RE: Re: How to contact Dr Peatfield

[Guest guest]

Dr Peatfield's number is + 01883 623125 - but he is almost

impossible to get hold of these days. I have had correspondence with Leisa

Wheeler on the Gold Coast and she sounds excellent. She too follows Dr

Peatfield and Dr Lowe's diagnostic and treatment protocols and 'treats outside

the box'.

Do let us all know how you get on, and good luck to you both.

luv - Sheila

www.leisawheeler.com.au phone contact details are on her site. Hope this helps your wife and your bank

balance4

F

(Gold oast)

> My wife would like to visit UK to visit Dr Peatfield, but we've been

unable to contact anyone to advise us how to make an appointment. We are based

in Perth, Western Australia. Could someone tell us the best phone number or

email address to try?

>

> Otherwise, can anyone recommend a good adrenal specialist in Oz/NZ whom we

might visit instead?

>

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09:44:00

[Guest guest]

Hi

Once you get the results of your wife's 24 hour salivary adrenal

profile, if you need any help in interpreting the results, please let us know.

Good luck to you both.

Luv - Sheila

Many thanks to you (and to enkai and freeman) for your advice. We looked at the

Real Thyroid Help site and it is a font of information. We are inclined to try

one of the Australian suggestions before going to see Dr Peatfield later, if it

turns out that we need to.

My wife has just received the Adrenal Profile Saliva Test kit in the

post, from a lab in Melbourne, so she will start with that.

I'll certainly keep you posted as to how things go.

Regards,

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06:15:00

[Guest guest]

Oh dear - I am so sorry, but we do need to know the

reference range for each of 's tests before being able to pass comment. You

will see these next to the results for each test. We need to know whether the

results are at the bottom, the middle or the top of the range - or even whether

they are outside the range, and if so, by how much. Can you write these at the

side of the test results and send them back to us.

Luv - Sheila

DHEA at 0800 hrs: 2.3 nmol/L

Cortisol at 0800: 8 nmol/L

Cortisol at 1200: 18 nmol/L (took 5 mg prednisolone after 0800 and before 1200)

Cortisol at 1800: 5 nmol/L

Cortisol at 2200: 4 nmol/L

Blood tests (taken in the morning after fasting):

ACTH: 0.7 pmol/L

Cortisol: 359 nmol/L

TSH: 3.38 mU/L (Euthyroid)

Glucose: 4.2 mmol/L

Ferritin: 59 ug/L

Full Blood: Too numerous to list but all normal

Serum Lipids: Normal

Testosterone: 0.8 nmol/L

SHBG: 83 nmol/L (above reference range)

DHEAS: 1.1 umol/L

Free Testosterone: 7.4 pmol/L

Liver Function: normal (albumin slightly high)

TSH (second test): 2.67 mU/L

Free T4: 12 pmol/L

Free T3: 3.7 pmol/L

Thyroid Peroxidase Ab: 7.4 IU/mL (above reference range)

Thyroglobulin Ab: 20.1 IU/mL (above reference range)

Oestradiol: 101 pmol/L (perimenopausal)

S-Zinc: 11.0 umol/L

Vitamin D (Hydroxycalciferol) 39 (below reference range)

[Guest guest]

Hi Lethal Lee - missed having you around recently. Guess you have

been busy elsewhere, but just wanted to welcome you back on board again.

Luv - Sheila

Hi ,

Hello from a fellow Sandgroper!!!I see you are from Perth WA. So am I &

just wanted to say hi.

I am being treated for Hashi's & Secondary AI as are my Husband & Twin

Teenage sons. I managed to get a Perth Doc consultant MD to authorise a ACTH

Stim for all of us!! My family GP helped with ordering most of the other labs

needed.

[Guest guest]

Hi

, different laboratories use different 'kits' for testing and their

reference ranges depend upon what particular 'kit' your laboratory is using,

that is why we always have to ask everybody what the reference ranges are.

