Re: on being thoughtless and needing to try harder........ not editing posts

[Guest guest]

Hi Mo,

I'd be happy to edit a letter for you if you like to email me.

Just bash the text down and I'll do my best to get it back to you

soonest.

I'll try and re-interpret what you manage to get down and see if I

can give it continuity for you.

I got some intellectual function back on high dose folic acid (Px

only 5mg/day).

best wishes

Bob

>

> Hi list ~

> I think I have been at fault in not editing posts for the list and

> I wrote to the list and apologised when Sheila brought it up

> recently.

> And also wrote to the list in response to 's comments with an

> explanation as to the reasons for the problem. I felt misunderstood

> and hurt when the response was to " try harder " .

[Guest guest]

Thanks Bob, that is sweet of you!

I think my problem is trying to remember all the bits that I need to bring to his attention but maybe if I have a stab at that, simply sending it to someone else and getting a bit of feedback might actually help me to get it in some sort of order. So may I will, with gratitude, send it on to you when I have something more concrete.

Note I say WHEN Bob, you see what happens is it just disappears out of my radar........

What I need is a secretary, an advocate, a chauffeur, a handyman.......I could go on, but certainly need admin and advocate.

xx

From: bob.m9uk <Bob.m9uk@...>Subject: Re: on being "thoughtless" and needing to "try harder"........ not editing poststhyroid treatment Date: Friday, 6 February, 2009, 10:40 AM

[Guest guest]

Hi Mo

My name is Margaret and I am new to all this and although I use a computer in work I am not very good (I hate em) I am so sorry you feel so awful and I was very upset reading your email.

I know nothing about nothing and am not to good myself at the moment so am still learning withthe help of Sheila..I do have the brain thing and I am such an organised person who is constantly on the go that the way I have felt for the past couple of years has knocked me for six.I am now trying Armour.All I will say is the way you feel with your "Washing Machine head" is dreadful and I am sure most of us know that feeling.Please please take One day at a time and if thats too much take an hour at a time.You will get well because you have too.You cant change the direction of the wind right now but you can ajust your sails.

Margaret

From: Mo Osborne <mairinaineosborne@...>thyroid treatment Sent: Friday, February 6, 2009 9:44:10 AMSubject: on being "thoughtless" and needing to "try harder"........ not editing postsHi list ~ I think

[Guest guest]

Hi Mo

My name is Margaret and I am new to all this and although I use a You cant change the direction of the wind right now but you can ajust your sails.

Margaret

Hi Margaret ~ Thanks for that lovely post Margaret, you made me smile

and the lovely flowers too!

Adjust my sails I will LOL Mo

[Guest guest]

Hi Mo,

I understand where your brain is at the moment.

Please send (email) copy for editing.

best wishes

Bob

>

> Thanks Bob, that is sweet of you!

> I think my problem is trying to remember all the bits that I need to

bring to his attention but maybe if I have a stab at that, simply

sending it to someone else and getting a bit of feedback might actually

help me to get it in some sort of order.

[Guest guest]

Thanks for thaqt Bob. I have Googled about the folic and it looks like a runner...... Problem is, somewhere in the back of my damaged brain, I thought I had previosuly decided I could not take it because it would or did cause me a problem somwhere along the linel, either on its own or in combination with something else......

Pretty vague huh?

Mo

I understand where your brain is at the moment.Please send (email) copy for editing.best wishesBob

[Guest guest]

Hi Mo hon

''I have a vague

feeling I may have missed you from you Dawn?''

The on fun in all this is with me being brain fogged I have forgotton

too so we can not worry each other as we have both forgotton lol.

I am aware of your worries with your cognitive function but I and so

many on here do understand it hon, so worry not, we love ya . You

are always trying to help someone despite your difficulties and that

doesn't go unnoticed.

Keep yer chin up sweetie, we think the best of you.

lotsa luv

Dawnx

[Guest guest]

Now you've made me shed water you norty gel! Mo xxx

The on fun in all this is with me being brain fogged I have forgottontoo so we can not worry each other as we have both forgotton lol.

