE. Now, my question is; What is the average cost to you as a patient paying for your Natural Thyroid Therapy? I would not for one second want to deprive any cancer patient of a nedicine which can prolong their life or improve the quality of their lives, nor the sufferer of any illness regardless of what it is. We see so many news items where people have had to battle for the right to be prescribed drugs which they would otherwise have to pay for privately for them to stay well or to prolong their life. I know that synthetic thyroid hormone replacement is a cheaper alternative but there are very often inconsistencies in its make-up. Many people are so ill on synthetics and often have the symptoms of other illnesses such as Fibromyalgia, MS, ME, CFS, the list is quite lengthy. Often these same people are subjected to a barrage of tests for these other illnesses which are in most cases negative result and so tets are done for the next illness which may be suspected. Apart from this there are all the days lost from work necause people are just too ill, the cost of repeated visits to GP's, again an endless list. How many billions of pounds are wasted this way? It is just not economical sense to keep people on synthetics if those people are not doing as well as they should be. I would love to see a fair debate on treatment with dessicated thyroid replacement hormone on the tv, or to be able to listen to one on the radio. I feel however that no one from the BTA, RCP et al would put someone up tp debate this with someone who has a good knowledge of the use of dessicated thyroid replacement hormone therapy. I wonder how they can set a price on the illnesses we have. Surely life is worth far more than money, and quality of life should be of utmost importance. Sorry for the ramble, just feeling rather disillusioned about our NHS right now. Luv Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 What winds me up more than anything that in addition to having to pay for medication that we need, we are now being charged VAT and post office fees for importing medication and suppplements. We are saving the NHS money we should not be penalised for this!!!!!!!! > > I am currently watching a programme on the tv about the prescription of life saving cancer drug REV, and they are saying that it costs £43000 per person per year for this drug to be prescribed. NICE were represented in a debate and unfortunately the gentleman representing them did not even understand QUALY. > The chap did say however that NICE was set up to prevent Post-Code lotteries. I know that this is not a complete description of their role. Pity he wasn't more knowledgeable about the ethos of NICE. > > Now, my question is; > What is the average cost to you as a patient paying for your Natural Thyroid Therapy? > > I would not for one second want to deprive any cancer patient of a nedicine which can prolong their life or improve the quality of their lives, nor the sufferer of any illness regardless of what it is. [Edit Abbrev Mod] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 I feel this is a move to stop everybody from buying medication and supplements from Internet Pharmacies in an attempt to get you to get your medication from your GP and they are trying to stop high dose supplements too. Luv - Sheila What winds me up more than anything that in addition to having to pay for medication that we need, we are now being charged VAT and post office fees for importing medication and suppplements. We are saving the NHS money we should not be penalised for this!!!!!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 You can only get some of the supplements my nutritionist has told me to take, like Dr s adrenal rebuilder, from the USA. The only medication my GP has offered me for my ME is Diclofenac for my muscle pains and you've guessed it ANTIDEPRESSANTS, which I refuse to take because I'm not depressed. > > I feel this is a move to stop everybody from buying medication and > supplements from Internet Pharmacies in an attempt to get you to get your > medication from your GP and they are trying to stop high dose supplements > too. > > > > Luv - Sheila > > > > What winds me up more than anything that in addition to having to pay for > medication that we need, we are now being charged VAT and post office fees > for importing medication and suppplements. We are saving the NHS money we > should not be penalised for this!!!!!!!! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 If you have to go abroad to get your supplements that this is what you must do. Glad you have refused the antidepressants. With many people suffering with MP, they find that when taking the active thyroid hormone T3, this helps get rid of the pain. Luv - Sheila You can only get some of the supplements my nutritionist has told me to take, like Dr s adrenal rebuilder, from the USA. The only medication my GP has offered me for my ME is Diclofenac for my muscle pains and you've guessed it ANTIDEPRESSANTS, which I refuse to take because I'm not depressed. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.