Re: on being thoughtless and needing to try harder........ not editing posts

[Guest guest]

>

> Hi ~,I forced myself to watch most of the Terry Pratchett

programme the other evening. Didn't watch it all as I found it too

uncomfortable and to be honest I thought he was way better off than

me! Appreciate he is at early stages though. ......

In Dr P's book he mentions Alzheimer's twice. On page 100 he says

correcting low DHEA can improve memory and thinking. Then on page 187

he explains how T3 can help.

Miriam

[Guest guest]

That's interesting Miriam. I made the mistake of loaning my book out to someone who has now disappeared with it.....

On the DHEA front I have been told on the US list that DHEA should not be taken until cortisol is optimised and mine is not so that holds me back though I don;t understand how this all works.

Struggling to get the T3 into the cells and working for me still!

Mo

In Dr P's book he mentions Alzheimer's twice. On page 100 he sayscorrecting low DHEA can improve memory and thinking. Then on page 187he explains how T3 can help.Miriam

[Guest guest]

Gawd help us indeed margaret!

That was so funny.I had to come home sick Tuesday lunch.I had dropped my hubby at work that morning.Got into bed and I live in a bungalow I heard the front door go.I jumped out of bed and looked out the window and seen the car and started shouting to my hubby "whats going on Why are yuo home"It took a mo to realise twas I who had driven the car home.Talk about brain fog.Gawd help us

[Guest guest]



Maybe you should insist of being referred to a sleep clinic Mo. I know they might be a distance away but they should be able to arrange transport for you.

Lilian

[Guest guest]

Hi Mo,

This type of problem is very common with " M E " and seems to be related

to poor blood perfusion of the brain. I agree it's annoying,

frustrating and worrying, but I wouldn't assume it is irreversible

like Alzheimer's.

Miriam

>

> Hi ~,I forced myself to watch most of the Terry Pratchett

programme the other evening. Didn't watch it all as I found it too

uncomfortable and to be honest I thought he was way better off than

me! I have had episodes of losing chunks of time.

[Guest guest]

> That's interesting Miriam. I made the mistake of loaning my book out

to someone who has now disappeared with it.....

> On the DHEA front I have been told on the US list that DHEA should

not be taken until cortisol is optimised and mine is not so that holds

me back though I don;t understand how this all works. ....

I have started taking DHEA just because my test showed I was low in

it. My cortisol is optimised now that I am taking 30 mg Cortef every day!

> Struggling to get the T3 into the cells and working for me still!

.............

Ditto !

Miriam

[Guest guest]

Hey MoI saw something on Dr Lowes site about DHEA and cortisol. The idea that DHEA interferes with cortisol production/metabolism is false (he says). Take a look at this link - it has a number of Q & A on his site about DHEA which I think will help you. DHEA I thought that if DHEA and cortisol were both low, you should

supplement both? Certainly when I saw DR P in November, I told him I

was taking both and he wasnt concerned about it. BTW, if you do decide to buy DHEA, iHerb sell it very cheaply.Marie xx

[Guest guest]

That did occur to me Lilers but it would be complicated, there is nothing near here and the GP was not interested when I mentioned it and there would be no-one to look after Blondie and they would probably, if I could arrange all of that, give me one fo those mask thingees which I could not sleep with one of them on me gob......

It was exhausting just thinking about all of that!

Mo



Maybe you should insist of being referred to a sleep clinic Mo. I know they might be a distance away but they should be able to arrange transport for you.

Lilian

[Guest guest]

Blood perfusion huh? what's that Miriam?

And how do we reverse it??????

Mo

Hi Mo,This type of problem is very common with "M E" and seems to be relatedto poor blood perfusion of the brain. I agree it's annoying,frustrating and worrying, but I wouldn't assume it is irreversiblelike Alzheimer's.Miriam

[Guest guest]

Thanks Marie, I do have some 25 mg DHEA here, maybe I will start taking it, how much are you taking now? And has it helped you in any way do you think?

How are you getting on with the head pressure??

Mo xx

Take a look at this link - it has a number of Q & A on his site about DHEA which I think will help you. DHEA I thought that if DHEA and cortisol were both low, you should supplement both? Certainly when I saw DR P in November, I told him I was taking both and he wasnt concerned about it. BTW, if you do decide to buy DHEA, iHerb sell it very cheaply.Marie xx

[Guest guest]

>

> Blood perfusion huh? what's that Miriam?

> And how do we reverse it??????

That's what I thought Mo, so I looked it up - " A physiological term

that refers to the process of nutritive delivery of arterial blood to

a capillary bed in the biological tissue " - Huh? So I think I'll wait

for Miriam's explanation!

x

[Guest guest]

Well, I'm taking 25mg daily but to tell you the truth Mo, I cant

really tell you how its helped, or even IF its helped. I know that

when I started HC & DHEA in the same week back in November, my body

temps jumped immediately, so the combo is doing something.

Mostly I'm going on faith here; thinking that it will probably all pay

off one of these fine days ! See, my ability to withstand the cold

has vastly improved and I've never had this. Never ever.

So that tells me something is going on, hopefully its a good

" something " and hopefully it will extend to giving me more energy and

brainpower. Its taking its own sweet time though.

The head pressure is still there. I tried increasing to 25mg HC, felt

rough, then brought it down to 22.5mg. It just doesnt seem to be

working, no matter what they say about most people needing 25mg+.

We're all different eh?

I'm going back to just 20mg HC from tomorrow and 4 x NAX.

Marie xx

>

> Thanks Marie, I do have some 25 mg DHEA here, maybe I will start

taking it, how much are you taking now? And has it helped you in any

way do you think?

> How are you getting on with the head pressure??

