Re: doc told me to accept how I am or go elsewhere

[Guest guest]

Hi ,

Go back and ask if they have acccess to a CB2 agonist drug yet.

Better still, ask your local pharmacy if they have one.

Phone the PCT to ask what is their policy on making CB2 agonists

available to patients in chronic pain?

(alternative to Cannabis)

best wishes

Bob

> Hi,

> I've just been to the doc...I saw another in the practice who told me

o go see his partner which I did this morning. I have spent the

[Guest guest]

Hi Bob

I can't go back now...they have told me to find another doctor. But

I will try to find out what the health board policy is on CB2...I

know I need something else to manage this pain. I am sorry for

moaning...I know there are many people who live with chronic pain

without all this drama but I am so frustrated.

> > Hi,

> > I've just been to the doc...I saw another in the practice who

told me

> o go see his partner which I did this morning. I have spent the

>

[Guest guest]

I am so sorry to hear you have been treated so shabbily. I

would suggest you get the tel no of your Patient Liaison Officer from

your local Primary Care Trust, their number will be in the book or

online.

The PALS person can come and visit you at home and help you sort this

out.

Mo

>

> When I asked today what was wrong with me he said he didn't know.

> When I asked to see a specialist - I haven't seen any - he said

they

> had done all the tests and nothing showed up so there was no

point.

> He said this is just how things are for me and I need to accept

it.

> I said I was not happy about that and he said go somewhere else

> then. I have had enough - it is just too much for me I can't go on

> like this any longer. I can't get to another doctor to register -

I

> am incapacitated. It took all my energy to get to the doc this

> morning and I am now exhausted. And where do I go? How do I know

I

> won't get the same from someone else? I am a widow alone with two

> teenage boys and no family nearby. They all live miles away and I

> haven't seen anyone but my 75 year old mother this year...she lives

> 12 miles away and doesn't drive. I saw Dr. P in August and have to

> see him next week but I don't know if I can get to Aberdeen from

> Paisley to see him. I don't think I will ever get better.

>

>

>

[Guest guest]

Dear

I am absolutely appalled that ANY doctor would treat his patient in such a callous uncaring fashion. First, he needs to be reminded of the "Duties of a doctor registered with the General Medical Council and I have pasted these below for you. I would have no hesitation in sending him a copy with a copy to the Head of Practice.

Telephone your local Primary Care Trust or whatever the equivalent is in Scotland and tell them what has happened today and tell them of your distress and pain and that you do not know what to do. Tell them that you need treatment that is being refused and that you are also being refused a referral to a specialist who might be able to help resolve your problem. What your doctor has done should be reported to the GMC and he should be tried to see whether he is a fit doctor to be looking after patients.

What medication are you taking - are you on synthetic or natural thyroid hormone replacement. When was the last time you had a thyroid function blood test done? Tell your PCT that you would like a more 'caring' doctor as soon as possible, because you do not want to be going back to a doctor who doesn't give a jot about his patient's health. The PCT will find you one and you don't have to do a thing. They will take into account your incapacity so please don't worry. My doctor sacked my me and the PCT found me a practice just down the road where the doctors will prescribe me Armour on the NHS. There is always light at the end of the tunnel. So, look on the positive side if that is possible right at this minute. Work with your PCT who might put you onto PALS and tell them you want an explanation and an apology from this doctor.

Are your pains caused through arthritis or something similar or are they caused because of your hypothyroidism? I had severe pains when on levothyroxine alone and they left me when I started taking all the thyroid hormones that are in Armour.

I would also write to this doctor yourself and demand an explanation as to the exact reason he has more or less told you to put up with the pain or go elsewhere, and why, when he is ONLY a GP he has refused to refer you to a specialist who might be able to help you. Enclose a copy of the following 'duties' - there will be no need to pass comment, just put it in the envelope. He might think twice when he sees the words "General Medical Council". Doctors have been reported for much less.

You will find the PCT very cooperative and very helpful .

Luv and big (((HUGS))) - Sheila x

The duties of a doctor registered with the General Medical Council

Patients must be able to trust doctors with their lives and health. To justify that trust you must show respect for human life and you must:

Make the care of your patient your first concern

Protect and promote the health of patients and the public

Provide a good standard of practice and care

Keep your professional knowledge and skills up to date

Recognise and work within the limits of your competence

Work with colleagues in the ways that best serve patients' interests

Treat patients as individuals and respect their dignity

Treat patients politely and considerately

Respect patients' right to confidentiality

Work in partnership with patients

Listen to patients and respond to their concerns and preferences

Give patients the information they want or need in a way they can understand

Respect patients' right to reach decisions with you about their treatment and care

Support patients in caring for themselves to improve and maintain their health

Be honest and open and act with integrity

Act without delay if you have good reason to believe that you or a colleague may be putting patients at risk

Never discriminate unfairly against patients or colleagues

Never abuse your patients' trust in you or the public's trust in the profession.

