Re: Witch hunt - a thought

[Guest guest]

Especially where there are a lot of people who have been diagnosed with CFS and cannot work who in fact get better with proper thyroid treatment.

Also they are now trying to get people to stay in work longer and a lot of hypothyroidism starts in the middle to later years. People who give up work because they are 'tired' and told it is their age, could possibly carry on working, when treated properly.

Lilian

[Guest guest]

& Lilian

I wholeheartedly agree. I am one such person. I am really struggling

to cling on to a job which is fast disappearing on all fronts. I have

been battling with the NHS for the past 2 years to get optimal

treatment to improve my chances and move on to something within the

same company but its been so dragged out I now face redundancy. At 53

and in my current befuddled state I stand little chance of finding

another job with the same salary and benefits and to be honest I

haven't got the will to try any more. I am so tired and brain fogged

every day I just want to give up and do something less demanding and

stressful but I know this then places all the financial burden on my

husband who's own future income is currently uncertain.

I have worked full time all my life and brought up 2 children without

support. I have never claimed any benefits but at a time in my life

where I need help from the state - where is it? I have so much debt I

face bankruptcy if I am made redundant - no coincidence my debt

exactly equals the amount my ex husband owes in unpaid maintenance!!

All this on top of feeling almost constantly under par is a step to

far. Still at least if I am laid off I can divert what energy and time

I do have into fighting back at the idiots who put me in this position!!

Regards all

>

> Especially where there are a lot of people who have been

diagnosed with CFS and cannot work who in fact get better with proper

thyroid treatment.

>

> Also they are now trying to get people to stay in work longer and a

lot of hypothyroidism starts in the middle to later years. People

who give up work because they are 'tired' and told it is their age,

could possibly carry on working, when treated properly.

>

> Lilian

>

[Guest guest]

- this is quite a thought and needs looking into. I have my hands tied at the

moment, I cannot take on anything else right now until I get other things out

of the way first. Any enquiries you can make, or information you can collect,

please do so, and if anybody can help on the forum, please let know.

Luv -

Sheila

Hi Sheila/ all,

Have been thinking (for most of the night) and have had a thought

(just the one!). It is my job to work with individuals with

disabilities to get them into work,and off bnefits as you probably all

know, it is a huge DWP agenda to move people from incapacity benefit

and back into the working world. The are even phasing out incapacity

benefit and replacing it with employment support allowance. This new

revelation about armour is huge, in relation to this. If we are

talking about the economics of it all which invariably we are then

does the dwp know about this recent decision? Also does the dwp know

about all of your wonderful work and this forum Sheila? I think it may

be an idea to try and get a handle on the facts and figures of people

who are unfit for work and claiming benefits that could be made well

with a raised awareness of all of this, I know it is a huge task and

probably an unknown entity, but if the DWP are trying to reduce claims

for incapacity benefit then perhaps we need to be presenting them with

this information? Just a thought,

[Guest guest]

Hi Sheila,

I have e-mailed Dawn my contact details as I am interested in joining

a local group, I would be more than happy to explore this avenue

further as a focus in one of these groups. I'm not sure how this piece

of work would be best approached, yet but will keep thinking.

>

> - this is quite a thought and needs looking into. I have my

hands tied

> at the moment, I cannot take on anything else right now until I get

other

> things out of the way first. Any enquiries you can make, or

information you

> can collect, please do so, and if anybody can help on the forum,

please let

> know.

>

>

[Guest guest]

OH yeah, indeed

I took a degree for when my son left home so I could get a decent job

and support myself then BAM - TOTAL incapacity. I am now CFS,

Hashimotos disabled full DLA and absolutely na***red. So they could

save some money getting me back into work and I could pay the darn

student loan and overdraft back

Good point

lotsa luv

Dawnx

[Guest guest]

I have no idea about anybody setting

up a 'local' group , where has this suggestion come from? I see the

suggestion of a working party/steering committee as an Internet group and I

think of 'local' groups as places where people go to each others houses or

meeting rooms to discuss thyroid related matters. There ARE local support

forums up and down the country, but TPA doesn't have any. If you want to join

such a group, contact Lyn Mynott at Thyroid UK or (dare I say it) the British

Thyroid Foundation who have lists of members who run them.

Luv - Sheila

I have e-mailed Dawn my contact details as I am interested in joining

a local group, I would be more than happy to explore this avenue

further as a focus in one of these groups. I'm not sure how this piece

of work would be best approached, yet but will keep thinking.

_._,___

[Guest guest]

Hi ,

This is a very interesting angle. I never returned to the formal

workplace following diagnosis. I am self employed so I can do what I can when I can, but

even now the thought of doing a 40 hour week is daunting, and I’m so much

better then I was on T4.

Hi Sheila/ all,

Have been thinking (for most of the night) and have had a thought

(just the one!)., but if the DWP are trying to reduce

claims

for incapacity benefit then perhaps we need to be

presenting them with

this information? Just a thought,

[Guest guest]

Hi Sheila,

Sorry for any confusion re 'local group', what I was referring to was

the campaigning team volunteers as posted by Dawn, she suggested small

teams of 4, targeting different areas to help with any campaigning -

hope I haven't got it totally wrong,

>

> I have no idea about anybody setting up a 'local' group , where has

> this suggestion come from? I see the suggestion of a working

>

>

>

>

>

> _._,___

>

[Guest guest]

No

- tis me getting confused - so if I'm confused, I'm sure you are too - so

let's be confused together. I just took it to mean something different - as

states, it's the 'imprecision of the language'. I have no idea what Dawn

means when she suggests small teams of 4 targeting different areas to help with

campaigning - certainly this did not come from TPA. Perhaps when she comes back

she can throw more light on this 'cos I is confused.

Luv -

Sheila

Sorry for any confusion re 'local group', what I was

referring to was

the campaigning team volunteers as posted by Dawn, she suggested small

teams of 4, targeting different areas to help with any campaigning -

hope I haven't got it totally wrong,

.._,___