However, the main one's we need are the reference range for the cortisol and

DHEA tests at 0800 hours, 1200 hours, 1800 hours and again at 2200 hours.

Really, the last two tests should have been done at 1600hours and then again at

midnight. Somewhere on the paper you were sent, they will have listed the

reference range for each of these times and that is what we need. Having

said all that, I see that took Prednisolone during the test. Did you

tell the laboratory that she was taking this medication? She should have

stopped for 6 weeks before the test was done as you cannot get a true reading

of the state of her adrenals whilst taking such medication. The 24 hour

salivary adrenal profile is carried out to see the true state of the adrenals

under stress without any drugs. I would send an email to the laboratory in

question (was this Genova Diagnostics) and tell them exactly what medication

has been taking and for how long, and how many tablets of prednisolone did she

take during the 24 hour testing period.

There

appears to be some discrepancy in her first and second TSH. How long was there

between each of these tests? TSH should be around 1.0 mU/L - so that needs

watching. Her Free T4 is low and should be in the upper third of the reference

range, and her Free T3 is on the low side also. She does have antibodies, but

not a lot at this time. Zinc, Vitamin D are also low in the range and should be

supplemented. You can buy zinc at your local health food store but her doctor

should prescribe her Vitamin D. Ferritin would be better around 70 to 90 and

needs watching. Her doctor may wish to do another test in 3 months time to see

if this goes any lower, in which case, she would benefit from a course of some

form of elemental iron. Her sex hormones are low (which is often the case with

those suffering the symptoms of hypothyroidism). What has her doctor

recommended?

See

if you can find the reference ranges elsewhere on the sheet showing

the 24 hour salivary adrenal profile. I don't know why they don't put

them next to the actual results, but they are there somewhere, and email the

laboratory to let them know how much prednisolone your wife was taking at the

time and how long she has been taking this. They may need to put a different

interpretation on those results.

Luv

- Sheila

> DHEA at 0800 hrs: 2.3 nmol/L (Ref Premenopausal No Oral Contraceptives

2.5-25, Post Menopausal up to 6.5)

> Cortisol at 0800: 8 nmol/L

> Cortisol at 1200: 18 nmol/L (took 5 mg prednisolone after 0800 and before

> 1200)

> Cortisol at 1800: 5 nmol/L

> Cortisol at 2200: 4 nmol/L (Ref 0600-0800 5.3-61.8, 1800-2000 1.2-12.3)

>

>

[Guest guest]

Hi

Can I just mention

that many hypothyroid women suffer with Lichen Sclerosis of the vulva and the

ONLY medication for this is the steroid cream Dermovate. The only way to get

this diagnosed properly is through a lumpectomy, where they remove a little

piece of tissue and test it in the laboratory. This can be extremely painful

and to my mind, quite unnecessary as doctors should be able to recognise what

this is. (I am a sufferer and so I know). Tell to mention Lichen

Sclerosis or Lichen Planus to her GP. She can read more about it here http://www.patient.co.uk/health/Lichen-Sclerosus.htm.

I do know that several of our members suffer with this awful disease, but

again, doctors are not even aware that it can be connected with being

hypothyroid. Hope her doctor will listen and give her the necessary

Dermovate Cream or Ointment, because nothing else will work.

Luv - Sheila

The prednisolone was originally prescribed for various pains that had -

at one time we thought it was fibromyalgia or CFS. She had (and still has)

periodic bouts of strong pain in the sternum and ribs, which we now think

relate to the small intestine. She also has recurrent vaginitis, which no

gynaecologist has been able to explain or treat. We are just hoping it's the

thyroid and adrenals that are causing these problems, but we can't be sure

until we fix them up.

[Guest guest]

Hi ,

You may like to look at http://www.progesterone.co.uk dr. P

recommended this after hysterectomy when oestrogen was causing problems. It

also works better with thyroid meds. I now use a combo which suits well and

gives appropriate natural lubrication- the rawness may be due to lack of

lubrication.