>  

> Mo xx

>

[Guest guest]

>

> Blood perfusion huh? what's that Miriam?

> And how do we reverse it??????

Mo this perfusion stuff is very interesting. Couldn't resist a

further google and found this:

Measures taken to improve blood circulation may improve blood

perfusion as well as the mental confusion and exhaustion prevalent

in all those suffering.(from CFS)

http://www.wholisticresearch.com/info/artshow.php3?artid=268

Other stuff I read said the same thing. I'm chasing how to get rid

of my bad head/memory problems and I've come across the idea of lack

of blood/oxygen (don't know if those two things are interchangeable)

to the brain as possibly being responsible before. I'm going to look

into it some more.

x

[Guest guest]

Thanks for the link and the explanation.

I did go weekly to the oxygen tank at the local M.S. Centre for a while and that did not seem to do anything much though I believe it does help some people.

Will have a read of the link now....

Ta.

mo

>> Blood perfusion huh? what's that Miriam?> And how do we reverse it??????Mo this perfusion stuff is very interesting. Couldn't resist a further google and found this: Measures taken to improve blood circulation may improve blood perfusion as well as the mental confusion and exhaustion prevalent in all those suffering.(from CFS)http://www.wholisti cresearch. com/info/ artshow.php3? artid=268

[Guest guest]

Have had a look at that link now and yes, I agree with you that it is very interesting.

I came across the info below about NADH, has anyone taken this?

Mo

__________________________________

Of interest NADH is also effective in people suffering from Alzheimer disease, Parkinson's Disease, depression, protection against the side effects of the drug Azidothymidine used for sufferers of Aids, immune stimulation and DNA (deoxyribonucleic acid) repair. Measures taken to improve blood circulation may improve blood perfusion as well as the mental confusion and exhaustion prevalent in all those suffering.(from CFS)http://www.wholisti cresearch. com/info/ artshow.php3? artid=268Other stuff I read said the same thing. I'm chasing how to get rid of my bad head/memory problems and I've come across the idea of lack of blood/oxygen (don't know if those two things are interchangeable)to the brain as possibly being responsible before. I'm going to look into it some more.

x

[Guest guest]

Sounds like I would need to put the head of my bed on stilts .

Oh no, listen to me, it would be the other way round wouldn't it?

Don;t you I wasn;t well!

MoThat's what I thought Mo, so I looked it up - "A physiological term that refers to the process of nutritive delivery of arterial blood to a capillary bed in the biological tissue" - Huh? So I think I'll wait for Miriam's explanation! x

[Guest guest]

It's tricky isn't it Marie, how to tell what is doing what but as long as you are seeing continuing improvement then that is the main thing. DHEA I have heard can takes month to show signs of improvement so I have just taken one 25 mg capsule and I will use up the tub anyway, who knows?

Good luck with the extra NAE and let us know how you go on with it?

Mo

Mostly I'm going on faith here; thinking that it will probably all payoff one of these fine days ! See, my ability to withstand the coldhas vastly improved and I've never had this. Never ever. So that tells me something is going on, hopefully its a good"something" and hopefully it will extend to giving me more energy andbrainpower. Its taking its own sweet time though.

[Guest guest]

> Sounds like I would need to put the head of my bed on stilts .

> Oh no, listen to me, it would be the other way round wouldn't it?

> Don;t you I wasn;t well!

Your posts always bring a smile to my face Mo, even though I know

they're not always meant to! A very welcome side effect of brain

fog! :0) And you can laugh if you like but to have a headboard on

stilts would be a dream come true for mr. I'd love it. I have to sleep

propped up because of my vertigo.

x

[Guest guest]

Oh that's awful , so how do you do this? and does it help any?

I remember a primary teacher of Danny's having to retire early because of vertigo they could not find a cause for. Is is thyroid-related do you think?

Mo

Your posts always bring a smile to my face Mo, even though I know they're not always meant to! A very welcome side effect of brain fog! :0) And you can laugh if you like but to have a headboard on stilts would be a dream come true for mr. I'd love it. I have to sleep propped up because of my vertigo. x

[Guest guest]

>

> Oh that's awful , so how do you do this? and does it help any?

> I remember a primary teacher of Danny's having to retire early

>because of vertigo they could not find a cause for. Is is thyroid-

>related do you think?

Two hospitals put it down to migraine. Dr P originally thought it was

related to thyroid but dismissed that idea last time I saw him, going

instead with the migraine diagnosis with maybe an adrenal component

thrown in.

I just use varying numbers of pillows and cushions against the

headboard depending how bad it is and only ever sort of sit up against

them, never lie flat. It does help and I can always guage how good or

bad I am by how " flat " I can lie!

I've been heaps better though since my diet change.

x

[Guest guest]

Hi Marie,

Thank you for posting this - I know it was directed to MO, but I have

found what you said particularly helpful too... very wise words...

Leah xx

>

> Hi Mo,

> I read a little anecdote recently and the punchline (so to speak)

> was " this too shall pass " . In other words, nothing lasts forever.

> Its so simple, yet so true.

>

> No matter how utterly crap life is right now, it will pass. Things

> are always changing; this is no different. You're doing so much to

> get your health back, that it WILL pay off.

>

> Although it may not feel like it right now, you're probably making

> more progress now than you've made in years. It will take time, but

> you're working with the knowledge of one of the best doctors in this

> field.

>

> This is your " dark night before the dawn " . But this too shall pass.

>

> I hope this doesnt sound trite because it truly isnt meant that

> way.

> Sometimes its this very thought that gets me through the bad

> moments, knowing that nothing ever stays the same. Even the crap.

> Big hugs from me!

> Marie xx