You are personally accountable for your professional practice and must always be prepared to justify your decisions and actions.

> Hi,> > I've just been to the doc...I saw another in the practice who told me > to go see his partner which I did this morning. I have spent the > last three nights unable to sleep due to pain in my knees, ankles and > legs in general. I have pain all the time - can't get up of a chair > without help, walk with a stick when I can walk but this pain is > excrutiating. I have been prescribed tramadol, 3 a day but it > doesn't help.> > When I asked today what was wrong with me he said he didn't know. > When I asked to see a specialist - I haven't seen any - he said they > had done all the tests and nothing showed up so there was no point. > He said this is just how things are for me and I need to accept it. > I said I was not happy about that and he said go somewhere else > then. I have had enough - it is just too much for me I can't go on > like this any longer. I can't get to another doctor to register - I > am incapacitated. It took all my energy to get to the doc this > morning and I am now exhausted. And where do I go? How do I know I > won't get the same from someone else? I am a widow alone with two > teenage boys and no family nearby. They all live miles away and I > haven't seen anyone but my 75 year old mother this year...she lives > 12 miles away and doesn't drive. I saw Dr. P in August and have to > see him next week but I don't know if I can get to Aberdeen from > Paisley to see him. I don't think I will ever get better.> > >

[Guest guest]

hon

I am disgusted at that, he really does need reporting, if you don't

want to do it for yourself, please do it for others who also might be

a victim of his lack of caring.

However I am not saying knock urself out with the complaint, just a

simple letter of complaint, he REALLY does need it to be lodged.

You have no diagnosis? How is someone supposed to accept that is 'just

how they are' in chronic pain for no reason? The human body was

created fearfully and wonderfully, pain tells you something is wrong,

this man needs educating. Yes you have to ease the pain, but you also

need the cause. If they say it is FM then you are entitled to a

referral to a specialist clinc in FM at least.

Magnesium is good for muscle pain, magnesium oil I hear is really good

locally too, obviously for the same reason people reap great benefits

from epsom salt baths and poultices.

Don't lose heart, contact the PCT and PALS. They are not allowed to

leave you without health care by law.

God bless,

lotsa luv

Dawnx

[Guest guest]

Hi ,

So sorry to hear that you are being denied treatment by a pointless

doctor, it's shameful.

As far as complaining goes l will relate the tale of my husband's saga.

Hubby suffers with anaphylactic shock syndrome and the last time he had

this he injected himself with the epipen of adrenaline and absolutely

nothing happened, he started to get much worse almost immediately, so

he injected himself again. After he came out of hosp he went to colect

his prescription for replacement epipens when the pharmacist noticed he

had been prescribed, Junior epipen, half the dose of the usual adults

one, on investigation the chemist found that he was prescribed Junior

versions once before and that's the reason he went into a coma when he

had a shock. Hubby then asked the chemist to look into his other

prescribed meds and behold, the same gp had doubled his dose of pain

killers to what the chemist says is twice the recommended dose of the

manufacturers.

The response from the gp's receptionist was, " well, you are ok now,

aren't you? " So a letter was sent to PALS, by hubby, and after weeks

and weeks of waiting, the reply was that, hubby needed to go via the

gp's surgery complaints procedure in the first instance and in any case

they don't deal with complaints about gps.

So we are at the stage now of going through the GMC.

Good luck, , you deserve a better gp, and you have a lot of good

kind people in your corner, sweetheart.

rx

> >

>

[Guest guest]

thanks everyone for your messages...as you could probably tell I was

doing my woe is me routine...totally frustrated and totally p****d

off...excuse the French.

My children are members of the Young Carers group at our local carers

centre - and there is an advocacy worker there who can help me

complain. I used to be the ish Manager of a large national

training organisation but now I can hardly string a sentence together

so need help. I plan to send a letter to my GP practice, my MSP, local

councillor and the local health board...I am ill, in pain and exhausted

but I am also really really really angry.

I am taking magnesium, selenium, coQ10, Vit C, Westhroid, NAX, NA and

licorice and ginseng daily as per Dr. P's instructions but am really

struggling to get better...temp last night was 35.2...basal temp this

morning 35.6...

I just want to get back to full health, back to my studies (postgrad

teaching) and back to work....

x

[Guest guest]

By the way, any suggestions for how to go about it, who to complain to

and what to contain would be appreciated. I don't know if it makes any

difference but I live in Scotland.