Re: How to contact Dr Peatfield

Hi again Lethal Lee,

I agree that she should be on some kind of HRT but we need better guidance

than her GP was giving. We are hoping that Dr L will be able to suggest a

good balance of supplementation.

>

>

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

Hi Jane,

I use Sandrena 1.0mg one sachet per day and Serenity ( as

recommended, but I don't know the actual dose) I have had hysterectomy many

years ago so this does affect my natural production of hormones. After using

this for a while I was able to reduce the oestrogen by half without

triggering hot flushes, which I used to have, along with vaginal dryness

before starting the Serenity. This was at the same time I changed my thyroid

meds for T3 and Armour. I was VERY ill on T4 alone.

Subject: Re: How to contact Dr Peatfield

Hi ;

Can you tell me the name of the " combo " you use please.

Regards

Jane

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

Hi

- I know that you said you did not think that 's problems were

either lichen planus or lichen sclerosis, but she really does need to know for

certain. There is ONLY one treatment that takes care of either of these, and

whatever is trying now, if she does have LP or LS, nothing is going to

work for her. I too have been there with the icepacks and more. If I was

, I would definitely ask her GP to arrange for her to have a lumpectomy

in outpatients - this is done with a local anaesthetic to find out for definite.

This is the ONLY way to tell whether this could be her problem and the only

medication that will relieve it is Dermovate. Most information regarding LS

mentions white spots that appear and if does not have these, it doesn't

mean she doesn't have LS. I have NEVER had any white spots in my life - even at

its most severe. I have, of necessity, used Dermovate on and off for years now,

and have had no thinning of the skin - it only ever gives me relief.

The

beauty of the steroid cream Dermovate is that it works quickly - she will not

have to keep using it constantly. Once the burning, itching calms down, and

stops, she should be fine. It often comes back every few months (an autoimmune

problem), but then as soon as one uses the dermovate again, it quickly eases

and disappears. It sounds as if has been putting up with this for such a

long time it has got pretty bad - so please tell her not to guess what this

might be anymore - get her doc to send a little bit of tissue to the

laboratory so she knows for sure once and for all. Yes, for me, it was painful,

but they hadn't waited until the anaesthetic worked properly, but the suffering

that I had before was even more horrendous. I used to cry with the severity of

the burning and itching and not know where to put myself. In case Dr L

doesn't think to mention the possibility of LS or LP, do mention this to him

next month.

Has

had a swab taken to get confirmed diagnosis of vaginitis. If so, what

treatment has she been recommended? Has she been prescribed antibiotics. I know

you say that is concerned about taking some medications, particularly

steroids (and probably antibiotics) but she needs to decide between the two

options - either put up with this burning pain, or bite the bullet and get the

treatment that has been proven to work.

Because

I know first hand what people go through with this awful problem, I hate

hearing how others suffering.

The

one thing that I did find gave me some relief was the use of Unguentum Cream. This

cream has an affinity for both oil and water. It is a topical preparation with

emollient properties. It has the high fat content of an ointment but also has

the water-miscible characteristics of a cream. The high fat content reduces

water loss from the skin and therefore has a hydrating effect. It is so

soothing and this is something might want to try. You can buy tubs from Boots - but It is

expensive. The cream is thick and I used to slather lots of it on (back and

front) - wear no panties and just a long skirt. The flow of air helps

enormously. That was the nearest I came to bliss when it was particularly bad. Sorry

boys, I know this is probably too much information.

Luv

- Sheila

Thanks for the link. In 's case it started as extreme sensitivity of the

skin but now appears to be deeper as it moves around between front and back.

She describes it more as " heat " rather than " pain " , but it

still bothers her a lot. She carries an icepack around with her and sits on it

in the car. At night she takes both the icepack and a hot water bottle to bed -

the heat for the chest pain and the icepack for the nether regions.

She's unwilling to try anything new until she sees Dr L in Sydney next month.

Regards,