[Guest guest]

Awe, me too, passing u a tissue x

>

> Now you've made me shed water you norty gel!    Mo

>

> The on fun in all this is with me being brain fogged I have forgotton

> too so we can not worry each other as we have both forgotton lol.

>

[Guest guest]

Hi Mo - Thank you for your explanation. I

hold my hands up to writing " this lack of thought for fellow

members is very frustrating for those who read direct from the forum web site

or who opted to receive a Daily Digest " - and without any explanation from

you or anybody else (either privately or on the forum) as to the reason they are

unable to do this, I consider this comment, under the circumstances, to be

reasonable. I will not hold my hands up though to saying you should " try

harder " .

It would, in hind sight, have perhaps been

better had you contacted the Moderators or myself and told us your difficulties

before now, and we would have understood and been happy to help you.

The letter was written to ALL TPA members.

Anybody having problems and not sure what to do about 'cutting' their messages

before sending them to the forum, please contact either Lilian, , Bob,

Gill, Lee (as in Appleyard) or myself privately and we will do what we can to

help you.

If you wish to discuss this further Mo,

please contact me off forum.

Luv - Sheila

Hi list ~

I think I have been at fault in not editing posts for the list and I

wrote to the list and apologised when Sheila brought it up recently.

And also wrote to the list in response to 's comments with an

explanation as to the reasons for the problem. I felt misunderstood and

hurt when the response was to " try harder " . I wondered if we would

say

that to a hypoT patient who could not walk? it seems it is alright to

say it to someone whose brain does not work.

[Guest guest]

> Has anyone else with this issues found strategies that help get

>through the day, get through the chaos? I have been trying to

write

>a letter to Dr Peatfield for two months now and I cannot organise

my

>thoughts enough to be able to complete it and send it to him.

First of all Mo, reading your post almost made me cry. What you

describe is so much like my own experience. And as my mum had

Alzheimers for some years before she died that was always on my mind

as to whether or not what was happening to me was actually the

beginning of that dreadful disease. In fact that fear rose it's head

head again this week as I watched the programme about Terry

Pratchett.

And although my brain fog and function has been very much better

these last six months, my memory is still bad enough at times to

make me wonder still. So I understand your worries in that respect.

As for coping strategies, I've tried to think what I did. Most times

I just sat and got upset with myself to be honest. Organising

thoughts was like trying to catch the wind. Often I'd end up not

even starting because I couldn't mentally arrange a string of words

in my mind and hold them long enough to get them down on paper

before I'd forgotten what I was going to put. That led to

frustration and I got to the point where I was actually frightened

to start anything because I knew what was going to happen and I

couldn't bear going through it all over yet again. Like having salt

rubbed in a wound.

So, silly as it sounds Mo, I think my best piece of advice would be

not to be put off trying. I used to write down random thoughts, not

even try to organise them. Just get everything down on paper or

online somewhere. When I thought of something when I was washing up

or whatever I'd have a notepad handy and scribble down whatever it

was in case I forgot it later. I learnt never to put off doing that.

Then if I had a good idea about how to word something or how to

organise my thoughts I'd write that down too. It was all random, no

order but I somehow felt better at least knowing my thoughts had

been captured somewhere and I couldn't lose them again. I could see

them! It sounds ridiculous but it was comforting and reassuring and

at that time I needed that more than anything because it gave me

control and that was what I felt I was losing.

I would then go through a similar process logging all my thoughts

about organising everything. All ideas, however rough or unfinished

or half worked out, would go down on paper. I would end up with

loads of notes which sounds frightening I know in the circumstances

but grappling with something you can see is easier than grappling

with invisible thoughts.

I've made it sound easier than what it was I'm sure and perhaps this

wouldn't work for you Mo but I just felt so much sympathy for you

that I wanted to share one of the coping strategies that worked for

me.