[Guest guest]

MODERATED TO REMOVE MESSAGES ALREADY READ. PLEASE DELETE THESE AND LEAVE JUST A

PORTION OF WHAT YOU ARE RESPONDING TO BEFORE CLICKING 'SEND'. LUV - SHEILA

__________________

> Hi Bob

>

> I can't go back now...they have told me to find another doctor. But

> I will try to find out what the health board policy is on CB2...I

> know I need something else to manage this pain. I am sorry for

> moaning...I know there are many people who live with chronic pain

> without all this drama but I am so frustrated.

>

>

>

>

Hi,

Just to endorse what says. Fibro certainly doesn't show up, even

with a full body scan! 2 of my girls were diagnosed with this, one

often couldn't even turn over in bed for the pain. Now they are on

Levothyroxine though, they both seem to be clear of it. Don't know if

this is permanent or not. This is a guessing game mainly played by the

patient for the patient.

[Guest guest]

Re. PALS, ICAS, PPI etc. - I have been trying to find out about these

services in my area and I don't think they apply in Scotland. I am

still looking. Thanks.

[Guest guest]

Just for a moment, let us look at this from the doctor's point of

view. Sure, he could have given you the " functional somatoform

disorder " excuse for not managing your suffering, but he just was

blunt about it. There is nothing that he can do without risking his

career.

Given the prevalence of sham peer reviews that kill physicians'

careers over not marching in lock step to the dictates of the gods

of medicine, is there anything that he could have done short of

sacrificing himself and his family?

We, the people, have made the high-level physicians into virtual

gods. It is up to us, the people, to notice that all governance,

including medical governance, needs limitations because contrary to

their belief, they are not angels and they do need limitations.

An effective limitation is similar to the right to abortion. It is

a private affair between patient and physician. So should the rest

of medicine be a private affair between physician and patient. And

the limits in that relationship are spelled out in tort law. If the

physician cares, heals, and mitigates suffering there are no damages

and his career remains complete. Otherwise, may he pay the

consequences -- which does not happen in the wrongful prescription

of thyroxine for post-thyroid deficiencies.

Have a great day,

>

> Hi

>

>

>

> First, I am so sorry that you have received such a letter from

your doctor.

> I know what you were going through with them last week and to be

honest, I

> thought at the time you should leave such an uncaring surgery -

this now

> proves that they care nothing about their patients. Every cloud

has a

> silver lining, so please don't let this upset you - though I know

exactly

> what you are feeling like because my old doctor sacked me - and

, of

> course had to leave too. We had been with the surgery for over 20

years.

>

>

>

> My daughter lives in Cardonald. She used to live in Paisley and

tells me

> that before she moved, she had the best GP in the country. She

thought the

> world of her and her name is Dr Margaret Hodgson, Northcroft

Medical Centre,

> The Greenlaw Practice, Paisley. If you manage to get registered

at that

> clinic, stick with Dr Hodgson and nobody else. I have no idea

whether this

> happens to be the surgery that has sacked you, though somehow,

according to

> what my daughter says, I doubt it .

>

>

>

> Can you telephone your local library to find out what the

equivalent to PALS

> etc is in Scotland. I asked my daughter, and she didn't know and

was in a

> rush to go out.

>

>

>

> Luv - Sheila

>

>

>

> From: thyroid treatment

> [mailto:thyroid treatment ] On Behalf Of

> Sent: 15 November 2008 12:29

> thyroid treatment

> Subject: Re: doc told me to accept how I

am or go

> elsewhere

>

>

>

> Re. PALS, ICAS, PPI etc. - I have been trying to find out about

these

> services in my area and I don't think they apply in Scotland. I am

> still looking. Thanks.

>

>

>

> _,_._,___

>

[Guest guest]

How strange Sheila - that is the practice that I have now registered

with! I don't know which doctor I will be allocated to but at least

I will have the option of seeing Dr. Hodgson as she is in the same

practice.

I have looked up how to make a complaint and my brain isn't working

properly...I am going to go to the advocacy worker attached to the

Carer's Centre that holds my kids Young Carers Group to ask for help.

They are very caring and helpful people and I hope that I will get

somewhere with them. They already arranged a respite worker (respite

for my kids...how sad) to visit for 4 hours a week...she takes me for

the shopping and any chores I need to do. So fingers crossed that

this is all for the best.

x

>

> Hi

>

>

> My daughter lives in Cardonald. She used to live in Paisley and

tells me

> that before she moved, she had the best GP in the country. She

thought the

> world of her and her name is Dr Margaret Hodgson, Northcroft

Medical Centre,

> The Greenlaw Practice, Paisley. If you manage to get registered at

that

> clinic, stick with Dr Hodgson and nobody else.

>

> Can you telephone your local library to find out what the

equivalent to PALS

> etc is in Scotland. I asked my daughter, and she didn't know and

was in a

> rush to go out.

>

> Luv - Sheila

>