I hope all this doesn't sound too patronising. I know how much you

have on your plate lately Mo (oops, probably not the best expression

to use at the moment, food intolerances not withstanding!)so I hope

you find an answer to this awful brain fog soon. It really can be

soul destroying.

Love x

[Guest guest]

Hi Mo,

I read a little anecdote recently and the punchline (so to speak) was

" this too shall pass " . In other words, nothing lasts forever. Its so

simple, yet so true.

No matter how utterly crap life is right now, it will pass. Things

are always changing; this is no different. You're doing so much to

get your health back, that it WILL pay off.

Although it may not feel like it right now, you're probably making

more progress now than you've made in years. It will take time, but

you're working with the knowledge of one of the best doctors in this

field.

This is your " dark night before the dawn " . But this too shall pass.

I hope this doesnt sound trite because it truly isnt meant that way.

Sometimes its this very thought that gets me through the bad moments,

knowing that nothing ever stays the same. Even the crap.

Big hugs from me!

Marie xx

[Guest guest]

Hi ~,I forced myself to watch most of the Terry Pratchett programme the other evening. Didn't watch it all as I found it too uncomfortable and to be honest I thought he was way better off than me! Appreciate he is at early stages though.

It is encouraging to know that you are much improved and I sincerely hope that this improvement continues for you.

You able to epxlain so very well how it is for you - I could not even begin to explain to anyone what it is like which compounds the problem hugely. How can I explain what I cannot remember almost? Or organise my thoughts around the issue enough to put it into words. My son thinks I am just a bit stupid I think as he has never known me to be any other way though I have got a lot worse in recent times. I have had episodes of losing chunks of time. Like going out to post a letter and pop into the local shop for a pint of milk only to return looking for the letter that I thought I had forgotten to take with me, search the house because it was important and needed to go that night, could not find it anywhere, getting increasingly frustrated tearing the place apart........ when the penny began to drop........ I HAD already posted it! This sort of thing happens to me and that is the most frightening I think because it is almost like daytime sleepwalking

and I fear what could happen to me. And does it happen to me when I am unaware of it?!

I have a heap of diaries and notebooks but they are all over the place and not set out in any organised way. So your idea is a good one . If I place them carefully at strategic points, then maybe this would work for me. I will certainly try it, thank you.

xx Mo

And although my brain fog and function has been very much better these last six months, my memory is still bad enough at times to make me wonder still. So I understand your worries in that respect.

[Guest guest]

Well Marie I am due a transofrmation! Overdue...

And yes you are correct of course, nothing stays the same and all this hard work with the food is bound to pay off at some point just wish it would hurry up a bit.

And I will get on the folic acid as Bob helpfully suggested and who knows?? A Whole New Me by Easter.

God is good and in her heaven after all, is she not?

Mo

This is your "dark night before the dawn". But this too shall pass.

[Guest guest]

Hi Mo

It's best combined with vitamin B12.

That's the usual 'warning' on using folic acid.

best wishes

Bob

>

>

> Thanks for thaqt Bob. I have Googled about the folic and it looks

like a runner...... Problem is, somewhere in the back of my damaged

brain,

[Guest guest]

OK well I will need to get some of that too, ta Bob.

You have posted helpful info about Vit D in the past too Bob and Marie (thank you M) posted a lovely link recently with details of how to get tested so I had an email from the good people in Americay telling me it is winging its way to me, so it will be nice to know my status, my GP is a useless ***** and will not test for anything!

Mo

From: bob.m9uk <Bob.m9uk@...>Subject: Re: on being "thoughtless" and needing to "try harder"........ not editing poststhyroid treatment Date: Friday, 6 February, 2009, 9:56 PM

Hi MoIt's best combined with vitamin B12.That's the usual 'warning' on using folic acid.best wishesBob

[Guest guest]

''As I was doing this week's newsletter, I was feeling a little

guilty. I, like so many other people in this country, frequently don't

get enough sleep. On those days after inadequate sleep, your ability

to process information, recall and retain information clearly suffers.

I think it is critically important for all of us to make sleep a major

priority in our lives.''

http://www.vitacost.com/Sleep-Deficiency-and-Its-Impact-on-Health?csrc=EM-FYH200\

90206:main

Mo hon

I know for a fact you have real trouble with sleep and I am sure your

brain fog, and your memory problems would improve (obviously with our

condition probably not entirely) if you could just get some good

quality refreshing sleep. How long have you been sleep deprived? It is

bound to have an impact on your mind. I pray you will as it would be

lovely for you and I know this is one of your big problems too.

sending big (((hugs)))

luv Dawnx

[Guest guest]

>I have had episodes of losing chunks of time. Like going out to

>post a letter and pop into the local shop for a pint of milk only

>to return looking for the letter that I thought I had forgotten to

>take with me, search the house because it was important and needed

>to go that night, could not find it anywhere, getting increasingly

>frustrated tearing the place apart........ when the penny began to

>drop........ I HAD already posted it! This sort of thing happens to

>me and that is the most frightening I think because it is almost

>like daytime sleepwalking and I fear what could happen to me. And

>does it happen to me when I am unaware of it?!

Oh Mo, this used to happen to me as well. You'd laugh if I told you

some of the stories, very similar to the one you tell here, only it

wasn't funny at the time. I honestly used to think I was going mad.

I only share this to hopefully encourage you to believe it can get

better and that whatever mechanisms in the brain are at work, those

areas are not permanently damaged and can spring back to normality

when the appropriate treatment is found. I wouldn't have believed it

possible had I not experienced it for myself.

I know that for you as for many of us it's finding that exact right

treatment that is the problem. But you're on your way Mo and soon

you will turn that important corner to better health. Hope you see

improvement very soon.

Be gentle with yourself

Love x

[Guest guest]

You see, and this kind of demonstrates one aspect of my brain problems, I did not even tell that tale properly - I got it all mixed up!

What actually happened is that I went out to buy the milk and post the letter. I did this, came home and sat down to watch the telly.....

Then after a while I thought I should go out and post that letter and get some milk........

So I hunted for the letter and hunted and hunted and hunted. The penny began to drop...... I had an image pop into my mind of the post box...... and me putting the letter in..... and I looked in the fridge and there was the new pint of milk!

Mo

I know that for you as for many of us it's finding that exact right treatment that is the problem. But you're on your way Mo and soon you will turn that important corner to better health. Hope you see improvement very soon.Be gentle with yourselfLove x

[Guest guest]

" This to will pass " sounds a lot like " They will get theirs in the

hereafter. " I wish this to would pass, but how many have found post

thyroid conditions healing. That does not pass -- it just keeps on

and on. And it will go on and on if action is not taken and if it

is not successful.

On that happy note, have a great day,

>

> Hi Mo,

> I read a little anecdote recently and the punchline (so to speak)

> was " this too shall pass " . In other words, nothing lasts forever.

> Its so simple, yet so true.

>

> No matter how utterly crap life is right now, it will pass. Things

> are always changing; this is no different. You're doing so much to

> get your health back, that it WILL pay off.

[Guest guest]

I've always taken great comfort from that very thought .... does it

also apply to GP's and Endo's do you think?

On this happy note I WILL have a great day!

Gillian

>

> " This too will pass " sounds a lot like " They will get theirs in the

> hereafter. " > On that happy note, have a great day,

[Guest guest]

Hi Mo

That was so funny.I had to come home sick Tuesday lunch.I had dropped my hubby at work that morning.Got into bed and I live in a bungalow I heard the front door go.I jumped out of bed and looked out the window and seen the car and started shouting to my hubby "whats going on Why are yuo home"It took a mo to realise twas I who had driven the car home.Talk about brain fog.Gawd help us

Margaret

From: mo osborne <mairinaineosborne@...>thyroid treatment Sent: Friday, February 6, 2009 10:56:49 PMSubject: Re: Re: on being "thoughtless" and needing to "try harder"........ not editing posts

.. The penny began to drop...... I had an image pop into my mind of the post box...... and me putting the letter in..... and I looked in the fridge and there was the new pint of milk!

Mo

I know that for you as for many of us it's finding that exact right treatment that is the problem. But you're on your way Mo and soon you will turn that important corner to better health. Hope you see improvement very soon.Be gentle with yourselfLove x

[Guest guest]

Morning Dawn ~ Yes it is a MAJOR MAJOR MAJOR problem for me and has been for years now. I will have a look at that intersting link in a minute.

I emailed the doctor in Wales recently asking for info on that sugar stuff that gives energy. It was working great for me except it made the insomnia ever worse and I was hoping for tips as I had tried taking it with food etc. etc. and nothing worked.

She suggested, quite forcibly, that what I needed to go was take the energy booster (cannot remember the name now) AND take sleeping tablets to ensure I slept well on it. She left me feeling quite

''As I was doing this week's newsletter, I was feeling a littleguilty. I, like so many other people in this country, frequently don'tget enough sleep. On those days after inadequate sleep, your abilityto process information, recall and retain information clearly suffers.I think it is critically important for all of us to make sleep a majorpriority in our lives.''http://www.vitacost .com/Sleep- Deficiency- and-Its-Impact- on-

[Guest guest]

Morning Dawn ~ Yes it is a MAJOR MAJOR MAJOR problem for me and has been for years now. I will have a look at that intersting link in a minute.

I emailed the doctor in Wales recently asking for info on that sugar stuff that gives energy. It was working great for me except it made the insomnia ever worse and I was hoping for tips as I had tried taking it with food etc. etc. and nothing worked.

She suggested, quite forcibly, that what I needed to go was take the energy booster (cannot remember the name now) AND take sleeping tablets to ensure I slept well on it. She left me feeling quite shake

''As I was doing this week's newsletter, I was feeling a littleguilty. I, like so many other people in this country, frequently don'tget enough sleep. On those days after inadequate sleep, your abilityto process information, recall and retain information clearly suffers.I think it is critically important for all of us to make sleep a majorpriority in our lives.''http://www.vitacost .com/Sleep- Deficiency- and-Its-Impact- on-

[Guest guest]

Morning Dawn ~ Yes it is a MAJOR MAJOR MAJOR problem for me and has been for years now. I will have a look at that intersting link in a minute.

I emailed the doctor in Wales recently asking for info on that sugar stuff that gives energy. It was working great for me except it made the insomnia ever worse and I was hoping for tips as I had tried taking it with food etc. etc. and nothing worked.

She suggested, quite forcibly, that what I needed to go was take the energy booster (cannot remember the name now) AND take sleeping tablets to ensure I slept well on it. She left me feeling quite shaken and her words still reverberate - she said at your age you do not have time to waste, you need to get a life while you still can!

Wow! That hit me hard but only because I know it to be the truth. She said she was not concerned about addiction to sleeping pills at my age and that she would prescribe if I were her patient. She really made me think that perhaps this is the way to go. I know, I know, I really do know about the dangers of addiction and I had to wean myself off Prozac and Temazapam not that long ago and with great difficulty but maybe she has a point I am thinking. Maybe it is a case of weighing up which is the greater eveil here? the lack of sleep and what that does to me vs dependence on sleeping pills and have a life/energy.

I have a job interview for a voluntary counselling post later this month and, as things stand, I don't think I will be able to even make the interview. Now if I had some sleep and some energy, I could do that!

My GP, and various predecessors, have done absolutely nothing to help in any way at all. Zilch. All that happens now is they try to bully me into stopping the thyroid tx every time I go there and leave me in tears so there is nothing on offer there but grief and plenty of it.

How is your sleep these days Dawn?

Mo

''As I was doing this week's newsletter, I was feeling a littleguilty. I, like so many other people in this country, frequently don'tget enough sleep. On those days after inadequate sleep, your abilityto process information, recall and retain information clearly suffers.I think it is critically important for all of us to make sleep a majorpriority in our lives.''http://www.vitacost .com/Sleep- Deficiency- and-Its-Impact- on-